#chronic adrenal insufficiency

[evilwriter37]

Sharing some of my experience living with a rare disease. (And you get to see my adorable face.)

[whatshouldwecallchronicillness]

When I meet someone with my condition who is stable and lives a mostly normal life...

[thechronicpaingame]

Why do migraines have to suck so much. I feel like if you just drilled a lil hole in my head it would sort it right out.

[rattiemattie]

Part of a series I'm working on for a show next year

[x22817]

Herz got to have her new comfy bed to lay on at my endocrinologist appointment today!

I think the appointment went really well. We discussed the vertigo issues that have been re-emerging along with the joint pain. She wants me to slow down on my taper, so I'm going to stay at this dose for a couple of months. I need to keep my patience hat on and not rush into anything. I'm so used to pushing through feeling bad that I am rushing taper, thus not giving my body the time it needs to adjust.

We're doing a LOT of bloodwork: full thyroid panel, adrenals, testosterone (no point in doing estrogen since my menstrual cycle is regular for the first time in my life), vitamins, minerals, electrolytes, and DHEA

I LOVE not producing hormones *sarcasm*

Having a doctor who actually listens to me and is willing to work with me is such a game changer.

[snapcracklepop-myjoints]

I think the worst combination of chronic illnesses has got to be, hands down, condition that makes you violently ill at least once a week (various), and condition that makes throwing up potentially super dangerous (adrenal insufficiency) like jeez let fucking puke in peace 😭 wtf

[crypticmotherfucker]

Please repost, add tags, boost as much as you can :')

[house-of-slayterr]

Why the hell do my adrenal glands need to be attach my fucking kidneys, I know they live on top of them but can I fucking live. It feels like my god damn organs are being ripped out 😭

[chronicleness]

can't believe accidentally skipping a dose of medication would,,, have Effects on me?? the audacity

[evilwriter37]

Laying in bed with no energy is really fucking boring, y’all.

[whatshouldwecallchronicillness]

When I find out there’s a shortage of the medication I need to stay alive...

[thechronicpaingame]

Any doctors / medical people wanna tell me what high fevers for 2+ weeks daily, blood work all good besides slightly high MCH & MCV is? Can urinary issues cause high fevers with no positive tests? (I have an embedded UTI). Otherwise my only thing is autoimmune but I bring you back to normal CRP, normal FBC.

In the last few days I've developed a simple cold (not COVID I've triple checked) but the fevers started before that with no other infection signs besides my urinary symptoms being worse.

I have a semi-diagnosis of reactive arthritis when my urinary symptoms are bad (very bad knee & back pain) but never had fevers with this previously.

Only time I've ever had fevers with UTI is when I had suspected sepsis but once again, I bring you to my normal blood results 🙃

[ankoku-jin]

Given all the stress I’ve been dealing with over the last couple months, my doc recently almost doubled my cortef dosage. (Prudent, because my levels were just. So far in the shitter that I almost went into adrenal crisis a couple of times, which is Not Great)

The thing is... if something triggers my acute stress response, I will keep going until I burn through my supply of cortisol. Which is now almost twice as much as I’m used to having.

🚨 🔥 WRATH 🔥 🚨

[snapcracklepop-myjoints]

[Image Description: example pictures of the front and back of a silver coloured medical ID.

The first image shows the front. There is a red medical alert symbol on the left. The engraving on the bracelet reads in all caps: 

“adrenal insufficiency

give hydrocortisone

if ur reading this 

ur gay”

The second image shows the back. It reads:

“my name

emergency contact #

do not call 911

ambulances are expensive”

/end Image Description]

im not getting this but like. it would be funny.

[bobbyditto]

Lance vs Lance when SOUP. (April is Adrenal Insufficiency Awareness month! So you will see a bit more of Lance as he is my sickly close-to self insert OC and ableist things said made me ferally draw like 4 illustrations of him + Emily last month and there's really no better time to post them than now I guess.)