#addison's disease

[x22817]

My endocrinologist is proud of me!

I went into an adrenal crisis on Wednesday but managed to keep myself out of the hospital (thanks to Bean).

It hit fast, and it hit hard. I started to get really light-headed when Hek first started telling me something was wrong. I thought she was just telling me that my blood pressure dropped. So I needed to lay down and put my feet up. Nope, I was wrong. She kept whining and pawing at my belly, but I was too out of it to understand. The nausea and extreme fatigue hit before I knew it. Bean kept me conscious long enough to get a stress dose of prednisone in before I let myself pass out. I woke up to her still laying between my legs with her head on my belly, staring at me.

Our cortisol drop alerts need to be refined, apparently.

10/10 on her part

2/10 on my part

[chronicleness]

hey just wondering if there's any community or blogs out here for addison's disease/adrenal insufficiency? or just other folks who have it? i'm very experienced in autoimmune diseases lol but i've never met anyone else with this one and it seems scary and i'm out of my depth :/

[neuroticboyfriend]

hey lol i’m searching addisons disease everywhere i can find and your blog popped up so. i’m not diagnosed yet but i’ve been in hospital a couple days and we’re pretty much confirmed for it. i just wanted to ask like. how do you deal with this shit like i’m going to have to take a bunch on medication the rest of my life, learn to do injections even though i pass out when i see a needle. does it get better? like i know i’ll feel better when i’ve started treatment and not in as much pain but i’m so scared.

i don't have addisons, but i've been on medication for going on a decade. and honestly, as long as your medication works and side effects (if any) are mild... it's not bad. like finding the right medication can be a hassle, keeping access to it can be a hassle. it's daunting - but it's possible to get a sense of stability out of the experience. taking my meds themselves feels no different than drinking water.

i also used to be deathly afraid of needles. for me, it wasnt the pain; i hate the feeling of something going through my flesh. it's nauseating. but with subcutaneous injections, i barely felt it. within a couple injections, i could do it myself. even if you cant get subcutaneous injections, the aversion to needles is something that can be worked on, or potentially accomodated for.

this is all to say... it does get better, yeah. it's so overwhelming just to experience chronic illness itself, and addressing your medical needs on top of that is hard. but we adjust, even if it takes time. we shed that idealized version of ourselves that doesn't need all this help, and it allows us to give patience and compassion to who we really are. accepting what we cant change and changing what we can - that kinda thing.

this does remind me though, I've been so burnt out with life, i havent been taking the steps i can take to feel better. i should get on that... so. thank you for sending this ask; it's helped me, and i hope I've helped you. if the system gives you shit, stay strong. know you aren't alone, and you're worth more than whatever bullshit anyone throws your way. you have a right to medical care. no one can take that right from you.

[lil-gremlin-gal]

Welp. Thyroid stuff is under control and latest tests show that whatever is going on likely isn't Addison's disease, which I was hoping for. My cortisol level is well into the range normal now, as opposed to the 'very low-almost-not-normal but-is-still-normal' range it was when my symptoms started flaring up a month ago.

So we're in the dark again until I can see a doctor of internal medicine at the end of next month.

I'm holding out hope that it could maybe be cancer or something else, because then there would be a chance of whatever this is being treatable, as opposed to struggling forever with no available treatments (if it is ME/CFS).

I've been housebound for a month now.

I gotta say, when you're at the pount where you're devastated that you DON'T have an awful disease, things are pretty bad :(

[outskirts-of-life]

i am prepping for the hospital tomorrow, there doing this procedure where i'm probably going to vomit & have seizures for hours because that's what normally happens 🤪 if i do anything crazy today or tomorrow it's probably the drugggs 💊

[once-delight]

MY ENDOCRINOLOGIST IS APPLYING FOR A CORTISOL PUMP FOR ME!!!

Im going to be one of the very first in Denmark to get it!

I am so PUMPED!!!

[bordercolliefanclub]

Abby the Border Collie Is Full of Life Despite Having Addison's Disease

Lucie Gauthier would like all of you to meet Abby!  Abby is a 4 year old border collie who is living with Addison’s disease, but is still full of life and spunk! https://is.gd/kCvoCv https://www.bordercolliefanclub.com/wp-content/uploads/2017/11/abby-2.jpeg

[kalunfinch]

Sooo... took a cortisol test. 0.8 that's.... not great. That's addisons disease. But my results came in on a Saturday morning so I haven't heard back from my doctor. I'm getting my hysterectomy done on the 18th. Hahaha. Maybe they can take a looksie at my adrenal glands whil they're down there. Addisons is typically caused by autoimmune disorders. I am not diagnosed with an autoimmune disorders. Soooo I'm kinda terrified. Oh and my results are reading liver damage and pre-diabetes. That's also weighing on my mind.

[x22817]

Hek and I have done more in the last week than we have in the last year. We had way too much fun! Hek was showered with well-deserved compliments everywhere we went.

This is her watching me eat under the table at a very busy restaurant. Some may see it as a Bean begging to be shared with, but it's really her doing her job. I encourage her to watch me, especially when I'm eating, because a lot of her alerts/interruptions are visual. This meal was a fast food restaurant that I particularly struggled with. Hek ended up just laying her head on the bench so she could watch my hands continuously, and I could easily switch from harming myself to petting her.

Drug and health update below

Now that my parents are gone, I'm changing all the drug stuff. It's time to once again drop on my prednisone dose. The Fludrocortisone probably needs to be increased, but I can't do anything about that rn. I'm also changing the times I'm taking everything in hopes it will ease the tapering experience.

Current schedule:

12:00 - 5mg Pred

4:00 - 100mcg Levothyroxine

7:00 - 10mg Pred + 0.1mg Fludro

17:00 - 2.5mg Pred

22:00 - 2.5mg Pred

New schedule:

11:00 - 5mg Pred

5:00 - 100mcg Levo + 7.5mg Pred + 0.1mg Fludro

17:00 - 2.5mg Pred

Straight up, I'm not excited to transition from the immuno suppressive level to the adrenal support level. Pain and energy levels are meh at best. My joints are already becoming problematic again, especially my fingers and toes. I'm struggling with sleeping in every way, which baffles my endo, but idk what to tell her. Mostly, it's the salt cravings that have skyrocketed in the last two months that are driving me crazy. The weight problem is just something I'm learning to live with at this point. It's all water retention and gaining the weight I couldn't keep on before the cortisol.

[amaklinger44]

My dog has been missing since 11/16 from the Blasdell, NY area. She has Addisons Disease and really needs her medication, if she is spotted please call and if you’re able to get her take her to the vet asap!! Please share and spread the word, I am lost without her.

[marsbotz]

spambi. biton. sbimton

[sporesgalaxy]

i keep accidentally deleting my addie sketches!!!!!!!!!!!!!!!!!! so have the fastest frantic nonsense i could draw. he got called cringe

[wishuponastarion]

a happy greyhuahua :)

[prettyholic7]

I have an obssesion with Project Sekai again so have some headcannons!!

✿Since Mizuki canonically watches magical girl anime, I imagine she'd try to get the other N25 members into it too, but only Ena would watch it so now they sometimes binge shows together.

✿Emu heard from Honami that Shiho loves collecting Phenny merch so she would get her new merch before it publically releases.

✿Since Shiho doesn't really go shopping with Shizuku, I feel like Saki once offered to go with her and they had a lot of fun so they go shopping for clothes together every now and then, and sometimes Airi and Ena join them!

✿It was once mentioned that Saki has a naturally higher body temperature, so I imagine that when the weather gets colder the LN girls hug Saki more than usual to keep warm, and that has maybe become an inside joke to them.

✿This is probably more self-indulgent than anything, but I headcanon Saki to have been born premature and have Addison's disease. Her symptoms are mostly in line to what I experienced, and I feel like one of the reasons besides overworking herself for when she fainted in the Stella event might have been that she was so caught up in trying to do everything on time that she forgot to take her meds.

[drizzlydaybeforethespring]

Hi folks,

@vvictorman_uel is a disabled person on twitter who’s been going through horrific abuse by his parents and an institution, and he is now currently unhoused again. He has a gofundme to try to rebuild his life, and as of 4/13 he also needs money for Sunday night’s hotel stay as the money probably will not transfer from the gofundme until Monday.

V*nmo: Victor-Markhoff

C*shapp: $victormarkhoff

P*ypal:

https://www.paypal.com/paypalme/victormarkhoff

Gof*ndme:

https://www.gofundme.com/f/help-get-victor-to-safety?utm_campaign=p_cp%2Bfundraiser-sidebar&utm_content=fp_variant_share_ai&utm_medium=copy_link_all&utm_source=customer

Twitter link:

https://x.com/vvictorman_uel/status/1778295914840412299?s=46&t=A8G0XoNYlErCnoyvcgVWhw

[kenobihater]

1 am sautéed pierogi save me. 1 am sautéed pierogi. save me 1 am sautéed pierogi.