I apologize, I forgot to put a trigger warning before. I do mention suicide.
As a chronic pain patient/advocate who is newish but oldish to the game, I have learned that the argument of addiction is the reason people in pain are not getting proper pain relief. And if you are lucky to get pain relievers, it comes with a big, red scarlet sticker saying the medication “can cause dependency” on the bottle... well, think about it: if you have daily pain, you will need daily relief if you hope to live a normal life.
But there is a major difference between addiction & dependency:
Addiction is an insatiable desire for the medications immediate “euphoric” effects, aka “chasing the dragon” which typically lasts all day. The patient may end up over using/taking much more or all of the prescribed amount within a shorter time period.
Dependency is when the person needs the medication to sustain a decent quality of life. The patient is taking their prescribed medications as directed so that their body can function properly.
An example of dependency is a diabetic patient needing insulin so that they can live.
The problem is that addiction is in everyone, and everyone has some form of addiction that is waiting to be ignited. It is a basic human condition to “want more” and it can be a result of MANY things including a traumatic experience, or even the dreaded “peer pressure” during a high-school party. It can happen with gambling, sex, exercising, even food… It is a spectrum. And it is up to the person to determine their path.
We have reached a new stage of our awful human evolution. Being thin is a societal influence, something that people will kill them-selves for, and we now have everyday people using the diabetic prescription drug “ozempic” as a way to lose weight.
Diabetic patients who are dependent on this type of drug are unable to fill their prescriptions because of the high numbers of non-diabetic people using this drug for their personal gain- pun noted.
To be blunt or a bit dramatic, we could say they are abusing or misusing a diabetics drug.
A person in pain asking for medical attention is shamed, mocked, reported, harassed, and some extraordinary nurses have even taken it far enough to record their rejected “drug seekers” walking out from the hospitals as they’re laughing in the background.
We have been waiting for justice for what seems forever, and some pain warriors have even decided death is better than endless pain… there are so many. It’s not just pain patients either, an ER doctor Dr. Steve Ortiz committed suicide, because he was unable to help his patients. He was continually harassed by the ones who made these fucking rules. He wanted to bring light to the corruption with his death, leaving behind his wife and children in hopes for justice.
And now pain patients everywhere get to watch our society do exactly what they claim to hate us for: abusing someone else’s medication…
Self reflection is free, and everyone should use it daily.
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Three in the morning and I am wide awake waiting for my ibuprofen to kick in.
One day I swear I will just yeet my uterus off a cliff.
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When you wanna finish the route, but your heads throbbing and you don’t feel like reading 😭
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Week 1 Game Plan.
This week I'm focusing on better planning my lunches for work and cutting out a few major offenders in my diet.
My current home situation doesn't really provide me with much control over what's for dinner. I know I can always make my own on the side but I want to get there gradually and not overwhelm myself. So instead I'm babystepping into this, and I may not end up getting fully AIP compliant but I'm going to try my best to give myself the biggest chance of healing.
Here's the goals:
1. WATER 💧 : Drink at least 2 bottles of water each day this week. I'm not counting sparkling water in this but it is allowed for now while I'm cutting out soda.
2. Pack a lunch every day for work, and compliant snacks. Only 4 days this week. Today is Monday so I'll be making myself a ton of Chicken Salad. Snacks I haven't decided on but I very well may just pack extra chicken and snack on that.
3. Avoid the list below as much as possible. If I mess up I am not allowed to use "I'll start again tomorrow" as an excuse to go wild for the rest of the day.
4. Take all of my work breaks and take a walk during them.
Here's what I'm avoiding (for now):
1. Dairy 🐄
2. Coffee ☕️
3. Bread 🍞
4. Spicy Stuff 😭 This is going to be the hardest, but it's proven to be a big contributor to my aches and pains.
5. Soda/Energy Drinks 🥤
6. Alcohol. 🍷 This is probably going to be the easiest to start off, but hard to maintain.
7. Candy 🍬 I've become a major candy snacker at work recently and I really need to plan ahead for something to replace these impulse grabs.
It feels like sooo much listed out, but I’m actually feeling pretty confident about it.
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There is something that is stopping me from being me.
It is invisible to you,
But it’s the most real thing in my life right now.
…And I see disbelief or doubt in most people who have to ask,
But chronic pain is as real as your last migraine.
And unless you live it, you probably will not understand it.
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If something were to happen to me, what would happen to my toddler followers? Would they be able to attend my funeral, or would there be an online option for them to participate? How can I make sure that they are included and supported during this difficult time?
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1.17.23 Review.
So, yesterday did NOT go as planned food wise.
There really is something about restricting anything that makes me go off the rails. BUT I thought this might happen. Today I'm bringing some more salad and more chicken for lunch. And some fruit for snacking. I'll pre-slice some apples and maybe take a banana or two.
My sweet tooth got the best of me yesterday, and when I got home I went overboard with some French bread that was out. I'm not getting too strict about following AIP for dinner yet, but I went completely off the rails.
My hips and back hurt a lot this morning, my legs are feeling weak and I did notice a lot more jabbing pains around my torso and chest last night. Strictly diet related? Probably not, but I don't think it helped. Leg wise I think I may have gone a little hard with my work walks, I walked a lot farther during my lunch break than I usually do. I don't want to throw myself into a flare right now so I might dial it back just a bit until I get back on medication.
That symptom alone really scares me because that's pretty much when I got so bad that I was hospitalized and ultimately diagnosed with MS 3ish years ago. My legs felt wierd, then slowly I was losing my balance, couldn't stand, couldn't feel my feet, until I was falling over and couldn't drive or trust myself to hold my baby daughter anymore. Everytime I experience a flare, I am terrified that I might not fully recover. So I really need to take this more seriously.
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The thing about being religious is you'll talk about your beliefs and/or experiences with non-religious people, and they'll sort of pat you on the head and say, "Yes, what a nice little idea, I'm glad that you have your beliefs to comfort you!" and every time you have to bite your tongue because your religion isn't just a "nice little idea" to you, it's a cosmic truth that underlies all things, and furthermore, although God Himself has comforted you, that doesn't mean that faith itself is comfortable, but if you put any of that into words, they'll look at you funny.
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