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Tourette's Awareness Month - Day 2: Keywords
Complex tic: when multiple muscle groups are used, multiple words (e.g., throwing something)
Premonitory urge: a very uncomfortable sensation (a build up of energy, electric/fiery/bubbling/tickling/crawling) that builds up before a tic. Not everyone experiences this and it doesn't happen before every tic.
Suppressing: the act of 'holding in' tics, often increasing the premonitory urge and making them worse later. Not everyone can suppress and it can only be done for so long. People may do it to avoid judgement, for safety.
Coprolalia: a socially inappropriate vocal tic (e.g., swearing, a slur)
Copropraxia: a socially inappropriate motor (physical) tic (e.g., 🖕)
Echolalia: vocally repeating other people's words or sounds, can also extend to animal sounds
Echopraxia: physically repeating others actions
Waxing: a period of increased frequency or intensity of tics, or a flare up
Waning: a period of decreased tic frequency/intensity
Tic attack: a highly intense period of constant, often intense, tics, completely uncontrollable and unstoppable
Trigger: something that sets off a person's tics or a particular tic
Dystonic tics: slower tics, abnormal posture or straining of a body part
Blocking tics: a tic which takes away a person's ability to move/speak
There are definitely more but these are a good handful!
#tourette syndrome#tourettes#tourettes awareness month#tourette syndrome awareness month#awareness#tourettes awarness#tics#tics and tourettes#premonitory urge#complex tics#dystonic tics#tic attack#echolalia#echopraxia#copropraxia#coprolalia#neurological disability#neurological condition#disability#disabled#disability awareness#tourettes awarness month 2025
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Much of the time I find the way that we’re told to manage tics very much prioritises others rather than the person with tics.
Oftentimes it’s about how to make us more palatable to those who don’t have tics, whether that is being in good humour and allowing them to laugh at us regardless of whether we are comfortable with that, locking ourselves up at home so people don’t have to see something “icky”, putting ourselves in the constant discomfort of suppressing tics for no reason but the fact that other people are ignorant.
Justifying ableism as “well what do you expect going out and yelling swear words?”. When my tics first developed my parents threatened to never let me leave the house, go to school or see friends saying that I have to “think of others”. It is always seen as my responsibility to educate and jump through hoops to be treated with basic decency. People make it very clear that their few seconds of discomfort are priority over my entire life.
#tics#tics and Tourette’s#tourettes syndrome#tourettes#tics and tourettes#vocal tics#coprolalia#tic#tic disorder#disability#ableism#tic punk#cpunk#disability advocacy#motor tics#tic attack#invisible disability#disability rights
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Tourette’s Awareness Month continues until June 15th 🩵⚡️
⚠️Watch with caution if you pick up tics easily ‼️
#autoimmune encephalitis#basal ganglia encephalitis#pandas pans#tourette’s syndrome#Tourette’s#tics and Tourette’s#actually tourettic#birth of a tic#tic attack#vocal tic attack
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nothing like having a tic attack while listening to the muppet movie soundtrack
#well given i was listening to it to calm me down#chronic tic disorder#muppets#the muppets#kermit the frog#tic attack
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we have tic attack less cause of medication, but don't know the source of the seizures..
#our memes#meme#memes#tic#tics#tic attack#tic disorder#tic disorder unspecified#unspecified tic disorder#seizures#non epileptic seizures
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was an idiot this morning and caused a tic attack from watching a bunch of Tourette’s videos -_-
#verbal tics#tics mention#physical tics#tw tics#tourettes#actually tourettic#tourette’s#tourettes syndrome#tic attack#tics and tourettes#moony talks#moony speaks#moony describes
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Not quite a tic attack, but also
Yeah no it’s most definitely one now
It’s been a while since the last one, started writing while it slowly was building up
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my tics had been chill for the past year or so, like my tourettes was definitely in the waning period. i hate how tourettes fluctuates tho cause i just had a really bad tic attack and now i remember how much shit SUCKS
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Here's some thoughts on how our tic disorder affects our plurality and vice versa, I'd love to here others experiences and compares
So for us certain members will be significantly less or more effective by tics. Some of us will find it extremely easy to control or push tics away till later, and some us will have basically no control and find it very difficult to impossible to suppress tics
Some of us will get tic. In the headspace. Like if someone is co-con it's possible to redirect the tics to the headspace body of whoever's co-con and the physical body be unaffected
We will also have front changes triggered by a tic, or a tic attack triggered by a front change. Or a front change Abruptly stop a tic attack
Love to hear any similar (or different) experiences =]
#tic disorder#tic attack#plurality#pro endo#plural system#plural#plural experiences#plural questions#💙
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Having to lock yourself in your bedroom during an extreme tic attack so you don’t hurt anyone or yourself is a feeling I wish I never had to fucking experience. I fucking hate this. Why does my brain have to work like this. Fuck.
#Neurodivergent vent#Tics#Actually Tourettic#Tic disorder#Vent#TW Vent#Neurodivergent#tourettes#Actuallytourettic#tourette’s#Tourettes Syndrome#Tourette’s syndrome#TS#Tic attack#Tic attacks#TW tic attacks#CW tics#CW tic attacks
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"You know, the more I think about it, Tourette's is a proper super power"... "You can say literally anything you like and say it was a tic, fantastic!".
Yeah, it's funny until...
I tic a slur or something offensive or scary and it angers someone
I hurt myself
I hurt someone else
I can't carry out basic things like holding a drink, cooking, feeding myself...
I get muscle and joint pains from the repetitive motor tics
I sustain a long term injury
I freeze in the middle of the road with oncoming traffic
You can't go into a place because my tics are too loud or offensive
I have a tic attack
I become too exhausted to do anything
I can't do certain hobbies or activities, or I have to give up activities because my tics make them impossible to do
People tell you to 'shut up' and 'stop ticcing' because 'it's annoying' or 'what you're saying is rude'
You can't sleep because your tics won't give up
You can't stand for periods of time because your legs have been ruined by your tics
People stare at you
You get thrown out of a shop for being too loud or offensive
You're scared to go certain places
The list goes on.
#Tourette Syndrome isn't a joke#tourette syndrome#tics#disability#tourettes#awareness#neurodiverse#tourette syndrome awareness#motor tics#vocal tics#mental tics#tic disorders#disabled#tic#tic attack#tourettes is a disability
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Its honestly terrifying that I'm the one educating healthcare professionals on my medical condition. When I was hospitalised for my tics I was attended to by psychiatrists and asked questions about whether I was hearing voices and similar such things. To those who don't know Tourettes is a neurological condition, I should have seen neurologist rather than psychologists and psyciatrists. I was put on anti psychotics for months that ruined my mental health and did nothing to improve my tics. The wariness from this situation led to me refusing and hating medications for period of time, making situations far worse.
A psychiatrist diagnosed me with Tourettes. He was not qualified to do that, only a neurologist can diagnose Tourettes. When I went to see a neurologist who we were told specialised in tics Upon arrival, after months and months of waiting we were told:
oh yeah sorry this is too complex for me. I don't really know anything about tourettes.
I've been forced to educate myself because I just cannot trust doctors.
I've been told things from "oh everyone gets that" too you just need to sleep more, eat spinach, you're too stressed about school.
It's scary when the people who hold your life in their hands don't understand the basics of your medical condition.
My situation is better than most. I have been extremely privileged where my family could afford private health and the many treatments, specialists and medication I need to not suffer and be able to live my life. This is how bad it is for me, you can imagine how much worse it is for people who cannot access this healthcare. People who don't have the option to go to the hospital in case of emergency, people who can't afford to switch doctors until they find one that takes them seriously, people who can't afford medications.
#disability#disabled#disabled advocacy#disability vent#actually disabled#tics#tourettes#tourettes syndrom#tics and tourettes#touretes medications#disabilities#disability advocacy#living with disability#healthcare system#invisible disability#tic disorder#tourettes syndome#tourettes awareness#tic attack#actually tourettic#tic punk#disability awareness
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chat i might have a concussion.
-I had a major tic attack last night and slammed my head really hard due to it
-my light and sound is a lot more sensitive than it should be (and it was already sensitive to begin with)
-my head hurts so fucking bad like no headache ever before
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I got all kinds of motor tics went to the store and shoved my cart full of them suckers and I have been recently trying too figure out who I would rank their annoyance and my least favorite or eye or vision related tics like my body going nah you don't get to see is mental. But besides that a weird thing is the tics, I was just about to write that everyone gets them I realized/remembered not everyone gets tics besides hiccups, so I'll explain, what I'll call internal tics like I don't know what is there but minute ago right under my left rib was ticking no clue how or why but it happens and those just feel weird but I don't know how to rank them they don't hurt me or be disruptive, like my arms or legs can be. Oh and fuck neck tics.
This post is really gonna resonate with one person and that person probably doesn't even have Tumblr
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youtube
#Youtube#our youtube videos#youtube#youtube videos#youtube video#disabled#disability#disabled community#disability community#spoonie#tic#tics#tic attack#tic disorder#unspecified tic disorder#tic disorder unspecified#autism#autistic#asd#actually autism#actually autistic#autie#autism spectrum disorder#stim#stims#stimming
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Ok so the psych's solution to my tics was to basically suppress them. Love it <3/s
#tourettes#actually tourettic#tics#actually ticcing#tourettes syndrome#tics and tourettes#tic attack#tic supression#tourette syndrome#tourette’s awareness
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