#gastroparesisawareness

[thedefaultnewtonwasafig]

I am an hourglass. ((I apologize for the lengthy post in advance. I needed to vent.)

That is what I refer to myself now, I do this not for the comparison of body to said item, oh no, instead it’s that much like an hour glass that once the sand dwindles down your time is up.

Folks I am now 194 pounds and dropping rapidly again. What this means is that for however fast this weight drops is however much time I’ve got before I am “supposed to seek medical attention immediately.” I’m not gonna fucking lie, I’m really afraid. (Lucky for me the lowest I can go an still be considered normal weight is 136. According to the BMI calculations. How about I really panic when I’ve lost 59 more pounds? I will be right under the “normal weight” which at that point will be 135. Sound like a plan? Good.🤷🏻‍♂️🤷🏻‍♂️🤷🏻‍♂️)

Also lately it seems conveniently right when I saw that I was under 200lbs that I stared having energy issues, weakness, nausea and my favorite part? The sudden urgency to vomit(most times anymore it happens right around the time I start eating anything. There is no fucking window anymore, no time for me to even run through the pretend emotions of enjoying food.) I’m exhausted. I’m fucking starving.

“What does your doctor say?” Don’t have one

“Maybe you should go to see another doc again just in case?” Don’t have medical insurance anymore.(money is tight. I mean like cut off your circulation tight.)

It is what it is.

Still scared, but it is what it is.

Really fucking scared, I can not stress this enough.

I mean for Jeebus sake…my skin hangs off me like drapes. It’s so cool. So cool.

“You need to drink more water.” Bitch, all water will do is help to form a little back into place, is it going to slow anything down? Nor will it give me energy.

Honestly, it shouldn’t matter what I drink? I don’t need to worry about getting fat anymore. Who fucking cares?

If you haven’t noticed I’m spiraling. Literally losing it here and falling to pieces as the weeks go by.

On a fun note I got a part time job. I’m not sharing that on here right now because I’m scared I won’t be able do it.

1) it’s retail and they want me to work at least 30 hours. I feel like that is too much for what I can do. The theater handed me my ass, but at that time I had more fat to feed my body.

2) the first day I start I have to help unload a truck. Do you see where this is going? I got so winded vacuuming today I almost passed out.

BUT…

I need the money. My life shouldn’t be trapped at home, begging others to help me or buy me things(food and what not.) I shouldn’t have to have others take care of me like I’m a child, but I do and no matter how many times I hear stupid mutherfuckers make comments to me like, “must be nice.” Or classics like, “look at you, you managed to get a permanent vacation.” Or “someone said, “I would like to go on vacation” to which the a other person looks at me and says, “you get to be on vacation all the time.” 🤦🏻‍♂️🤦🏻‍♂️🤦🏻‍♂️And finally this summer, “Sam gets to work and you get to stay home all the time.”

You all are soooo witty and such pieces of shit for those comments. You know who you are. 😁🎉🎉🎉🎉 Congrats on your accomplishment of making me more miserable.

FYI I’ve been sitting in my garage for about an hour trying to type this, I came out here to do my nightly ritual to medicate myself enough to sleep. You would think with the exhaustion I would sleep like a baby? But you’d be wrong. (UPDATE: it’s now the next morning and I’m still adding to it)

Weed and multiple types of pills(melatonin, pain relievers like Tylenol or sometimes Benadryl when I have it. Oh and when I get some Gabapentin that really helps the process.)

Don’t lecture…I have no alternative and this works.

Ok there is my lengthy whiny tummy troubles blog.

To sum up:

•Under 200 pounds

•Scared

•Charity case

•Scared

•Mouth breathing morons think I’m enjoying my “vacation.”

•Weed+Melatonin+Benadryl=Sleep

•Scared

•59lbs to go.

[loisrileydurham]

#gastroparesis #gastroparesisawareness #chronicillness #pain #sick #gastricissues https://www.instagram.com/p/ChsWxo7JmPz/?igshid=NGJjMDIxMWI=

[cutebubblycraziness]

I was hospitalized twice mid December into early January with a week between hospitalizations because I had a gastroparesis and cyclic vomiting syndrome flare. When this happens I can't stop vomiting and can't eat or drink anything. Nothing helps other than being hospitalized and sedated for about a week so im not throwing up. I hadn't had an attack since 2019, but had run out of crucial medication so wound up having another attack. #gastroparesis #gastroparesissucks #gastroparesisawareness #gastroparesiswarrior #cylicvomiting #cylicvomitingsyndrome #vomiting #chronicnausea #chronicillnesswarrior #chronicillnessawareness #chronicillnesslife #chronicillnesscommunity #chronicillnessandme #chronicillnessproblems #chronicillnesswarriors #chronicillnessfighter #chronicallyill #chronicallysick #hospitalized #hospitalization #chronicallyillartist #chronicallyillwarrior #illness #invisibleillnesses #illnesssucks #livingwithchronicillness #livingwithgastroparesis #livingwithillness (at Waukesha, Wisconsin) https://www.instagram.com/amberanndesigns/p/CYzPAk-rQHT/?utm_medium=tumblr

[yaminahsaini]

[Mercredi 7 avril 2021] Beautiful view✨(par contre dommage que j’étais en pyjama haha)

[ravenquinzel]

Donation Incentives for today's Gaming for Gastroparesis charity stream at 3pm BST / 10am EST. I'll be streaming ESO. Twitch link in bio. Find the the full schedule of streamers in my stories. Keep up to date on Twitter. . . . #CureGP #GamingForGood #HopeForACure💚 #GamingForGastroparesis #GastroparesisAwarenessMonth #GastroparesisAwareness #Gastroparesis #ChronicIllness #invisibleillness #charitystream #charitystreaming #charity #twitch #twitchstreamer #streamer #gamer #gaming #streaming #stream #twitchtv #elderscrollsonline #elderscrollsonlineps4 #eso #elderscrolls #elderscrollsonlinestream #esostreamer #esofam #theelderscrolls #teso #theelderscrollsonline (at Bath, Somerset) https://www.instagram.com/p/CEMH6P8DfOL/?igshid=1l3r4464fa2ll

[drjasminedahyia]

Gastroparesis Awareness Month

Gastroparesis Awareness Month - August 2019.

#gastroparesis #gastroparesisawarenessmonth #gastroparesisawareness

[take-one-last-breathxx]

Hardly got any sleep last night. I just got to get through 5 hours of work in a little bit, then I can relax. My stomach is still a little bloated and I feel so uncomfortable. I definitely won't be eating breakfast.. I hate working like this, and I've only called out twice before for gp flareups, and I've brought doctors notes to cover my ass, but they never even counted them. Its ridiculous, the fact that Dysautonomia and Gastroparesis isnt looked at at a "valid reason" to call out of work when you absolutely can't come in. There needs to be more awareness.

[thedramaqueensoph]

When the backspot decides to be the flyer, it obviously made perfect sense to have her in the air on the hands of the shortest person 💪💪 @vogue_athletics_uk 🖤🖤 Defo need this on the football field at worlds right guys? @larhyswilcox @j_broom_stunts @teamengland_paracheer #paracheer #teamengland #worldchampions #gastroparesisawareness #provethemwrong #cheer #cheerlife #cheerleading #chronicillness #flyer #disability #deaf #eds #icu #family #florida #gastroparesis #love #makeup #pots #stunt #tumbling #youtube #international #cheerforeveryone #stuntingsaturday #vogueathletics https://www.instagram.com/p/Bq3GfS2Fipx/?utm_source=ig_tumblr_share&igshid=ib461siidu42

[bawarementally]

This really is no fun whatsoever! I'm scared to eat! #gastroparesis #gastroparesisawareness #gastronogram https://www.instagram.com/p/BpAUnkEgyKw/?utm_source=ig_tumblr_share&igshid=7n82ywgknmqy

[simplyminovet]

Another round of early doctor visits today. The whole family in tow with me. I’ve been getting up and out every few days to see all of these different specialists. It is all very tiring. By the time I make it back home, I’m hungry and ready to strip down and turn off the lights. And not in a fun adulting kind of way. I need a nap!!!! 🥱 Preferably without a brassiere on!🤣 So very thankful for my pod 🦈🦈🦈 for being there with me every step of the way. Even when we have to be up and out at 7am for testing. Not a complaint from anyone. Just lots of love, concern, and support. We are still prepping for procedures. 4 days away. 🥴 Follow #MyHealthJourney #T1D #t1dawareness #gastroparesisawareness #neuropathicpain #t1dwarrior #t1dchick #blackdiabetic #minovet https://www.instagram.com/p/CTDILzALX1S/?utm_medium=tumblr

[raseforcrps]

#gastroparesisawareness #gastroparesisawarenessmonth #chronicpain #intractablepain #chronicillness #opioidcrisis #paincrisis #deaf #hoh #shareourpain #wer1 #rsd #crps #gastroparesis #pacemaker #autoimmunedisease #dysautonomia #pots #eds #ra #mva 2002 #tbi #ptsd #anxiety #pain #braininjurysurvivor #wegohealth#disabled#cholesteatoma#disabled https://www.instagram.com/p/CSr-ZDeqTAW/?utm_medium=tumblr

[living-with-arthritis]

My husband has gastroparesis and it’s not easy. Finding things we both can eat together can be tricky but we are making it work. To all those suffering from this disease, August is gastroparesis awareness month. #gastroparesis #gastroparesisawareness #gastroparesisawarenessmonth #chronicpain #chronicpainawareness #invisibledisease #invisiblediseaseawareness 💚 https://www.instagram.com/p/CSHSwA9LMvi/?utm_medium=tumblr

[mylupusdiary]

Hey All, I have a new vlog live on the channel have you seen it yet! It's based on monsoon season and chronic illness.. how the weather can affect health of lupus patients and or chronic illness patient as well.. what can be done for it and how to deal with it! Everything is there in the vlog! Check out now... Like ,share and subscribe to my channel If you haven't... #youtubechannelsubscribe #followforfollowback #celiacwarrior #GastroparesisWarrior #Mylupusdiary #youtuber #lupuswarrior #chronicpain #rainyseason #GastroparesisAwareness #lifepartner #relax #jointpain #rainyday #immunitynme #celiacwarrior #newpost #YouTubeChannelPromotion #instagood #Instagram #influencer https://www.instagram.com/p/CQv9233l8lj/?utm_medium=tumblr

[whatasoutherngirlwants]

1st day in al@ost 3 mths I e been out. I’ve been too sick to actually go out & into a public place. Today our youngest had a procedure done & I wanted to be there . . . . Grateful for small moments in time 🙏🏻 #gastroparesis #gastroparesisawareness #spoonielife #liveinhope #liveinthemoment❤️ (at Florida) https://www.instagram.com/p/CGJALdKAi5u/?igshid=2xntlbxbzfcy

[yaminahsaini]

Nous sommes en août, c’est la mois de la sensibilisation à la Gastroparésie. C'est une condition qui ralentit la vidange gastrique, les symptômes dependent de la sévérité de la maladie et les causes peuvent être multipes. Cette maladie qui me fait souffrir chaque jours depuis presque toute ma vie. Au début on ne savait pas ce que j’avais, tous les médecins me faisaient croire que j’étais un cas unique et jamais vue..Je pensais être seule au monde à souffrir de cette condition, à vomir plus de 10 fois par jour dès que j'avale.... et ça me rendait folle car on me disait toujours "ton cas est trop complexe, faudra apprendre à vivre comme ça même si les vomissements finiront par te tuer". Des alternatives auraient pus être mise en place face au fait que je ne pouvais pas m'alimenter et m'hydrater sans vomir, comme par exemple lorsque ça a commencé, pourquoi avoir de suite conclus à un problèmes psy alors qu'aucun examen n'avait été fait, pourquoi ne pas m'avoir hospitalisée dès le début au lieu de me renvoyer sans cesse chez moi jusqu'à arriver à froler la mort, pourquoi ne pas m'avoir placée une nutrition artificielle plus rapidement? Ainsi toutes ces années de souffrances auraient largement pus être évités. Mais j'avais juste l'impression d'être une moins que rien qui ne méritait pas qu'on apaise ses souffrances. Finalement j’eus mon diagnostique après 2 ans d’errances médicale et malgré qu’on avait ENFIN trouvée la cause, j’ai subis l’une des pires erreurs médicales lorsque tous les soignants ont continué à dire que c’était dans ma tête, ils ont salit mon dossier médical en écrivant partout différents diagnostiques de troubles du comportement alimentaire alors que j'en ai jamais souffert. En principe une fois que les personnes ont un diagnostique, la prise en charge est adaptés sauf que pour moi ça n'a rien changé car ce n'est qu’après 6 ans de souffrances que je fus prise au sérieux, le pire c'est que le Professeur qui m'a sauvé la vie se trouve dans l'hôpital de ma ville, où je suis née, où j'ai subis certains événements traumatiques alors que ses collègues qui me suivaient auraient pus tout simplement m'orienter vers lui..Si c'était lui que j'aurais vue plutôt, ça aurait été plus simple. Tout ça paraît encore surréaliste pour moi. Je me souviens encore de la souffrance que c'était de voir que lorsque j'en parlais et qu'importe où j'allais pour avoir de l'aide : personne ne comprenait, même Google ne pouvait pas trouver de réponses à mes recherches "où trouver un médecin spécialisé pour gastroparésie".. On me dit toujours "bon tourne la page, c'est du passé" non je ne peux pas, les tonnes de choses qu'on m'a fait et dites sont un traumatisme, les conséquences sont présentes chaque jours..  On a volé la partie la plus importante se ma vie et j'arrive juste pas à me reconstruire.. Tout ça pour dire que c'est une réelle maladie, ce n'est pas dans la tête, c'est une vraie souffrance. Si la gastroparésie aurait été connue au même titre que n'importe quelle maladie, je n'aurais pas dû subir d'être autant détruire, voir mon état se dégradée au point d'aujourd'hui subir des séquelles physiques en mentale qui resteront jusqu'à ma mort. Je me suis toujours senti extrêmement seule dans ce combat, alors j'avais décidée d'en parler sur les réseaux sociaux, j'ai alors réussi à d'avantage faire connaître ma maladie car beaucoup viennent vers moi en me remerciant que grâce à mon parcours ils se sentent moins seule et pas fou comme beaucoup veulent leurs faire croire et surtout certains ont pus avoir un diagnostique rapide, donc la prévention est importante, au final ma vie à sûrement été gâchée pour servir d'exemple et montrer à quel point le côté médical peut faire aussi souffrir.

[mzpinkz]

I wanted to loose the weight, just not the way I did. I’m thankful for all the lessons. #gastroparesisawareness #chronicillnesswarrior #weightloss #weightlosstransformation https://www.instagram.com/p/CCcdgjPAxCn/?igshid=3a6lnuaxx6pw