#apraxic

[perplexingluciddreams]

got confused and motor paths muddled...

tried to go to swing, but instead: went into the bathroom when i didn't need to, got stuck standing in front of the toilet (holding new nappy), took a while to realise what happened!

then when i got unstuck, tried to go out of the bathroom, but couldn't. not without completing the usual motor path. had a few moments of slow hesitant movements when trying to "un-do" the mistakes i made (putting nappy down, closing toilet lid, putting clothes back to the right way).

almost flushed the toilet on autopilot, then managed to switch to washing my hands (the only way to be able to walk out of the bathroom afterwards).

this sort of thing happens throughout my life, but much more recently (and happening more with strong motor paths, used to mostly happen with ones i didn't learn well yet AKA easy to get muddled).

my brain is so weird sometimes 😂

[nonspeakingkiku]

hi i wanted to ask what "unreliable speaking" means? also im also a werewolfkin ^^!

Unreliably speaking is term that refers to something that people with apraxia and dyspraxia might deal with. Our body's say things we don't want or mean them to. This can range from things like saying no when we actually want to say yes, to involuntary echolalia (repeating what others say). Thank for the ask. Hope this helps. ☺️

[apraxvalith]

Feeling normal about that old man...

[morethansalad]

Vegan Kurdish Aprax / Dolma / Stuffed Vegetables with Herbed Aromatic Rice

[imperatornt]

"You might be surprised, but I might not have been the most virtuous of the Altmer back in Dusk. I might, in fact, have shown what my family and superiors may or may not have described as worrying trends in my behaviour, or in my interests. I might have enlisted and worked so hard to become a Justiciar just so I could prove they were wrong, that I would gladly commit my life to chastise heresy and enemies of the Dominion alike, and not just so I could keep my calian intact. Except, they weren't wrong. But this is a secret."

"That autumn I hunted down Vigilants of Stendarr, If I were to stumble upon them, especially at night. Inhabitants of the Reach kept spreading rumours about vampires, but it was only me. This, of course, is a secret. What did I do with the bodies? Another secret. You see, I found this intriguing place in the bowels of Markarth. A forgotten altar, to the Prince of Pain. And the Prince actually reached out to me. I was not surprised: I was, as I said, curious, impatient, hungry, far from home and irritatingly self-assured."

"Daedra worship – a Thalmor Justiciar? Preposterous. But trust me; Skyrim makes strange mer even out of the best of us, and I wasn't one of them. I have always been an independent thinker."

"There was a strange, cursed mace on the altar when I first found it. Come winter, the artifact had simply vanished. Apparently Molag Bal had found his champion, and I was soon to find out about them."

Diary of Velendomis of Dusk, 4E 201-205 6 4 First

[reformed-ghost]

I need to find out more information about the Summerset Isles caste system man

[five-thousand-loaves-of-bread]

begging people to know different people define nonverbal nonspeaking differently lmao some see two as different others see same

[lavcommunicatez]

i love you nonspeakers. i love you nonverbal people.

i love you nonverbal people who prefer to be called nonverbal. i love you nonspeaking people who prefer to be called nonspeaking. i love you nonspeaking nonverbal people who tired of debate about terminology or can’t keep up with it and just want be heard and communication rights respected.

i love you people who not speak ever since birth ( hi! ). i love you people who use to speak but experience regression / catatonia / burnout or with degenerative physical disabilities. i love you nonspeaking nonverbal people with acquired disabilities.

i love you multimodal communicators. i love you people with complex communication needs. i love you apraxic people who are unreliably speaking. i love you minimally verbal people. i love you semiverbal people. i love you speaking people with selective mutism with intermittent speech ( who listen to us and not speak over )

I love you nonspeaking nonverbal autistic people. i love you nonspeaking / nonverbal people with other intellectual & developmental disabilities. i love you nonspeaking / nonverbal people with apraxia / dyspraxia ( full body or apraxia of speech ) . I love you nonspeaking nonverbal people with brain injury with stroke with aphasia with genetic disorders. i love you nonspeaking / nonverbal people with mental health disabilities that affect language ( eg schizophrenia ) .

I love you AAC users. I love you users of text based AAC. I love you users of picture based AAC. I love you users of low tech AAC. I love you people who can’t afford the big expensive robust systems and rely on free apps or low tech for that reason. I love you people who need small grid size. I love you people who need visual accommodations to AAC like high contrast. I love you people who need alternate access like switch , eye gaze , head track , joystick , partner assisted scanning to make AAC accessible. I love you nonspeaking / nonverbal people who use sign languages. I love you PECS users. I love you letter board users. I love you people who need human support to use AAC , people who use methods like FC and RPM and S2C and all the “ discredited ” method that are constant at risk of being take away from you.

I love you nonspeaking nonverbal people who haven’t found a way to communicate with words that works for them yet. i love you people who communicate mostly or entirely with behavior with gesture with pointing with vocal sounds not words. i love you people who only way communicate is what the system calls “challenging behavior.” I love you people who communicate through violent meltdown, who SIB and hurt others , run away unsafely , destroy property etc and who are punish institutionalize incarcerate or other abused oppressed instead of helped find other way to communicate. i love you nonverbal nonspeaking people who won’t ever see this post, who under institution control or informal more subtle control and don’t have access to social media , or who disability make social media hard , or who just don't like / have interest in being on here (was me for a while !)

I love you nonverbal and nonspeaking people who have found a home in the nonverbal / high support need community on here and who feel like experience is represent. i love you nonverbal and nonspeaking people who have found a home in offline AAC / nonspeaking world like CommunicationFirst and the spellling to communicate conferences. I love you nonverbal and nonspeaking people who not find their " home " in the disability / nonverbal nonspeaking community yet , who not see own experience represent anywhere.

i love you nonspeakers of color. i love you nonspeaking nonverbal queer and trans people. i love you physically disabled nonspeaking / nonverbal people. i love you mentally ill / Mad nonspeaking nonverbal people. i love you poor nonspeaking nonverbal people. i love you nonspeaking / nonverbal people not from global north.

i love you nonverbal people. i love you nonspeaking people. we are great and we deserve to be heard.

[flaggermuser]

@apraxvalith drew this beautiful piece!

My Tav Silje (right) giving Aprax Valith's DnD githyanki character Vrykoth (left) a kiss on the nose because he's a sad pathetic meow meow who's going through it right now.

Here's her linktree!

[perplexingluciddreams]

even 1 day of not hoodie and the movement pattern is much harder

(^message I write to mum earlier on AAC)

I have bath every other day, and only change clothes at bath. I wore onesie, with not hoodie over the top, and only that short time of not practice movement path makes me get stuck and slow and muscle memory hard to access.

I have more trouble with body stuck and slow and “glitchy” recently. I want to explain more but words hard so not right now.

I have other messages from AAC that maybe I will share in future posts. Maybe some posts will be fully from AAC, maybe some a mix of AAC and typing (like this one). Maybe some about AAC itself, maybe some just general random.

I will tag them all “ezra talk aac”.

[nonspeakingkiku]

Does anyone have any good resources on apraxia? Specifically motor apraxia or global apraxia. Kiku is trying to learn more about it and how to... cope (Kiku thinks that the word Kiku is looking for) with it. Kiku is trying to find info about it but doesn't know what words to search (searching apraxia brights up stuff about verbal apraxia/cas or aquired apraxia due to stroke). Kiku is aware of one website (but can't remember the name) and their motor hacks but they are videos and Kiku can't focus on the videos for some reason.

Kiku also is working on setting up a section of Kiku's aac with prompts to use when Kiku gets stuck because can't remember the steps to do something or get body to do something without help but it stuck... because can't figure out what to add 😅 That's ironic lol, got stuck trying to make something to help Kiku get unstuck.

[apraxvalith]

Look, running a saloon is hard. Sometimes you just gotta make the most of that five-minute break...

[Gob / Nova - Fallout 3: Full NSFW image on my Patreon, 18+ only]

[zebulontheplanet]

wait if communication is an iADL than you can be non verbal and LSN?

Hey anon! Of course you can be nonverbal and low support needs, however with communication as an IADL, it’s less to do with verbal speech (although this is a big part of it too), and more to do with what you can do. Writing emails, making phone calls, texting, etc. Is all under the communication IADL.

There are multiple ways and reason someone can be nonverbal. There is no one shoe fits all. Someone could be apraxic, someone could have cerebral palsy, someone could be schizophrenic, someone could have autism, and more! There are many reasons someone could be nonverbal and not one person who is nonverbal will have the same support needs. Does nonverbality greatly affect your support needs? Absolutely! But someone can definitely have lower support needs and be nonverbal. Nonverbal doesn’t equal high support needs. And high support needs doesn’t equal nonverbality.

[birdofmay]

Are you really fully nonverbal since birth? If so what technologies are you or your caregivers using to run this blog? Do you use discredited techniques such as Facilitated Communication, or the Rapid Prompting Method? I am glad that people on Tumblr are starting to recognize that the severely autistic exist but wary of many of these “nonverbal blogs” run by (I’m assuming) either FC users who have no control over the words attributed to them, or late-regressed people who despite losing verbal abilities have the cognitive capacity (even with self-described profound ID) that individuals like for example my older brother and those in his day program could only dream of.

You seem to have sent parts of this ask to many people, haven't you? Not curious at all, huh? 😄

Alright, gonna answer it anyway.

I never learned to speak, yes, so that's "from birth" for the lack of a better expression.

I wrote about how I communicate here:

Every nonverbal/nonspeaking person has their own individual method of communication that works for them best. RPM is very good for apraxic people who can't type. Some learn to write, but that's rare. They can't reliably press the buttons on an AAC device either, because their body "has a mind of its own", so to speak. Therefore spelling is very good because they can correct any mistakes their body makes quicker and they get immediate feedback by another person on the letter they just touched. Many apraxic autistics don't struggle with language, they're "only restricted by their body" and therefore this method is ideal for them.

I can't tell you anything about facilitated communication, though.

I think you wrongly assume that everyone who never learned to speak can't communicate on their own online. That's true for some, but not for everyone. I personally can express myself best online, it's harder in real-life. I don't have ID, as stated in my blog description, and I type on my phone. No other aids required. I used to have an AAC device, but I made a lot of progress, and at some point it became too restrictive to me (because I knew more and more words and wanted to use them to be more nuanced, something that's rare for people with language disorders), which was when I switched to typing.

"Many of these nonverbal blogs" use AAC devices and can very well control what button they press, what the buttons mean, and once you make an effort to actually understand their speech pattern, you very well understand what they want to tell you, and that they're quite comfortable with what the device allows them to write. Even those with profound ID. No hate, but this sentence sounds very hostile. Never compare autistics you know to autistic you don't know in real life. You're prone to generalising everyone that way. Old and very common and unfortunate mistake of people who can speak.

You have to try to understand every person individually. Everyone thinks and communicates and writes differently and individually. And it's absolutely wrong to still assume that RPM is bad, even though RPM users have stated that they absolutely benefit from this method multiple times. They're always ignored just because some speaking people can't comprehend that assisted communication isn't manipulative or "speaking over them". It really isn't. And it's pretty ableist to always insist that because that way they ignore what those people have to say. And THAT actually is speaking over them then. Not the method.

[imperatornt]

"The first thing I found out in Markarth is that Skyrim makes strange mer even out of the best Thalmor. I'm not saying that we're all aprax or ousters; what I mean is that I soon started to feel the need to throw myself into a tavern after my shift. To warm up, yes; but also for the horrible food and the disgusting, flavourless wine. I even started to enjoy the childish, cave-dweller-styled music of the locals. It all helped fending off the cold."

"My comrades joined me at times, but they were more displeased than I was with the brutish, pitiful local company. In the end, even my faithful Breviarco stopped following me after work, and that was when I ended up with more alone time in my hands than I was supposed to."

"I was curious, impatient, hungry, far from home and irritatingly self-assured. And, oddly enough, I thought I was being watched."

Diary of Velendomis of Dusk, 4E 201-205 5 3 First

[fagbearentertainment]

I need to see them(pages) but I'm kind of scared 💀💀💀💀

This is the worst the comic had to offer out of its current 90 something pages (that were out at the time I read it it’s still ongoing)

This highlights it’s issues pretty well though, making William out like some amazing father who “did a few oopsies” and having Cassidy portrayed as some unreasonable and extremely mean person despite her anger being more than justified, William literally murdered her and Evan and Henry are sticking up for him. Some pages, really just the first one, are good in the context of the games but in this comic just make me very angry.

You can also see the blatant infantilization of Evan, who I assume has ataxic cerebral palsy given what he struggles with and that he’s stated to have cerebral palsy. If you were wondering it isn’t researched well and is also called apraxic cerebral palsy in the comic which just is not a thing and literally one google search tells you that apraxia of speech and cerebral palsy aren’t the same thing despite having overlap in their diagnosis.

I literally spent a whole day research ataxic cerebral palsy so I would be money the creators research was just googling “cerebral palsy signs” and reading the first results that came up with no further research.

Henry sucks too. He’s very bland and defends William from Cassidy the whole time. He also says his thoughts on William murdering his daughter are “complicated” which doesn’t work with what we know from the games. He spend ~40 years hunting down Williams walking corpse to kill it and suddenly after 7 years of fishing his thoughts are “complicated”???

Not even gonna get into how fucked up what William said here is. If he was supposed to be a fucking horrible person I’d love it but I don’t understand how I’m supposed to think Cassidy is being irrational when he called her “some random kid I killed” and told her to “just get over it”

Also Cassidy’s skin tone is bad. She’s grey and washed out and her skin tone isn’t natural despite the other ghosts having natural white skin tones. Not related to the writing of the comic but still pretty bad.