#need actual medication to prevent that

[pyrrhiccomedy]

hey pyrrhic, I'm the anon who asked about adhd and executive function, whom you recommended meds to. I fully agree, problem is, I AM medicated (my bad did not include that relevant info). and I'm doing way better than before but nonetheless, this still happens. maybe I just gotta find a way to shoulder through the stuck door that makes it an Engaging Enough Challenge, so to speak (and make sleep/routine/self care improvements no doubt). thanks for reading and answering, I appreciate it!

maybe you should be medicated more

[hussyknee]

Idk if there's enough people talking about what a gigantic energy drain Complex PTSD is. It's not just one single traumatic event, it's having lived in a traumatic situation for a long time. And in the case of child abuse, your entire formative life period. Everything is a trigger, anxiety is your default, and your brain keeps trying to keep you safe by yelling at you about everything you're doing "wrong", which will lead to pain. Your brain is a constant war zone, braced for attack, rarely relaxed, at least some part of you always hypervigilant. The stress it takes on your body is insane. It's why trauma is linked to autoimmune issues, heart disease, type 2 diabetes, and, according to one study, cancer.

Physical disability leaves you even more vulnerable and less able to live up to the impossible standards of control and "correct" behaviour your brain insists on, not to mention the free gift given to all patients of chronic illness that is medical gaslighting and patient-blaming, all of which simply compounds the trauma. Reduced physical and mental health obviously leads to systemic risk factors such as inability to pursue academic and professional qualifications, poverty and financial struggle, malnutrition, becoming unhoused or bad living conditions, exacerbated medical issues and further lack of medical resources, reliance on welfare and care networks, and becoming trapped in codependent, abusive or toxic relationships. The knock-on effects are endless.

This is all to say— if you're wondering why you can't seem to do more than the bare minimum every day when you haven't been diagnosed with a physical illness, or you're "not that disabled", or you think your symptoms are "just psychosomatic" (which means your brain is under so much intolerable stress that it's started taking a chair to the windows and destroying the furniture just to get you to NOTICE AND MAKE IT STOP): the answer is that your body is actually struggling under the kind of stress that kills trained soldiers and disables them for life. So stop trying to convince yourself that you're just not trying hard enough when what you really, desperately need to get your life on track is community, care, rest and ease.

[sga-owns-my-soul]

as someone who has been misdiagnosed at best and fully ignored and not believed at worst about my health issues, it's really frustrating when people tell me i don't really have something unless a doctor has diagnosed me. doctors don't believe i have any issues to begin with, why are they supposed to be trusted over me?? like i get they have degrees but idiots get degrees literally all the time. idk it's just really frustrating when i tell people i have food sensitives and they don't believe me unless i can procure an allergy test. i tell people i have chronic pain and unless a doctor told me that, it doesn't count. i'm not allowed to identify as autistic until a doctor tells me i can. like i get looking something up once isn't the same as a medical degree but idk can we maybe just. stop pretending doctors are the only ones capable of telling what's wrong with someone? can we maybe trust that sometimes people do actually know what's going on with their body and their health?

[weirdstrangeandawful]

TW: medical

People who’ve been successfully medicated for POTS, please help!

I tried methyldopa and it made all my symptoms worse so I switched to clonidine a day ago and whilst I know it’s only supposed to drop my blood pressure for the first couple weeks, it’s already hell a day in. I even had to take the afternoon off work because I fell asleep on my keyboard. My other options right now are midodrine 2-3 times a day which causes supine hypertension so I wouldn’t be able to lie down all day (impossible for me with ME and EDS), or fludrocortisone which I’m not against but might not work if I can’t eat/drink enough and also might drop my potassium which I’ve already had problems with in the past.

Has anyone tried any of these and can give me some ideas of how to deal with the initial hell and/or continuing side effects? I’d go to the ER for IV fluids but I’m too exhausted to fight plus they don’t let me lie down. Even just general advice appreciated.

[tenok]

The point (one of them) is that both Aziraphale and Crowley actually think they the smartest one in any given situation. And since I relate to Aziraphale much more today I get fixated on his brand of superiority. He starts his journey with rebellion from pretty tame "I don't get why they makes this desisions and it's look horrible on surface evel but I'm sure that they get best ineterests of everyone involved in their hearts and it's probably me the one that didn't get some oblivious detail" to "oh okay I'm sure it's some kind of misundestanding and we can all talk it out as adults because we there work on same goals" to frustrated "they won't ever listen to me and I will get in trouble for arguing and it will be better for everyone if I will make my desisions in secret and go behind their backs because I just can't let THEM make desisions that will destroy everything". It's not straightforward, I'm 30 and still circulate sometimes between "what if it's me the one that wrong aout everything" and "god HOW people can be THAT stupid", but I remember going throught this stages first as good and obedient kid with really stupid parents making stupid desisions and later with school, govermnet, activist spaces etc.

And the problem is, I was the smartest person in the room enough time to develop issues, and Aziraphale lives like his for 6000 years at least. I can only imagine how many times he thought "if only Starmaker listen to me and didn't Fall", "if only God listened to me and didn't make an Apocalypse happen", "if only Heavens listened to me and didn't did this or that that thing", "if only Crowley listen to me and understand in what kind of danger we can get", "if only that human listened to me and haven't dig the body", etc etc. It's awful, to be the one who always gets to say "I told you so", especially when there's such awful consequenses you can't even feel satisfaction, and you will be the one to clen this mess up (and Aziraphae will clean, or better try to prevent). Now, it's of course leads to issues. BIG issues.

1) It's really hard to stop being plotting and maciavellian and communicate things properly when you expect that person will at best argue with you, at worst punish you and double down on their stupid desisons and you will clean this mess up. It also really hard to stop trying to control everything because you already accepted that everything is your responsibility and everyone else would just make things worse. (as someone that relates to Aziraphale I think he did so much progress there, the levels or trust he shows Crowley are amazing for two beings that probably last time heard of psychotherapy when Freud was alive. but such trust is fragile thing, one misstep and you back on your "it will be better if I do everything alone" bullshit. I'm not saying it's good. I'm also not saying that it's bad. it's just how things work)

2) It makes you overstep other people authonomy, because, again, it would be better for everyone if they did what you think best for them. It works funny wih Aziraphale because yes he's all for free choices for humanity!! NOW GO AND DO SMART CHOICES DAMN YOU!!! WHY YOU DON'T PICK THE THING THAT WOULD BE SMART TO PICK I HATE YOU ALL. That's where me and Aziraphale difer a little because at least I somewhat good at stepping into other people shoes and understand why they do what they do. But angel there is autistic (or bad at this specific thing for other reasons), so I think when people he consider reasonable doesn't agree with him for their own reasons he ge's really baffled, like, there arE correct opinion and it's mine, WHY are you being difficult?? to spite me?? And I'm sure that half of the reason why Aziraphale's so comfortable with Crowley is that he perfectly happy to let him buly or manipulate him into doing things Aziraphale picks as right. Usually Crowley know where pick his battles and how to play long game to make Aziraphale agree for really important stuff he wants from him, but otherwise? Sure he will complain how he hates Hamlet but they will watch Hamlet, and Aziraphale will be very pleased with himself. (and than there goes final fifteen and we back at "but WHY won't ypu agree with thing I pick or us IT'S GOOD AND RESONABLE THING" and we should be happy that consent is something that imporant for our angel ok? he would be angry with Crowley for picking wrong but he won't make him do what he doesn't want. they respect each other like that.)

3) It makes you really really tired and tense. You control everything, unfortunately the longer you do it the more things starts really depedend on you, you can't let go, you don't know anyone that can share this burden with you because first they should prove that they won't blow his up and for this you should share at least something with them, but what is they would blow it up? Better be safe than sorry. And look when it's my problems it's credit cards and doctor appointmens and with Aziraphale we talk about people dying. Crowley dying. Now, as I said, he actually shows Crowley so. much. trust. for someone with such issues. Because Crowley was there for 6000 years, and he proved himself capable enough times. But still there's areas where let go and not worry would be impossible for Aziraphale, Crowley's safety being one of such things (you see, you can risk with your life when you deal with your problems because whatever you will clean shit up if needed, but if someone close to you hurt themself?? it's YOUR problem too but it will be SO MUCH HARDER to clean. I think when Aziraphale points to Crowley that hell would be harder on him than he can expect heavens to punish him, it's partially because he believes it's true and partially because he knows how to minimize harm when heavens angry with him but HOW can he do this for Crowley??). Anyway. Lol. The more I think about it the more I sure that Crowley without Aziraphale would be a miserable angry dick, and Aziraphale wihout Crowley would be dead, because it was the one person that kept him one tiny slip away from total burn out.

So yeah there's a lot of posts about how angry heartbroken etc Crowley will be with Aziraphale (I don't agree but that's for other post), less posts about how sad and heartbroken will be Aziraphale, but I hope to see Azyraphale being angry too (it they will be angry with each other at all). Not only for not picking him or leaving or making everything messy and emotional and wasting their first kiss at their fight etc, but also because Aziraphale was trusting him! Trusting that he get another resonable adult in team with him! Someone who he can trust to make resonable desisions and see his ideas as clever and him as capable and being willing to go to the end of the world with him with mild complaints and than!! When he did trust him to understand!! He was like everyone else!! Unresonable and emotional and angry with him and why he asked him at all he should've do it secretly and alone as always and it would've be as usual and it wouldn't hurt but it was Crowley that taught him to trust and to ask him for help!! Breaking his perfectly fine coping mechanisms!! It's all his faut if you think about it huh?? (but of course he's already forgiven. but also Aziraphale would do what he needs to do alone this time, as one and only capable adult in the world.)

Anyway it's not a meta it's just some late night thoughts. And it's in no way whole analizis there's so much more problems inside this angel. It's just something in particular that resonated with me today. Also it's not in any way critisizm of him, mind you, because a) he does really the smartest person in the room most of the time and b) I LOVE how fucked up in the head he is!!! I think he needs to become even more fucked up actually!!! and Crowley should love him for that and I will cheer for him from sidelines!!!

[opens-up-4-nobody]

...

[marsuni]

does your doctors ever just drop something on you much later about your meds or your conditions and it explains a lot

[rabbitindisguise]

What if you were trying to sleep in but your mood disorder was like

*:ﾟ✧*:･ﾟNoﾟ✧*:･ﾟ✧

[garciapimienta]

I hate doctors so much

[violet-dragongirl]

lmao no wonder i'm losing faith in the fucking medical care systems of this fucking country because it's the fucking equivalent of asking for fucking hall pass to go to the fucking bathroom in high school and nobody believes you actually need to take a fucking piss to prevent said piss from becoming everyone else's fucking problem

[dreamys-corner]

Just so it's clear WHY it says there's a blocked or removed comment on my post about Amal's family needing to be evacuated.

[on-my-way-to-the-woods]

F's week of medical adventures:

TL;DR: F got prescribed a medication that we had concerns about because of her reactions to a similar medication, had concerning symptoms directly after taking that med for the first time, doctor doesn't think it was medication related, doctor changes medication anyway, two days later doctor orders a CT scan (probably to cover their ass if there was a problem). Also F's GP is moving to California and we're heartbroken 😭

F's GP's office sent a referral to a pulmonologist (which isn't strictly necessary because we have a PPO, but it was super helpful because it meant they were checking the insurance stuff because our company still hasn't fixed our website access). She's still struggling despite being on the upper end of what the GP can provide so the pulmonologist approved her for an urgent appointment. We had that appointment this week.

Monday At the appointment they did 0 testing, said that the maintenance medication that F was on was rather lightweight (disagree, but I assume they meant that it didn't contain a Long-Acting Beta-Antagonist, F assumes they didn't read the medication correctly), said that the current rescue inhaler F is on is a "red flag" for not responding well to LABAs but that most people are completely fine so they're gonna go ahead and prescribe one anyway, did not ask further about why F is on that med, listened to her lungs a little and then sent her off with a follow up appointment in two months. We had specifically asked F's GP to avoid LABAs because of other health concerns and her reaction to Abuterol (a Short-Acting Beta-Antagonist).

I clearly need to read about medical communication because we keep telling nurses/etc. that she has bad reactions to Abuterol and they keep going "oh! Does it make you jittery?" 🤦 No. Her heart rate goes way up, she feels like shit, and she has to lie down for 2 hours so she doesn't fall over.

Tuesday The new prescription comes in, F takes it that evening (her regular time and we'd picked it up <1hr beforehand). Surprise, surprise, she feels like shit. It's a different flavor of feels like shit though. Pros: her heart rate didn't shoot up like it does for Abuterol and she is more capable of standing. Cons: nausea, dizziness, palpitations, high blood pressure, feeling jittery, and a sense that something is wrong. Just what you want out of a medication you have to take twice a day, right? /s. So she finishes up her bedtime routine and goes to bed. Then, in the middle of the night, F is woken up by very bad chest pain.

Wednesday We call the office in the morning to ask if she should take the morning dose or discontinue the medication. The answer we got was roughly 'well, those aren't listed side effects so I don't think it's related, but I'll ask the doctor.' The answer relayed to us was also that the doctor doesn't think it is related, but if we want we can change to a different medication without a LABA. (What we'd like is medical advice, thank you 🙄). We eventually pick trying a new medication because, if the chest pain is unrelated to the LABA, then it's probably pretty urgent that we figure that out now and go seek care for the chest pain problem. The nurse says they'll get the prescription sent in and we will have a nebulizer delivered to our doorstep. We're a little surprised, but whatever.

Thursday The medical equipment company calls F a few times to sort out insurance & billing stuff (unfortunately mostly during times F is having asthma issues). Then after that's all set, the equipment company's respiratory therapist calls to schedule a time to come set up the machine and show F how to use it. That's somewhat different than just delivering it to our doorstep....

Anyway, since we're supposed to leave early on Saturday for a road trip, we schedule the set-up for late Friday morning and then rushed around trying to clean the house.

After that, F gets a call directly from the doctor effectively saying 'sooo I have been thinking and I am going to order an urgent CT scan (if you want, but I'm ordering it anyway) to make sure nothing is drastically wrong but I'm sure it's (most likely) fine, but maybe you might want to do it just in case. Anyway, I won't be able to look at it until Monday. Also, you'll be fine once you get on [medication you potentially have bad reactions to]' We're presuming it's a cover-their-ass call, and at this point F feels ridiculous and like she's wasting everyone's time and overblowing things, but we talk through it together and she's convinced to go get the imaging done because it'll be good to have on hand and we're very likely to hit the deductible/out-of-pocket limit this year anyway. So, yes, imaging to check for dangerous and urgent condition, but it's fine if the images aren't reviewed until the next week 🙄

We schedule that for Friday afternoon and I spend the rest of the evening alternating calls between the insurance company and the hospital to make sure everything is in order. And then I stay up late cleaning.

Friday (F's birthday - I'd taken the day off work to surprise F, I guess that was a good decision 😅 ) I finish up CT phone calls and confirm that the CT pre-auth went through then call the medical equipment place to clarify some things since it's going very differently than we had thought

Her appointment with the equipment company's respiratory therapist went well, they seemed more concerned about F's symptoms than the doctor did - but that's our usual luck, anyone who is not an MD is worried about F. The machine is >$350, but the inhalers she's been using are mostly >$200, so this should be cheaper overall as long as she keeps using it and isn't swapped directly back to the other med. (We certainly could have bought one cheaper by ourselves, but it's better for us to go through insurance in this case).

Had lunch then ran off to the CT scan which itself was pretty quick, but it's a decently long drive so it took up the rest of the day. The CT technician was also very much 'no, don't worry, you definitely should have come in for this based on your symptoms' which helped reassure F somewhat. Then we both go home and crash (instead of packing)

Saturday We pack and leave and are very tired etc. etc. but at least there are no medical phone calls involved

Sunday Telehealth appointment with F's GP (who is amazing) and he shares that he's taking a job in California that's exactly what he wants to be doing. We're thrilled for him, but so so sad that he will be leaving 😭😭😭 Working with him has been great and he has improved F's life so much.

Monday The pulmonologist's office calls as we're driving back from the eclipse. The CT scan only showed a nodule in the lung - which they gave no information on and said they'd talk about it at her follow up appointment (in two months 🙃)

Tuesday We drove all the way back to the hospital (after driving a ton yesterday to get home) to pick up a copy of the CT scan so we can share it with other doctors as needed.

I guess we can't be 100% confident yet, but I think F is getting worse on this new medication instead of better. I can't find information on what an equivalent dose would be with the meds her GP had her on, but I suspect the dose for this new stuff is too low 😕

After writing all that up, no wonder why we're exhausted. This is the gist of it, but I definitely skipped over a number of smaller problems (e.g. the office sent the prescription in with incorrect patient details so F had to sort that out with the pharmacy, etc.). I need a vacation

[stonersolana]

it's crazy time!

[mosspapi]

That one TikTok I keep getting recommended on here: women shouldn't use heating pads for period pain because chronic exposure to them can give u [some skin condition]

Me, disabled guy who has used a heating pad daily for 7 years and multiple times daily for 1.5 years because of chronic pain:

[hamadisthings]

HELP US STOP CHAT CONTROL!

If you live in the EU, you absolutely need to pay attention to what's to come. What is Chat Control, you may ask? In a (failed) attempt to combat child abuse online the EU made Chat Control, Chat Control will result in getting your private messages and emails to be scanned by artificial intelligence aka AI to search for CSAM pictures or discussion that might have grooming in there. And on top of having your private conversations handed to AI or the police to snoop in, like your family pictures, selfies, or more sensitive pics, like the medical kind, only meant to be seen by your doctors, or the "flirtatious" kind you send to your partner, you either have to ACCEPT to be scanned...or else you will be forbidden from sending pictures, videos, or even links, as said here.

Kids should absolutely be protected online, without question, but the things that Chat Control gets wrong is that this is a blatant violation of privacy, without even considering the fact that AI WILL create tons of false positives, this is not a theory, this is a fact. And for all the false positives that will be detected, all of them will be sent to the police, which will just flood their system with useless junk instead of efficiently putting resources to actual protect kids from predators.

It also does not help that politicians, police officers, soldiers etc will be exempt from Chat Control if it passes. If it's for the sake of protection, shouldn't everyone get the same treatment? Which further prove that Chat Control would NOT keep your data of private life safe. Plus, bad actors will simply stop using messenger apps as soon as they know they're being tracked, using more obscure means, meanwhile innocent people will be punished by using those services On top of this, the EU also plans on reintroducing Data retention called "EU Going Dark". Both Chat Control and EU Going Dark are clear violation of the GDPR, and even if they shouldn't stand a chance in court, its not going to prevent politicians from trying to ram these through as an excuse to mass surveil European citizens, using kids as a shield. Even teenagers sending pictures to each other won't be exempt, which entirely goes against the purpose of protecting kids by retaining their private photos instead. Furthermore, once messaging apps are forced to comply with Chat Control, the president of Signal, a secured messaging app with encryption, have confirmed that they will be forced to leave the EU if this is enforced against them.

If Chat Control also ends up targeting any websites with the option of private messages, you better expect Europe to be geo-blocked by any websites offering such function. I would also like to add that EU citizens were very vocal in the fight against KOSA, an equally bad internet bill from the US-- and it showed! Which is why we heavily need the help of our fellow US peers to fight against Chat Control too, so please, because we all know if it passes, the US government will take a look at this and conclude "Ooh, a way to force mass surveillance on citizens even more than before? don't mind if I do!" It's always a snowball effect.

KEEP IN MIND THE EUROPE COUNCIL WILL LIKELY VOTE ON CHAT CONTROL THIS 19 JUNE OF NEXT WEEK TO SEE IF IT WILL ENTER TRILOGIES OR NOT. Even if it does enter Trilogues, the fight will only be beginning. Absentees may not count as a no, so it is crucial that you contact your MEPs HERE, as well as HERE, and you can also show your support for Edri's campaign against Chat Control HERE.

You can read more on Chat Control here as well, and you can find useful information as to which arguments to use when politely contacting your MEP (calling is better than email) here, and beneath you will find graphics you can use to spread the word!

YOU CAN ALSO JOIN OUR DISCORD SERVER (linked here) TO HELP ORGANIZE AGAINST CHAT CONTROL NON EU PEOPLE ARE MORE THAN WELCOME TO JOIN TOO!

https://discord.gg/FPDJYkUujM

PLEASE REBLOG ! NON EU PEOPLE ARE ENCOURAGED TO REBLOG AS WELL CONTACT YOUTUBERS, CONTENT CREATORS, ANYONE YOU KNOW THAT MAY HELP GET THE WORD OUT ! Let's fight for our Internet and actually keep kids safe online! Because Chat Control and EU Going Dark will only endanger kids.

PLEASE REBLOG! NON EU PEOPLE ARE ENCOURAGED TO REBLOG AS WELL CONTACT YOUTUBERS, CONTENT CREATORS, ANYONE YOU KNOW THAT MAY HELP GET THE WORD OUT !

Let's fight for our Internet and actually keep kids safe online! Because Chat Control and EU Going Dark will only endanger kids.

[nope-body]

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