#physdis

[crippledpunks]

cleaning is extremely difficult. cleaning your home, your office, your car, your personal space, your clothes, your body, anything- cleaning is an intensive process that involves a lot of small movements, focus, and stamina. many people struggle with the various aspects of cleaning, whether it's the executive function involved with executing or conceptualizing each step involved, fatigue from having to gather supplies and move around, pain from long periods of time on one's feet or repetitive motion, drain from struggling to focus, or whatever else,

a lot of people are affected by the difficulty of cleaning. depression, adhd, schizophrenia, autism, fibromyalgia, hypermobile joints, EDS, POTS, MS, chronic GI problems, chronic pain, chronic fatigue and other disabling conditions can make cleaning and keeping a space clean over time very difficult if not impossible for a lot of people- please be kind to those who struggle with cleaning, and kinder to yourself if you struggle to keep up with cleaning. it is a very difficult task. it's not your fault you struggle with it.

[the-rest-is-silenc3]

*stands up and knees and ankles hurt*

*sit down and hips hurt*

[anomalousmancunt]

this disability pride month i'd like to remind y'all that "visibly disabled" does not imply "mobility aid user" (nor anything else other than "people can see there is something about you that doesn't fit abled hegemony")

OP is autistic and talking about its experiences being autistic (AND multiply disabled). don't fucking touch if you have no solidarity towards autistic people.

[genderqueerdykes]

I can't wait until i actually get myself a cane, my parents won't listen to me whenever i tell them i need one for my back pain, just a few more months until I'm an adult and can buy my own

i'm glad you'll be able to get one soon! people are very weird about canes. we have this misconception that they're only for old people, but anyone can try one out and see if it's right for them if they feel they may need one. it's helped me with my bad balance tremendously, and it helps out my knees and my bad right leg. i hope that it helps you once you get one!

[1nternetangelz]

hihi !! new account because i& lost my& last one , but i&ll get straight to the point . this might get into vent territory so i&ll cut it off just in case !!

i& am in debilitating pain 24 / 7 . i& have a high heart rate + high blood pressure , and my& joints always hurt . my& toes , ankles , knees , hips , entire back , shoulders , traps + neck , and the base of my& skull always hurt , with my& sensitive areas being knees , hips , and neck .

along with this , i& am always fatigued . i& wake up around 10 and go to bed around 8 [ when i& can ] , and am never able to fight off my& tired feeling .

after almost two years and two canes later , my& mother brought me& to the doctor . i& go , do my& physical , get my& blood + urine drawn the next week for every test BUT the one i& thought they'd do [ a crp for inflammation ] , and i& go home and wait .

nothing . they said i& was sick , on my& period [ blood in urine ] , and dehydrated , and nothing else .

now everyone in my& house is acting like im crazy .

i& dont know what to do , and every time i& think about it , i& cry . two years of waiting for ... nothing . i& cant stand without support , i& was kicked out of band for my& inability to march correctly , and i& cant go up / down the stairs without falling .

it hurts . living hurts . my& partner and friends are the only ones who believe me& and my& family is treating it like its all in my head , that im& working myself up over nothing . that life is supposed to be like this .

it isnt , something in me& KNOWS its not . something in me& knows that this is not normal , and every time someone says that they go even a few minutes without pain i& just want to curl up and cry .

standing hurts right now , laying down hurts right now . i& barely have enough energy to make this post because my& fingers are cramping and i&m so fucking tired . its 2am , way past when i& sleep , and i&m up crying because i&m in so much pain .

i& just need advice , feel free to scroll .

[mymindisacharger]

yall yesterday i was yapping 2 my science teacher and i was like "yeah i can stand and walk around and maybe run but standing for more than... an hour? gives me really bad sciatica :-(" and hes like "youve had sciatica??"

girl yes???? :sob:

[headpainmigraine]

If you don't accept physically disabled people with no mental health issues or neurodivergencies into madpunk or neuropunk, you're a PERD.

Physically Exclusive Blah BLah.

Also, you're a cop, and a firefighter, and an ambulance driver.

Get out of Pride!

[momett]

why do abled NDs want to reclaim the word cr*pple so badly. like is slur discourse truly the hill you want to die on

[snapcracklepop-myjoints]

I love disabled joy. Like seeing people talk about the joy they got finding a wheelchair barbie in a store or someone showing off their decorated assistive devices or the simple joy of zigzagging down a hill with my friend in our wheelchairs and laughing i love it!!

And the joy of having disabled friends and community and being able to share these things is so important like. Getting a new mobility aid or having doctors appointment go well or getting pain relief etc etc and sharing these things with other disabled people and getting to share in their joy like. It really is so healing I can’t put into words how much it matters to me.

[system-splintered]

Lately I've been having more nerve pain in my arms and hands and it's very disconcerting. I am in the process of learning to take my meds 3x a day without being too exhausted to get up for the midday dose in order to increase my nerve pain med (Lyrica) further but it's had no effect yet.

Sometimes I'll cough and it shoots lightning/fire from my funny bone to my fingertips. Yesterday it did that but plus the whole front of my chest, my upper arms and shoulders, and part of my neck and face. It just did it for one coughing fit (coughing unrelated I'm asthmatic and I smoke pot) but it really scared me.

Could this be normal for my diagnosed conditions (fibro & inflammatory arthritis, likely RA)? The last time this happened it was in my lower arms and lower legs and an increased dose of Lyrica stopped it. I know there's still plenty of time for it to work but I'm scared that it's going to keep getting worse, I'm already at the max dose and idk what else they can even do for nerve pain.

I could use some advice from those who have experienced similar pain, whatever the reason. I'm going to tell my Rheum next visit in March. I'm just afraid things are getting worse instead of better. Thanks for reading.

[crippledasinfuckyou]

can we like. stop writing articles and anything rlly abt autism by referring to the autistic people in question as a "child" like. adults w autism exist?? can we PLEASE stop erasing them

[crippledpunks]

this is your daily reminder to stop being abusive and mean toward people with bladder and bowel issues.

im tired of hearing people mock those who struggle with bladder/bowl control, for people who can't tell when they need to go until it's too late or at all, for people who have uncontrollable voidings and leaking, for people who need to wear incontinence products around the clock, for people who need them influctuating amounts and need different kinds of products, for those who bedwet, for those who can't afford incontinence products so their clothes get dirty- to everyone with bowel and bladder issues.

we are human. we are still people. we are not gross, we are disabled. we are struggling with a disability. if you make cutesy posts about canes and wheelchairs, you need to include people who wear diapers, people who need plastic pants, plastic bedsheets and absorbent bed pads. you need to include people who can't tell when they need to go. people who need/use catheters. people who have colostomy bags. people with stained and dirty clothing. people who have to change their incontinence products in public.

you need to include autistic and ADHD and ND and disabled people who feel unsafe without diapers. you need to include people with spinal injuries and ehlers danlos syndrome and muscular control disorders with need incontinence products and feel safe with them. you need to include people who like their diapers and not just tragic stories where it's never discussed or doesn't negatively impact their life and livelihood.

please include all disabilities in your disability positivity posts, and please be kind and treat all disabled people with respect and humility, including those of us with symptoms you may find "gross".

[anomalousmancunt]

if your punk relies on being mean and angry* more than it relies on building a community, then it's meaningless.

*specially if it's towards other marginalized people. the fuck you're doing?

[feathertailedcentipede]

I looove looking at posts abt a specific thing and thinking "this could also apply to another thing. oh, but I won't derail the post, I could make my own post instead if I feel like it" it's such fun you should try it

[1nternetangelz]

hi tumblr i& slept it was awesome but is it normal to be able to pop my& right hip in and out of place ?? i& cant do it with my left tho ...