#i should get an autism assessment

[battleaxeproficiency]

okay okay here are my fcuking . absolution thoughts because im going insane .  under the cut because this might be . long .

i CALLED IT THAT HIRA WAS GOING TO BETRAY THEM i KNEW IT

the fucking . fairbanks fake out was so fun (rip to a real one lol) although im kind of glad he died so early because listening to matt mercer do a french accent was going to make me kill myself

rezaren was SUCH a good villain , i really really liked the way they did everything with him

i was really worried it wasnt going to FEEL like dragon age ?? and just kind of be generic fantasy story with some references to the games or something but by episode 2 it FELT LIKE DRAGON AGE and it made me so excited

i dont normally like this studios art style (i think the vox machina show is ugly . im sorry) but i feel like they really made it work for this . i think the animation was still . tough . in some places but there was a lot that was just really smooth and beautiful

on the same note i LOVED the way the magic looked , fucking BEAUTIFUL

OH MY GOD ??? THE FUCKING . CIRCULUM BEING CREATED BY A PAVUS????? EXCUSE ME ??? OUGH

taking bets rn about whether or not we think the crew from the show will be in dreadwolf or not (my bet is that yes , but only as a war table mission where you never actually see them lol)

i also feel VINDICATED for caring about dragon age 2 in this moment . i KNEW this slob boy game from the TRASH would be important one day . I FUCKING KNEW IT .

meredith is so scary im so scared of her , i cannot wait to fight her AGAIN when da:d rolls around

i feel like i need to give it a couple days and rewatch it to decide if it  was ACTUALLY good or if im just excited about dragon age

okay . that is . it for now

sorry this post makes no sense , im in crazy mode rn

[dormont]

bro i hate doctors so fucking much i'm gonna need every single one to kill themselves right now

[massive-isopod]

perhaps I've fallen victim to the serizawa.... blasting my projection rays at him

[lilnasxvevo]

Since teaching really does seem to be Lan Qiren’s passion I like to think about a modern Lan Qiren who is really good about pursuing possible diagnoses and treatment of learning/developmental disabilities of children entrusted to his care.

[thebluemage]

Now that I think about it. I believe that I have ADHD too

[vicvinegarandhughhoney]

btw cliff was nervous stimming when mindy asked him to move in ………. squeezing his fingers like dennis always does

he WASSSSSSSS

cliff gilbert is so autistic

[mementokorie]

might have to slightly restructure a period of two hours in the middle of my day tomorrow and that's making me feel like I could burst into tears, if you were wondering how things are at the moment

[ivy-saurs]

i’m thinking of getting a therapist (i had therapy on the nhs a couple years ago but they only offer you a certain number of sessions) but god it’s so expensive and i know i’ll just be crying half of the time 💀

[splend-42]

It's weird how I can flip through videos on TikTok or Instagram for ages, thriving on the free-flowing dopamine, and that's fine - but if someone in the room is doing it then it makes me want to pull my skin off off

[weird-and-unwell]

“Autism isn’t a disability”, “it’s just a difference”.

I am of lower support needs. I hold down a (part time) job. I have travelled around my home country. I live alone.

At work they complain about my speech. I’m too quiet, they say, “barely audible” is the words used at my autism assessment. My voice is all monotone, and it needs to be more expressive. I get this complaint every week for a year straight, until my manager gives up. I don’t attend trainings because I forget and find it overwhelming anyways. My coworkers form friendships, and I watch them talk, wondering how they make it look so easy. I get a new manager, I tell her I find the work socials too overwhelming to attend. She tells me I can just say I don’t want to come. I don’t know how to tell her that I desperately want to, to be like the rest of my coworkers, instead of constantly being the one sat on the sidelines.

I come home, and I can hear my neighbours again. The niggling background noise messes with my head, and I meltdown; I throw myself on the floor, I hit my head on the ground repeatedly as I scream and cry, tear out my hair and scratch my arms and face. When I complain, people tell me that I just have to accept that neighbours make noise, that I should just ignore it, or block it out. I am the problem, the one overreacting. I put in earplugs and it hurts and I'm crying again. I wear headphones but I can't handle the noise for that long.

I have reminders set for everything. Every chore, no matter how big or small. My phone beeps at me, reminding me that I need to wash the dishes. If I don't go now, then tick the little box on my phone to say I did it, it won't get done. My home is almost always a mess despite this. It's not just chores either. I won't think to wash, dress myself, brush my teeth or hair, without those reminders. And unless someone actively prompts me to do so, I will do those tasks "wrong". I haven't changed my underwear in a month, and I'm currently aware that's a problem, but within the hour I'm going to forget all over again until I'm next prompted.

I can't sleep without medication - it's not unusual for autistic people to have messed up circadian rhythms. Without my medication it's hard to even tell when I'm awake and when I'm asleep. When I was younger and at school I slept through so many lessons, and when I have my mandatory breaks from my sleep meds I sleep through every alarm I set. I want to work full time some day, and I'm terrified of what my sleep issue will mean for me then.

I don't travel independently. I don't travel anywhere alone, always with someone or to someone. If to someone, I have assistance the whole way. I find it embarrassing sometimes. Yes, I have a job that requires a certain level of intelligence. No, I cannot get on a train by myself. If I am not shown To The Train, To My Seat, I will be unable to travel.

Last time I travelled, I was left alone at the station for ten minutes. I stayed rigid and sobbed the whole time. I was overwhelmed. It was too loud, I didn't know where I was or where I was meant to be going, and until the assistance person came back I couldn't do anything because for some reason I cannot understand it.

I spend a lot of time trying to explain to people that despite my relative competence, I am unable to do many things. Why can I understand high level maths but not how to get on a damn train? No fucking idea.

"Autism isn't a disability" most severely affects those with higher support needs, and this is absolutely not to take away from them. But for fucks sake, autism is disabling.

Maybe you personally are extremely lucky and just find you're a little "socially awkward", or just find some textures painful or nauseating. Maybe you would be fine with just a couple of adjustments.

But for a lot of us, even lower support needs autistics, it doesn't work like that. I will never sleep properly without medication. I still have the self-harming type of meltdowns as an adult, over things that are deemed as being "just part of life". I live alone but have daily visits from family - if I'm left fully alone I forget all the little daily things one is "meant" to do. I had speech therapy as a child to get me to the "barely audible" "mostly correct" speech. I don't mask, I'm not really sure how I would to begin with.

I'm not unhappy with being autistic. It's just who I am. Life would be easier if I were neurotypical, but I also wouldn't be me. I just wish those luckier than me could...stop saying it's all chill and not at all a disability.

Because yes, socially, I am "awkward". I obviously don't make eye contact - I stare down and to the side of whoever I speak to. People think it's weird or creepy or a sign of disinterest. My autism assessor wrote down about how I often use words and phrases that don't make sense to others, even though they make perfect sense to me. In my daily life this means I'm frequently misunderstood, and have to try explain what I mean, when what I mean is exactly what I said, and the true issue is that what I mean just doesn't make sense to others. I gesture, at times, but again, my gestures apparently don't make sense in relation to what I'm saying. I take things literally, I have almost no filter, and I can't explain how I go from topic to topic.

And yes, I do have sensory problems. Sometimes people, including others with sensory problems, tell me that "sometimes sensory issues have to be tolerated", and I wonder what they think of as being sensory issues. I'm sure they do struggle, but if I say I can't handle a touch, I mean you will need to forcefully hold it against me for me to touch it more than a second and it will make me meltdown. If I say "I can't eat that", I mean that I am unable to swallow it, that I will gag and choke and inevitably spit it back out, as much as I try. If I say I can't handle a noise, I mean I'm so close to a meltdown and my meltdowns are a problem for everyone around me.

But yes. Autism. Not a disability. Just a fun quirky difference.

[naisaa]

lmao

[gatheringbones]

[“I told my mother I thought I might be trans in a lengthy and overly apologetic email, which she didn’t quite know how to respond to. From her perspective, my transition had popped up out of nowhere, with no prior warning signs. She was convinced I had been brainwashed into transitioning, and agreed to meet my counsellor for a joint meeting with me, primarily to meet the person she felt had brainwashed her child into transitioning.

My mother describes her first meeting with me presenting as Laura as very difficult for her, due in no small part to her inability to see me as anything but her very traditionally masculine son in a dress. For a while she knew but did not talk to my father, which she found very difficult. She told me years later that she went through a period of mourning, feeling like her child had died, and that she was left with a stranger she did not know. It put a lot of strain on her, and on our relationship as parent and child.

Why the assumption I was brainwashed? Because of autism infantilisation.

Before we talk more about my journey coming out as transgender, we have to rewind a little bit to something else that went on at around the same point in my life: my diagnosis of Asperger’s. By the time my mother attended that appointment and met me as Laura for the first time, I had already been diagnosed with Asperger’s, which was part of the reason she was so worried about me. She was not aware of any statistical link between autism and gender dysphoria, and in her eyes I was a vulnerable young person with an autism spectrum condition who was being manipulated into transition because I was easily swayed, or lacking in ability to assess my feelings on the matter properly for myself. This is depressingly common: an adult’s assumption that having an autism spectrum condition means you’re incapable of proper self-understanding, or that you’re susceptible to being manipulated into believing things about yourself that you did not previously. You’re not trusted as being of sound mind to make choices about your own life, out of fear you’ve been manipulated.

Speaking to my mother years later, now she has somewhat settled down and got used to me going by Laura and female pronouns, she told me that her biggest fear, and the primary reason she agreed to attend that first joint session together, was that, as a youth with Asperger’s, my therapist was influencing me into believing that I was trans. She feared it was some kind of brainwashing that my gullible mind could not resist the allure of, rather than believing my own account of what I was experiencing.

I also faced this same issue with doctors when trying to access medical support through the NHS. I would have general practitioners, mental health doctors and gender specialists alike raise an eyebrow when I acknowledged my Asperger’s diagnosis, and then proceed to take plenty of extra time asking me lengthy questions about how my autism symptoms manifested, to ensure I was of sound enough mind to make permanent choices about my body. Apart from the obvious infantilisation of people with conditions like Asperger’s on display there, I always just explained it as being like the decision to get a tattoo. I am an adult, over the age of 18, who has been deemed sober and mentally sound, and as such I have every right to permanently inject colours into my skin that may never go away. Why should I not be trusted to take slow-acting meds that are somewhat easier to reverse? Still, the fact I had to fight to be believed that I was mentally sound enough to make that choice says a lot about misunderstandings about autism spectrum conditions, but highlights that to assert that transition is unique in the permanent nature of its change to the body is completely inaccurate.”]

laura kate dale, from uncomfortable labels: my life as a gay autistic trans woman

[flimsy-roost]

I realized the other day that the reason I didn't watch much TV as a teenager (and why I'm only now catching up on late aughts/early teens media that I missed), is because I literally didn't understand how to use our TV. My parents got a new system, and it had three remotes with a Venn diagram of functions. If someone left the TV on an unfamiliar mode, I didn't know how to get back to where I wanted to be, so I just stopped watching TV on my own altogether.

I explained all this to my therapist, because I didn't know if this was more related to my then-unnoticed autism, or to my relationship with my parents at the time (we had issues less/unrelated to neurodivergency). She told me something interesting.

In children's autism assessments, a common test is to give them a straightforward task that they cannot reasonably perform, like opening an overtight jar. The "real" test is to see, when they realize that they cannot do it on their own, if they approach a caregiver for help. Children that do not seek help are more likely to be autistic than those that do.

This aligns with the compulsory independence I've noticed to be common in autistic adults, particularly articulated by those with lower support needs and/or who were evaluated later in life. It just genuinely does not occur to us to ask for help, to the point that we abandon many tasks that we could easily perform with minor assistance. I had assumed it was due to a shared common social trauma (ie bad experiences with asking for help in the past), but the fact that this trait is a childhood test metric hints at something deeper.

My therapist told me that the extremely pathologizing main theory is that this has something to do with theory of mind, that is doesn't occur to us that other people may have skills that we do not. I can't speak for my early childhood self, or for all autistic people, but I don't buy this. Even if I'm aware that someone else has knowledge that I do not (as with my parents understanding of our TV), asking for help still doesn't present itself as an option. Why?

My best guess, using only myself as a model, is due to the static wall of a communication barrier. I struggle a lot to make myself understood, to articulate the thing in my brain well enough that it will appear identically (or at least close enough) in somebody else's brain. I need to be actively aware of myself and my audience. I need to know the correct words, the correct sentence structure, and a close-enough tone, cadence, and body language. I need draft scripts to react to possible responses, because if I get caught too off guard, I may need several minutes to construct an appropriate response. In simple day-to-day interactions, I can get by okay. In a few very specific situations, I can excel. When given the opportunity, I can write more clearly than I am ever capable of speaking.

When I'm in a situation where I need help, I don't have many of my components of communication. I don't always know what my audience knows. I don't have sufficient vocabulary to explain what I need. I don't know what information is relevant to convey, and the order in which I should convey it. I don't often understand the degree of help I need, so I can come across inappropriately urgent or overly relaxed. I have no ability to preplan scripts because I don't even know the basic plot of the situation.

I can stumble though with one or two deficiencies, but if I'm missing too much, me and the potential helper become mutually unintelligible. I have learned the limits of what I can expect from myself, and it is conceptualized as a real and physical barrier. I am not a runner, so running a 5k tomorrow does not present itself as an option to me. In the same way, if I have subconscious knowledge that an interaction is beyond my capability, it does not present itself as an option to me. It's the minimum communication requirements that prevent me from asking for help, not anything to do with the concept of help itself.

Maybe. This is the theory of one person. I'm curious if anyone else vibes with this at all.

[taptrial2]

honestly, the idea that an autism diagnosis does not get you any help in the USA is bullshit and should not be trusted. yes, anti-trans legislation targeting autistic trans people can and will affect you if you have an official diagnosis. but my diagnosis helped me get disability and misc disability services in my area covered by medicaid. it got me the help i needed in school. it genuinely is helpful to have a diagnosis in some places if they have disability services to help you. to tell people to not bother getting a professional diagnosis because it doesn't grant you access to any special care is demonstrably false, at least in my situation

imho it is irresponsible to tell people what to do with the anti-trans legislation if they are autistic and seeking accommodations or help via a diagnosis AND are trans. it depends on the individual.

please assess your own situation; which state you're in, what programs are around you, if you need financial help, if you need accommodations in school, and if your dysphoria is more debilitating / needs to be taken care of more or less than your potential disability.

gender-affirming care saves lives. so do disability services. having to decide which to prioritize is a truly horrible, agonizing thing to deal with, and i hope that those who must make that choice can stay safe. do not let fearmongering strangers on the internet dictate that choice.

[becausegoodheroesdeservekidneys]

So I decided back in September that it is Time. The time has come. I am going to try and get a formal diagnosis for my blatant and provable ADHD, because I am very interested in Doing Laundry

And in my defence it has only taken until this week (late January) to kick things off, which I am very aware should probably be part of the diagnostic criteria

Anyway

I have a plan! For the best chance of being taken seriously. If the university can do their in-house screening of me, I can go to my GP and make the following two points:

I am here because my boss felt I said "But everyone does that" one too many times while discussing the ND students, and she wants me to chase this in case it means she can support me better (I of course am charmingly bemused about it because I personally would never try and get diagnosed, no no, only those attention-seeking fakers do that)

An official educational institution i.e. my employer has in fact initially assessed me and deemed me Medically Distractible. I even have an ALN plan, look. So uhhhhh, maybe my boss is right? (I of course remain charmingly bemused about it because I obviously don't really believe it, no no, I could never be the expert on my own experience, but a Third Party is invested, so...)

Anyway yesterday the uni got in touch, and had me do the initial screening.

Now, they're doing it as part of a wider screening process of learning needs, so they also check you for dyslexia, dyscalculia, dyspraxia, and autism, as well as ADHD. Plus how good your reading/writing/maths is. Plus they make you do these really fun tests - one was like a classic American spelling bee, one was a spelling test where they read out increasingly lengthy fake words and you had to spell them (we started with "blit", and by the end she was saying things like "unintarcation" and "iffrig-oggonery" and "self-regulating free market" trololol I JEST), and the other was that she'd read out a string of numbers and I had to type them backwards to test my working memory

Good fun, actually. Anyway, my results were mostly completely fine:

Study skills are good! I mean, we're going orange at the end, look, time management is bad - but that's the ADHD, so expected.

No problems with the tests! I mean I'm slightly grumpy about the social and communication score going blue, because I'm pretty sure it's because I explained how I was bullied in school, which I feel is more about them than me. But eh.

Dyspraxia was a little less solid- that's the time blindness, I think. Also attention and concentration, that's expected. Maths, lol - that's not medical, I'm just bad at maths.

The autism testing. Again, mostly fine, but some overlap with ADHD symptoms, so blue instead of green. Makes sense.

And then

Fucking rinsed.

[copperbadge]

Hello Sam!

I wanted to reach out to thank you for talking about your ADHD diagnosis. Although the idea was casually discussed among family for years, I always put off taking a serious look at getting an autism assessment. Reading a bit of your experience encouraged me to take that step.

So now I'm 40 years old and finally have some answers. I learned this week that I do meet the criteria for ASD, level 1.

Thank you again for sharing some of your journey.

I always feel like I should say both congratulations and sympathies on your diagnosis!

Not that it's such a tragedy or anything, but especially with an adult diagnosis there can be a lot of shit to work through -- grieving missed opportunities, and anger about the failure of people responsible for you for not noticing it (whether or not they would have, the anger can still be there even if you don't blame them precisely). But also there's a certain sense of relief, I think, in being able to frame your needs going forward, and certainly getting on medication, though I wasn't really aware of it as much at the time, had a huge impact on my life. I hope you can be patient with yourself and find some aides that work for you.

(I was super lucky to land on the right med at the right dose first try, but it may take time to determine what's best for you.) (Also this random parenthetical brought to you by the fact that I misread ASD as ADD so sorry about that!)

Anyway, good luck on the journey -- one of the hardest steps is behind you at least!