#chroncially ill

[caterpillarinacave]

not my doctors realizing I’m allergic to something AFTER they give it me

[last-an-eon]

Now imma. Fall asleep so strong

[thespacesay]

shoutout to chroncially ill and/or disabled folks whose meds help their conditions but cause shitty side effects

[doodling-junebug]

what’s happened to me. farmer june and someone that’s not shane

(text translation:

j: i love you, but please, come back to bed

h: can’t, i have paperwork to do)

i think that the pairing of ‘chroncially ill and frequently injured farmer’ and ‘small town doctor that is emotionally closed off’ could be fun and cute. maybe they’ll make each other feel better. who knows. i am not writing a fanfic abt it (….. most likely. maybe. i don’t have a fanfic in the work rn nope nope totally not)

[cellar-goblin]

for the love of god if you work with a chronically ill/imunocompromised person do NOT come to work sick with all this shit going around you could literally kill us

[dravenxivuk]

[plutoniuam]

Please sign this petition to fund further research into Complex Regional Pain Syndrome. I'll go into further detail below as to why this is so important to me.

If you're not in the UK, use the postcode SW1A 2AA (the postcode for 21 Downing Street, where the Prime Minister lives).

So, while some people may be aware I imagine a lot of people are not. I suffer with a condition called Complex Regional Pain Syndrome. It is not a well understood condition, and they're not entirely sure what can cause it. It can be triggered by an injury, or it can just start up with no reason

Mine developed from a fractured scaphoid in my right wrist. Despite the fact that it was healing perfectly fine, the pain I was in resulted in me being in cast for 12 weeks. They initially thought it was because the fracture wasn't healing, but every x-ray indicated that it was perfectly healthy

I broke my wrist in May 2014. I was 15 years old. Once the cast was removed, the pain increased tenfold. I had two separate nerve conduction studies done, and I had a multitude of scans done. They still didn't know what was wrong. My wrist felt like it was constantly burning, with hundreds upon thousands of tiny little pinpricks of burning pain spreading out

In June 2016, I finally got a diagnosis for the pain. CRPS type I (the type triggered by an injury). Using my hand for more than 10 minutes left me I'm excruciating pain. I am right handed, and this was during some of my GCSEs, so you can try to imagine how much pain I was in

I was told that if the pain went away less than three months, then it was acute chronic pain. If it did not, it was chronic and I would likely have it my entire life. By this point I had been in pain constantly for two years

I was 17 when they started me on any painkillers stronger than ibruprofen and paracetamol. They decided to stop me on these medications because they felt I was too young to constantly be on steroids and pain killers. There is nothing that can be done about the constant temperature changes; my hand and wrist goes from physically giving off heat to being near-freezing to touch. The skin becomes mottled and swollen. Sometimes I cannot wear long sleeves because the fabric touching my skin is excruciating

According to several UK institutions, 85% of people see a reduction in their symptoms after two years. It's been six years and my pain has simply gotten worse

There is a pain scale known as the McGill Pain Index, that roughly ranks how painful things are. CRPS is classified as being more painful than childbirth. It comes in at 42/50 on this index

I am always in pain. It has gotten to the point that normal painkillers do very little to touch the pain. On an especially bad day, I am having to take oramorph to simply function as a normal human being

I am waiting to be referred to a neurologist. They are considering testing me with a Spinal Cord Stimulator. If this goes ahead, I will have a week long trial. This will involve having temporary implants connected to my spinal cord with what is essentially a remote. It will send consistent small electric shocks into my spinal cord, which can be increased or decreased, to try and prevent the pain signals being sent to my wrist. If this trial is successful, a permanent implant will be placed under my skin. I will permanently have to modify my body to try and control the pain

Please please please sign the petition and share it

I'm tired of being in pain. I'm tired of struggling to do simple things. If more funding is put in place, maybe something will come about that means the pain will lessen.

If you've gotten to the end of this, thank you. This means a lot to me, and so few people know about it. I wouldn't wish this pain upon anybody. CRPS is known by some as the "suicide disease". People often opt for amputations to try and stop the pain.

[collected-times]

Mich selbst zu verletzen und auch Schmerzen ertragen, dem selbstverletzenden Verhalten zugute kommend, liegt inzwischen schon 4 Jahre zurück. Es ist für mich auch kein Weg mehr, mir Schaden zuzufügen. Inzwischen liegt mein Fokus darauf, mein Leben Stück für Stück mit mehr Schönheit, mit mehr von mir und mit mehr Liebe für mich selbst und andere zu verschönern. Es kam der Punkt, an dem ich es leid war, mich zu schneiden, zu verbrennen oder sonstiges um Kontrolle zu erlangen, wahre Kontrolle besteht für mich inzwischen aus der Disziplin, das zu erreichen, was ich möchte. Kontrolle ist für mich, meine Gedanken ruhig auch mal auszudenken aber ihnen, sobald sie negativ werden, keine Macht zu geben mich wieder auf den Boden zu reißen. Früher sah ich das anders, aber es ist wie mit dem Thema kiffen: ich habe vor 1 Monat und einer Woche aufgehört und ich zähle weiter. Und genau so ist es auch mit anderen für mich schädlichen Dingen. Es soll schön werden in diesem Leben und nur weil man einen turbulenten Start ins Leben hatte, heisst das nicht, dass man es genau so auch weiter führen muss oder sollte.

Keep fighting, it's worth it🤍

[fancyfade]

im starting health hw

evidently in our first chapter we’re supposed to compare the medical model of health vs the public health model

i bet this is gonna be even more annoying than the medical vs social model disability thing

[chronicillnessmemes]

How much do I love when someone comments on a joke blog on a joke post that is exactly 1 (one) sentence long with 2 paragraphs of advice.

Like you can tell anything about anyone including the steps that they’ve taken to mitigate their symptoms or pain from one sentence.

Don’t be this person.  If you really want to give advice, make sure the post is actually asking for it.  And then make sure you even know what is happening with that person.

I don’t care if you’re also disabled/chroncially ill/have chronic pain.  That doesn’t give you a pass to be a pretentious jackass and type just to hear yourself talk.  Which is what you must be doing since you took zero time to learn about what was going on.

Also every person who makes a condescending reply on ANY post on our blog just because you THINK that person is younger than you, is going to automatically get blocked.

I’m probably older than you anyway, so if you think that somehow gives you authority, then you can listen to me telling you to knock that shit off. You’re not old enough to be my mother. And how fucking pretentious to even put that in your blog description.

Clearly your age does not mean people owe you respect since you can’t treat them with any to start with.

tl/dr: if you’re not willing to take the time to learn about someone’s problem, then you’re an asshole for offering advice on something you know nothing about.

[aaronexplainsitall]

im @ing that anon: my chroncially ill ass is getting a good degree from a russell group uni PART TIME BECAUSE IM TOO SICK.... maybe stop being so fucking elitist (in a side note, good for you aaron!!! my sister did a psych degree & she loved it! i love being in academia too its so fun)

I’m so pleased for you, anon! Part time degrees are a fantastic option for people with long term health conditions. 

[viola-ing]

if you’re chronically ill clap your hands!

if you’re chronically ill clap your hands!

if you’re chroncially ill and realize you only have years left to live bc you won’t be able to afford your life-saving medicine once you turn 26 clap your hands!