#and i don't have leg pain or anything

[mattyknees]

my dr was like "expect days 2-4 to be the worst for pain and fatigue" and i was like "okay" but in reality i wasn't actually in pain or exhausted until, like, saturday or sunday. like i'm sleeping 20 hours a day and this shit is starting to hurt, but only in the last 48 hours. so weird.

[thedisablednaturalist]

Tw for weight loss mention

The whole exercise will cure your disability thing is a fucking joke. Yes exercise is beneficial for your health, but only if you aren't already on shaky foundations. You need to be on a treatment plan that WORKS before going into the maintenance phase. You wouldn't do regular maintenance on a broken item, you'd work on getting it up and running first. And maybe it would even need specialized maintenance afterwards if it's especially fragile.

I have fibromyalgia and acute degenerative disc disease. My immune system attacks my nerves and discs in my spine are slowly calcifying and causing the bones to constrict and damage my nerves (i think thats how it works). I have days where it feels like my body is on fire from nerve pain and days where it feels like my spine is about to rip from my back. And days where I have both (like today!). I get numbness in my hands and feet. I have horrible migraines. I can no longer walk unaided more than maybe 5 minutes without severe pain. I have something wrong with my knees and hips but the doctors don't know what yet.

You'd think I live an obviously seditary lifestyle correct?

Hell no.

I walk aided on average 6 miles a day over difficult terrain OUTSIDE of regular activity almost everyday. My legs are muscular and strong. I get my heart rate up and a good sweat, like all the gym rats swear on. I am often doing physical labor such as weeding, digging, sample collecting, pruning trees etc.

I'm not saying this to make other disabled people feel bad or prove that they can do anything if they just tried harder. This is an extremely painful lifestyle I've chosen that takes a lot of lifestyle management AND BOUNDARIES to keep up with the work. I also have an extremely forgiving boss who is also physically disabled and knows what I'm going through (deciding between your passion and your health and having to do so each and every day) No one should ever be expected to do what I do. I'm not even sure if I should be doing this myself.

This is to prove that exercise? Has not cured me. My muscles are strong but still hurt as if they're broken and I have to take more breaks than my coworker. I am constantly getting out of breath and I flare up regularly if I'm not careful. I am in excellent physical condition outside of my disabilities. I go to different doctors several times a month to get checked out.

I previously went through a diet program and lost a lot of weight (basically starving myself and got off my depression meds which cause weight gain but are also the only ones that work) and guess what? That didn't do shit either!!! I still felt horrible!!! I've since gained back the weight anyway after switching to focusing on adding more nutrient dense foods than taking stuff away from my diet (also muscle weighs more than fat, and fat helps cushion my aching joints and spine).

The muscle doesn't do shit for my disabilities outside of maybe some stability. Exercising everyday doesn't make the pain go away. Without my medications and aids and nutrition plans and steroid injections and spinal adjustments and physical therapy (that takes my fibro and spine into account) and alternative work methods I WOULD NOT BE ABLE TO DO WHAT I DO. Exercise alone is like trying to make a car run with no oil. Yes it'll go but it'll get more and more damaged till it can't and will need its entire engine replaced!

And yet I see new doctors and they look at me and the first thing out of their mouths is do I exercise? I should try doing a little every day :) and then i fucking blow their minds when I tell them about my job. No longer can they use that fucking cop out on me. I've been through this rodeo. Ive tried their suggestions. If you are in pain and nothing is helping? Exercise ain't going to do SHIT. You need to get to a point where you can move without severe pain first (if that's even possible). Then and only then should you consider implementing regular exercise if you can. Also weight loss talk is a red flag and a cop out. They made me lose 50+ lbs before they would look into the reasons behind my pain. Weight loss did nothing for me and exacerbated my pain.

I am living proof that all that shit is a lie and a cop out. That is the point of this post. I cannot believe people with serious medical conditions are being forced to put their bodies through extreme duress just to be believed. You are not disabled because of laziness or because you sit a lot. Plenty of people live seditary lifestyles and do not live in constant excruciating pain (they may develop disabilities later in life due to this however, and should be doing preventative exercises to maintain their health)

Please, share my story with doctors. Use me as an example. I am proof that "exercise first treat later" does not work. I should not have had to wait years to have my pain validated. I'd rather hundreds of fakers get (what? A blood test? An MRI?) than one chronically ill person get told to try yoga and go away by a doctor.

[shima-draws]

So there's been news floating around that tumblr is "dying" since it's going to be run by a skeleton crew. I highly highly doubt that it's going to actually die out (bc every time we hear about tumblr dying it comes crawling back. Like a cockroach.), but just in case, if you all ever need to find me elsewhere, the other place I post my art is on Instagram :)

[ratcandy]

my classmates will go thru 6 hours of class the day after a long excursion through the countryside and then just get up and go run around in town for hours going to movies and shopping and whatever and I'm just sitting here like Aren't you all exhausted . Aren't you all sore and pained. Where are you getting this energy. Can we calm down

[charlotterenaissance]

yay one of my neighbor's fifteen loose dogs bit me, animal services won't do anything, and despite cops constantly and i do mean constantly driving up and down my street because of a stupid highway that goes right through my neighborhood not one of them has done anything about it! which means if i want to go on a walk i have to cross two lanes of a busy road to get to another street just to avoid dog bite 2: this time i'm taking the leg off because no one will do anything about the fifteen loose dogs! 🥴

[ley-med]

Some days the hardest part of my job is convincing other people that they actually need to do their job. No you are not doing me a favour and I'm not asking for a favour either, I'm telling you to do your goddamn job.

[iknowwhereyousleepatnight]

:(

[cafffeineconnoisseur]

IT HURTS SO MUCH

[bird-butch]

my knee pain has been getting worse and worse lately and now it's just painful for me to walk literally all the time so that's cool

[daz4i]

born to lie down forced to do things

[italictext]

Gravity falls has wrecked me emotionally I am not okay

[aberooski]

I'm seriously hanging on by a thread right now I might just go drop dead 😭

[tenrose]

I was under the impression that I did nothing for my week off because except for yesterday and appointments I literally did not go out the entire week.

But

I sorted all of my books, made a full sheet to reference them, it took me no more than three afternoons. Also my studio is apparently 1/3 books 🤡

I've read two books, plus started a third one.

I watched the Fall of the House of Usher

I kinda kept up with my lower back stretching, even though not moving is a bad move but anyway from tomorrow I'm going back to work walking.

I deep cleaned my kitchen and deep cleaned my bathroom.

Saw my grandma.

Drank a lot of herbal tea.

Also I've got rid of my cold and I am now the normal level of tired (don't tell me the level is zero I have never been not tired)

And I more or less kept a normal sleep schedule.

So I did not in fact did nothing.

Sunday guilt can't come at me because I've done stuff.

[eats-the-stars]

love the guy assigned to my case at the “help you get a job” program. i have exactly 2 modes. 1) procrastinating until the absolute last minute. And 2) guess I will complete months worth of work that is also due at the end of the year in exactly 3 days of non-stop effort. You can basically flip a coin as to which approach my brain will decide to take for any given task.

so yeah I have a job now. and my poor case manager dude is like “wait. no. that was so fast. it’s been one week. you did how many interviews? and you picked...this one. the one that is not like anything you have done before and also was not on the “jobs I think would work out for me” list that we made?”

and he was scrambling like “accommodations. training. oh god. um. do i need to talk to your employers?” and getting more anxious when I was like “no i think I have it covered.” like i am sorry bro but i know that my vibes in person are like “quiet forgetful autistic person who can pass for either a high school student or a grandma at any moment” and this does not inspire confidence, but I am actually pretty independent once someone gives me a little push to start a thing.

also...dude you have my job history. winter sports area general worker (concessions, ticket sales, renting ski/snowshoe equipment, managing cross-country trails, monitoring the tube hill, etc.). family restaurant hostess (basically every role in the place except a cook). person selling fireworks out of tent for all of July while also living in a smaller tent behind the shipping crate filled with things that go boom. call center customer service rep handling 4 different clients that range from crafts and home decor to incontinence products and super expensive furniture. freelance dog-sitting with clients ranging from “rich couple who wants me to let their elderly cockapoos out twice a day for $50 bucks a pop in a house with a basement theater” to “i’ll give you $10 a day to exercise and feed the 3 huskies in our small apartment also they can jump higher than you are tall and scream louder than you thought possible.” bro we added a whole “volunteer experience” section to my resume because I wrote grants and worked with an environmental group to restore native bluebirds to the community and volunteered at the community table and the animal shelter and the library. like i have done lots of things that are not really connected at all. someone says “hey do you think you could do this?” and I am suddenly living out of a tent for a month googling “what the fuck is a crossette?” i once ended up in Memphis for 2 months doing volunteer construction work in the aftermath of a hurricane because my cousin didn’t want to go alone and everyone was like “oh we know someone who goes with the flow so hard.”

so you better believe i told you “oh i don’t know, maybe a receptionist position would be nice” and then applied to every local job known to god and then a few extra and took the first one to say “cool can you start next week?” i know i did not give off “I will try anything at least once if you ask me fast and then go ‘great!’ before I can process what i agreed to” vibes while sitting in your office in my colorful leggings, grandma sweaters and animal hats while not making eye contact and talking about how lovely my nephew is and how much I enjoy quiet time alone and gardening and i struggle with a poor memory and navigating social interactions. but i know you proofread my resume my guy. you asked questions about all these things except the construction thing because i actually forgot to mention that actually which is good because then i might have had to mention the cult involvement that i wasn’t aware of until i was stuck on-site but it all worked out so no sweat. still, i am glad that he is concerned by my “out of the blue” spontaneity. it’s kind of his job to help people settle into jobs that they can handle, and I also know that I would realistically need more assistance from him if I wasn’t so good at adapting on the fly due to my bad habit of saying “sure, I can do that” to literally anything. also my new job is honestly pretty tame, so i am not sure what he is freaking out about. i should really not mention some of the other jobs i spontaneously applied for before accepting this one. like..my friend...i could be working in a bridal shop. i could be training to install and repair vending machines or decorating cakes or delivering medical equipment. i applied for a job that was literally “window production.” none of these are actually as wild as that time I spent 2 months with a religious cult doing manual labor and living out of an abandoned, half-destroyed school building because my cousin talked me into it. i had to watch a dramatic reenactment of the crucifixion of Jesus on my very first night that brought the whole gymnasium of strangers to wild, howling tears while I was awkwardly clapping my hands as my cousin sobbed incoherently into my shoulder. i once dog-sat a bluetick coonhound for 2 weeks in the dead of winter, and the snow if his yard was so high that he was able to jump the fence and book it down the street. i had to chase him through knee-high snow for over an hour before he stopped to sniff a bemused old lady long enough for me to catch him. i once had a customer at the restaurant rail at me for a good twenty minutes because she was absolutely sure that we did serve pineapple upside down cake and i was just withholding this dessert from her, specifically. the bar for “jobs I would apply for” is so low that I actually thought “well as long as nobody spits in my face, pukes on me consistently, or shanks me in the kidney again I could probably do anything.” although to be fair to my case manager i did not mention those things to him (except the pineapple upside down cake lady because I mention her all the time, i am still pissed off about that situation). also, my sister was actually the one to have a dog wake her up in the middle of the night only to puke directly into her mouth, but I watched it go down, so the psychic trauma of witnessing that still exists.

[ponponpatapon]

he's telling you all about his fav lego set

[arklay]

big leg numbness today