#functionalneurologicaldisorder

[findruka]

22 February 2017

Insight to what's happening: So right now I can't talk. I can type clearly and write fine, but words come out of my mouth like a kid learning to talk. These 'episodes' are really scary but thankfully as it has already happened before, I don't freak out (but of course I am frustrated).

A lesson I am learning: Don't push yourself to the point your body takes over and doesn't let you choose to do what you want it to do for you.

This is due to YEARS of convincing myself I could cope with 'that' stress a little longer, be it study, work or life, or whatever.

YOU are number one and always are. Never forget that and make sure you live a balanced life and give all aspects of your body recharge frequently.

[fndportal]

Hey! I was diagnosed with FND four years ago and I didn’t even hear of anyone else having it until about a year ago. Honestly this blog just existing makes me excited because we’re not alone :)

Hey there! Thanks for reaching out :) Messages like this make my heart glad. I'm delighted that this has been a validating find for you. The isolation and loneliness of FND can be one of the hardest parts. There are thankfully some great FND communities out there. Twitter (I will not call it the other name :) ) has a good number of active FND folks, and the community is actually growing pretty nicely on Instagram too. Everyone's familiar with the social situation of FND in these communities, so there's little judgment and lots of solidarity. If you happen to use either of those platforms, feel free to give me a follow there or search some FND-related hashtags (#functionalneurologicaldisorder, #fndaware) and I'm sure folks will be delighted to say hi. As will I!

[tctrojan]

FND # 4 - Affects of FND (Part 2)

FND: Functional Neurological Disorder or as it is known to a few within the medical profession and those suffering. Is as it says on the title a functional issue. An Issue with the brain where message or electrical impulses do not go to the required section of the brain. This mainly happens during times of stress. Yesterday was one hell of a stressful day where my body refused to work right.…

[serenebutterfly]

I recently came across this quote on #Twitter and thought that it just brilliantly summed up the experience of living with #chronicillness perfectly. Because although there are good days, sometimes even wonderful days - pain and illness are still there, still a part of that memory and experience. In my experience, there is never a day when pain or the #symptoms of the #neurologicaldisorder I live with are not there; it is my full-time job, just one where I never have a break or a holiday entitlement, and which I work 24 hours a day, 365 days a year. This illness and these symptoms have now been a part of my life for so long, I can no longer recall what it felt like when they weren't there, or what it feels like to feel healthy, what it feels like to feel well. #spoonie #chronicpain #chroniclife #chronicallyill #invisibleillness #spoonielife #chronicillnessblogger #chronicallyillblogger #spooniecommunity #neisvoid #wherethetiredgirlsare #chronicillnesswarrior #chronicpainwarrior #chronicpainblogger #fnd #functionalneurologicaldisorder #fndaware #voices4fnd https://www.instagram.com/p/CqIM1NLtGp2/?igshid=NGJjMDIxMWI=

[fnd-pain]

[spinepainwarrior]

I know an incredible woman called Amy, also known as @warriorprincessamy , who is battling CRPS and FND. Due to mental health issues, as a result of her diagnoses etc, has only just found the strength to share her story and journey so far. She is helping raise awareness which is so important. Please take time to watch her video by clicking the link on my profile page or by visiting: https://youtu.be/ul6CvX7lbzY x #warriorprincess #complexregionalpainsyndrome #crps #crpsawareness #crpswarrior #fndawareness #functionalneurologicaldisorder #fnd #mentalhealthawareness #chronicpain #chronicillness #spoonie #spinepainwarrior https://www.instagram.com/p/BtoUzCBHlbF/?utm_source=ig_tumblr_share&igshid=1k2lfx99wu98s

[jeramyhope79]

Pushed myself last night, date night with my wife, a rare treat. Caught public transport with my trusty 🩼, definitely a challenge. Even harder was navigating over 4000 people, 🧠 was in overload, and today feeling it. #worthit #timminchin #fnd #functionalneurologicaldisorder #datenight #blessed (at Sydney Opera House) https://www.instagram.com/p/Ck5CksAyu7m/?igshid=NGJjMDIxMWI=

[yes-iamthemadhatter]

CHRONIC ILLNESS HYGIENE TIPS AND PRODUCTS (photo of my mom's garden unrelated) I'm hoping this post might be helpful as I share some tips and products that help me with personal hygiene, and if you have any tips or products that help you please share them in the comments. It can help me and others too, so I would really appreciate that! I linked all of the helpful products in my Hygiene products Story highlight. One tip that helps me is breaking tasks down into smaller bits so they don't use as much energy and are also less overwhelming - for example not washing my hair and my body on the same day, sometimes breaking it down even further and washing the top of my body and the bottom of it on separate days as well. Another one is to make a list of hygiene tasks to try to accomplish each week. I mark them off as I complete them and it helps me not to forget something, like cutting my nails. Another thing is a bit more specific to the bath/shower, which is to look up products that may help you stay safe and complete your tasks. There are a lot of options, and if you can't really afford anything new I find that stepping onto a stable (not wobbly) bathroom scale before stepping into the tub helps. I also lean against my cane or the back of a folding chair while getting in and out of the tub. Again make sure everything is stable so you don't end up falling and getting hurt. A folding chair can also be helpful for transferring into and out of the bathtub, depending on how much mobility you have. If you can afford things to aid with the tub/shower, you have options like grab bars, shower chairs, and handles that clamp to the side of the tub. Stop reading here, hashtags below. . . . . . . #youarenotalone #sickbuthappy #disabledwoman #youarenotyourillness #chronicillnessandme #neurologicaldisorder #carryonwarrior #fightlikeawarrior #chronicillnesswarriors #lifeishardsometimes #itllbeokay #livingwithchronicillness #fibrofighter #fnd #functionalneurologicaldisorder #spooniestrong #chronicillnesswarrior #disabilitysupport #spooniehope #chronichope #chronicallyillwarrior #chronicfatiguefighter #chronicfatiguewarrior #restandrecovery #sickofbeingsick #disabledlife (at Carson, Washington) https://www.instagram.com/p/CiMGjpHL7GA/?igshid=NGJjMDIxMWI=

[findruka]

19 January 2018

Successfully started swimming today with lovely Brasilera. Tired but persevered.

To keep track, its taking me 2.5 mins for 50 m of breaststroke and backstroke, and 1.5 minutes for freestyle. Slowly and surely, will keep at it. Has helped heaps with the tightness in my right side of the body. Also looking for someone to swim on Tuesdays with me xx

I wasn't listening. I was pushing too hard.

Because admitting that I wasn't truly there. Was too much to bare.

[guywithyarn]

One of the biggest stressors for most people. #mentalhealthawareness #mentalhealth #acceptance #fnd #functionalneurologicaldisorder (at Jackson Twp) https://www.instagram.com/p/CeQ3gFduJBt/?igshid=NGJjMDIxMWI=

[serenebutterfly]

One thing that I have learnt from living with #chronicillness and having to take many pills is that they can be difficult to swallow! (And I would love to know why the the smaller pills are so much harder to take than the larger ones!) But the physical pills are sometimes not as hard to swallow than the metaphorical ones. All the losses that chronic illness causes in life such as loss of relationships, your health, the future as you once planned are all devastating #spoonie #spoonielife #spoonielifeproblems #chronicpain #chroniclife #invisibleillness #chronicallyill #chronicillnessblogger #chronicallyillblogger #spooniecommunity #neisvoid #wherethetiredgirlsare #neurologicaldisorder #fnd #functionalneurologicaldisorder https://www.instagram.com/p/CkySCw5sfAi/?igshid=NGJjMDIxMWI=

[ditzyblog]

Whilst walking forward to day, my wonderful legs decided to side step, with a forward crossover for about 10 foot. I called out to my wingman @ketstwin who looked on in awe and said “I’ll meet you at the van then” 🤣🤣 A pair of ballet pumps would have completed the performance #fnd #functionalneurologicaldisorder #neurology #neurons #ballet #dancing #walking #disability (at The Hawk, Battlesbridge) https://www.instagram.com/p/CdL4HvOMRKN/?igshid=NGJjMDIxMWI=

[mookie7x7]

I've had an incredibly hard weekend health-wise! Both nasty Meniere's attacks and a black outs which resulted in a nasty fall on Friday and another black out Saturday! This again lead to a really bad depression throughout the weekend cause it's not easy to keep my mood up when so much goes on at once. When you're living with chronic illnesses,extreme migraines, sensory changes, tremors, numbness, pain, fatigue, dizziness, fluctuating hearing and black outs that comes out of the blue it becomes your normal everyday. Most of the time you have to work so extremely hard with yourself and your mental health, anxiety, depression, suicidal thoughts, your more serious underlaying mental illness diagnosis like BPD and PTSD and try and stay happy and make the most of what life has to offer. Soldier on and enjoy the little things. The small moments where life actually feels good, like in this photo where I'm swimming (something I love! Although it's not great for my Meniere's)! I think i am quite good at doing exactly that, but I'm not going to lie, it's fucking hard to live. But this is the life I'm having and I'm lucky to have a life. I have people that loves me, I have a home, I have a supportive and loving husband, a beautiful daughter and great friends and family who all play a part in making this journey worth it. I hope for a cure one day, research is important and I hope that one day I'll be attack free and not scared of little things that i used to take for granted like going out on my own. It would be wonderful. #fndhope #functionalneurologicaldisorder #nead #nonepilepticseizures #nonepilepticattackdisorder #painsomnia #fndawareness #fndaction https://www.instagram.com/p/B3leSqogBmP/?igshid=16lj2dv88wvmf

[shashiks777]

#InternationalFNDAwarenessDay #FunctionalNeurologicalDisorder (at Creations of Shashikant Sharma) https://www.instagram.com/p/CNl1P1WHPBF/?igshid=1huegiy91t3ny

[fnd-pain]

[so-fucking-proud]

Walking is a bit tricky at times, walking with more than one cup of tea, or a plate of food? Almost impossible on a bad mobility day. I've invested in this little trolley to help. Stuff for me on the top, Dylan's stuff on the bottom #fnd #fndlife #fndawareness #functionalneurologicaldisorder https://www.instagram.com/p/CJvpsn8pYjp/?igshid=13wfa10mj5lck