It is January 2024
I'm still a Covid ward nurse
In the last couple months I've seen 3 people die specifically and directly because they chose to go on a cruise or bus tour as their way to enjoy retirement / enjoy their time before they need a rest home
Covid ages older people a decade in a week
People who were still managing to live independently at home with maybe a cleaner once a week - again and again I see them spend 3 weeks in hospital and be forced to discharge straight to an aged care facility, if they come out of it at all.
Don't let older people go on things like bus tours and cruises.
A memorable holiday with your partner, very easily ends with one of you losing your life, and the other never being the same again, and never being able to go home again.
Wear a mask.
Get vaccinated.
Quit smoking.
Encourage community or social events to continue to provide some degree of Covid safety.
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Tw for weight loss mention
The whole exercise will cure your disability thing is a fucking joke. Yes exercise is beneficial for your health, but only if you aren't already on shaky foundations. You need to be on a treatment plan that WORKS before going into the maintenance phase. You wouldn't do regular maintenance on a broken item, you'd work on getting it up and running first. And maybe it would even need specialized maintenance afterwards if it's especially fragile.
I have fibromyalgia and acute degenerative disc disease. My immune system attacks my nerves and discs in my spine are slowly calcifying and causing the bones to constrict and damage my nerves (i think thats how it works). I have days where it feels like my body is on fire from nerve pain and days where it feels like my spine is about to rip from my back. And days where I have both (like today!). I get numbness in my hands and feet. I have horrible migraines. I can no longer walk unaided more than maybe 5 minutes without severe pain. I have something wrong with my knees and hips but the doctors don't know what yet.
You'd think I live an obviously seditary lifestyle correct?
Hell no.
I walk aided on average 6 miles a day over difficult terrain OUTSIDE of regular activity almost everyday. My legs are muscular and strong. I get my heart rate up and a good sweat, like all the gym rats swear on. I am often doing physical labor such as weeding, digging, sample collecting, pruning trees etc.
I'm not saying this to make other disabled people feel bad or prove that they can do anything if they just tried harder. This is an extremely painful lifestyle I've chosen that takes a lot of lifestyle management AND BOUNDARIES to keep up with the work. I also have an extremely forgiving boss who is also physically disabled and knows what I'm going through (deciding between your passion and your health and having to do so each and every day) No one should ever be expected to do what I do. I'm not even sure if I should be doing this myself.
This is to prove that exercise? Has not cured me. My muscles are strong but still hurt as if they're broken and I have to take more breaks than my coworker. I am constantly getting out of breath and I flare up regularly if I'm not careful. I am in excellent physical condition outside of my disabilities. I go to different doctors several times a month to get checked out.
I previously went through a diet program and lost a lot of weight (basically starving myself and got off my depression meds which cause weight gain but are also the only ones that work) and guess what? That didn't do shit either!!! I still felt horrible!!! I've since gained back the weight anyway after switching to focusing on adding more nutrient dense foods than taking stuff away from my diet (also muscle weighs more than fat, and fat helps cushion my aching joints and spine).
The muscle doesn't do shit for my disabilities outside of maybe some stability. Exercising everyday doesn't make the pain go away. Without my medications and aids and nutrition plans and steroid injections and spinal adjustments and physical therapy (that takes my fibro and spine into account) and alternative work methods I WOULD NOT BE ABLE TO DO WHAT I DO. Exercise alone is like trying to make a car run with no oil. Yes it'll go but it'll get more and more damaged till it can't and will need its entire engine replaced!
And yet I see new doctors and they look at me and the first thing out of their mouths is do I exercise? I should try doing a little every day :) and then i fucking blow their minds when I tell them about my job. No longer can they use that fucking cop out on me. I've been through this rodeo. Ive tried their suggestions. If you are in pain and nothing is helping? Exercise ain't going to do SHIT. You need to get to a point where you can move without severe pain first (if that's even possible). Then and only then should you consider implementing regular exercise if you can. Also weight loss talk is a red flag and a cop out. They made me lose 50+ lbs before they would look into the reasons behind my pain. Weight loss did nothing for me and exacerbated my pain.
I am living proof that all that shit is a lie and a cop out. That is the point of this post. I cannot believe people with serious medical conditions are being forced to put their bodies through extreme duress just to be believed. You are not disabled because of laziness or because you sit a lot. Plenty of people live seditary lifestyles and do not live in constant excruciating pain (they may develop disabilities later in life due to this however, and should be doing preventative exercises to maintain their health)
Please, share my story with doctors. Use me as an example. I am proof that "exercise first treat later" does not work. I should not have had to wait years to have my pain validated. I'd rather hundreds of fakers get (what? A blood test? An MRI?) than one chronically ill person get told to try yoga and go away by a doctor.
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“If you open that closet, you’ll probably find my pandemic sleeping bag, alongside toads, snakes and forgotten covid variants.”
The forgotten hospital closet.
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Yet another PSA from your friendly neighbourhood ward nurse
If you or a close person ends up in hospital please check in and make sure we have your contact details correct.
We go over the personal info form with all newly admitted patients, but these days most people don't have phone numbers memorized, and even though we check, contact numbers for next of kin often don't work when we try to call you.
Check your phone and make sure you've got an emergency contact number set up
Make sure your important people are clearly labelled (I have my people saved by actual name, but then also labelled with relationship like mother and housemate, and have them starred as important contacts)
Check in with your older relatives or neighbours - make sure that they have this set up in /their/ phones as well
And if they are older and at risk of becoming confused when unwell, it may be worth setting up their phone so it does not require a password
I don't know if that's official recommendation or not
All I know is that the other night, we had a new admission brought in by his neighbour, who had checked on him because she hadnt seen him in a few days
She found him collapsed at home - weakened because of Covid
None of the contact numbers we had on file for his family worked
He collapsed again within an hour of us receiving him
He was dead within 5 hours
The only person we could call was the neighbour who brought him in
The only reason we managed to contact his family at all was because he had his phone in his pocket, it didn't need a passcode to unlock, and the doctor could go through the numbers that shared his family name
Please
Wear a mask
Get vaccinated
Check on your neighbours
Check on your elderly and at risk community members and family
Go through safety precautions with them - make sure they have these things set up
Help them set up their phones so they can easily use them even if feeling confused
That's the difference between dying alone or not
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I’m gonna brag on myself for a minute because my self-confidence has been shit lately (thanks winter, for your annual crushing blow to my ego!) but I am, in fact, really good at language acquisition. Like, heretofore it was kind of a stupid superpower that I had never once thought to use for Good
which is why, when I had some kind of visitation from The Lort Almightee last summer and They were like "heyy how about you do something to tangibly improve the place where you live. and also start supporting tribal sovereignty. immediately"
I was like (falling out of my chair, trembling) "uhhhhhh I can learn languages weirdly fast??" and lo, God threw the newly-created UMN Dakota Language major directly in my face and Commanded, "GET TO WORK BITCH"
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i went to the dark spooky evil hospital and the beautiful nurse there drank all my blood and kissed my forehead so sweetly. if you even care
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