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#disabilityowned
cyborgqueenkelly · 3 years
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A tiny bit of hope...
I've had a BAD year, healthwise. I live with a condition called Reflex Sympathetic Dystrophy (RSD) - also known as Complex Regional Pain Syndrome (CRPS). I prefer the RSD label, as anytime you have something labeled as a "syndrome", people can be really insensitive about it. Yes, it's really there and it's not "all in my head". My nerves and my brain just don't know how to communicate with each other. I went through extensive and invasive testing and can actually pinpoint the cause to a particular incident.
If you've never heard of this condition, I'll try to sum it up as succinctly as possible. You've probably heard of the rare condition where someone can't feel pain, right? This is kinda the opposite of that. For a long time, I couldn't wear socks, could only wear backless shoes, and often couldn't even have a sheet on my leg. Often when I'd shower, the water would feel like razor blades when it hit my right leg. My case is actually incredibly mild compared to many others. I've spoken with a surprising number of people who regularly pass out from shock due to the amount of pain they experience. Fortunately I have a DRG stimulator (I'm a real life cyborg!) that has worked wonders for me and has kept things from getting too out of control since I had it implanted.
Over the past year or two I've had some really concerning symptoms not related to my leg. Nonstop coughing fits to the point that I was convinced I had broken my ribs because I hurt myself so bad from coughing. Constantly choking and struggling to breathe. I underwent testing and after ruling out most other conditions, I was told that it seemed that my RSD had spread to my esophagus. This was terrible news for me, as there's not much I can do about that, and I had already started making an exit plan due to the fact that I absolutely cannot live with this. I'm not weak. This is just one of many serious health struggles I've been dealing with. It is also the most unbearable, and it's made my quality of life terrible. I've held on as long as I have because I'm unfortunately a die hard optimist.
This week I received a tiny bit of hope.
A few days ago things got really bad and I ended up in the hospital. They did some in depth testing and it turns out I have asthma! I have to go back to my doctor bc he's the only one who can interpret the results enough to say how severe it is, but if it's bad enough, it might be the culprit for most of my issues! that's huge because its treatable! My rsd isn't as treatable. I still have it and it's still in my esophagus, but it's also highly reactive to other issues. so if my asthma is controlled, my rsd symptoms might be too!
This news isn't as hopeful as it should be, however, because I live in a country where you're only allowed treatment if you can afford it. And I can't. I live on disability ($350 a week BEFORE taxes), my insurance is crap, and I can't even afford my other living expenses. My meds and doctors appointments are now covered til at least the end of October, possibly the end of December. But after that, I'm out of luck. I have no way of paying for treatment starting in January of 2022. I have been trying so hard to get my Etsy store to be profitable so I can pay for treatment, but it's seems damn near impossible, especially when I don't have money for ads, etc.
If you have the means and would like to support my shop, I would be forever grateful. I am happy to do custom design requests if you don't see what you're looking for. (TWDFamily / Caryl/ Carol fans - I already have SEVERAL premade designs not listed in my shop. Feel free to inquire!) Additionally, you can also purchase gift credit for my shop. Of course I'm always grateful for CashApp donations ($kellyguist), but even typing that makes me feel uncomfortable, so I'll probably try to talk you into letting me do you a favor in return somehow.
If you don't have the means to support my shop financially, there are still REALLY effective ways you can help:
- Share my shop link (etsy.com/shop/spanglecustomapparel)
- Favorite some of my items. This actually helps my listings rank better.
- Leave a review if you've already made a purchase but haven't done so.
Thanks to everyone who has supported me so far, and thanks to those of you who've made it to the end of this. You're the best.
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seamonsters22 · 6 years
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Ladies' Scoopneck "Not Afraid" T-Shirt etsy.me/2A65elJ . Hey all! While this is indeed a permanent business, this is currently my only hope for being able to continue necessary medical treatment after 12/31/18. So please check out my shop, look for my Black Friday sale announcement, and shop disability-owned businesses! 💜🌰 . . . . . . . . . . #etsy #entrepreneurswithdisabilities #disabledentrepreneur #disabilityowned #notafraid #americanswithdisabilities #resist #lovetrumpshate #originaldesign #rubio #personal #kindnessmatters @etsy @rubyrose https://www.instagram.com/p/BqViu7kB1GG/?utm_source=ig_tumblr_share&igshid=1inqulk81yvwk
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It was so beautiful outside today! Especially great to be over my aunt Robin's for a lovely (and delicious) #passover seder. Being with family always makes me smile and my #lularoemaxi paired with this #elegant collection #classict was a huge hit! Family is coming over to shop my stash on Friday. More fam, more food and more sunshine please 🌞🌸🍷💖 ••• #lularoe #springfashion #sun #warmweather #style #ootd #wiw #maxiskirt #floral #sparkle #lifeoflularoe #entrepreneur #womanowned #disabilityowned #paparazzi #hairstyle #sofull #foodcoma
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maskedcommunicator · 2 years
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Tweeted
#ICYMI- Safe'N'CLear is a @DisabilityIN certified #DisabilityOwned business! Disability:IN certifies disability-owned business enterprises and veteran-disability-owned businesses and links them to organizations looking to diversify their supply chains. https://t.co/YATXGnUXra
— SafeNClear Inc. (@safenclear) May 25, 2022
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cyborgqueenkelly · 3 years
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In desperate need of help.
Hey all. This is my last drive to come up with a way to save my store and therefore possibly afford the treatment that will save my life. My listings are starting to expire. If there's anything you've been considering buying from my shop, please do it now before it disappears forever. If you've bought something but haven't left a review, one 5-star review would help more than you know. I can also do custom designs. You're literally helping save my life by purchasing or even sharing.
***Just THREE purchases with 5-star reviews might be enough to save my shop. ***
That is all. Thanks.
(Tags included are relevant to items I specialize in)
Etsy.com/shop/spanglecustomapparel
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cyborgqueenkelly · 3 years
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Jaw ready for this?
Check out this item in my Etsy shop https://www.etsy.com/listing/951267889/jaw-ready-for-this-classic-womens-v-neck
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cyborgqueenkelly · 3 years
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Some days you just have to create your own sunshine.🌞
We can help with that. The Dolly ring is back in stock in limited supply, and selling fast! 💍
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#ringstagram #cocktailring #ringshop #fashionjewelry #jewelrygifts #jewelrygram #jewelryjunkie #jewelrylover #jewelryoftheday #jewellerystore #jewelryshop#womensupportingwomen #sheinspiresme #createlounge #femaleentrepreneur #girlbosstribe #girlpreneur #womenentrepreneurs #womenwholead #womenwhohustle #thisgirlmeansbusiness #disabilityowned #disabledbusinessowner #ipreview via @preview.app
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cyborgqueenkelly · 3 years
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Friends Unagi Unisex T-Shirt
Want to support a disability-owned and woman-owned business, help fund urgent medical treatment, AND get yourself a hilariously awesome t-shirt? Check this out!
If you like the design but aren't ready to purchase one yourself, head over and give it a heart. It'll help it get seen by more people.
Like the design but you're looking for something a bit different? Check out my other items with this design! (link to collection below)
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cyborgqueenkelly · 3 years
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Limited time only. Get yours while you still can.
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cyborgqueenkelly · 3 years
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15% Off through 8/18. Starts now! 👩
Etsy.com/shop/spanglecustomapparel
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#etsystore #etsy #etsysellersofinstagram #etsyshopowner #etsyusa #sale #summersale #discountcode #discountshopping #discountshopping #discountoffer #discountsale #discountoffers #disabilityowned #womanownedsmallbusiness #womanowned
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cyborgqueenkelly · 5 years
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For just $26.50 Who loves IT dads? We do! Know an awesome IT dad? Grab one of these as a gift for him! Are you a network administrator who also happens to be a father? Then you should DEFINITELY get this shirt. Treat yourself as a reward for being such a super dad! A stylish spin on the classic baseball raglan. The combed cotton blend makes it super soft, comfortable, and lightweight. • ¾ sleeve raglan shirt • 100% ringspun cotton (Heather Grey 90% cotton/10% polyester, Heather Denim 50% cotton/50% polyester) • Ribbed neckband
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cyborgqueenkelly · 5 years
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For just $35.95 Who loves IT dads? We do! Know an awesome IT dad? Grab one of these as a gift for him! Are you a network administrator who also happens to be a father? Then you should DEFINITELY get this shirt. Treat yourself as a reward for being such a super dad! • 50% cotton/50% polyester • Reduced pilling and softer air-jet spun yarn • Double-lined hood • 1x1 athletic rib knit cuffs and waistband with spandex • Double-needle stitching throughout • Front pouch pocket
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cyborgqueenkelly · 5 years
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For just $52.50 Dress to impress with this sleeveless skater dress! The soft fabric and flared skirt give it an elegant twist that brings out the intricate spiderweb design over purple background with a beautiful vibrancy. • 82% polyester, 18% spandex • Smooth and elastic fabric • Mid-thigh length flared skirt • Elastic waistline • Overlock seams, coverstitch hemline
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cyborgqueenkelly · 5 years
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For just $25.00 Kavanaugh-gate has been tough for many of us, but particularly difficult for those of us with PTSD. This is something that I deal with on a daily basis. In addition to this, I'm also currently dealing with some ugly backlash for speaking up for fellow victims and myself. If I didn't take this stress and put it into something positive, it was going to kill me. So I decided to pay it forward to an organization that has helped all of us. You may or may not have heard of Girls For Gender Equity. They are the organization behind the #MeToo campaign. Whenever you purchase a shirt featuring this design, 50% of the profits will be donated to Girls For Gender Equity. The other half will go toward my medical fund, as I still need several surgeries and can't yet afford to cover my deductible for next year, as I am disabled and have no income. As long as donations reach $25.00, I'll share a screenshot on the first of every month to show how much was donated. The flattering cap sleeves, contemporary fit, and scoop-neck make this t-shirt a standout. • 100% combed ring-spun cotton (heather grey has 33% polyester) • Cap sleeves • Double-needle stitching • Rounded bottom • Colors piece-dyed and garment-washed for superior softness
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cyborgqueenkelly · 6 years
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For just $59.99 Our highest quality leggings. You're sure to fall in love with them! Great to wear as yoga leggings,for working out, partying, or just fun everyday wear, our print on demand leggings will make a stylish addition to your wardrobe. For a catwalk-worthy look, pair them with a cute bomber jacket when the weather turns cold, or keep it cool and casual in a custom printed t-shirt. Or femme it up! These would look lovely under a black skirt or dress! These leggings are printed and sewn using a 2 piece leggings pattern. Made with the perfect legging fabric; Lycra, and cut and sewn with careful precision. You have the option to choose from our silky and smooth Slinky Matte Lycra or Soft Sheen Lycra. You also have the option of full length leggings, capri length, or 3/4 length. Handmade in sizes XS to 4X Slinky Matte Lycra: Soft and smooth with a silky handle, our Slinky Matte Lycra gives support and form, making them ideal for sportswear. These custom made leggings will fit and flatter, with enough stretch and support for your specific needs. Colors look bold and details look accurate. Lycra Soft Sheen: Lycra Soft Sheen has a shimmering face, making it perfect for fashion leggings. It also has all the stretch you need to make them utterly comfortable and form-fitting. Rest assured, your printed leggings won't fade after washing or wearing, as our dyes soak deep into the surface of the fabric, leaving a permanent print. Ready in 1 - 2 day(s). These are custom, made to order leggings based on your fabric choice (between the 2 lycra materials above) and style choice (capri, 3/4, or full length) Low shipping fees Express shipping available If you need peace of mind or are in a rush, use our tracked 1-2 working day delivery service (after manufacturing time)
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cyborgqueenkelly · 6 years
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For just $23.00 A stylish spin on the classic baseball raglan. The combed cotton blend makes it super soft, comfortable, and lightweight. • ¾ sleeve raglan shirt • 100% ringspun cotton (Heather Grey 90% cotton/10% polyester, Heather Denim 50% cotton/50% polyester) • Ribbed neckband
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