#ticcing

[tourettictrans]

more work tourette's doodles

if you can't read my handwriting it says:

panel 1: my tourette's is big...

panel 2: sometimes.

panel 3: it waxes and wanes

panel 4: but i still have tourette syndrome.

[patlikesart]

I've seen a lot of people talk about whether touretts is a visible or invisible disability. And I think it's both, tourette's/ tics are such a different experience for everyone, that we should be looking at this from a case-by-case perspective. Which is why I think saying both is valid.

Sometimes I feel like my tourette's is an invisible illness, because people have a hard time spotting it, or I go through periods of not having any tics.

But other times it feels like a very visible illness just from the severity and obviousness of my tics.

Definitely goes both ways

[yrfemmehusband]

"do you tic in your sleep" literally how would I know

[crippleprophet]

hey, i don't want to put you out or anything, i was just wondering if like off the top of your head if you knew any disability studies articles/books/whatever that center (or even just feature) tic/involuntary movement disorders?

so the answer to this was pretty much no but i spent a bit of time poking around and turned up this 2023 undergraduate honors thesis (link) by a student with tourette’s which seems like a solid starting point for going down the citation rabbit hole!

that piece is “The Embodied Performance of Tics and Tourette Syndrome in the Academic Environment” by Benjamin Allen; i’m only ~1/4th through rn but they argue for a continuum of ticcing + criticize the diagnostic system so i’m comfortable reccing it on that front! the (non-medical) tic-related works cited there are:

Buckser, Andrew. “Before Your Very Eyes: Illness, Agency, and the Management of Tourette Syndrome.” Medical Anthropology Quarterly, vol. 22, no. 2, 2008, pp. 167-192.

Buckser, Andrew. “The Empty Gesture: Tourette Syndrome and the Semantic Dimension of Illness.” Ethnology, vol. 45, no. 4, 2006, pp. 255- 24. https://www.jstor.org/stable/20456601.

Curtis-Wendlandt, Lisa. “Time and the Tic Disorder Triad.” Philosophy, Psychiatry, & Psychology, vol 27, no. 2, 2020, pp. 183-199.

Curtis-Wendlandt, Lisa, and Jack Reynolds. “Why Tourette syndrome research needs philosophical phenomenology.” Phenomenology and the Cognitive Sciences, vol. 20, no. 4, 2021, pp. 573-600.

Miller, James. “The Voice in Tourette Syndrome.” New Literary History, vol. 32 no. 3, 2001, pp. 519-536. Project MUSE, doi:10.1353/nlh.2001.0039.

Trubody, Ben. “Ticced off: An Interpretative Phenomenological Analysis of The Experience of Tourette’s Syndrome.” Journal of the Society for Existential Analysis, vol. 25, no. 2, 2014.

i also searched a handful of disability studies journals for a variety of keywords (movement disorder, tic, tourette’s, involuntary movement, chorea, huntington’s) but didn’t turn up much unfortunately, so all but the first of this next list include someone with tics and/or involuntary movements rather than being about moving involuntarily.

haven’t read these so i can’t speak to the politics / quality (although i’ll make a post if i’m able to read more) but here’s what seemed potentially relevant! also if anything is paywalled please don’t give T&F your money lol, try SciHub or if you can’t find something i can ask around for somebody with institutional access!

Cultural Differences in Reactions to Tics and Tic Severity (2021)

Using virtual reality to implement disability studies’ advocacy principles: uncovering the perspectives of people with disability (2023)

I had every right to be there: discriminatory acts towards young people with disabilities on public transport (2020)

From comedy targets to comedy-makers: disability and comedy in live performance (2015)

From the Case Files: Reconstructing a history of involuntary sterilisation (2010)

i also want to mention “Movements of the Uncontrollable Body Part Two” by Bronwyn Valentine (2019), a creative writing piece about her experiences of embodiment + ableism with spina bifida that i first read pretty soon after it was published & went looking for after developing my movement disorder a year ago because it was so impactful. @fndportal also has some incredibly vital work.

also if you haven’t already read Rosemarie Garland-Thomson’s Staring: Why We Look, it’s not specifically about involuntary movements but definitely a core text for theorizing any visibilized disability.

i hope some of that is helpful!! if anybody checks any of these out i’d love to hear your thoughts/critiques! all the best to you & i hope these offer some resonance with + understanding of your experiences 💓💓

[hydeingpurples]

Thank you Tourette's, so very much, for all of the neck pains you've given me lately. Appreciate you xx

[hamptersadness]

Watched a girl ( with what I'm assuming tics) bang her fist repeatedly on a metal railing and I feel nothing but pain right along with her. She also sniffed a couple times which triggered my sniffing tic.

[entity56]

Who needs enemies (school bullies) with family like this (parents who roll their eyes and say you look weird every time you tic)

[fentrashcat]

On an entirely related note- do you have recommendations for things like phone cases, wrist straps for controllers that don't come with them, cases for controllers, or anything similar? I've broken like 3 xbox controllers with tics in the last year and it's getting expensive 😅

If you feel like it please share to expand reach, I'd really like to know if it's just me or if it's more common than I think.

[eye-devourer]

So, I know I posted like a second ago, but,,,,,

I think I just found my community for the first time

I have restricted myself for looking tics up on the internet in case I start mimicking others or idk

I felt really isolated. I tried not to talk about them, or think about them. Basically I just pretended they weren’t existing in hopes they would go away. I don’t think they will go away anytime soon.

And now I see there are others like me. People who struggle with the same thing as me. It’s honestly incredible to think about. I don’t feel so alone anymore.

I just wish I had such community when they were starting. I wish I had allowed myself to look it up earlier, when they were so very bad. I wish I had someone irl to just… talk ig? Like to be able to crack a joke and to have someone smile instead of looking concerned. Or be able to bitch about them without making the other person uncomfortable. Not being able to talk about them was literally killing me, so expect me to never shut up now

[tabooballoonpolice]

Reminder to just talk about your insecurities because today I told my friends that I've developed tics and I was really anxious about them judging me but this was literally their response

Like, yes, I knew my friends weren't ablest (I've been physically disabled for years and they've always helped me) but for some reason my brain didn't link judging tics to being ablest. So when my friend said this I was like "oh yeah, of course they'd never judge me. Why would they care that I have tics?? If anything they'll wanna help me???"

So yeah. If you're thinking that your friends will judge you for something that's out of your control, maybe just be honest with them. They're probably more understanding than you think.

[Image description : A screenshot of a Discord message from someone nicknamed "Problem Child". The message reads, "Babe we're not ablest."]

[tourettictrans]

quick doodle while i'm at work

[sir-arlieosaurus-lung-struggler]

Id be asking this in a community if I could (school wifi blocks them) but is my hand shaking uncontrollably for over an hour + my neck periodically throwing itself ticcing?? I need to be like purposely shaking my hand to minimize the rest of the things shaking/twitching (also i took my albutoral so I think im gonna be dealing w/ this for a minuteeeeeee / minute ;[ ) ((this is awsome i already have period cramps + nerve damage acting uppppppp / up)

edit to update: moved to my legs too ;>

[patlikesart]

Gets Self conscious that I'm not ticing enough, *tics* gets embarrassed that I ticced. It's a lose lose really.

[yrfemmehusband]

looking for tourettes/tic disorder community :)

My name is elias and I’ve had tics for four years. currently on the way to a tourettes diagnosis, so I don’t get in trouble in my job and hopefully so i can get some medication to lessen the constant ticcing! I experience coprolalia and copropraxia, both of which are daily burdens in my life. I don’t know anyone else irl who has tics or tourettes and I feel so alone for it, so I’m hoping to find community here!

[transpoettryinghisbest]

If there's anyone out there who still thinks people with tics/Tourette's are faking. Please read this.

I just lost my Aunt. Out of nowhere. I've been dealing with that loss for a day and a half and all I want is to be left alone and cry and deal with my feelings.

And my Tourette's is still going. It's pulling my face to the point of pain. It's throwing my head around until I get a migraine. It's punching my chest. When I'm all alone and dealing with so much shit already.

I don't want to be like this.

Why the fuck would I fake this?

I just want to be still.