chronicallyuniconic - Tumblr blog

[chronicallyuniconic]

you can click on this button once daily to help palestine and support other causes in the middle east for free. it takes literally 5 seconds and could help save lives so please take the time to click and share this link.

[chronicallyuniconic]

Seeing the inside of my brain & it's lit up like a Christmas tree, all the way through, with lesions & inflammation. It's not good, but explains every single symptom I've been going through since 2016. Imagine if they'd listened.

[chronicallyuniconic]

Even if I didn’t have a solid plan, in the back of my head, I always assumed I’d kill myself.

Now I’m an adult and people my age have their lives in order and I’m stuck here, confused, because I never planned to be alive and I’m so far behind.

I feel like I’ll never catch up.

[chronicallyuniconic]

just 2 poison frogs in luv

instagram | prints

[chronicallyuniconic]

im already pissed off with today and every other post is about potato smith. I will not say their name, you'll figure the celeb eventually. No matter how many tags I've blocked they're still here, on my feed. Fuck u potato smith ya basic b

[chronicallyuniconic]

not coping

[chronicallyuniconic]

So many people on a support group were like "epilepsy nurses are so good they really help and listen to you if you have anything new you can contact them and pass things on to your neurologist"

Feel so let down. By the people, their words, this pathetic system, the horrible treatment like I'm an inconvenience when they made the damn appointments. I was waiting. Like an idiot. It makes me feel ashamed to have been hopeful that I'd learn anything today. The complete circle of disappointment

I just. Is it just me????

Epilepsy Nurse was 15 minutes late to call, but when I answered, the line went dead so she hung up. She rang again 2 mins later, I heard her say hello, then it went dead again.

She didn't bother ringing back a third time, but emailed me, "sorry I couldn't hear you but you have another appointment with someone else this week so wait for that one"

In the amount of back and forth emailing me she could have rung me.

So I ring neuro secretary who says "ah yes, I spoke to nurse X, she's busy for the rest of the day, but because of the other appointment there would be *no point* in having this one"

NO POINT.

I said this is the first time in a year I'll be able to speak to someone about seizures, instead of relying from online stranger support as its all I got.

NO POINT.

Neuro sec asked if I was having SEIZURES and am I still. FUCK ME. ARE THEY KIDDING.

I'd been waiting 45 mins earlier with all my notes, ready and waiting, to be told there's no point.

THEN WHY WAS THE APPT MADE IN THE FIRST PLACE???

I asked if there was any point in the other appointment because noone can tell me why or what for, and I'd be wasting a lot of money in taxis.

You know, causing a lot of stress because of the long stretch of hospital you have to wade through to reach neurology like it's in the fucking restricted section.

I'm so fucking done.

NO POINT.

Is it just me? I thought I'd have someone to talk to. This fucking sucks. I am currently inconsolable. "but don't get stressed, you might have a seizure" I fucking hate this. All of it.

[chronicallyuniconic]

what really stings is that like back in February I was like you know, I'll give them a chance, im so down about the GP I tried to have a positive outlook that cos this is a brain issue now, actively being witnessed and accounted for unlike everything else, I thought, obviously naively, that they'd turn out okay & be helpful & forthright.

But no. Same shit. Different holding pen.

I just. Is it just me????

Epilepsy Nurse was 15 minutes late to call, but when I answered, the line went dead so she hung up. She rang again 2 mins later, I heard her say hello, then it went dead again.

She didn't bother ringing back a third time, but emailed me, "sorry I couldn't hear you but you have another appointment with someone else this week so wait for that one"

In the amount of back and forth emailing me she could have rung me.

So I ring neuro secretary who says "ah yes, I spoke to nurse X, she's busy for the rest of the day, but because of the other appointment there would be *no point* in having this one"

NO POINT.

I said this is the first time in a year I'll be able to speak to someone about seizures, instead of relying from online stranger support as its all I got.

NO POINT.

Neuro sec asked if I was having SEIZURES and am I still. FUCK ME. ARE THEY KIDDING.

I'd been waiting 45 mins earlier with all my notes, ready and waiting, to be told there's no point.

THEN WHY WAS THE APPT MADE IN THE FIRST PLACE???

I asked if there was any point in the other appointment because noone can tell me why or what for, and I'd be wasting a lot of money in taxis.

You know, causing a lot of stress because of the long stretch of hospital you have to wade through to reach neurology like it's in the fucking restricted section.

I'm so fucking done.

NO POINT.

Is it just me? I thought I'd have someone to talk to. This fucking sucks. I am currently inconsolable. "but don't get stressed, you might have a seizure" I fucking hate this. All of it.

[chronicallyuniconic]

I just. Is it just me????

Epilepsy Nurse was 15 minutes late to call, but when I answered, the line went dead so she hung up. She rang again 2 mins later, I heard her say hello, then it went dead again.

She didn't bother ringing back a third time, but emailed me, "sorry I couldn't hear you but you have another appointment with someone else this week so wait for that one"

In the amount of back and forth emailing me she could have rung me.

So I ring neuro secretary who says "ah yes, I spoke to nurse X, she's busy for the rest of the day, but because of the other appointment there would be *no point* in having this one"

NO POINT.

I said this is the first time in a year I'll be able to speak to someone about seizures, instead of relying from online stranger support as its all I got.

NO POINT.

Neuro sec asked if I was having SEIZURES and am I still. FUCK ME. ARE THEY KIDDING.

I'd been waiting 45 mins earlier with all my notes, ready and waiting, to be told there's no point.

THEN WHY WAS THE APPT MADE IN THE FIRST PLACE???

I asked if there was any point in the other appointment because noone can tell me why or what for, and I'd be wasting a lot of money in taxis.

You know, causing a lot of stress because of the long stretch of hospital you have to wade through to reach neurology like it's in the fucking restricted section.

I'm so fucking done.

NO POINT.

Is it just me? I thought I'd have someone to talk to. This fucking sucks. I am currently inconsolable. "but don't get stressed, you might have a seizure" I fucking hate this. All of it.

[chronicallyuniconic]

the closer i get to the appointment, the more anxious im getting. The double edged sword of health

[chronicallyuniconic]

There is a heron that uses the river at the back of my house & seeing him take off is something elseeee. How does that big birb get that ass in the air. It's breathtaking

gray heron playing in the snow (18.04.2024)

@todaysbird

[chronicallyuniconic]

me holding a gun to a mushroom: tell me the name of god you fungal piece of shit

mushroom: can you feel your heart burning? can you feel the struggle within? the fear within me is beyond anything your soul can make. you cannot kill me in a way that matters

me cocking the gun, tears streaming down my face: I’M NOT FUCKING SCARED OF YOU

[chronicallyuniconic]

& the free stuff always comes in "clinically depressed grey" or is some contraption straight from 1824.

unpopular opinion but mobility aids shouldn't cost so much !!

[chronicallyuniconic]

Birb: "holy fuck I've never perched this high up before, here's some kisses bro ily"

Paraglider and black vulture chilling

(via)

[chronicallyuniconic]

tumblr is great bc I feel a little less alone in my experiences as a disabled person

[chronicallyuniconic]

[chronicallyuniconic]

never let anyone tell you that trawling through mediocre victorian poetry isn't worth it. we just happened upon an absolute BANGER of a worm poem. go read it or else 🪱🪱🪱