My ADD Medication Journey Begins
I got a physical back in early August this year. While I was there, I reminded my doctor "Hey, any chance you could maybe get me the contact details for that specialist you mentioned last year so I can get an evaluation to see if I'm ADHD or ASD?". He immediately remembered that I had asked about that last year and promised he would get me her card.
Well, it slipped is mind back then, and even though I called and emailed a few times, he just didn't seem to respond.
Oh hey, turns out HE has ADD and HE takes medication. Sometimes he just forgets because he deals with a lot of patients. It wasn't anything super hardcore pressing to me, so I just let it go after a while and decided to ask when I went in for my next physical.
When I brought it up this time, he stopped me mid-sentence, walked out of the room, and returned about two minutes later with the specialist's business card. He apologized for not getting it to me sooner, advised that I should call her as soon as I leave his office, try to schedule an appointment with her, and get an evaluation done. He said that if it turns out she thinks I am in fact ADD or ASD, that I should call his office just as soon as I get out with the diagnosis, and we would have a conversation about medication.
Well, we had a conversation about medication right then and there anyway, but it still was worth calling and talking about anyway.
I called the specialist and left a message--this was around 11am.
I got a call back from her receptionist about 30 minutes later--they have an opening that day! It's around 4 or so. I tell them "YES! I WOULD LIKE TO SCHEDULE TODAY IF THAT IS OKAY!"
They slot me in. It futz around that side of town because i live in a big city that is extremely car-centric (thank you good ole US of A... [sarcasm]) and show up at her office about 15 minutes early. I don't have anything better to do, so I show up that early. I also like being early to doctor appointments because you never know what the situation will be. They may have a patient cancel and you get seen earlier. It may be that the doctor is running behind so you have to wait anyway. You might have issues fighting traffic to get there (again, thanks... Uncle Sam). I just like being early for this kind of thing.
I end up waiting the full 15 minutes that I was early because the doctor was with another patient. When she's ready, she calls me back. I don't have to wait a silly amount of time, she's just ready to see me.
We have a conversation. She goes over her pre-written questionnaire. I answer the questions to the best of my ability. I try to be honest. I try to give as much accuracy as I can and confess my lack of answer when I don't have one but try to cobble something together to provide SOME kind of insight for the question.
About 15 minutes pass as we talk. She's very affable, friendly, funny, she actually laughs at my stupid dorky humor. She asks me what I do for a living, and what I've done in the past. I explain my last few jobs and how they have not gone well for me.
She looks me in the eye and says "those are all extremely detail oriented jobs... how are you able to do them?"
Half joking, half serious, I reply with "I'm not!"
The truth is, I find little hacks and tricks to try and keep myself on task, to minimize mistakes, maximize accuracy, try to maintain a calm demeanor... but that has always been a problem for me, especially when I'm under a heavy workload... or when I'm taking a hundred calls a day from people who are just looking for someone to scream at and make actionable threats against--despite the fact that I have no power over their case, I can only get them to the person who IS handling their case. I'm just a glorified receptionist in that specific role--a role I was fired from several years ago, and fuck did it knock the wind out of me.
She looks over her notes for a moment, then looks back at me and says "Yeah, I'd say you are DEFINITELY on the spectrum, and I think you might benefit from some medication. I think you should start on Adderall, low dose, see how it affects you. Have you talked to your PCP yet?"
(I had to have it explained to me to know what that means so I'm going to just go ahead and say for anyone else who might not know and is too afraid to as: PCP = Primary Care Physician... basically, the one doctor you see regularly, if you're lucky enough to be able to do so. I went YEARS without having a PCP because insurance is a fucking nightmare)
I explained to her what he had advised, that all I had to do was call him after I got out, explain that you confirmed I'm on the spectrum and that you think I should try Adderall, which is what he recommended too. We would discuss it, answer my questions and concerns, then he would put in a prescription at the pharmacy I had on file. I didn't need to go back to his office to do it. He would just forward it over.
This whole day kind of amazed me.
I had heard all manner of horror stories about how hard it is to get evaluated as an adult. Then how hard it was to get prescribed medication. THEN there's the fact that there is STILL an Adderall shortage going on. It's not as bad as it was, but it's still causing problems.
I call my doctor as soon as I'm out--he's already gone for the day but I leave a message explaining the situation. The specialist forwards confirmation of the diagnosis over to his office, it's all in order.
And then I wait. And wait. And wait. And wait. After two weeks, I try to call his office to try and catch him for a conversation. Have to leave a message. I do this every couple of weeks until about the end of September when HE calls ME back while I'm working from home and while I pace around my bedroom chatting with him about the situation, he tells me everything I want to know, what to expect, what to do if I have trouble getting medication, it's all groovy. He says he wants to have a follow-up with me--if I recall correctly it can be just over the phone, I don't need to go into the office I don't think. I'm sure I'll find out later--once I've been on the medication and have enough experience with it to see how it's affecting me, then we can adjust dosage or try something else, or maybe I'm good with the 20mg twice daily situation. He wants to follow-up and see.
He says he's going to forward the prescription over that day. And so he does.
It's a pharmacy that's in a grocery store. I've gotten one or two prescriptions filled there before. It's fine. Nothing to write home about. This grocery store I will not openly name, but it rhymes with Dom Crumb... those of you who live in the southeast United States probably already know exactly which store I'm talking about... and how it shares a name with a character from English folklore about a very tiny lad about the size of one's... well... only opposable digit on their hand.
The pharmacy does not call. I figure, okay, they just don't have any medication in stock. There's a shortage after all... all us millennials are eating it all up because holy fuck do we need some help just being able to function HAHAHAHA LATE STAGE CAPITALISM ISN'T PURPOSEFULLY OVERLY COMPLEX AND TRAUMATIZING AT ALL!!
So I wait about a week, then I try to call, but their automated system doesn't give me the option to speak to a pharmacist, a tech, a live person at all. It doesn't even let me leave a message. Fun.
I decide to go in person after work. It's just around the corner, picked because of how close and convenient it is. I shop there all the time anyway. I wait patiently behind other folks, then politely explain my situation to the lady behind the counter and she--very helpfully--starts looking up information and goes into the back to see if they have any in stock.
Alas, they do not. She also advises me that there is a hold on my prescription BECAUSE they don't have any in stock, and that there are other prescriptions ahead of me, so depending on how much they get in their next delivery, I might not be filled at that time and have to wait longer.
Again, this is no big deal to me. I understand. Supply chain issues. Greedy pharmaceutical companies not producing enough because it probably increases demand--or maybe they just underestimated how absolutely and deeply FUCKED my generation is. I tell them I'll check back in a couple of weeks.
So I wait. A couple of weeks pass. I check. Still none in stock. This repeats SEVERAL TIMES until THE WEEK OF THANKSGIVING.
I remind you--I got an evaluation and diagnosis back in early August. It is now LATE NOVEMBER and they finally say they have some in stock. The lady asks if I can wait. I tell her I've got some shopping to do and I'll wander on back later.
I do my shopping. I wait patiently. I do my thing. I come back and the lady flags me down.
"We do have it in stock but... I'm afraid your prescription has expired. You'll need to get a new one from your doctor."
UGH... are you kidding me?!?
I comport myself well. I'm understanding and polite. It's been a long while, sure, and I'm hugely disappointed, but I understand. Out of curiosity, I ask when the prescription expired.
She says it ended back at the end of September.
***GIANT. FUCKING. EYE-TWITCH.***
Again, I comport myself well in public. Inside, I'm FUMING.
WHY WOULD THEY NOT TELL ME THAT MY PRESCRIPTION HAD EXPIRED DURING ANY OF MY LAST FIVE VISITS?
Whatever... whatever, they probably don't check the paperwork until the meds arrive. Fine.
I call my doctor's office, worried I'm going to have a hell of a time getting someone to help me out just like it took so long to have the convo with my doc in the first place.
I get a call back--I forget exactly when. It might have been same day. It might have been the next. It might have been a couple of days. Regardless, it's a lot sooner than I feared.
I had left a message explaining the situation and the medical assistant says "I see that you need a new prescription for Adderall. But I also see a note on the file that the doctor wants to follow-up with you before refilling, so we can schedule a time for you to get with him to have that follow-up."
"I mean... okay, if you need to have him sign off on it before you send it, I understand, but the follow-up was to check on me after I had started it and been taking it for a while to see how I was doing. I haven't even GOTTEN the medication yet. I haven't been able to START taking it yet. Is there any way you can send a new prescription to my pharmacy so I get this ball rolling?"
He realizes he misread the transcription of the message:
"OOOH... you haven't even GOTTEN it yet?!? WOW... okay yeah, we'll go ahead and submit a new prescription for you."
Our communication mishap is resolved, we end the call in a jovial fashion, I'm feeling pretty mildly okay. Things have been super stressful elsewhere in life for the last several months, and have only just really gotten real bad all over again and so if this is one thing I can get settled... I'm down to clown.
I get a call from the pharmacy THAT. DAY. Not even three hours later.
Fucking baller. Love it.
The pharmacy says they can't fill my prescription.
...wat...
They cite some law about needing to be within 20 miles of the prescribing doctor's office because it's a controlled substance.
It's Texas. I 100% believe the asshat lawmakers in this state have ABSOLUTELY taken ridiculously egregious steps to limit access to legally prescribed medications for a wide variety of reasons. No doubt, the front-facing explanation is "We want to make sure no one is using it as precursor to making Meth" and sure... that's a legit concern... but it's 60 pills, 20 mg each, my first prescription. I have no history of getting this anywhere else. I'm literally new to this. It shouldn't raise any red flags.
I'm willing to bet that these same asshat lawmakers also have a pretty dim view of mental health care.
"You don't have ADD, you're just hyper and lazy and undisciplined. You just need Jesus and a boot in the ass. NOW GET TO WORK!!" or some shit like that. Not saying they all think this... but I'm willing to bet a disgustingly shocking number of them do. Don't have proof. Just have experience with how fucked up my state is, and how the dominant party has--as a matter of record--acquitted a man who is credibly accused of getting an underage girl drunk and taking advantage of her. I won't use the R word here because I know some folks are triggered by it, but yeah... that's what he did. That's the state I live in. And moving out of state is prohibitively expensive... also, I wouldn't know where the fuck to go. My job is here. I can't take it with me I'm pretty sure, despite working part of every week from home.
Anyway, getting into the weeds: shit's fucked, yo.
The pharmacy won't fill the prescription. I frantically start trying to find proof of this law. I can't find it. I go on google maps and measure. Straight line from the doctor's office to the grocery store is 16.5 miles. So that's absolute fucking bullshit--unless they're going but like... DRIVEN miles... HORRAY!! MORE LOVE FOR THE CAR-CENTRIC CITY!!!
I call up my doctor's office and leave another message. I explain that the pharmacy says they can't fill it because of some 20 mile law. It's Friday. I know the doctor isn't in the office. I'm not expecting a call back that day.
As a fact finding mission--not really expecting to get any movement or satisfying answer--after I get off work, I go over to a local Walgreens. It's literally a block from where I live, even closer than the grocery store. The pharmacy is open until 9pm. I go in, I wait in line, and then I ask the pharmacy if they have Adderall in stock, if they know anything about a 20 mile law, and explain that the Rom Bum just down the street is cock blocking me on getting my brain fixed.
He's very disappointed to hear this. He doesn't know anything about a ***20*** mile law, but he's heard of a ***50*** mile law. I try to look this up later but I can't find anything about it either. Maybe I'm not searching in the right places. Maybe it's not a law, maybe it's a store policy and the pharmacists just SAY it's a law? I don't know. The Walgreens pharmacist gives me all kinds of options to get around the Adderall shortage--because it's specifically the 20mg he's having trouble keeping in stock. He offers the suggestion of different dosages taken at different frequencies. I politely tell him "Well, this is what my doctor wants me to start on to see how it affects me. Maybe we can adjust later once we know more."
He accepts this, apologizes that I've had so much trouble at the other place, and says "Yeah, if we can get someone at your doctor's office on the phone to confirm--because it's a controlled substance--then we should be able to fill it no problem if we have it in stock."
I thank you for his help and go home. I go to bed, unbelievably livid over this whole situation. Like... all day since I got the call from Gom Rum... I'm just... infuriated. I want to scream. I actually do scream, into one of my pillows. I want to break things. So I grab my pillow and start slamming it on to my mattress as hard as I can until I wear myself out. This is the only thing I will allow myself to do because I'm not apt to break anything--and yeah... I have anger issues. I have a BREATHTAKING temper. From what I understand, emotional disregulation is another symptom of ADD or ASD so... hey, it's in my fucking wheelhouse.
I knock my glasses off in the wild swinging of my arms to get some sense of physical satisfaction in wanting to do harm. I step on them and knock a lens out. Thankfully, it pops back in, but I have bent the frame just EVER so slightly and so I'm going to have to figure out how to bend it back so my glasses are more level on my face.
This is why I need to get my shit handled. This is why I self-isolate. This is why I stay away from people. Because I do shit LIKE THIS and I just... cannot control my temper sometimes. It's frustrating and it leaves me absolutely hating myself for failing to keep it together, for breaking something, for losing my cool, for letting the mask slip and showing the monster underneath. I'm told that ADD medication can help with this.
That bit doesn't click until much, much later. At any rate, I'm absolutely exhausted, angry, depressed, and thinking I should just give up on this whole endeavor because I've got too much other shit to put up with to deal with this nonsense as well.
I hold off on making any decision on that for the moment, because decisions made while emotional are frequently regretted. Ask me how I know.
The weekend passes and I just kind of sit in a funk the whole time. Nothing seems fun or enjoyable. Nothing holds my interest. I just coast through the weekend watching Youtube mainly.
When Monday comes... there's no return call from the doctor's office all day. Tuesday, I call and leave a message again. No call back the rest of the day. That's not unexpected, but it's still disappointing and it's getting me pissed off all over again. The decision to give up is gaining popularity in my brain.
Wednesday morning, at about 8:45 am, I've only just gotten into the office, I'm setting up, my phone is set to vibrate--but stupidly, I didn't learn my lesson from the lengthy game of phone tag back in September--the doctor's office calls.
I miss the call. ...FUCK...
I see the notification pop up on the screen after the fact, saying I have a voicemail. I lock my computer and hurry off to some quiet place where I can have a phone call without disturbing everyone else on the floor. I call, expecting to have to leave another message.
They pick up.
They actually pick up. Holy shit, red letter day, I've got a live person on the phone.
They say they got my message, they ask me a few questions like "Are they just saying they need to delay? They need more time?"
I tell them, "No... they are straight up refusing to fill the prescription because of some 20 mile law I can't find on the books, and the pharmacy is 16.5 miles from your office. I don't get it. I don't understand why I'm having so much trouble. Can we move it to a different pharmacy? I'm kind of done with this place."
The lady on the phone is disappointed and disturbed by this information, so she happily lets me pick a new pharmacy. It just so happens that because of my little fact-finding mission Friday night, I have one already picked out. I give her the details, she confirms, it's all good, she says she'll send it over that day.
At least I've got the doctor's office side of this taken care of. Now we just wait to see how Walgreens decides to dick me over.
Sports-fans, you will never guess what happens next.
I have another missed call at 3pm that same day.
It's Walgreens.
I have an email from them too.
MY PRESCRIPTION IS READY TO PICK UP.
THEY FILLED IT WITHIN 6 HOURS OF RECEIVING IT. IT'S READY. I CAN GO PICK IT UP TONIGHT!!! HOLY SHIT!! OH MY GOD IT'S A MOTHER FUCKING MIRACLE!!!
Unfortunately, I have another errand to run and I don't know how long it will take to get that sorted out. I have to drop my car off to get some maintenance done on it. Something about the CV boots leaking grease on the engine... the place actually showed me photos of my car doing this when I got the oil changed a month back. I didn't have the money at the moment to take it on so I decided "Let me save up a couple of paychecks and we'll tackle it... possibly December, no later than January. I don't drive that much. My commute to work is 10 minutes on the side roads. I can wait a bit longer than most."
Well, the situation happened to yield good results, I was able to get the money I need in my bank account to pay for the maintenance. I just needed to drop the car off overnight. They'd get it fixed over the course of half a day, call me when it's ready, and I can come pick it up. They even set me up with a loaner car in the interim... and fuck did I stress the hell out about my complex possibly towing it because I didn't get back home until after the front office was closed (it wouldn't have made any difference to call ahead of time, I wouldn't have the loaner car's details to give them).
I get the loaner, I head back up towards where I work, pass it, and go the other direction towards home... fun stuff needing to go in the opposite direction of home to do something right after work. Makes everything take so much longer to get done, but whatever. I've got the loaner, my car is gonna get worked on, I'll get it back tomorrow unless there's something that throws a monkey wrench into the plan.
I head up to Walgreens, I get my prescription. I go to a bookstore to buy a physical copy of "Project Hail Mary" because the audiobook I've got is damn good and I want a physical version I can hold... just in case... you know... Audible/Amazon decides to be a colossal dick. Then I pick up dinner. Tacos, from a really good taco place. I'm celebrating the fact that this whole Adderall thing has actually finally paid off. Now I just need to start taking it to see how it affects me.
That will come in the morning.
For now, tacos and tatter tots. Oh and youtube, lots of youtube. I watch lots of stuff on youtube. And the whole Somerton situation has shaken loose a lot of videos from a lot of people talking about it. And happily, it's not just rehashing the same details. They're all looking at it from different angles. Like "Why did we fall for this?" "How do we move forward?" "What should we as leftists do to try and keep this from happening again?" "What changes can and should we make?" stuff like that. It's great. I love seeing people try to problem solve rather than just try to dog-pile on. It's real NASA level shit and I'm a space nerd so NASA is my jam--as is their approach to so much of what they do. Just ask me about how I help my mom plan to cook large meals for holidays... I call it a flight plan... and it's one, giant recipe, planning out what needs to be done in what order, starting with prep and ending with service. Love me a good flight plan.
Just almost never have the will, interest, or focus to build flight plans for other aspects of my life, so I just end up winging it a lot. It works okay, but not always.
That's one reason why I wanna try the Adderall I've got sitting on my desk staring at me while I've got a mouth full of taco.
Among other reasons. I hear it's a mild appetite suppressant, and if it helps keep me from snacking between meals, hey, I might just lose a little weight, make my pants fit a little better, get some flexibility back. But... tomorrow. Not now. Now, I need to be able to sleep.
And sleep I do, grateful that at least one major issue has finally FINALLY been dealt with and I can actually FINALLY START this journey properly.
From early August to early December. Roughly four whole months, and I am less than 12 hours away from starting a medication that may help me get my brain to act a bit better, help me focus, help me even my temper out, help me lose weight--I honestly don't know what all it might do... hell, it might not do anything. I could have no reaction. Or an allergic reaction. No way to tell. That last one is super rare, but... with my luck and my allergies... I don't rule it out and keep in mind that I might need to call for rescue if I have a problem.
That was last night.
Today was my first day on the meds.
I've started a log of what I notice while I'm on the pill.
I'm going to collect data, review it, share it with my doctor, and we can make whatever decision best addresses what I find.
So far though, I'm encouraged. I'm very encouraged. It didn't have any shocking, intensely powerful effect... it's just been one day. I'm told it takes a week or two for the dosage to build up and start showing signs.
But what I've experienced so far... I'm encouraged.
It's hard to tell if it was because of the medicine, or if it was just because I had a really good day at work, but I'm energized, I'm enthusiastic, I have energy again... and I... may have... forgotten to eat my lunch (I did a lot of training today, people learning how to do workflows that I have information on, so I didn't have much time to stop and eat). The appetite suppressant aspect kept me from feeling hungry, so I wasn't distracted by that. That was nice.
We'll see how tomorrow goes.
Let me know if you'd like to read what I've got in my log. I feel like this might be info that other folks could find helpful or useful... or maybe more experienced ADD folks on the same medication can offer advice for how I can maximize what benefits I get from this... or share things to watch out for.
I'm new to this, and I'd love feed back.
Let me know if you wanna read the log. I don't really care about being too insanely private about it--though I don't have anything too revealing in it, nor plan on putting anything too revealing in it.
Anyway... yeah... long post is long.
This is probably the longest thing I've written since... fuck... February? March? And I felt good writing it.
Again, not sure if it was just how the day went, or if it's the meds.
But I'm hopeful about finding out more.
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