The Lord reminded me of this verse today and it always resets my sights on our true enemy. Man and Woman make silly and foolish choices and sometime maybe against me, but I choose to set my sights on the bigger picture. The unbound and limitless majesty of Adoni; God of the Universe. ☀️🌎🪐✨
”For we are not fighting against flesh-and-blood enemies, but against evil rulers and authorities of the unseen world, against mighty powers in this dark world, and against evil spirits in the heavenly places.“
- Ephesians 6:12 NLT
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The Unending Battle: Living with a Mysterious Illness
Shaina Tranquilino
December 16, 2023
Living with a mysterious illness is an experience that can only be truly understood by those who have gone through it. It is a constant roller coaster ride of uncertainty, frustration, and exhaustion. For the past 12 years, I have been plagued by this enigmatic condition that has gradually taken over my life. Today, I want to share my story and reach out to others who may be facing similar challenges.
The Journey Begins:
At the age of 18, life took an unexpected turn for me. What started as occasional bouts of sickness soon escalated into a daily battle against countless symptoms. Doctors' offices, hospitals, and specialist visits became my second home as I desperately sought answers to the mystery that had consumed my existence.
A Never-Ending Cycle:
Each passing year brought new ailments and symptoms that ravaged my body and mind. Insomnia robbed me of much-needed restorative sleep while low energy levels left me perpetually drained. Hot flashes and sweating made even simple tasks unbearable, while the absence of a menstrual cycle added further confusion to the equation.
Endless Symptom Burden:
The laundry list of symptoms seemed never-ending. Intense stomach cramps, loss of appetite despite efforts to eat, persistent nausea, and diarrhea turned eating into a dreaded chore. My dental health deteriorated rapidly with decaying teeth becoming yet another complication.
As if these physical struggles weren't enough, black spots in my vision triggered worry while hair loss shattered my self-esteem. Mouth sores, rashes on various parts of my body including my face, eyelids, and ears, acne outbreaks - all added insult to injury.
Daily Challenges:
Simple activities like swallowing food or drinks became arduous tasks accompanied by pain. Muscles and joints constantly throbbed with discomfort; every step felt like traversing treacherous terrain.
Navigating Life's Obstacles:
Living with an enigmatic illness demands resilience and adaptability. Coping mechanisms became a vital part of my daily routine, helping me navigate through the darkest moments. Emotional support from loved ones and connecting with others facing similar struggles online have been invaluable sources of strength.
The Power of Connection:
While this blog post is an expression of vulnerability, it also serves as a plea for connection. The internet has proven to be a powerful tool in bringing together individuals who share similar experiences. By sharing our stories, we can create a community where empathy, understanding, and knowledge thrive.
A Call for Support:
To those reading this post, I humbly ask for your love and support. If you or someone you know has encountered a mysterious illness resembling the symptoms I've described, please reach out to me. Let us join forces in seeking answers, advocating for ourselves, and shedding light on these often-neglected conditions.
Living with a mysterious illness is an overwhelming experience that leaves one feeling isolated, frustrated, and exhausted. It challenges every aspect of life - physical health, mental well-being, relationships, and future aspirations. Nevertheless, by sharing our stories and uniting in solidarity, we can find solace in knowing that we are not alone in this struggle. Together, let us strive for answers while supporting each other along the way.
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Need prayers currently. I'm still in the middle of trying to move, and things in my life just keep going wrong. I'm having issues with my rheumatologist messing up my medical certificates on purpose to vent his frustration at the system and pressure from the government to look for work despite my illness, my grandmother is bedbound after having surgery so I've been trying to help her, there's other stuff going on with my family and I just feel very under attack and overwhelmed. Haven't even had time to really process my little Alfie bun's death. Please pray, in Jesus name, that God's will be done and that there will be healing and restoration and that things will turn around for good
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Is That What Bravery Is? - A Poem
Someone called me brave today.
I said thank you and turned to silence,
unsure of why that word upset me.
There is nothing brave about chemo,
about this journey that I am on.
Is it brave to walk within a fog
that was once my mind,
letting it lead me into the labyrinth?
Is it bravery to lose control over my body,
to know it less than I did before,
even I glance at myself in the…
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**Blade Storm: The Final Strike**
Imagine a moment frozen in the heart of a cataclysmic battle—a fierce warrior, encased in sleek, high-tech armor that gleams under the electric sky, is suspended mid-air. The armor, a fusion of metal and mysticism, hugs their form, intricate patterns glowing an eerie blue against the darkness. The warrior's face, hidden behind a visor that pulsates with raw energy, reveals nothing but the intensity in their eyes.
Their hands grip a gargantuan energy blade, the weapon humming with barely-contained power. The blade radiates a neon light, edges crackling with sparks that dance in the air like fireflies, every inch of it exuding an aura of unstoppable force. You can almost feel the weight of the impending strike, a devastating blow directed towards an unseen but undoubtedly formidable foe.
The background is a whirlwind of chaos—smoke and debris swirl, remnants of an epic clash. Lightning fractures the sky, and amidst the storm, our warrior appears like the eye of the tempest, a beacon of relentless determination.
You can see the tension in their muscles, the focus in their posture, every line and angle of their figure screaming readiness. It's a snapshot of the climax, where destiny is carved
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