Hi, you said in your bio that you're chronically ill. I was wondering if you had any tips for knitting with chronic pain (assuming that's your flavour of chronic illness)? Or do you know anyone who could give me advice?knitting/sewing is my sanity-saver.
I use compression gloves, only knit with specific weights of yarn (the ones that are the least painful for me), and try to take frequent breaks, which for me looks like switching hobbies every 30 minutes or so (knitting to spinning to knitting, etc). I also do my best to be very gentle on my joints when i can, altho i honestly rarely have the choice at work.
Personally i have joint problems and migraines, so thats what im correcting for/trying not to make worse. Helpful advice probably varies depending on what youre trying to correct for. Really my only general advice is "when it starts to hurt, try to stop" and "if possible, save the painfully difficult stuff for when youre doing well, and make the easier stuff your usual work"
If anyone who sees this has got other tips please feel free to comment them
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the duality of my Dr. Benzedrine is that he's incredibly effective and ruthless at what he does (saving lives, need not concern himself with the consequences as long as the subject/victim/patient is still alive by the medical definition of the term) and he's terribly smart and has a great sense of humor, but he's also a rather confused, genuinely brain-damaged individual. like. he's scary when he's in his element, but when he's not, he sometimes can barely string a full sentence together, has panic attacks over loud noises, etc
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me: sick on top of being chronically ill and in a massive flare, dizzy, bodies on fire, my bones hurt, my heart currently beating out of my chest, etc. so I feel like absolute shit and like I might pass out.
my family (who I'm currently staying with): invites other family, including a small child over
my family: makes me home our big ass dog back so she doesn't tackle said child (she's friendly, that j god, just a bit... overzealous in her affections)
my dad: looks at the multiple able bodied, not sick, not in pain, not on the verge of passing out, people, this g to find someone to help him.
my dad: "hey you, yeah you, the sick one, the one who looks dead on their legs, the one who shouldn't be interacting with family let alone the food they will be eating, come shuck corn, bring it out to the grill (it's like 90 degrees, I thought I was dying the second I opened the door), and complete this list of small house errands (including going into the luckily finished attic, basement, and out to the trash) 😃👍"
me: first off, I hope you all get this bug (besides the baby, everyone else are onlookers who could have stepped in), second off, when I pass the fuck out, it's all your problems.
(small note, I know this sucks and everything, and the nice thing to do seems like it should be comforting words and apologies, but I need dark humor and jokes right now, cause pity and kind words, while assumingly genuine, will only piss me off in my current state, cause it's all I get from my sucky family and it just triggers something deep inside me)
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oh god so standing up for a while seems to ease our tailbone pain a bit, which didn't used to happen when it flared up in the past, but if we stand up for more than a few minutes we get really dizzy and nauseous and everything else hurts more instead, and standing too often or for too long triggers ME/CFS flares for us, so standing up for any length of time isn't really a viable option
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Another doctor visit where my symptoms are either compared directly to EDS or else i am outright told i almost certainly have it, but why would i want a diagnosis lol
(Cue me explaining that i need custom knee braces to stop my knees hyperextending 24/7 including in my sleep and for this i need a diagnosis of SOMETHING so my insurance will cover it, which is met with like. A shrug)
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Chronic illness can be amusing sometimes, I've been in a fluctuating fibromyalgia flare for a little over a week now (peaked on Sunday) and doing art today when my body couldn't handle it has badly affected my bladder pain of all things. Like worse migraine from art I can get, but bladder? 😂
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