#epileptologist

[herbatahleb]

the doctor said she didn't know what I had and now I need to go to an epileptologist and spend money on a bunch of tests😭

[sovamurka]

My 2019 self: Did one of our greatest fears come true? Are you on antidepressants? 

Current me: Yeah. Lamotrigine be upon ye-

[ahalal-uralma]

I am diagnosed with epilepsy and migraines. Neurologist has ruled out any other causes for seizures through blood work and brain mri. I am going for EEG testing and will see epileptologist next. I won’t be on too often till I’ve adjusted to my treatments. I am on my first round this week for seizure medication that focuses treatment on focal seizures, but I know I need a lot more nuanced care than that and have to be careful.

Hope everyone is taking care of themselves. ♥️

[the-twitchy-life]

Alright. So I have a question. If anti-epileptics only work on epileptic seizures, then they wouldn’t work on psychogenic non-epileptic seizures right?

Cuz my current neuro isn’t taking into account that my seizures have been reduced with this medication and have taken to a cyclical pattern. But she can’t diagnose me with anything until I can get into an EMU. Which I am VERY poor and can’t afford the hospital bill.

This is the same neuro who was all gung-ho about confirming these as epileptic seizures until I told her I had mental illnesses. But that these weren’t caused by that and that I’ve also had myoclonic jerks since as long as I could remember.

At what point do neuros actually look at evidence? Because I can barely afford to see her as is. I’m not the type of person to say that I know more than the doctor. But she’s not LIVING this and it REALLY undermines my experiences when she was all “well until you get into the EMU, you should probably find a therapist”.,

So, most neuros will diagnose you and treat you with just an EEG- an outpatient procedure that takes a few hours, but is gonna be a hell of a lot cheaper than an inpatient EEG/EMU.

And while seeing a therapist is a great idea (like, just generally for life), it sounds like you need a new neurologist. Get a referral from your primary care if you need, but you should see someone who actually will treat you.

I'm not sure about the functioning of all anticonvulsants, but many of them work on multiple kinds of seizures/conditions. My mom and I took the same med for a while- her for migraines, me for seizures. Keppra is used for certain psychological conditions, as well as seizures. They're not epilepsy-specific. But if they're helping you, that's something to be celebrated!

Your epileptologist is being a jerk. If they're the only epileptologist in town, you might be better off with someone less-qualified who takes you seriously.

That said, it might be possible to get that EMU visit way, way cheaper. Potentially free. Depending on your income bracket, if you can't pay something then your hospital might have to just forgive it. I'm a little foggy on the details bc I live in Massachusetts, but call their finance office.

[lambsearandlavender]

My sleep study didn't show shit except the sleep apnea we already knew about (now listed as mild to moderate instead of very mild) and that I have limb movements well over 100 times/hour. So maybe we can do something about that I guess. Eeg... totally normal.

So today I saw the epileptologist and tbh I loved her, but she told me all the things I was most afraid to hear.

She did say we need more info and she wants me to do the week long impatient eeg/heart monitor/etc so she put in that request.

Then she went over things really thoroughly with me and said she would guess it's not epilepsy. More likely is one of two things... one is that other medical conditions are causing me to have seizures (likely a combo of apnea and who knows what else... you know the other mystery symptoms I've been trying to get diagnosed for 8 years? Yeah those) If that's the case, I'm back at square one... more and much worse symptoms and still I don't qualify for a diagnosis of anything and we don't know how to treat it.

The other option is psychogenic pseudoseizures. That my trauma and mental illness have just done this to me and... there's no treatment or fix. I'm just like this now. She suggested that could be the cause of my chronic pain too. She was very empathetic and kind about it, but wants me to know that's a real possibility.

I feel so beyond hopeless. Epilepsy was something we could treat. Pnes isn't... and my other medical stuff isn't either if we haven't figured it out in 8 years. So we'll run the extra tests but most likely, I'm literally fucking doomed to just live with decreasing function and cognitive decline forever.

[drmonika]

Consultant, Paediatric Neurology, Motherhood Chaitanya Hospital

“I introduce myself as Consultant Paediatric Neurologist at Motherhood Chaitanya Hospital, Chandigarh. I have done my basic paediatric post graduate (DCH) training from MGM Medical College, Indore & GMSH (DNB). This was followed by senior residency at GMCH Sector 32, Chandigarh & ESIC Model Hospital & Research work at PGIMER. I developed a keen interest in paediatric neurology & was likely to complete paediatric neurology & epilepsy fellowship under Dr.Vrajesh Udani one of the doctors in this field at P.D National Hospital & MRC Mumbai. During my fellowship I got to manage wide spectrum of patients suffering from neurological disorders at Hinduja, Breach Candy &Saiffee Hospitals, Mumbai.I have also trained at university hospitals, CWRU Cleveland where I successfully completed epilepsy & Neurophysiology course under Dr. Hans luders, a world renowned Epileptologist.”

[amitshahneuro]

Optimizing Epilepsy Treatment: Insights from Dr. Amit Shah, Best Neurologist in Mumbai

Considerations for Discontinuing Epilepsy Medications After Surgery

1. Type of Epilepsy:

Certain types of epilepsy may allow for a reduction or discontinuation of anti-seizure medications post-surgery if the epileptic focus is successfully removed.

2. Success of Surgery:

The effectiveness of the surgery in eliminating the source of seizures is a crucial factor in deciding whether to discontinue medications.

3. Risk of Seizure Recurrence:

The potential for seizures to recur after medication discontinuation varies among individuals and is an important consideration.

4. Post-Surgery Monitoring:

Close monitoring, including EEGs and clinical assessments, is standard for individuals post-epilepsy surgery to evaluate seizure activity and overall neurological function.

5. Discussion with the Neurologist:

The decision to stop medications must be made in consultation with the neurologist or epileptologist, considering factors like medical history, epilepsy type, and surgical success.

Note:

Sudden discontinuation of anti-seizure medications without proper medical guidance can be dangerous, emphasizing the need for consultation with healthcare professionals.

For more information & consultation on Best Neurologists In Mumbai Call our expert Dr. Amit Shah on 98195 61456 or Book an Appointment

[epilepsysurgery]

Join the Premier Epilepsy Surgery Meeting – Unveiling Innovations and Advances in Treatment. Visit iesscongress Today! 

Embark on an enlightening journey at the inaugural 1st International Epilepsy Surgery Society Congress (IESS) Dubai, 2024 from January 19th to 21st, 2024, hosted at the prestigious Conrad Hotel, Dubai, United Arab Emirates. Discover unparalleled advancements, innovative treatments, and comprehensive discussions in epilepsy surgery meetings. Engage with leading professionals, Neurosurgeons, epileptologists, and neurologists, fostering collaborative exchanges on cutting-edge surgical techniques and patient care strategies. This pioneering event, hosted by IESS, promises groundbreaking insights into the latest research and advancements in epilepsy treatment. Seize the opportunity to network with global experts and contribute to shaping the future of epilepsy care. Secure your participation by registering at the official IESS Congress website: https://www.iesscongress.org/. Just visit iesscongress today! 

[doctubehealthcare]

Diagnosis and Treatment of Epilepsy

Epilepsy is a neurological disorder where a patient suffers from recurrent and unpredictable seizures. Seizures occur due to abnormal electrical activity in the brain, resulting in a temporary disruption of normal brain function. Epilepsy can affect people of all ages and can be caused by various factors, including genetic predisposition, brain injury, tumors, infections or developmental disorders. Seizures in epilepsy can manifest in different ways, depending on the area of the brain affected. They can range from brief lapses in awareness or staring spells to convulsions and loss of consciousness. Some seizures may be preceded by warning signs called auras, which can include visual disturbances, unusual sensations or emotional changes. The diagnosis of epilepsy is typically made after a person has experienced at least two unprovoked seizures. Medical professionals use a combination of clinical history, neurological exams and diagnostic tests such as electroencephalogram (EEG) to evaluate and diagnose epilepsy. It is important for people with epilepsy to work closely with healthcare professionals to develop an individualized epilepsy treatment plan and to take necessary precautions to minimize the risk of injury during seizures. With proper management and treatment of epilepsy, many individuals with epilepsy are able to lead active and fulfilling lives.

Diagnosis of Epilepsy

The diagnosis of epilepsy typically involves a comprehensive evaluation process conducted by medical professionals. Before initiating the treatment of epilepsy, the following methods are used to diagnose it effectively:

Medical history: The healthcare provider will begin by collecting a detailed medical history of the individual before starting relevant epilepsy treatment (Watanabe, E., Nagahori, Y. and Mayanagi, Y., 2002. Focus diagnosis of epilepsy using near‐infrared spectroscopy. Epilepsia, 43, pp.50-55). This includes information about the patient’s symptoms, the frequency and duration of seizures, any potential triggers, family history of seizures or epilepsy and any other relevant medical conditions.

Physical examination: A thorough physical examination will be conducted to look for any signs or symptoms that may be associated with epilepsy or other underlying medical conditions.

EEG: An EEG test is a crucial tool in diagnosing epilepsy. It involves placing electrodes on the scalp to record the electrical activity of the brain (Pillai, J. and Sperling, M.R., 2006. Interictal EEG and the diagnosis of epilepsy. Epilepsia, 47, pp.14-22). Abnormal patterns of brain waves known as epileptiform discharges can indicate the presence of epilepsy or seizure activity.

Additional tests: In some cases, additional tests may be ordered to gather more information and assist in the diagnosis. These can include brain imaging scans such as MRI or CT scans. These scans can help identify any structural abnormalities or lesions in the brain that may be causing the seizures.

Depending on the complexity of the case, individuals may be referred to a neurologist or an epileptologist, who are doctors specialized in the diagnosis and treatment of epilepsy. 

Treatment of Epilepsy

The treatment of epilepsy aims to control seizures, reduce their frequency and severity, and improve the individual's quality of life. The specific treatment approach depends on various factors, including the type of seizures, the underlying cause of epilepsy, the individual's age, overall health, and their response to previous treatments. Here are some common treatment options for epilepsy:

Medications: Anti-epileptic drugs are usually the initial treatment of epilepsy. There are numerous AEDs available, and the recommended medication depends on the seizure type and individual factors. These medications work by stabilizing the electrical activity in the brain and reducing the likelihood of seizures. It is important to take the prescribed medication consistently and as directed by the healthcare provider.

Ketogenic Diet: This high-fat, low-carbohydrate and adequate-protein diet is known to be effective in reducing seizures, particularly in children suffering from epilepsy. It is typically supervised by a dietitian and requires careful monitoring.

Vagus Nerve Stimulation: VNS is a surgical treatment option that involves implanting a device under the skin of the chest that stimulates the vagus nerve (Binnie, C.D., 2000. Vagus nerve stimulation for epilepsy: a review. Seizure, 9(3), pp.161-169). This stimulation can help reduce the frequency and intensity of seizures in some individuals.

Responsive Neurostimulation: RNS is a newer treatment approach that involves the implantation of a device into the brain. The device detects abnormal brain activity and delivers electrical stimulation to prevent seizures from occurring.

Epilepsy Surgery: In cases where seizures are localized to a specific area of the brain, surgery may be the only option related to epilepsy treatment. The goal of epilepsy surgery is to remove or disconnect the brain tissue responsible for triggering seizures.

Lifestyle Modifications: Certain lifestyle changes may help manage epilepsy and reduce the risk of seizures. This comprises managing stress, following a good sleep schedule and avoiding seizure triggers like specific foods or alcohol and following medication schedules effectively.

[cupcakethewary]

First time high in 6 years!

Like I used to be able to smoke weed, then a couple years in it just became a sudden trigger for seizures. Even second hand smoke and sooo many CBD products.

But now I've been seizure free for 2 years. Got a thumbs up from my epileptologist, and have been slowly trying out weed again. Inches. But today I actually got fully high. Omg this is a really cool headspace.

I feel upbeat and like I can think faster and have more thoughts and process more. I feel more fascination and curiosity. And more horniness as well.

[ahalal-uralma]

Epileptologist fixed my diagnosis.

I do not have epilepsy, but psychogenic non epileptic seizures triggered by a rare form of severe migraines and PTSD. I’ll still continue treatment on the preventive medication I am on, but he doesn’t want me to get put onto any further medications for seizure treatments.

He would like me to see a psychiatrist to control them as they’re a defense mechanism against anxiety and pain, and they’re not a result of any electrical misfires we feared I was having.

Although, he strongly advised me to see a psychiatrist, he also told me not to worry that this is something I can conquer on my own, and not to lose hope no matter what…which was so sweet and rare to hear from any doctor. :,)❤️

[samreensway]

HISTORY-TAKING STATION OF SEIZURE 

HISTORY-TAKING STATION OF SEIZURE MRCS B OSCE - MOCK EXAM History-Taking Station of Seizure: Comprehensive Assessment for Accurate Diagnosis Explore the history-taking station of seizures in this comprehensive MRCS B OSCE MOCK EXAM video. Learn essential techniques for gathering detailed patient history, identifying seizure triggers, and understanding seizure characteristics. Enhance your skills in conducting thorough history-taking for accurate diagnosis and effective management of seizure disorders. Importance of Comprehensive History-Taking for Seizures: Understand the significance of conducting comprehensive history-taking for accurate diagnosis and management of seizure disorders. Learn how obtaining a detailed patient history helps in identifying potential triggers, understanding the seizure type, and tailoring treatment plans. Patient Interview Techniques: Discover effective techniques for conducting a patient interview during the history-taking station of seizures. We discuss the importance of active listening, open-ended questions, and creating a comfortable and non-judgmental environment. Enhance your communication skills to encourage patients to share crucial information. Identifying Seizure Triggers: Learn strategies for identifying potential triggers that may contribute to seizures. We discuss common triggers such as sleep deprivation, stress, medication changes, and sensory stimuli. Enhance your ability to recognize and address these triggers in order to minimize seizure frequency. Understanding Seizure Characteristics: Explore the various types of seizures and their characteristic features. We discuss focal seizures, generalized seizures, absence seizures, and other seizure types. Gain insights into the clinical manifestations, duration, and associated symptoms to aid in accurate diagnosis and classification. Seizure Diary and Documentation: Discover the importance of maintaining a seizure diary and documenting seizure events. We discuss the significance of recording seizure frequency, duration, triggers, and any associated warning signs. Learn how a seizure diary can provide valuable information for treatment adjustments and monitoring. Differential Diagnosis and Red Flags: Understand the differential diagnosis of seizures and red flags that may warrant further investigation. We discuss conditions that can mimic seizures, such as syncope, migraines, and psychogenic non-epileptic seizures. Enhance your ability to differentiate between epileptic and non-epileptic events. Collaborative Care and Referrals: Highlight the importance of collaborative care and appropriate referrals in managing seizure disorders. We discuss the roles of neurologists, epileptologists, and other healthcare professionals in the comprehensive management of seizures. Learn how to work collaboratively to optimize patient care. Conclusion: This informative MRCS B OSCE MOCK EXAM video equips healthcare professionals with essential techniques for the history-taking station of seizures. By conducting a comprehensive patient history, identifying triggers, and understanding seizure characteristics, you can achieve an accurate diagnosis and develop effective management plans for seizure disorders. Stay informed, continuously update your knowledge, and collaborate with other healthcare professionals to provide comprehensive care for individuals with seizures. Bli medlem i kanalen för att få åtkomst till flera förmåner: https://www.youtube.com/channel/UCkkvon_blxinTHc7DGuYkpQ/join

[selwlsa]

Two types of pediatric specialists can help you manage your child’s epilepsy - a neurologist and an epileptologist.

[littlemissmeggieseviltwin]

rant unrelated to anything

i have finally, after 20 years of struggling with what i would consider moderately severe acne, cleared it up. my face no longer has 10-20 huge cystic pimples at any given point. it has maybe 2 or 3 small clogged pores on occasion. that’s a huge win. but now i’m trying desperately to get rid of the insanely bad post inflammatory hyperpigmentation left from decades of acne. nothing is working. it’s awful and i just want to finally like my face and feel happy looking at myself in the mirror. i don’t remember that feeling. wherever i turn for advice on reducing my scarring—i’ve accepted that it will never go away completely—i see advice about “asking your dermatologist.” why is it assumed that i have a dermatologist? like i have a neurologist, an epileptologist, a regular old primary and gynecologist. for christ sake, i have a radiologist and brain surgeon assigned to my “health care team!” i’m supposed to be making an eye doctor appointment to check to see that i don’t have early stages of glaucoma. i have regular MRIs and bloodwork, the occasional CT scan to make sure my brain isn’t randomly bleeding. i can’t afford to have a dermatologist too!