#working while chronically ill

[unfilteredrealities]

The brain fog is so badly these days. I don’t even remember my name at times. I forgot how to do the most basic skills and at times I forgot these days how to properly do my job.

I’m so fatigued and everything is hurting. Everything is so tensed up.

While I ate dinner tonight it hurt so much to open my mouth bcs my jaw was so tensed up…

I do not know when I take vacation time. I need it dearly but I know the moment I have off time, my health is fucking me over.

Was an exhausting work day. 70 calls. Some rude customers.

[mushroomwillow]

Current situation with addition of; I had to pay neurologist out of pocket on my credit card or he wouldn’t see me. And my primary actually looked for the braces himself since the ones he has are stupidly expensive for the same thing

I also might be having seizures again, my hours have been cut, and so far no one will hire me for at least a job I can sit down doing that works with my kid.

Today going to look into that outschool thing, try to brainstorm how to teach the only thing that I know how to do, drawing, online somehow with only a phone to record. And get the rest of my art digitalized to sell.

And finish making my thumb brace. And fucking catch up on homework

[thetimetravelinglady]

Been in the library all day, working through some reading and taking lots of notes, which feels like a little and a lot all at the same time. It's amazing how much a migraine and/or fibro flare completely uproot my whole workflow. I'm glad I could focus enough today on something productive, but bummed that I had too much vertigo to be on my feet very much.

[araekniarchive]

@mnvart // Kaveh Akbar, 'Calling A Wolf A Wolf' // @PinkRangerLB on Twitter // @kosmogrl // @devinsturk, '15 Proverbs for the Fellow Chronically Ill' // Jasmine Deporta // Anaïs Nin, House of Incest // the gentle wisdom uquiz by @inkskinned // Rora Blue, 'Sweet Dreams' // Hala Alyan, Dear Layal

[uncanny-tranny]

I think it would really benefit people to internalize that mental illnesses are often chronic and not acute. Some of us will never be able to jump the hurdle of managing illness, much less sustaining a sense of normalcy. Many of us will never "recover," will never manage symptoms, will never even come close to appearing normal - and this is for any condition, even the ones labeled as "simple" disorders or "easy-to-manage" disorders.

It isn't a failure if you cannot manage your symptoms. It isn't a moral failure, and you aren't an awful person. You are human. There's only so much you can do before recognizing that you cannot lift the world. Give yourself the space to be ill because, functionally, you are.

[cloudselkie]

The reason we don't have Universal Basic Income is because people can't stand the idea that disabled people might get something for free and not have to run their bodies into the ground trying to keep up with the world.

[davidzochi]

two more traditionally bill doodles (i think these are from march)

[platoniclace]

It's Flaaare Uppp Day! You know what that means, kiddos!

Time to lay in the recliner and watch my favorite disabled mcyt'ers so that I feel less alone and hope the cats will grace me with their cuddles to stave off the Evil Thoughts.

Yay!

[unfilteredrealities]

My health is plummeting downward at the moment.

My POTS is going brrr. I have 151bpm when standing and doing light walking.

My hand and leg joints are tingling and hurting and causing me numbness.

My psoriasis is itchy as hell.

My head feels like it’s going to explode.

I feel 24/7 as if something bad will happen to me.

Edit: I literally fell asleep while typing this and now my whole body is itching 😭🫠

[mushroomwillow]

I’m in so much pain. My knees feel like they’re going to pop out at any second. My left thumb has been hyper extending so bad it’s probably going to do the same, and my fingertips keep going numb and it’s causing horrible wrist pain and I can’t hardly move that hand after a while.

But there’s like, no other work. I can’t find any other job. I do enjoy this job but idk how much longer my body can take it. I want to cry because I can’t even sleep with how bad I hurt.

I’m tempted to talk to my boss about switching positions at work but he’s already said me and two other people in this position are the best he has. I just don’t know how much longer I can keep doing it before I fall apart.

[disneyprincette]

thinkin about the kizuna man…… anyone notice how in her profile pre-timeskip vs present day, her dislikes have changed from “the unemployed” to “being a burden”. and it’s pretty clear that she learned the whole “if you don’t work hard and have a job you’re a leech on society” attitude from her dad, but do you think he started to regret teaching her to think that way, just a bit, when she became disabled? she may have a job and an education, but she still can’t do the same things other people can, still needs more help, more time to recover…

is anyone else insane over tjis

[a-totally-reasonable-username]

I baked muffins! And made caramel for on top! It's been years since i was last able to just bake something if i wanted it instead of having to ask family members if they felt like baking it for me and i've always liked baking. I'm so happy!

[deoidesign]

HI I think I sent an ask a while back about having recently found TaTA and a) if it came off as trying to rush/guilt you. I am so sorry because that was NOT my intent, and b) I can hugely guarantee you have at least one person who will eat up any return, no matter when it happens, because I care about the guys so much 🥺 really looking forward to whatever comes next!!

Oh, I appreciate this a lot thank you!

Tbh it's a stress I would have regardless of anyone asking me about it, I'm probably the biggest one rushing and guilting myself on it. Which might contribute to some of the burnout I had...

My complaints are more about people who are demanding "more content daddy" or asking me if I'm dead or asking on every single post I make where it is... Wondering when it's coming back is completely reasonable, it's been a long time! but there's definitely a line haha

my editor also keeps randomly scheduling me and then saying "oh, btw you're scheduled to return in 3 weeks. Is that alright?" And I have to keep saying no, that's not alright??? And then dealing with that process...

I could write an essay about all the reasons it's not back yet, but that doesn't help me feel any less pressured, and it doesn't help you all get the rest of the comic any faster...

As of right now I'm scheduled to and trying to return october 21. No official announcement yet cause I have to do a lot of work in that time, but it's my official goal at least. When we get closer I'll be able to say for sure whether it's coming back on that date!

[aholefilledwithtwigs]

Having a real domestic moment as i struggle with what to cook for dinner while i myself am not hungry but i should really have something ready for when my friends get home which is probably in about 10 minutes and i actually have no idea/things thawed so yeah but i vacuumed so small victories

[fullbrave]

hospital :(

[unfilteredrealities]

Don’t know what happened to me but I felt a burst of energy and I felt like taking a lil walk around the neighbourhood when I came back from work.

Got myself as a reward some foodie food :3

But I walked a lot and I feel energised and am back home and I even saw a movie set which was a pure coincidence bcs I almost walked on the movie set on the street while they were filming this idk documentary or old movie (???) not exactly sure but still funny.

I slept shit last night but despites that I pushed through (I know I know shouldn’t do that might cause crash later) and I had 40 calls today which was a bit too much for my own taste. Monday and Tuesday with only 25-30 calls it felt too nice lol.

Maybe , maybe if the pots meds work , I might be able to walk to and back to work which would help me a lot for my weight loss and for my all in all condition. I want to be able to walk again longer distances 🥹

I hope yall are proud of me for my little wins and achievements today 👉🏻👈🏻

Let me know how your day was if you want in the replies or leave me an ask if you want to dear fellow spoonie! You are loved! 🥰