Today my therapist introduced me to a concept surrounding disability that she called "hLep".
Which is when you - in this case, you are a disabled person - ask someone for help ("I can't drink almond milk so can you get me some whole milk?", or "Please call Donna and ask her to pick up the car for me."), and they say yes, and then they do something that is not what you asked for but is what they think you should have asked for ("I know you said you wanted whole, but I got you skim milk because it's better for you!", "I didn't want to ruin Donna's day by asking her that, so I spent your money on an expensive towing service!") And then if you get annoyed at them for ignoring what you actually asked for - and often it has already happened repeatedly - they get angry because they "were just helping you! You should be grateful!!"
And my therapist pointed out that this is not "help", it's "hLep".
Sure, it looks like help; it kind of sounds like help too; and if it was adjusted just a little bit, it could be help. But it's not help. It's hLep.
At its best, it is patronizing and makes a person feel unvalued and un-listened-to. Always, it reinforces the false idea that disabled people can't be trusted with our own care. And at its worst, it results in disabled people losing our freedom and control over our lives, and also being unable to actually access what we need to survive.
So please, when a disabled person asks you for help on something, don't be a hLeper, be a helper! In other words: they know better than you what they need, and the best way you can honor the trust they've put in you is to believe that!
Also, I want to be very clear that the "getting angry at a disabled person's attempts to point out harmful behavior" part of this makes the whole thing WAY worse. Like it'd be one thing if my roommate bought me some passive-aggressive skim milk, but then they heard what I had to say, and they apologized and did better in the future - our relationship could bounce back from that. But it is very much another thing to have a crying shouting match with someone who is furious at you for saying something they did was ableist. Like, Christ, Jessica, remind me to never ask for your support ever again! You make me feel like if I asked you to call 911, you'd order a pizza because you know I'll feel better once I eat something!!
Edit: crediting my therapist by name with her permission - this term was coined by Nahime Aguirre Mtanous!
Edit again: I made an optional follow-up to this post after seeing the responses. Might help somebody. CW for me frankly talking about how dangerous hLep really is.
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What do you think of Rook's savanaclaw card? <333
I didn't get him (and I need to save my keys for Silver's birthday, sob) so I looked up his groovy, and I'm not over how incredibly dramatic and epic and cool it looks in direct contrast to the absolutely ridiculous context. just look at that dynamic action and his majestic sparkling tears and keep in mind that this is pretty much right after a bunch of characters have been dance battling for his soul.
and then even the actual moment of the groovy is just like
this is NOT a negative in the slightest, I love it all, this truly was an incredible update in so many ways
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The whole "breasts shouldn't be politicized because the primary purpose of breasts is to feed babies!" can be a fine jumping-off point, but I really wish people thought deeper than that when we talk about the ways in which bodies are politicized and restricted.
Like, why's it that when we talk about breasts, they must have some Higher Purpose? It's true that breasts aren't inherently sexual, but they aren't valuable solely because they can potentially feed a baby. A human body doesn't have to serve a Higher Purpose in order for it to not be legislated against or policed, and I just wish people would remember it isn't always about babies, about other people, about anything else other than the people who have that body.
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The idea that uni protesters are "elitist ivy-league rich kids larping as revolutionaries" on Twitter and Reddit and even here is so fucking funny to me if you actually know anything about the student bodies at these unis. Take it from someone who's going to one of the biggest private unis in the US, 80% of the peers I know are either from the suburbs or an apartment somewhere in America, children of immigrants, or here on a student visa. I've heard about one-percenter students, but I've never met one in person. Like, don't get me wrong, the institution as a whole is still very privileged and white. I've talked with friends and classmates about feeling weird or dissonant being here and coming from such a different background. But in my art program, I see BIPOC, disabled, queer, lower-income students and faculty trying to deconstruct and tear that down and make space every day. So to take a cursory glance at a crowd of student protesters in coalitions that are led by BIPOC & 1st/2nd-gen immigrant students and HQ'd in ethnic housings and student organizations and say, "ah. children of the elite." Get real.
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the rise of AI art isn't surprising to us. for our entire lives, the attitude towards our skills has always been - that's not a real thing. it has been consistently, repeatedly devalued.
people treat art - all forms of it - as if it could exist by accident, by rote. they don't understand how much art is in the world. someone designed your home. someone designed the sign inside of your local grocery store. when you quote a character or line from something in media, that's a line a real person wrote.
"i could do that." sure, but you didn't. there's this joke where a plumber comes over to a house and twists a single knob. charges the guy 10k. the guy, furious, asks how the hell the bill is so high. the plumber says - "turning the knob was a dollar. the knowledge is the rest of the money."
the trouble is that nobody believes artists have knowledge. that we actively study. that we work hard, beyond doing our scales and occasionally writing a poem. the trouble is that unless you are already framed in a museum or have a book on a shelf or some kind of product, you aren't really an artist. hell, because of where i post my work, i'll never be considered a poet.
the thing that makes you an artist is choice. the thing that makes all art is choice. AI art is the fetid belief that art is instead an equation. that it must answer a specific question. Even with machine learning, AI cannot make a choice the way we can - because the choices we make have always been personal, complicated. our skills cannot be confined to "prompt and execution." what we are "solving" isn't just a system of numbers - it is how we process our entire existence. it isn't just "2 and 2 is 4", it's staring hard at the numbers and making the four into an alligator. it's rearranging the letters to say ow and it is the ugly drawing we make in the margin.
at some point, you will be able to write something by feeding my work into a machine. it will be perfectly legible and even might sound like me. but a machine doesn't understand why i do these things. it can be taught preferences, habits, statistical probability. it doesn't know why certain vowels sound good to me. it doesn't know the private rules i keep. it doesn't know how to keep evolving.
"but i want something to exist that doesn't exist yet." great. i'm glad you feel creative. go ahead and pay a fucking artist for it.
this is all saying something we all already knew. the sad fucking truth: we have to die to remind you. only when we're gone do we suddenly finally fucking mean something to you. artists are not replicable. we each genuinely have a skill, talent, and process that makes us unique. and there's actual quiet power in everything we do.
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