#sam.neuro

[tortiefrancis]

hey fun fact did you know that if you're on the schizophrenia spectrum, have psychosis, have psychotic symptoms or traits, etc, that you're loved and your symptoms and traits should not be vilainized or seen as evil or ugly?

[tortiefrancis]

Nobody talks about the hard parts about autism.

Nobody talks about not knowing when you need to eat, drink or pee. Not knowing when you're in pain, or why you're in pain. Not being able to communicate what you need.

Or when change is so hard to deal with you have meltdowns and outbursts. When you can't control your anger and hurt yourself or others. When you can't emote unless you're breaking down.

Or when you can't understand what someone is saying, what you're reading, anything. When you can't even try because trying makes it worse. When you ask for help but not getting what they say just makes you more frustrated.

And so many more difficult experiences we have to deal with that no one likes.

[tortiefrancis]

I just saw a post that said "may all your delulu become trululu"- no!! Stop misusing the term delusion! Imagine saying this to someone who has persecutory delusions? If my delusions came true, life would be a nightmare!

Delusions aren't about "Oh this character is straight but I believe he's gay", no! That's not what it is about! It's a serious issue people have to deal with!

[tortiefrancis]

Hey, warning for folks with psychosis, paranoia, delusions, etc: I got an anon ask that started with "I don't know how else to tell You this" that was basically a massive unreality trigger. I can't show it because I blocked the anon, but that's how it starts and then it's a giant wall of text with some repeating parts.

If you get an ask like that, don't read it. At most, read the start to double check, but don't read it all. Just block the anon or delete the ask.

I don't know if it's something that'll happen to multiple blogs, it just looked a lot like a sort of "chain" hate ask to me. Either way, be safe

[tortiefrancis]

people with personality disorders are still capable of love, affection and caring about others, but it's okay to struggle with those things.

you aren't evil for not feeling love, hating showing or receiving affection or not caring. it doesn't make you a bad person, or less deserving of respect.

[tortiefrancis]

I don't know how to say this but adults with autism can have meltdowns and very much do. It's not just a thing in children. And yes I mean even old adults and elderly

[tortiefrancis]

For new year's, I'd like to send love to:

- people with autism

- people with epilepsy

- people with sensory processing disorder

- people with misophonia

- people with post-traumatic stress disorder

- people with heart conditions

- people with photophobia/light sensitivity

and anyone else trying to enjoy the new year without having to worry about loud noises or lights

[tortiefrancis]

shoutout to people with intellectual disabilities, you guys deserve the world

[tortiefrancis]

shoutout to people who were diagnosed early, but never told about it, or didn't find out until much later.

people who didn't have access to their medical records, or whose parents or guardians hid this information from them.

to people whose doctors, therapists and such lied to them, and to those who weren't told everything about their results.

to people who lost these records or results, or who had them stolen.

you're enough. you're valid.

[tortiefrancis]

people with personality disorders just know that you're all amazing and incredible and deserve so much better in this world, i hope your day is good

[tortiefrancis]

Nimona reminds me a lot about growing up disabled and neurodivergent.

Being seen as a disgusting thing, a monster without having to do anything, the people around you begging for answers on why you're this way, 'how' did you 'turn up' this way, asking for you to hide who you are. The weird looks over your symptoms or behaviors, the most minor ones, too.

And when it all comes crashing down, when you can't hide it anymore, when you're just so full of pain, and anger, and sadness, people are scared of you. People see you as an even more dangerous and frightening monster.

[tortiefrancis]

Does anyone have tips on how to read when you have autism and possibly intellectual disability? I just can't get the meaning of the text or comprehend the words and often get lost, and so it takes me a really long time to read, but I have to read academic texts for my univerisity

Audio versions and text to speech don't work and I already read with the text on a larger setting if it's online

Edit: made the post unrebloggable for personal reasons

[tortiefrancis]

Also if anyone has tips for dealing with routine changes and how to make new routines when you lose others... please? Share? I can't find anything online and everyone I've asked just tells me I should learn to deal with my feelings, but I literally just stay inside all day and watch videos when I don't have a routine and it's not healthy at all

[tortiefrancis]

I feel bad for not being able to read and understand text

I feel bad for not being able to tell how far something is from me, and never being able to guess

I feel bad for doing things out of impulse and not actually thinking them through, and either making a huge mistake or quickly forgetting how I did it

I feel bad for not being able to do basic math on my head without feeling physically tired and strained

I feel bad for not being able to follow instructions correctly without someone by my side to help

I feel bad for not always knowing how to write something

I feel bad for not being able to explain what I feel or think, or really not feeling or thinking at all

And most of all, I feel bad that I don't know why that is

[tortiefrancis]

Literally all I want in life is an autism diagnosis, I can't live without accommodations anymore

[tortiefrancis]

there's no such thing as a disorder that makes you inherently evil. it doesn't dictate how good or bad someone is