#Neurological

[wheelingwithgrace]

Realizing how insanely flawed and horrible the American healthcare system is.

I am STILL advocating for myself.

What’s incredibly disheartening is how quick doctor’s are too slap a label on you instead of simply saying “I don’t know” and continuing to help you.

I am still fighting to be taken seriously by doctor’s when I go to the ER because of having tainted medical records due to previous incompetence.

I recently found out and now have to fix a current issue:

I had a video EEG with a clear tonic clonic seizure (as written in the results) - it was unreadable due to movement artifacts therefore results were inconclusive. Doctor’s took to this as “pnes” because they weren’t able to get a clear answer from it.

Later on, diagnosed me with Epilepsy.

Since I have the previous PNES label, I am accused of “faking” my seizures.

This doesn’t even begin to top the fact that a lot of physicians don’t even know what seizures are beyond their textbook idea of a Tonic Clonic.

It’s saddening, Seizures/Epilepsy are a fairly common condition too and we can’t even get the proper treatment and help.

[neopronouns]

flag id: a flag with 5 stripes, with the third being twice the size of the rest. they are blue-black, indigo, soft blue, indigo, and blue-black. within the larger third stripe is an uneven zigzag stripe, which is dark red-orange. end id.

banner id: a 1600x200 teal banner with the words ‘please read my dni before interacting. those on my / dni may still use my terms, so do not recoin them.’ in large white text in the center. the text takes up two lines, split at the slash. end id.

a restless leg syndrome flag, both for a request on @mogai-headcanons and for myself!

the regular stripes represent various moments of restfulness during which rls is typically experienced — when one is falling asleep/trying to sleep, lying down, sitting down to relax, etc. — and the jagged stripe in the middle represents the suddenness of restless leg! i used a zigzag stripe to represent energy (and also electricity, which i associate my rls with) and made it orange, a color that can represent energy.

tags: @radiomogai, @dragonpride17, @mad-pride

dni link

[susanpaigecamus]

Chronic migraines. No cure. Genetics. The migraine hangover is real. Barometric pressure migraines. Billions globally suffer. Tried it all. Botox helps me.

[bitterkarmaa]

Ur not gonna believe who just lost another duck <- this loser

[inter-volve]

Not sure of the date of this. Sometime in the last week. (Today is July 18th)

[bodyhorror-bimbo]

Everyone in my family becomes allergic to one or more of their favorite foods. A very lame bloodline curse

My mom is allergic to her favorite melon honey dew.

My sister is allergic to citrus. That love runs in the family. Also kiwi, one her favorite fruits.

My brother is allergic to bees, he loves honey.

I am “sensitive” to gluten, I was a bread and noodle fiend as a child. I also am allergic to kiwi.

huh why don't i feel so good *remembers the curse on my bloodline* ohhhhhh

[nightmare-from-heaven]

Hey. Your brain needs to de-frag. Literally it needs you to sit there and space out.

If you want your memory or executive function to improve, stare out a window at the skyline or sidewalk or trees or birds on the electrical wires for like 20+ minutes per day. (With no other stimulation like a podcast or TV if you can manage but hey baby steps innit). If you're fortunate enough to have safe outside with any bits of nature, go stare closely at a 1 meter square of grass and trip out on the bugs and shapes of grasses and stuff.

Literally this will make you smarter. Our brains HAVE TO HAVE this zone out time to do important stuff behind the scenes. This does not happen during sleep, it's something else.

That weird pressurized feeling you get sometimes might be your brain on no defrag.

Give your brain a Daily Dose Of De-Frag.

[cpinmymind]

Brain Direction

PostsThank You for Supporting H and DogsMeet H and The Dogs I’m sure some know about the left side of the brain controlling the right side of the rest of the body. I have a hole on the left side of my brain and is why I have Cerebral Palsy. Separately I’ve been thinking about how I’ve been looking for primary doctors who know about cerebral palsy. I know around me there aren’t any. Neurology…

[wheelingwithgrace]

I finally received a formal epilepsy diagnosis.

[fashionnfrenzy]

[vaalgaendrum]

Extreme sleepiness, narcolepsy, is dangerous. https://dearkish.blogspot.com/2025/05/extreme-sleepiness-narcolepsy-is-dangerous.html Narcolepsy is a lifelong neurological condition. Medication, behavioral methods, and lifestyle changes can manage symptoms, but there is no cure.

Extreme sleepiness, narcolepsy, is dangerous.

[sambit123]

Best neurosurgery hospital in Bangalore

When it's neurosurgery, the choice of hospital makes all the difference. You need a hospital with skilled and seasoned neurosurgeons, modern facilities, and a high success rate of surgeries. Sapthagiri Hospital is one of the best neurosurgery hospitals in Bangalore, providing an array of neurosurgical interventions, such as brain and spine surgery, neuro-oncology, and neurovascular surgery.

The neurosurgery department of the hospital is well-equipped with the most advanced technology, such as advanced imaging modalities, neuro-navigation systems, and microscopes. The neurosurgeons at Sapthagiri Hospital are committed to delivering personalized care to every patient, providing them with the best possible treatment. This dedication to quality and patient care has made the hospital one of the best neurosurgery hospitals in Bangalore.

The neurosurgery department of Sapthagiri Hospital boasts a high success rate, with patients recovering quickly and being able to resume their normal lives. Apart from this, Sapthagiri Hospital also has a research-and-development team of neurosurgeons who continue to update themselves with the latest developments in neurosurgery. With its latest equipment, a team of highly qualified neurosurgeons, and quality of care, Sapthagiri Hospital is the first choice among those who are in need of neurosurgical treatment in Bangalore.

If you want the best neurosurgery hospital in Bangalore, then search no more because Sapthagiri Hospital is where you should be. With their experienced neurosurgeons, latest equipment, and dedication to quality care, Sapthagiri Hospital is where you should be if you're in need of neurosurgical care.

[johniac]

SciTech Chronicles. . . . . . . . .Mar 2nd, 2025

[asexual-amanita]

Unpopular opinion

I don’t want a self driving wheelchair that can go up stairs. I want ramps elevators, and curb cuts.

I don’t want a solution in 20 years, I want it now. I wanna be able to go to the mall with my friends and not have to worry about stairs. I want to go the movies and actually chose where I sit. I want to go to a park without having to parkour my way through cracked pavement and curb drops.

I want accessibility and I want it today.

[visionaryvogues03]

How Gene Therapy is Moving Towards Mainstream Medicine?

Gene therapy is considered as a novel study in molecular medicine that is predicted to be crucial in the future. It is believed that the therapy will have a significant impact on human health in the coming years. Via gene therapy vectors, a lot of diseases are being studied in expert research labs to help the society at large. Also, the emergence of recombinant DNA technology has made it easier for researchers to carry on deep study into this field. Viral vectors harness the innate ability of a virus to enter cells, carrying the therapeutic gene with them. This therapy is one of the most innovative findings in the medicine field. 

The Evolution

The concept of gene therapy has been around for decades, but its clinical application has only recently gained momentum. Early trials in the 1990s faced significant setbacks due to safety concerns and limited technological capabilities. However, with advancements in genome sequencing, CRISPR technology, and viral vector delivery systems, the therapy is now more precise, effective, and safer than ever before.

The approval of therapies like Luxturna (for inherited blindness) and Zolgensma (for spinal muscular atrophy) has validated the therapy’s potential, demonstrating its ability to provide long-term or even permanent relief from debilitating genetic conditions. As more therapies advance through clinical trials, the industry is moving beyond rare diseases to tackle broader health challenges, including cancer, cardiovascular diseases, and neurological disorders.

Regulatory Milestones and Market Growth

One of the biggest hurdles for this therapy has been regulatory approval. However, agencies like the U.S. Food and Drug Administration (FDA) and the European Medicines Agency (EMA) are increasingly recognizing its benefits and streamlining approval processes. The FDA has set ambitious goals to approve dozens of gene therapies in the coming years, signaling confidence in the technology’s safety and efficacy.

The global gene therapy market is expected to grow exponentially, with projections reaching over $25 billion by 2027. Pharmaceutical giants and biotech startups are heavily investing in research and development, forging partnerships to scale production and expand accessibility. This influx of capital and strategic collaborations is accelerating the transition of this therapy from experimental treatment to mainstream medicine.

Overcoming Cost and Accessibility Challenges

Despite its promise, the cost of gene therapy remains a major barrier to widespread adoption. Current treatments can range from hundreds of thousands to millions of dollars per patient, making them inaccessible to many who need them. Companies and policymakers are actively exploring new pricing models, including outcome-based pricing, insurance reimbursement strategies, and public-private partnerships, to make these therapies more affordable.

Additionally, manufacturing scalability is another challenge. Unlike traditional pharmaceuticals, this therapy production requires highly specialized facilities and processes, limiting supply. However, advances in synthetic biology and automation are helping streamline production, reducing costs and improving scalability.

Expanding Applications Beyond Rare Diseases

Initially, gene therapy was primarily focused on treating rare genetic disorders, where no effective treatments existed. However, as the technology matures, its applications are expanding into more common conditions, including:

Cancer Treatment: CAR-T cell therapy, a form of gene therapy, has shown remarkable success in treating blood cancers like leukemia and lymphoma, paving the way for broader oncology applications.

Neurological Disorders: Research is underway to use the therapy for conditions such as Parkinson’s disease, Alzheimer’s, and ALS, offering new hope for millions of patients.

Cardiovascular Diseases: Gene editing techniques are being developed to repair damaged heart tissues and address conditions like atherosclerosis and hypertension.

Regenerative Medicine: Scientists are exploring gene therapy to regenerate damaged tissues and organs, potentially revolutionizing treatment for injuries and degenerative diseases.

The Role of AI and Big Data 

Artificial intelligence (AI) and big data are playing a critical role in accelerating the therapy research and clinical implementation. AI-powered algorithms can analyze vast amounts of genetic data, identifying potential targets for therapy more efficiently than traditional methods. Machine learning is also enhancing drug discovery and optimizing clinical trial designs, reducing costs and time to market.

Furthermore, big data analytics is helping track patient outcomes, improving personalized medicine approaches, and refining treatment protocols. These technological advancements are making gene therapy more precise and effective, reinforcing its position in mainstream medicine.

Ethical and Regulatory Considerations

As this therapy becomes more widespread, ethical considerations must be addressed. The ability to edit human genes raises complex questions about the potential for misuse, unintended consequences, and long-term effects. Regulatory bodies and bioethicists are working to establish clear guidelines to ensure responsible development and application of this therapy.

Public perception also plays a crucial role in adoption. While gene therapy holds immense potential, concerns about genetic modification, accessibility disparities, and unforeseen risks must be transparently addressed to build trust among patients, healthcare providers, and policymakers.

The Future 

The trajectory of gene therapy is clear—it is no longer a niche or experimental treatment but a transformative force in modern medicine. As technological breakthroughs continue, costs decrease, and regulatory pathways become more defined, the therapy will become an integral part of healthcare.

For executives and entrepreneurs in the biotech and healthcare industries, now is the time to invest in research, partnerships, and infrastructure to stay ahead in this rapidly evolving landscape. With the right strategies in place, the therapy has the potential to reshape medicine, improve patient outcomes, and create significant economic and societal benefits.

Conclusion

Gene therapy is moving towards mainstream medicine at an unprecedented pace. With groundbreaking advancements, increasing regulatory approvals, and expanding applications beyond rare diseases, it is poised to become a cornerstone of modern healthcare. While challenges such as cost, accessibility, and ethical considerations remain, continued innovation and strategic investments will drive its adoption further. For industry leaders, staying informed and engaged in this space is crucial as gene therapy continues to redefine the future of medicine.

Uncover the latest trends and insights with our articles on Visionary Vogues