CMS, GSVII, Tethered Spine, LSTV 🧬Disabled, chronically ill + neurodivergent. 🦼Intersex + non-binary. 🏳��⚧️Welcome to my spilled thoughts. 🧠
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I know I’m a little early, but I can’t wait any longer 😁
🏳️🌈🏳️🌈🏳️🌈🏳️🌈🏳️🌈🏳️🌈🏳️🌈🏳️🌈🏳️🌈🏳️🌈🏳️🌈🏳️🌈🏳️🌈🏳️🌈🏳️🌈🏳️🌈🏳️🌈🏳️🌈🏳️🌈🏳️🌈
HAPPY PRIDE MONTH EVERYONE!!!
🏳️🌈🏳️🌈🏳️🌈🏳️🌈🏳️🌈🏳️🌈🏳️🌈🏳️🌈🏳️🌈🏳️🌈🏳️🌈🏳️🌈🏳️🌈🏳️🌈🏳️🌈🏳️🌈🏳️🌈🏳️🌈🏳️🌈🏳️🌈
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wheelchair accessibility I never see talked about
table height
aisle width
center vs side poles for tables
spots to sit in rooms/adutioriums/etc. that aren't blocking aisles
sink height and sink cabinets
toilet height
cash register height
the height of just so much, I could go on
benches/trash cans/scooters/bikes & bike racks/restaurant patios/etc. taking up sidewalk space
light poles placed in the center of the sidewalk
tilted sidewalks
lack of cross walks (jaywalking is not an option for me!)
overgrown brush over sidewalks
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Went to my GP today for what I thought was really bad sciatica from pissing off the herniated disks in my lumbar spine.
After my GP ordered my CT, I got a call from my neurologist discussing fusing 3 vertebrae, breaking both hips and resetting them, and fusing my transitional vertebrae back to my spine fully. 😅
P.S. if my MRI order is being sent as urgent, why take 6 weeks to schedule me? And where is this toroidal shot? It only lasted four of the 33 hours it was supposed to. 😭
#chronically sick#chronically ill#chronic pain#chronic fatigue#chronic illness#disabilties#disabled#tethered spine#spine surgery#vertebrae#hypermobile#I just rolled over to turn off the lamp you dramatic twit#lumbosacraltransitionalvertebrae#congenital myasthenic syndrome#non-classic congenital Myasthenic syndrome#congenital myopathy#glycogen storage disease#pain#vent#rant post#spoonie#cripple punk#im scared#advice#mental health
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tbh the ‘anything is better than nothing’ mindset has been invaluable to me, especially as a disabled person. like. half-assing things is the number one reason anything gets done for me.
run the dishwasher even if it’s not full. brush your teeth even if you aren’t going to floss. put away a single piece of clutter to make your space more livable. change your shirt and keep wearing the same pair of pants. eat a snack if you can’t make a meal.
it sucks to not be able to get stuff done as well as you’d like. i get that so much. but you have permission to half-ass stuff as much as you need. literally anything is better than nothing.
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Etna, my fire chariot ❤️🔥


Image description, provided kindly by @blatantescapism
[Image description: four photos of the same wheelchair, customized in a badass, bright, and bold Fire theme. The wheel spokes are done in alternating red, orange and yellow; they probably look amazing in motion. The frame is black and red, with hot rod style airbrushed orange flames. The back support cushion is covered with black and red fire-patterned fabric. The back of the cushion has a punk patch, held in place with safety pins. The patch is hand-embroidered with the image of a person with spiky hair, racing fast, while flames shoot out the back of their wheelchair. All together, the look is fierce and fun in a “just try and stop me” way. End ID. /]
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They are not wrong. I hadn't thought about it tho. 🤔
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Quite possibly my favorite bookmark. I love the inclusion and diversity, and it a great representation of the amazing librarians I’ve cross paths with through my life. ❤️
#books#booklr#bookmark#books & libraries#librarians#disabled#chronically sick#chronically ill#chronic illness#chronic pain#chronic fatigue#spoonie#mental health#safe space#books and reading#bookworm#bookblr#book blog#wheelchair#mobility aid
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