tiredoflyme
tiredoflyme
Tired of Lyme
7K posts
I have Late Stage Neurological Lyme and all the fun things that come with it. CFS, peripheal neuropathy, brain fog, a cane and sometimes a wheelchair.
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tiredoflyme · 7 days ago
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I've chronically run out of everything - spoons, forks, sporks, knives, meat tenderizer, napkins, paper towels, chopsticks, tissues... now I've got only crumbs
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tiredoflyme · 8 days ago
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medical professionals: aw why don’t u have any hobbies or do anything with ur free time? :(
me: yeah maybe it’s the 7/10 baseline chronic pain you’re refusing to treat but idk bro could be something else i guess
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tiredoflyme · 8 days ago
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Why do we say “slept like a baby” when babies literally wake up screaming every two hours?
I want to sleep like a middle-aged dad who “rests his eyes” during a Marvel movie and wakes up refreshed, confused, and ready to barbecue.
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tiredoflyme · 15 days ago
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back where I belong. (in bed.)
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tiredoflyme · 16 days ago
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I'm wishing a very Happy Pride Month to all the queer people who:
are disabled
are chronically ill
can't celebrate for health reasons
disability gets in the way of their gender representation
disability got in the way of a relationship
don't have anyone to celebrate with
have homophobic caretakers
Happy Pride Month to all disabled queer people
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tiredoflyme · 25 days ago
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If you don't already, pick up a mouth guard from the pharmacy. It keeps your jaw from fully closing and locking up with you have TMJ disorder. And protects your teeth from the pressure on them. When I have dental coverage or can afford it, I get mine made at the dentist but when those wear out in between, I use the smaller OTC ones. It's made an immense difference in my headaches.
The TMJ muscles run next to your ear and when they're stressed, they can put pressure on your ear and mess it all up, which is probably what you've had going on. Except I didn't know to get a mouthguard until it was Bad™. When I was in my early 20s and Going Through Shit, I didn't have a mouthguard, and I was grinding and clenching my teeth so bad that I actually started to lose my hearing. The ENT guy was told me to get a mouthguard and it cleared up in a couple weeks. Same guy was also like 'why tf are your teeth so flat?' (my lower incisors don't have points) and I was like 'my dude, the grinding.'
Sorry this got ramble-y, its late rn and I should very much be asleep. I'm glad your meds are helping the TMJ issues!
i think i’ve developed a TMJ… i’ve been struggling to fully open my mouth and close it evenly as one side is painful and i’ve got this constant pressure in my ears that is unrelated to congestion and is causing dizziness. from what ive been looking at for the ear pressure, the most common thing is a TMJ and i have the other symptoms for it. gonna keep an eye on it for a few more days and try some of the home remedies for relieving the pain and if that doesn’t work ill go to the doctor (which i was planning on anyway because my ears feel like im on a plane 24/7)
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tiredoflyme · 1 month ago
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I feel like my brain is mush. I keep coming across topics I used to know a ton about but now I can barely give a basic explanation of them. Even topics I'm currently interested in and actively studying have a very short "active" window in my brain. Sometimes I'll get to the end of a book and have completely forgotten the first half of it. There's discussions I want to have or things I want to share and I can't because my brain isn't holding the information together properly. Whenever I try to have a conversation with someone, all my thoughts become super vague and I can't pinpoint the actual point I was trying to make. It's super frustrating to know that I know all this stuff and can't access any of it.
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tiredoflyme · 2 months ago
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yall will respect disabled people until theyre the "funny" disabilities and it pisses me off.
i am a little person. i am 4'0, i have ccd and achondroplasia. i have various other genetic conditions that affect me but i will be mentioning my identity as a little person mostly.
quit using little people as the butt of your jokes. no, you cant use the m slur it is a slur, no you cant call us gnomes or elves or dwarves or whatever the fuck you call us. we are real people, we arent little characters or creatures. we are LIVING BREATHING PEOPLE. quit treating us like kids or idiots. you dont have to baby us. quit making fun of little people's heights, ESPECIALLY PEOPLE WITH DISPROPORTIONATE DWARFISM. you are fucking ableist if you make fun of little people, you dont see us as people you see us a joke. im sick and tired of people i love and care for treating me as if im a joke and making fun of my height. fuck off
i dont care if we "look funny" or "haha tiny" its so fucking annoying and disrespectful to be treated as if the body isnt a living, breathing, full grown adult.
be better.
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tiredoflyme · 2 months ago
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it is way too confusing to submit a service request for malfunctioning accessibility features like this automatic door has been broken for weeks and i don’t understand how no one has come to fix it but it’s probably at least in part because the websites are labyrinthine and you need a gd map of this place to figure out where to send people
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tiredoflyme · 2 months ago
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i used to be so good at writing strong, thoroughly-researched, thoroughly-edited essays.
as a kid in hs, my teacher literally came up to me, holding my 40 page essay on the intersection of the European witch hunts and capitalism/exploitation/gender roles (it was supposed to be 7 pages...whoops) and went like "this is literally a master's-degree level thesis. what are you doing?? you could literally use this as your final dissertation in a master's program, what the fuck."
NOW??? NOW?? you'd think I'd be oh so skilled. but alas. i can barely piece together two ideas. adhd skill-regression is so so real. im SOBBING
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tiredoflyme · 2 months ago
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fyi things like insulin, hearing aids, wheelchairs, glasses costing money at all is a form of structural ableism
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tiredoflyme · 2 months ago
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On a personal level, being misogynistic, ableist, homophobic, etc. is not just about feeling hatred for oppressed groups.
Hatred is just one possible symptom of the problem. Sometimes it’s pity. Or creepy dehumanising fascination. Or indifference to their suffering, when you’d care about that same kind of suffering if someone less oppressed were to experience it. Or - very often - ignorance and a self-absorbed refusal to learn to be better.
But those feelings are also just symptoms of the core problem. The problem is not about your feelings at all - it’s about actions and whether your actions support an oppressive system.
That’s why you can’t say, “I’m not a misogynist! I love women!” and have people go, “well, you know your feelings best!” It’s not about your feelings. It’s about what you’re doing and if it’s harmful.
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tiredoflyme · 2 months ago
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dear autistics who
white
low support needs
not need 24/7 support
can work independently
can pay taxes
language privileged
intellectual & cognitive privileged
who can fit in societal definition of useful & productive (yes, even if hard)
when fight back against eugenics & ableism, you NEED to fight alongside, fight with, n fight for autistics who
radicalized & POC
from places of world where there critically lack autism knowledge n support
visibly autistic
higher support needs
need 24/7 care
can’t work independently or even work at all
can’t pay taxes
nonverbal, nonspeaking, minimally verbal, without functional communication, or cannot communicate via language at all even AAC
w intellectual disability or cognitive disabilities
who cannot fit into society definition of useful n productive, no matter how hard we try
because we always are & always will be primary target.
because we most vulnerable most marginalized within our, OUR community, which you belong in.
because once they finish us off you won’t be spared.
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tiredoflyme · 2 months ago
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I had a neuropathy flare in the fall/winter and the doctor upped my neurontin dosage. He said to try to wean myself off it every once in a while to see if my levels are back down.
Well, this is the 2nd time I've tried and it very much did not work. I'm in the middle of The Symtptoms right now. My legs and arms were cramping and restless all morning, and now the full body itchies have set in. I took the extra dose an hour ago so hopefully that stops it from moving ahead into sparking fingers territory. I'm starting to think this might just be my new normal.
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tiredoflyme · 2 months ago
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controversial opinion
you are not better than fat people!
even REALLY fat people!
even fat people who don’t put a lot of time into their appearance!
even fat people who wear clothes you think are unflattering!
your appearance literally does not make you better than a fat person. you are not more fun to hang out with because you’re not fat. you are not funnier, smarter, or more interesting by virtue of not being fat. you aren’t harder working, you don’t have more self-control, you don’t have your life more together.
the only difference between you and fat people is that they have to put up with a lot of harassment, discrimination, exclusion, and other bullshit that you don’t even think about.
try not to add to it.
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tiredoflyme · 2 months ago
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I hate when I search for modified exercises for fat or disabled women, and I get a bunch of skinny ladies doing intense cardio or weightlifting. Like I literally asked for the opposite of that but thanks.
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tiredoflyme · 2 months ago
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I hope you guys are also being kind to people you don't wanna fuck.
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