#working with disability
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Current situation with addition of; I had to pay neurologist out of pocket on my credit card or he wouldn’t see me. And my primary actually looked for the braces himself since the ones he has are stupidly expensive for the same thing

I also might be having seizures again, my hours have been cut, and so far no one will hire me for at least a job I can sit down doing that works with my kid.
Today going to look into that outschool thing, try to brainstorm how to teach the only thing that I know how to do, drawing, online somehow with only a phone to record. And get the rest of my art digitalized to sell.
And finish making my thumb brace. And fucking catch up on homework
#mushroomwillow rambles#tired#chronic illness#working with disability#working while chronically ill#working while disabled#chronic pain#undiagnosed chronic illness#undiagnosed chronic pain#chronic health issues#chronically ill#undiagnosed disability#disabled
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I feel this way about work as well. If you're going to have me check a box that tells you I'm disabled you should be able to expect that I will reasonably have to excuse myself from work at one point or another, and then still be able to complete the task I need to without it being too large of an upset for the rest of the company. I should be able to not feel like I'm a disgrace of a worker or that I am inherently bad at my job because I cannot accommodate a time that has to line up with a very important doctors appointment or needing to attain a necessary medication.
My fiance should not feel like he is lazy or irresponsible because he's exhausted trying to keep up with his demanding work schedule at his labor intensive 10+ hour shift and he needs to rest his body an extra day. He shouldn't have to feel like if he tells his boss that he needs an extra day after working a week with two extra shifts because his nerve damage is becoming unbearable that they will reprimand him for it and look down on him later on.
We shouldn't have to feel like we're either too slow/too much of a burden for a desk job or too damaged for a labor job. There should be something for all of us to be able to do, since some genuinely do want to work for a living, without it seeming like such an impossible expectation to have a job where they can appreciate your hard work and still accommodate your disability, without one impacting the other.
When I say “school should be disability accessible”, I don’t just mean we need handicap rails and EAs. Kids should be able to miss a day without failing out of school. You shouldn’t be dismissed from clubs because your attendance record is “spotty” (true story). I once missed an entire week of school because of a terrible, unending migraine. I was expected to keep up with my studies despite the blinding pain that came with working on my computer. When I heard my teachers say that you couldn’t miss exams, I asked what I would have to do to be excused from them. Their response? “Either get a doctor’s note an hour before the exam or death of an immediate family member.”
I cannot express how rigid this expectation was. First of all, with my condition, I wouldn’t have enough warning about my sickness to go to the doctor and request a note. For many people, this is exceptionally difficult, especially with the current shortage of medical professionals. Next, it ignores the fact that my schedule may not line with theirs because of my medical needs. Once, I had to visit a hospital a province away (which I was on the waiting list of for over a year) on the same day as an exam. I begged my mother not to take me because I was so nervous that I would be marked as an automatic fail. I was lucky enough to make it work, but that’s only because of my spectacular support system consisting of family members and wonderful doctors.
Disabilities aren’t always about needing a bus that can accommodate wheelchairs. It’s already difficult enough for many of us to maintain school attendance without the harsh punishments involved for skipping a day. We need to be able to miss school without being punished. Only than can you claim that the school is “accessible”
#disability#chronic pain#chronic illness#crip punk#cripple punk#accessibility#social justice#working with disability#disabled worker#working while disabled
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i love you vaccines i love you research i love you reading the book instead of having chatgpt summarize it i love you critically thinking rather than reacting to a headline i love you investigating the source material i love you science i love you math even though you are personally my enemy (math/yn slowburn) i love you writing even though you try to stab me a lot i love you Experts in Your Field i love you Using The Brain
#i don't read fanfic so idk what my math x op ship name should be#.... i love u math.... despite our differences.... :/ u work i guess#not like for ME. never for ME. but like for other people you seem pretty reliable.#... SOMEONE (me) has a LEARNING DISABILITY#edit: thank u to the anon who suggested i refer to math as my rival. u are so right.... not enemies... no...#*locks hands with math* bonded........ 2gether.... 2 sides of da coin... both under threat of AI... i luv u math#(<- still clearly never understands whenever math speaks bc literally what is going on over there. the fuck is a polynomial)
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'being disabled is a full-time job' actually with most full-time jobs you get evenings and weekends off, plus holiday time and potentially other benefits like healthcare and dental. we don't get to clock off from being disabled nor do we reap any benefits, material, social, or otherwise. hope this helps
#appreciate the sentiment but the analogy just does not work for me. if anything we do ten times more labour than the average able-bodied#employed person managing our bodyminds appointments etc. who said that#.txt#spoonie#chronic pain#chronic illness#disability
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Was looking at refs and since Viktor has two different leg braces I was wondering, do we think he wears them simultaneously?? The refs don't perfectly line up perspective-wise so it's hard to tell but parts of the one he wears during the Hexcore scenes look like they could maybe line up with the brace that he wears over his clothes, but also some parts really don't and look like they'd be super uncomfy. Also HOW does he take these on and off. Experts weigh in
#viktor#arcane#ig my assumption would be that he wears both simultaneously cause in the scene where he injects the shimmer#it seems implied that he just threw off his clothes and kept experimenting#so one might assume he was already wearing the smaller one underneath#tho it is a funny image to think of him just being like 'one sec i gotta go all the way home and grab my other brace to do this'#he can take off the back brace too cause hes not wearing it in the scene where he's in the hospital bed and you can see his shoulder#where the strap would be#but that one seems to make even less sense functionality wise#everything looks like its screwed together#or screwed INTO him#but only the top bolts on his spine are i think#in the close ups of his back brace model it looks like theres cushioning underneath the parts of it that cover the rest of his spine#so he can take it off. but HOW#what parts of it unscrew/detatch to pull open and off#does it not do that at all and he just has to shimmy it off his shoulder and all the way down his legs to get it off like a romper#the shape language of the designs are cool but like. tell me how it wooorrkkksss#forgive me if im just dumb and dont know at all how braces work and theres a very simple practical explanation for all this#any king who wants to infodump about mobility aids at me....the floor is yours#something to be said i suppose about the fact that zaunites have crazy prosthetics with wild augmentations that work flawlessly#and piltover's like. idk heres some fucking uncomfortable ass metal. salo gets wheelchair in non ada compliant place#they havent ever needed to adapt to accommodate disabilities etc etc#or maybe artists were just like 'heres a design' and everybody clapped and didnt give it a second thought#and then they just turned off the visibility on the mesh when they didnt need it knowing thered not be a scene where its taken off#dont even wanna THINK about what that rig would look like#like 40 different controllers#soft body and rigid hard surfaces needing to move together....#a cold chill just shot up my spine#<- guy who is only an animator and doesnt know how to rig#forgive the magic wand tool with zero cleanup. i am lazy
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Hot take and not to be a killjoy or the shipping police but people treating Viktor or Jinx's aroace headcanons as if they were canon is not the revolutionary take people think it is.
Headcanons are always all right but we have to acknowledge that they are somehow damaging when they apply to stereotypes. It might not be the case for everyone but most of the time people unconsciously assume that disability/mental illness=asexuality. These headcanons erase the freedom of attraction from people who are already seen as unable to have sexual/romantic experiences/desires, when it's completely untrue and harmful.
You can headcanon Viktor and Jinx as aroace, but I have seen people changing their minds once Viktor is no longer disabled (s2 with all of his other forms) and Jinx is no longer as mentally ill (alternate universe Powder). And it speaks wonders of how people see these characters.
"I never thought about Jinx being able to feel romantic/sexual attraction until s2!" To believe she's actually only capable of that when she's not "damaged" is incredibly disturbing. Especially since Jinx has always had a bit of a flirty personality too.
"I've always seen Viktor as asexual, I don't know why!" That's fine. You can headcanon him as ace. But I believe there is a reason behind it, most of the time, if for some inexplicable reason the "vibes" of the disabled character are making you think he's ace.
I say all of this being aroaspec myself, by the way. Headcanon all you want but going to people's posts commenting how "it's weird for you that they have romantic/sexual plots when they're clearly aroace" is not a win at all. It's a headcanon, after all, and it should be treated as such, and that's fine. But it also is damaging to spread stereotypes like these.
Of course the disabled character is asexual. Of course the mentally ill character is aromantic. It's not as revolutionary as you might think, tbh.
Fandom is not activism and it's all right to have any headcanons you want BUT some of them are filled with damaging stuff and perhaps we should look into ourselves more before treating these assumptions as something canon.
#i hope i didn't sound rude btw i am saying this respectfully and this is directed to the ones who push these hcs as canon#if you have your own theories and know abt aroace stereotypes but are respectful abt it this is not for you keep scrolling#i actually think showing jinx (who has been dehumanized by the fandom A LOT) in a romantic relationship is good for her character#and viktor letting himself be free and loving what he considered imperfections thanks to jayce at the end c'monnn they need to make love#tired of disabled characters being treated as babies and always hc them as aroace let them fuck#this being said i am aware there are more terms inside aroace etc etc etc and there are more ways of considering them aroace etc etc etc#this is NOT about that it's about being aware of how 'mmm it's the vibes!' argument does NOT work when it's stereotypes#it's like saying 'wow this robotic character is giving me autistic vibes idk why' LIKE CMON NOW WEFNEWLFNL YOU KNOW WHY#please don't cancel me i am giving my humble opinion as someone aroaspec#at the end of the day you can do whatever the fuck you want tbh#i'm not the shipping police here#arcane#viktor arcane#jinx arcane#jayvik#timebomb
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Is this anything. Idk. It came to me in a vision.
#toh#the owl house#luz noceda#eda the owl lady#eda clawthorne#king clawthorne#autism#neurodivergent#neurodiversity#ableism#this kind of works for all disabled ppl i just realised but the image is made
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I’m in so much pain. My knees feel like they’re going to pop out at any second. My left thumb has been hyper extending so bad it’s probably going to do the same, and my fingertips keep going numb and it’s causing horrible wrist pain and I can’t hardly move that hand after a while.
But there’s like, no other work. I can’t find any other job. I do enjoy this job but idk how much longer my body can take it. I want to cry because I can’t even sleep with how bad I hurt.
I’m tempted to talk to my boss about switching positions at work but he’s already said me and two other people in this position are the best he has. I just don’t know how much longer I can keep doing it before I fall apart.
#mushroomwillow rambles#tired#chronic pain#chronic illness#hypermobile eds#hyper mobility#hypermobile joints#working while chronically ill#working with disability#working while disabled
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Still not over the head of cardiology, who said she wouldn't formally diagnose me with dysautonomia because she didn't want me to think of myself as disabled.
As if good vibes and a can-do attitude can stabalize autonomic dysfunction.
#chronic health tag#ableism in our medical system???#it's more likely than you think#I still remember having to inform the ER doctor that the reason MCAS wasn't in my file#was because the head of allergy for the hospital he worked at#'didn't believe in it'#this was one week into the pandemic#and this man touched his face out of exasperation#and muttered something that might have been 'dense mother fucker' under his breathe#anyway#there should be a screening process for people who want to go into medicine#if you think the only disability is a bad attitude#you should be jettisoned from your course and directly into the sun
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don't know much about furry fiction but surely there is an established trope wherein some furries are allergic to other characters' dander? like say a gecko scalie falls in love with a cat furry but is allergic to cat hair. trials & tribulations & claritin ensure
#please tell me there is a small but growing subgenre of this i need to know it exists#but also. interspecies furry romance as a means of exploring relationships between people w/ different needs and communication styles#cold blooded anthropomorphic characters who need a warm environment but are best friends with a husky or whatever#amphibians married to reptiles who do NOT like a moist atmosphere no thank you#a dog furry who assumes their wolf frenemy is a judgemental asshole but it turns out wolf facial expressions just work differently#a high-school slice-of-life where a very different group of students learn not to judge each other for needing different accommodations#(heat lamps. blinders. chew toys)#the potential extended allegories for disability and neurodiversity and forming relationships w/ people outside your in-group#also there's dragon dicks or whatever. many possibilities
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Hourly comics day 2025, part 1 (part 2) / (previous years)
#Hourly comic day#hourly comics day#pwME#MEcfs#autobio comics#secret info about the final panel: I'm working towards my first big project that directly centres my own disability. scary and v exciting
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do able-bodied people not understand that if disabled people call out of work every time they don't feel good that we would call out of work every fucking day?
like honestly. what do you think being disabled means?
#if one more person tells me to take a sick day i'm going to throw something at them#i just honestly cannot anymore#disabilties#disabled#actually disabled#epilepsy#ehlers danlos syndrome#physical disability#neurological disability#actually epileptic#zebra#chronically ill#chronic illness#spoonie#chronic fatigue#chronic pain#c punk#crip punk#cripple punk#fuck capitalism#anti work#disability culture#1k#5k#10k
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drawing for my friend's birthday
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if you feel like you’re ‘getting in the way’ as a mobility aid user, particularly with larger aids like wheelchairs, rollators/walkers, gait trainers and service dogs, That Is A Fault Of The Space (and potentially the people), not of you. You deserve all the space you take up and more.
#Disability#disability positivity#mobility aid user#wheelchair#electric wheelchairs#power wheelchair#rollator#walker#gait trainer#service dog#This post brought to you by me trying to work out whether I can logistically and emotionally attend a medieval dance event in my wheelchair
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They don’t even attempt to assassinate US politicians anymore. You notice that? Not since the anthrax scare back for… who was it, Barack? And even that… pathetic. This new generation has no respect for an honest hitman. I’m not sure this new generation has any honest hitman - you see that shit with Boeing? Sloppy, fucking disgraceful - you kill the whistleblowers before they get halfway to a lawsuit. What kind of fucking amateur is doing faked suicides the night before testimony? Goddamn greenhorns. Back in my day someone tried to shoot Ronald Reagan in broad daylight. There used to be bomb threats to Congress. I took out a few union leaders in the utilities sector myself. Today’s generation? Won’t even threaten to throw a punch - not even over on that - what’s it now, ‘X’? They got no guts. None! And they don’t even have poor impulse control to boot! Too much of that - that panopticon anxiety bullshit. “Oh what if I get a called out post???” People used to send the president letters full of bioweapons. In the mail! Today’s generation? Not a chance. All because of woke.
#ra speaks#personal#JOKING.#this is a joke this is a parody of right wing rants regarding social phenomenon they believe to be oppressed by left leaning politics.#but within the perspective of an old fictional hitman.#this is a joke tangentially referencing my fictional hitmen from a fictional story in which no harm comes to career politicians#obviously but also if this gets me on a list o7#fbi agent in my phone I’m a disabled autistic dyke with zero engineering or chemistry background#my skills are best applied to…idk sabatoging national forest harvest regimes? but I’m not doing that they’re neglected enough as is.#edit: oops this is getting notes o/ hiiiii cia agent reading this post <3 a union leader my dad worked w got fucking assassinated#by Pinkertons and y’all didn’t do shit. I hope you have visions of hell and become a nomadic hermit self flagellating in the woods#edit 2: ooooooh there was a pres debate last night. that’s why people care about my two week old joke hitman post. was wondering why.
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"don't make it political!" .... what proportion of death and suffering must occur before politics are involved. if this isn't political, what is even the point of any politics, ever. of democracy. the words are "by the people for the people." if i am going to be left alone by my elected representatives to "figure it out" - to undergo damage, hardship, fear. what the fuck did i elect them for. what was their job. the entire point is that they handle this shit. this is why we were supposed to be electing leaders.
poverty is political. misogyny is political. gun control is political. climate change is political. how much aid a community gets is political. what the fuck are you talking about. it's been political this whole fucking time.
#to be deleted probably#i think aid should be REQUIRED to be bipartisan#ppl shouldn't suffer bc of how they vote. sorry. i'm never gonna be like ''ah yah x area deserves it''#..... they're people. they're human people. what the fuck is wrong with you.#this is nonspecific bc it's the same argument every time it involves things the right wing could have prevented#oh she died in childbirth bc of abortion laws? well nows not the time to make it#well he died bc his boss made him work during the tornado? well let's not make this#ohhh they died in a school shooting? thoughts and prayers let's all not make#there's a big fucking natural disaster that is strong evidence for oncoming ecological collapse?#welllllllll leTS NOT MAKE IT FUCKING POLITICAL!!!!!!!!!!!!!!!!!!11#WHEN WAS THE TIME???????????#PREVENTION HAS ALWAYS BEEN BETTER THAN WOUND CARE.#> stabs u . oh sorry that wasn't political#but also good luck in the hospital good luck with insurance good luck with medicine#good luck with disability support good luck w/ur job and taking time off good lucK!!!#refusing to allow politics into the matter means they get to shrug their shoulders and absolutely#refuse any fucking ACCOUNTABILITY#THEN WHAT WAS THE JOB FOR??? WHY DID I GIVE THEM THIS JOB???#WHAT IS LITERALLY THE POINT OF ELECTED OFFICIALS
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