barelyfunctioning-amber - Tumblr blog

[barelyfunctioning-amber]

disabled people don't owe you their medical history :)

[barelyfunctioning-amber]

this is your daily reminder to stop being abusive and mean toward people with bladder and bowel issues.

im tired of hearing people mock those who struggle with bladder/bowl control, for people who can't tell when they need to go until it's too late or at all, for people who have uncontrollable voidings and leaking, for people who need to wear incontinence products around the clock, for people who need them influctuating amounts and need different kinds of products, for those who bedwet, for those who can't afford incontinence products so their clothes get dirty- to everyone with bowel and bladder issues.

we are human. we are still people. we are not gross, we are disabled. we are struggling with a disability. if you make cutesy posts about canes and wheelchairs, you need to include people who wear diapers, people who need plastic pants, plastic bedsheets and absorbent bed pads. you need to include people who can't tell when they need to go. people who need/use catheters. people who have colostomy bags. people with stained and dirty clothing. people who have to change their incontinence products in public.

you need to include autistic and ADHD and ND and disabled people who feel unsafe without diapers. you need to include people with spinal injuries and ehlers danlos syndrome and muscular control disorders with need incontinence products and feel safe with them. you need to include people who like their diapers and not just tragic stories where it's never discussed or doesn't negatively impact their life and livelihood.

please include all disabilities in your disability positivity posts, and please be kind and treat all disabled people with respect and humility, including those of us with symptoms you may find "gross".

[barelyfunctioning-amber]

Exactly!

need people to stop treating incontinence as gross , inherently a kink , and/or a baby thing

same with incontinence products

[barelyfunctioning-amber]

Updated introduction post! It's visible in pinned on my blog.

-Amber (any pronouns)

[barelyfunctioning-amber]

Perhaps if you’re still taking requests maybe Genderfluid Pinkie Pie and Cheese Sandwich?

Genderfluid party ponies real

~ Mod Pixel

[barelyfunctioning-amber]

This exactly!!

Stop Making Psychosis A Villainous Trait Challenge

[barelyfunctioning-amber]

I didn't forget those days, no. They all treated me like crap even though it was clear that I was disabled from the start!! My autism was obvious. My OCD was obvious. All my physical disabilities were obvious. I was suffering (still am) and it is all obvious!!

People chose to ignore them and pretend that I'm just a little girl who is just shy and doesn't know any better.

(also I'm not a girl by the way, but I am afab - please do not refer to me as "just a girl and/or woman" as I am not such, I am genderfluid - but I am fine with feminine pronouns)

The way I was treated almost my entire life won't and should not repeat to anyone else! /srs

I promise to never do that to anyone else /gen

you cant ever let yourself forget what it felt like to be 15. how adults treated you. being treated without a shred of respect because people think youre too young to have thoughts and feelings of your own. the lack of autonomy. you cant ever forget that because if you do you might become the kind of adult who treats kids like theyre not people

[barelyfunctioning-amber]

yes, there are that many really disabled people on the internet actually

When I was less sick I used to think, "It seems like such a large portion of people on the internet are disabled, it can't possibly be that large of a percentage of the population" and then let my ableism demons tell me it was because they were faking (the same ones that told me I was faking, until I made myself really ill.)

But now that I'm sicker and wiser I realize I was logically just wrong because

The internet is disabled people's lifeline. There are more disabled people on the internet because OF COURSE. People who aren't disabled can be less chronically online because they don't have to be. This is textbook selection bias!

But actually also I was almost right, because there are way more disabled people in society than you would think! They're just systematically hidden and excluded from public spaces for abled peoples' convenience! 🙃

Anyway maybe this will help you understand and/or explain to abled friends and family.

[barelyfunctioning-amber]

Autism culture is realizing that staring at those stimboards for so long is visual stimming, also it's because I love pink stim toys and such :3

!

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thinking about her... <3

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This!

I think the reason why people want to know what's "wrong" with disabled people is because they want to reassure themselves.

They want you to say you were in a horrific accident or that you have a well known and treatable disease because they think they can stop it happening to them.

They think their health is a given because they aren't a dangerous driver/ an alcoholic/a drug user/obese/an unhealthy eater etc. Obviously this isn't true but it's easier for them to think of it like that.

Until one day they meet someone who did nothing. They're not really asking "what's wrong with you". They're asking "what went wrong" because they think they can avoid it.

So when they meet someone who made all the right choices, who was healthy, who was safe and one day woke up sick and never got better, it scares them because some part of them realises that it could happen to them.

They can exercise and eat a balanced diet and be as careful as possible and it doesn't do a thing and they can't do a thing about it. That terrifies able bodied people.

People like to look for something or someone to blame and they hate it when there's nothing there.

[barelyfunctioning-amber]

THE FUTURE BODY IS A DISABLED BODY //

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here’s to disabled people who can’t speak/struggle to speak. wether it be a physical thing, mental thing, or both, it’s okay. you’re not any less a person for it.

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Shout out to people who do fit the stereotypes for their disorders. The symptoms that are deemed ‘wrong’ and ‘incorrect’ by most of social media. You exist and that is okay.

[barelyfunctioning-amber]

As someone who has to eat very slow and with difficulty...

This!!

Please don't make fun of how people eat or drink /gen

one thing I’ve learned as I’ve gotten more disabled is not to make fun of how someone eats or drinks. like ever. it’s never funny and it’s something a lot of people are sensitive about and can’t control

[barelyfunctioning-amber]

Exactly!!

you will NEVER unlearn your internalized hatred of severely disabled people until you get over the fact we don’t owe you infinite kindness, education, and hand holding in exchange for you treating us like HUMAN FUCKING PEOPLE

[barelyfunctioning-amber]

This!!

wheelchairs go on elevators before strollers btw and if your elevator is full off strollers and ablebodied people and a wheelchair user is trying to get on you should get off and let them go before you. :)