i dont know how to say it or what to even do at this point
i am in an abusive housing situation. witch isnt really new info nor something i talk about often. i have learned to deal w/ shit on my own overtime, aswell as my situation getting slightly better with my distancing from certain family members. but its still bad.
my mother & my brother are both extremely abusive, my brother is phisically abusive, and my mother is a pedophile. they are the only other familial ties i have aside from my dad, and they obviously arent viable and would be worse for me.
my dad is my best option in terms of family and the only person i live with currently. when hes drunk he can be actively cruel & abusive, regularly threatening sexual abuse via forfeiting custody of me to my mother. but im still semi able to reason with him while he isnt drunk. most the times hes simply neglectful, witch is preferable to the alternative atleast. & can somewhat be manipulated into caring about me, or at the very least signing & agreeing to things if i do all of the other legwork
i have a disability of some sort, i have alot of theories but overall doctors refuse to properly test me. i smoke so, they just blame every single issue i have on that & dont listen to ANY of my concerns. somewhat similar to pots in terms of symtoms. i just call it "the slop", this sortof sludge that clouds all my thoughts and everything i do. when it gets bad i cant move properly, often knocking things over, completely losing my train of thought. it can be really hard to have conversations with me, i spend alot of time being silent, keep repeating the same simple few words, dont really listen properly. i can sometimes spend hours just staring off into space. it gets better when im laying down, but sometimes not even that helps. it takes a certain kind of determination to get literally anything done. witch is really hard given my lack of any kind of support.
if i am not extremely ontop of things, if i cant force myself to do things through the slop, then i end up getting into these sludge spirals. i dont eat. i dont drink. i just lay in bed. you get so dizzy and your mouth gets so dry, and so hungry, and the slop is just unbarable. not even really existing as a person, sleeping 18 hours a day, sort of halfheartedly & extremely badly trying to do basic tasks, like eating or drinking, and then after 4 hours i just. go back to sleep. its unbarable & dehumanizing. & its not like i have anybody that can help me. i explain this to people and then they always make suggestions on how to manage it that requires another person to help, and then they never listen when i say i do not have anybody.
i need to get some kind of treatment and i need to get some kind of testing, but doing so requires so much work so many phone calls so much effort that i HAVE to do on my own, that i just. dont have the energy for. its not that im intellectually or phisically incapable i just, im just always in slop. its just always a barrier i have to work around. and the fact that just. the entire fucking medical system is so rotten to the core w/ incompetance & malice twards queer and disabled people means that its just.. so hard to get anything done at all for treatment.
and beyond the fact i have to get meds, i also really need to work on moving out. while i dont think my dad would realistically kick me out until im 18, as that would require actually doing paperwork. i dont trust him to be nice to me beyond that point.
and incase i need to say this to some sheltered fuck who does not understand this. no i cannot go to dcs. i have dealt with dcs my entire life. dcs is not an organization made to help people. it never HAS been. any good they do is incedental. they are at their core a government organization that is supposed to sound good. they do not help children. my tharapist submitted a dcs report about my brother trying to kill me back in december, and i had a dcs worker come to my door and start defending pedophilia to me. every single encounter i have had with dcs has eaither done nothing or actively been harmful to me in having a dcs worker actively encorage my families various abusive behavior.
in summery, i need some kind of help figuring out a way to. deal with everything. ideally something that would help me with practical stuff like medical paperwork, scedualling appointments, that stuff. ideally focused on & or primarily targeted to queer autists in the 16 to mid 20s range of ages. and also that is within arizona. most of the stuff ive been reccomending is stuff like housing and independant living programs, witch while helpful what im looking for is primarily medical help & that is centered around more chronic issues & disabilities that like, need more testing & such to be diagnosed, and not really in the vein of teaching me how to do appointments & such, i know how. i just. am not super good at functioning in general.
dont dm me saying "oh im always here if u wanna talk!!" thats weird. i dont know you.
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Hira's year in medical review:
Me, August 2023: *experiencing extreme fatigue, fainting spells, mood swings, sudden and drastic increase of suicidal thoughts, and intense hair loss*
P.A: let's do blood work
Me: ok!
Bloodwork: *normal except for prolactin*
Doctor: sometimes that's a fluke so let's retest
Me: ok
Bloodwork: *exactly the same*
Doctor: your values are higher than normal range, but not high enough to be in range for a pituitary gland tumor.
(P.A: go see an endocrinologist and get an MRI, that might be indicative of a pituitary gland tumor.) <- bless this person and only this person in particular
Endocrinologist, seen earliest available which was January 2024: *wants to retest blood work instead of ordering an MRI*
Me: ... ok
Bloodwork: *the same*
Me: can we please do an MRI now?
Endocrinologist: Well. Your values are above the normal limit, but it's highly unlikely that's it's a pituitary gland tumor because they are not high enough for that. Let's retest blood work in four months.
Me: ...................... ok
Bloodwork, May 2024: *THE SAME*
Endocrinologist: hmm, I recommend an MRI
Me: *gesturing angrily*
MRI, June 2024: 🎉 pituitary gland tumor 🎉
Doctor, when I went in for something else: I doubt your endocrinologist will want to treat that, we typically don't treat adenomas that small
Endocrinologist, who took 3 weeks to review my results: I recommend just monitoring. It's highly unlikely that this is causing your symptoms, it's too small for that.
Me, July 2024:
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honestly. I don't really have a lot of interest in jjk anymore, which is super frustrating as the story foundation is really interesting. I have my favorite characters, and I'm not really interested in reading beyond this point.
As a whole, I'm not a huge fan of dropping stories just because they don't go the way you want. In general I personally try not to do this, but stories where the author clearly hates the material or the audience so much they're willing to destroy the story to do so are not enjoyable. I really don't think gege even really likes writing jjk anymore.
There may be some change that I hear about months from now where something worked out one way or the other, but in general I feel like this story is not going to resolve in a way that feels like reading it was a worthwhile experience. And like, for good OR bad. Not every story has a happy ending, but this is really not particularly interesting and I don't feel the need to continue a story where the writer isn't even interested in what happens or how it advances anything outside of their personal pettiness. Feels very much like grr Martin. All the meaningless death and abuse without any real redeeming qualities.
I'm trying to remind myself that not every author wants to be a storyteller. Not every story is good. It's ok to read stories that aren't the best simply because you want to see where it goes, but gege isn't superior in some way, and i dont 'trust that he's cooking'. Even if the story turns around in an interesting or strategic way, I really am not particularly impressed. Ordinarily I would stay along for the ride, but I can't bring myself to care about something even the author doesn't care about. :/
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