#zebra problem

[this-is-me19]

The downfalls of bandaids (or adhesives)

They tear the skin.

[chronically-izzzzle]

[spookietrex]

I hate the look on able-bodied people's faces when you can't do a thing that you could do the day before. The look of disappointment, confusion, the "Oh but you could do it before. Are you SURE you can't do it?" Like yes, Brenda, I'm sure that I am in too much pain to function/move from my bed right now so going for a walk when I could move 50 feet yesterday without my cane IS too much.

[whoopsie-doodle]

This is your reminder to clean your emotional support water bottle.

Check the o rings for mold.

[chronicillnessfromateensmind]

saw this and thought i’d share

*picture not mine*

[gracethyomen]

Happy First of May!!

Hello! May is EDS (Ehlers Danlos Syndrome) awareness month! As a person with suspected EDS and with chronic symptoms, this is a very important topic to me. EDS is hard to diagnose, and many patients fly under the radar of healthcare professionals which can cause them to suffer lack of treatment and forces them to live with their painful symptoms.

More Information about EDS and associated variations has been attached below and the infographs were originally found on an instagram account that I follow at the username the_chronic_chronicles

[bold-tachycardic-baby]

Why can’t people understand my anger at medical professionals? I logically know it’s because they’re able bodied and have likely never had a bad experience. But why can’t they use a bit of compassion to see the problems with healthcare? Let me be angry at being treated poorly. Let me be angry about the state of our healthcare system. Let me be angry.

[rainbowchihuahuabunny]

I hate being in this disability grey space. I'm well enough to work most of the time but that means I can't do anything else in my life. Disabled enough not to be able to keep up with others my age.

I'm constantly in pain and exhausted but well enough to have to push through to keep a job so I can afford to live and afford pain medicine and braces. I just subluxed my hip and am stuck in my wheelchair but I know I can't use my wheelchair at work cause I need my hands free. So, here I sit with a heating pad on my hip, sobbing and begging for the pain meds to help.

Just wish I were either fully abled or disabled enough to get help. Instead I'm stuck here. In the disabled grey space

[a-sassy-bench]

"don't let your disability hold you back!"

maybe don't open your fucking mouth again, k?

.

[spookysalem13]

Just a fellow spoonie 🥄 here to share a relatable hilarious 😄 video.

Being chronically ill, you have to learn to find the humor in your diseases. For me, it's a major way I get by day to day.

This made me smile, I hope it can make you smile as well.

[lilliaespi]

Fuck your " trans ehlers danlos syndrome hypermobility type"

As someone with ehlers danlos syndrome myself, they can fuck right off. It's not just "holy shit you're so flexible."

It's having a slow emptying stomach, so we barely eat and it's very easy for us to get constipated and chronic acid reflux.

It's sneezing and throwing your neck out.

It's sleeping wrong and being in agony the next day.

It's being in pain. Constantly. You know how it hurts to get hit with a sports ball? Imagine that happening. Everyday. No chance for the soreness to recover.

It's our hips, shoulders, elbows, knees, and/or ankles painfully dislocating on a daily basis.

It's our hands painfully over extending just to drive.

It's us needing to use God damn mobility devices as young as 12 years old.

It's us standing up the wrong way, causing our ankle to roll under us AND BREAKING BONES AND/OR SNAPPING THE LIGAMENTS IN OUR FUCKING FOOT

[kb11rd]

Found this in my gallery and came to the realization that I'll never finish it (SORRY). So have the pages I've done.

These are old.... but they still have some charm eh.

[tiredtourettic]

(Short) Chronic illness vent because no one listens so maybe someone on the internet will.

I'm in pain. I'm in so much pain. My joints feel like they're on fire no matter what I do. A cane used to be enough to be relatively pain-free. I couldn't use it a lot because of my parents, and now on a good day I need crutches and on a bad day I need a wheelchair because I can't stand for long for reasons other than the (most likely) POTS. hypermobility sucks, pain sucks, my parents suck for not believing me, I can't wait until I'm 18 and can get diagnosed. I'm gonna get off now because I'm getting a migraine.

[spookietrex]

I am valid even when my small victory is that I took my meds that day.

[tumble-tv]

Yet another camp story:

I met 5 other campers with EDS, which is awesome, but the way we started talking was hilarious. They took one look at the way I walk with my crutches, my knees, my hands, and how I pushed my wheelchair and crossed the room, came up to me and said "You have EDS, don't you."

LIKE THANK YOU YES THERES A VERY HIGH PROBABILITY BUT DOCTORS FUCKING SUCK

[victusinveritas]