#spooniecommunity

[myalgicencephalomyelitiscfstom]

[serenebutterfly]

One thing that I have learnt from living with #chronicillness and having to take many pills is that they can be difficult to swallow! (And I would love to know why the the smaller pills are so much harder to take than the larger ones!) But the physical pills are sometimes not as hard to swallow than the metaphorical ones. All the losses that chronic illness causes in life such as loss of relationships, your health, the future as you once planned are all devastating #spoonie #spoonielife #spoonielifeproblems #chronicpain #chroniclife #invisibleillness #chronicallyill #chronicillnessblogger #chronicallyillblogger #spooniecommunity #neisvoid #wherethetiredgirlsare #neurologicaldisorder #fnd #functionalneurologicaldisorder https://www.instagram.com/p/CkySCw5sfAi/?igshid=NGJjMDIxMWI=

[miss-paulakay]

some days are extremely hard❤️‍🩹 #repost @simplyspoonie Chronic Illness Reminders ♥: 🧋Your worth isn’t measured by your productivity 🌻Your feelings are valid and deserve space 💊Your illness is not your fault 🌈 You are not responsible for explaining your illness to anyone 🍓Your illness doesn’t make you weak 🩹 You are a warrior and deserve to heal Your chronic illness doesn’t define you. It will dictate your days make you feel cursed from time to time but you are not just your illness. You have an individual story to tell. A name, a history, a personality. Staying yourself is part of the battle. Post: @simplyspoonie Feel free to repost this if you want! #spooniecommunity #spoonie #chronicillnessquotes #chronicillness #invisibleillness #disability #autoimmunedisease #mentalhealth #lupus #crohnsdisease #colitis #mals #diabetes #cancer #arthritis https://www.instagram.com/p/CeZMHjhKyWxi7cLE1aACP2Yem57BktxEKPcRoM0/?igshid=NGJjMDIxMWI=

[lindgrenjulie]

#Repost #chronicillness #lupus #lupusawareness #lupuswarrior Post: @simplyspoonie Feel free to repost this if you want! ✨🌈 #spooniecommunity #spoonie #chronicillnessquotes #chronicillness #invisibleillness #disability #autoimmunedisease #mentalhealth #lupus #crohnsdisease #colitis #mals #diabetes #cancer #arthritis https://www.instagram.com/p/CebER2ytwRw/?igshid=NGJjMDIxMWI=

[aspoonfullofsalt]

Does anyone really know what they’re doing… or are we all just researching like crazy and crying on the inside? #Spoonie #SpoonieLife #SpoonieSupport #SpoonieCommunity #POTS #EDS #MCAS #BVD #SaltShakers #PeopleOfTheSalt #Disabled https://www.instagram.com/p/CrHqihzLqLs/?igshid=NGJjMDIxMWI=

[taintedcraft-ltd]

*Ignore the socks and PJ’s* - But, as someone who uses crutches regularly, I have a few different ones - one being an open cuff design. Unlike the typical NHS crutches, you have to keep hold of these, where as with an NHS design crutch and others similar you can let go of the handle and let the crutch dangle from your arm using the cuff - this is great if you need that extra hand free to get something out of your bag for instance. —————————————— Anyway - back to the other crutch - the one with an open cuff, this design is great if you’ve got a big puffy jacket on but as mentioned, you can’t let go of it without propping it up somewhere first. So I decided to fix my problem in a funky and stylish way and I’ve created these straps. —————————————— They have an elasticated hoop that goes on to your crutch (or walking stick) and attached is a plastic link wristlet you slip over your hand before you grab the handle of your crutch or walking stick - I’ve also added some stylish charms, a bell to help being noticed easier and a spare keyring clip that you could attach keys or and ID to, perhaps a works pass or bus pass, whatever you like really! I’ve only made 5 so far in this style - there’s 5 colours to choose from. I will be making 5 more but in a different style perhaps using macrame for those who would prefer fabric to plastic. —————————————————— These will be up in the shop very soon priced at £9.50 - I also plan on doing a deal with a 2 pack at £18 on a made to order. As always there’s free personalisation on all my handmade keyrings/straps/chains/charms so if you’d like to add your name too for free I can pop that on in beaded letters (various colours to choose from). —————————————— #taintedcraft #disabilityaid #disabilityaidscanbepretty #crutcheslife #walkingstick #walkingstickswag #walkingsticks #disabilitypride #disabilitysupport #spoonie #spooniewarrior #spoonies #spooniecommunity #fibromyalgie #degenerativespinedisease #smallbusiness #ehlersdanlossyndrome #hypermobility #hypermobilitysyndrome #warrior #chronicillnesswarrior https://www.instagram.com/p/CqaKusGrUcB/?igshid=NGJjMDIxMWI=

[handmadebycatkin]

Some days it's all well and good until you need to leave the house... #spooniewarrior #spoonie #spoonies #spooniehumor #spoonieawareness #spoonielife #spooniememes #spooniememe #spooniecommunity #chronicillnesslife #chronicillnesswarrior #chronicillnessawareness #chroniccondition #chronicdisease #autoimmunedisease #autoimmune #autoimmunewarrior #invisibledisability #invisibleillness #invisibleillnessawareness #invisibledisease #fatigue #chronicfatigue #chronicfatigueawareness #chronicillnesswarrior #handmadebycatkin (at Ngunnawal Country) https://www.instagram.com/p/CdN-U5qBGA3/?igshid=NGJjMDIxMWI=

[bpdmummyto1]

💙💙 Having a chronic illness or more than one not only feels like someone stole your identity, it feels like they stole everything from you as nothing is the same anymore and that is hard to come to terms with! 💙💙 . . Photo credit to @itsmychroniclife . . 💙💙 . . . . . . . . . #relatablecontent #chronicillnesshumor #chronicallyfabulous #sickchick #sickaf #chronicbadass #chronicallyawsome #invisbleillnessawareness #healthmemes #symptoms #spoonielife #chroniclife #sicklife #disabledlife #endometriosis #invisbleillnesswarrior #endometriosisawareness #endometriosisuk #millionsmissing #chronicpainwarrior #chronicfatiguesyndrome #chronicillnesslife #chronicillnesscommunity #spooniecommunity #endocommunity #addisonsdisease #endosisters #addisonsdiseaseawareness #mentalhealthawareness #bpdwarrior (at United Kingdom) https://www.instagram.com/p/Cg2UPJVreO_/?igshid=NGJjMDIxMWI=

[yes-iamthemadhatter]

Art by @ashton.creates The main thing I want my jewelry to remind you is that you are never alone in your struggles, especially with chronic illness and mental health. Even if we don't share the same diagnoses I can promise you that someone somewhere has experienced the same thoughts and feelings you have, even the bad and scary ones. That always brings me comfort and I hope that it brings you comfort too. It means we are able to find community and support from people who truly get it, and I think that's one of the most important things to have when you're going through something really tough. Reposted with @preview.app Stop reading here, hashtags below. . . . . . . #youarenotalone #mentalhealth #mentalwellness #mentalhealthadvocate #mentalhealthsupport #mentalwellbeing #mentalhealthawareness #nostigma #mentalhealthisimportant #mentalhealthtips #mentalhealthwarrior #mentalhealthmatters #mentalhealthhelp #mentalhealthblog #mentalhealthblogger #mentalhealthrecovery #mentalhealthmotivation #chronicpainwarrior #sickcrew #chroniccrew #chronicillnesswarrior #chronicpaingang #spooniecommunity #spooniestrong #spooniehope #herpnw #wamade #madeinwashington #pnwcreatives #upperleftusa (at Pacific Northwest) https://www.instagram.com/p/Ce9juE0Pnuy/?igshid=NGJjMDIxMWI=

[brooksmeatswift]

𝗙𝗼𝗴𝗴𝘆 𝗙𝗿𝗶𝗲𝗻𝗱𝘀 . I think something I found really nice and understandable, the community of sufferers of not just ME/CFS but if all chronic illness, coming together and supporting each other within the Spoonie community . When I first fell ill with Glandular Fever, it was a bizarre 2 years of not having the foggiest what was going on with my body, but knowing I was fully ill . After chatting with ME Connect via The @meassociation I was advised to ask for a referral to my local ME Clinic and I was diagnosed and signed off work indefinitely . That was when I first had a look online to see what I could find out about my ‘possible but likely condition’ and I found Foggy Friends - a platform for sufferers to be there for one another and share experience, self help or just having a laugh with games and a chat room . Since then, and with all the social networking tools at our disposal - it has allowed us to find even more of a Spoonie community and to see each person being there for each other unconditionally; it’s sad that we all came together by having a long term Chronic/invisible illness - but so amazing that we have such a togetherness in our Spoonie community . Photo credit: Healthrising.org . . . #ME #CFS #Relapse #spoonie #spoonies #spoonieandparenting #spoonieparent #papaandrory #andattietoo #dontforgetmama #berkshiredaddies #chronicillness #warrior #millionsmissing #invisibleillness #spoontheory #decodeme #decodemestudy #butyoudontlooksick #meawarenessweek #community #spooniecommunity #foggyfriends (at Windsor, Berkshire) https://www.instagram.com/p/CdiGUUZMENw/?igshid=NGJjMDIxMWI=

[manriah]

‼️🥄 "Chronically Ill with no extra chill!"🗡️ ‼️

My next prints and patches I'll be posting this Friday (3/25) are for my fellow spoonies!!! Inspired by a friend and I talking about when you're out of or low on spoons and just want everyone to LEAVE YOU ALONE!!!

What is spoon theory? Who are spoonies? Why spoons? Who came up with that? Read this!!! https://butyoudontlooksick.com/articles/written-by-christine/the-spoon-theory/

The spoons theory was created by Christine Miserandino, who wrote the above article! It struck a chord with many people (myself included) who are chronically ill, mentally ill, have chronic pain, or are disabled and use spoons as a measurement/record of the limited energy we have and spend to complete tasks thru out the day and energy it takes to just LIVE!!!

These 4x6 sew-on patches are hand printed on upcycled t-shirt material adhered to a second layer of black fabric backing to make them more durable and easier to sew!

Prints will be available in rainbow, printed in oil paint; or black, printed in water based ink! Patches will be available in limited quantity, and everything will be posted in my shop on Friday (3/25)!!!

🍄🍁🍂🌼🌿🌊😈

Etsy: Manriah Made

FB: Manriah Made

IG: Manriah

Thank you for your support!!!

[myalgicencephalomyelitiscfstom]

[serenebutterfly]

I recently came across this quote on #Twitter and thought that it just brilliantly summed up the experience of living with #chronicillness perfectly. Because although there are good days, sometimes even wonderful days - pain and illness are still there, still a part of that memory and experience. In my experience, there is never a day when pain or the #symptoms of the #neurologicaldisorder I live with are not there; it is my full-time job, just one where I never have a break or a holiday entitlement, and which I work 24 hours a day, 365 days a year. This illness and these symptoms have now been a part of my life for so long, I can no longer recall what it felt like when they weren't there, or what it feels like to feel healthy, what it feels like to feel well. #spoonie #chronicpain #chroniclife #chronicallyill #invisibleillness #spoonielife #chronicillnessblogger #chronicallyillblogger #spooniecommunity #neisvoid #wherethetiredgirlsare #chronicillnesswarrior #chronicpainwarrior #chronicpainblogger #fnd #functionalneurologicaldisorder #fndaware #voices4fnd https://www.instagram.com/p/CqIM1NLtGp2/?igshid=NGJjMDIxMWI=

[dmnsqrl]

Posted @withregram • @pacingpixie *Yes, everyone dies, but killing off Disabled characters is so common it's become a trope - for more information - https://tvtropes.org/pmwiki/pmwiki.php/Main/BuryYourDisabled It's a low bar, folks. - ID An Ableism Metric for Narrative Media If the answer is 'yes' to any of the following, the media is likely ableist. Does the Disabled character: 1. Die?* (Killing Eve, Inside I'm Dancing, Of Mice and Men, Survivors) 2. Want to die? (Me Before You, Million Dollar Baby, Glee, Night' Mother) 3. Live but primarily to inspire, evoke pity from or be 'saved' by other characters/the audience. (The Secret Garden, Christmas Carol, Fundamentals of Caring, The Miracle Worker) 4. Live but with a narrative based mostly on their disabilty and/or the negative effect it has on their life? (Come as You Are, Penguin Bloom, The Sessions) - #ableism #ableist #ableismistrash #disabilitypride #disabilityisnotinability #disablednotdead #disablednotless #disabledactress #accessibilityforall #thefutureisaccessible #chronicillness #chronicillnessawareness #disabilityjustice #spoonielife #spooniecommunity #unchargeables #inclusionrevolution #inclusion #accessislove #disabled #representationmatters #represent #wheelchairuser #nothingaboutuswithoutus #disabledandproud #disabilityisdiversity #disabilityadvocate #disabledandcute #chronicallyfabulous #disabilityawareness https://www.instagram.com/p/COdR2l2jf7Gtu1YZXYJ57TJujva-ancPHWPAV00/?igshid=ezjsbbk926w1

[roseleevader]

I have a fear of being seen moving my body or not standing ‘normally’. I have a fear that I will be judged or told I am faking. These fears are especially strong when posting online and especially when I’m using my mobility aids in public. Today I’m facing that fear head on by calling it out and talking about it. Some part of my brain believes that if I’m as disabled as I talk about being, I wouldn’t be able to kick my leg up. But I AM as disabled as I talk about being, and I CAN kick my leg up! This is my disabled experience. It’s not a one size fits all. I am disabled, and I can still move my body. I have limitations, and some days I have less. I am a cane user, and I am not required to “look” like I need it. I’m disabled but I’m still goofy, dorky me and that’s totally allowed 💛 • • • Photo id: two photos of Rose in her backyard wearing a green beanie, glasses, a black sweatshirt, and jeans. Her floral cane is helping her keep balanced in both pictures. In the first, she stands facing the camera with her arm up behind her head. In the second, she has turned to the side and kicked her leg out behind her and she has her tongue out. Not pictured: intense pelvic cramping, and a subluxed hip about an hour after the picture was taken • • • #disabledandproud #disabledblogger #chronicillness #motivation #mentalhealth #disabilityawareness #chronicallyill #disabled #spoonie #spoonielife #spooniesupport #spooniestrong #spooniecommunity #spooniesunite #spoonieblogger #invisibleillness #butyoudontlooksick #chronicpainlife #edsawareness #chronicfatiguesyndrome #lowbackpain #dysautonomia #babewithamobilityaid #potsie #gastroparesisawareness #spoontheory (at Portland, Oregon) https://www.instagram.com/roseleevader/p/CZP5N_svKbb/?utm_medium=tumblr

[blazingmermaid]

Hello! My name is Amanda and I own a little shop called Spoonie Center. I am a chronic illness warrior and I wanted to share my spoons so that you always have one at the end of your day <3  I make a variety of jewelry, spoonie and non spoonie alike. Please feel free to browse my collection at spooniecenter.etsy.com Or find it on Facebook, Spoonie Center.