#Addisons disease

[amaklinger44]

My dog has been missing since 11/16 from the Blasdell, NY area. She has Addisons Disease and really needs her medication, if she is spotted please call and if you’re able to get her take her to the vet asap!! Please share and spread the word, I am lost without her.

[drizzlydaybeforethespring]

Hi folks,

@vvictorman_uel is a disabled person on twitter who’s been going through horrific abuse by his parents and an institution, and he is now currently unhoused again. He has a gofundme to try to rebuild his life, and as of 4/13 he also needs money for Sunday night’s hotel stay as the money probably will not transfer from the gofundme until Monday.

V*nmo: Victor-Markhoff

C*shapp: $victormarkhoff

P*ypal:

https://www.paypal.com/paypalme/victormarkhoff

Gof*ndme:

https://www.gofundme.com/f/help-get-victor-to-safety?utm_campaign=p_cp%2Bfundraiser-sidebar&utm_content=fp_variant_share_ai&utm_medium=copy_link_all&utm_source=customer

Twitter link:

https://x.com/vvictorman_uel/status/1778295914840412299?s=46&t=A8G0XoNYlErCnoyvcgVWhw

[neuroticboyfriend]

okay this might be kinda weird but i was wondering if you (or anyone else in notes and stuff) have any advice when it comes being chronicly ill and stuff? im like 96% sure i either have pots or addisons disease but i cant figure it out yet on a count of the fact that im terrified of getting my labs drawn😭 idk its all kinds of stressful and scary and like i said if you or anyone else has advice on how to deal with something like that, itd be awesome

other then that i want to thank you for running this blog and being very helpful and positive and stuff, its really amazing

anyways i hope you have a good day/afternoon/night and im wishing you lots of spoons💜💜

i unfortunately dont have many spoons so i dont have a lot of advice but. if you ever need to find a doc who will actually diagnose you with POTS (or any other condition) i recommend going on facebook and finding a local group for the condition (might have to go broader sometimes, like autoimmune disease instead of addisons)... and then asking around for doctors or even just. searching the group post history. that's been how i found this pain doc that specializes in EDS and spine conditions, and so far she's a LOT better than my other docs. and i am being evaluaed and put on a special medication so. yeah

[chronically-kayleigh]

it’s been a while, don’t know if i’m messaging into the abyss or not… i haven’t posted since 2022 lol…

a few updates:

-my cardiologist is retiring :(

-my endocrinologist MOVED?!??!!!

-i’ve had two hospital stays so far this year, equating to abt 10 days total… oh also had my first ambulance ride (i slept through the whole thing)

-i have a diagnosis of hypermobile ehlers-danlos syndrome, which we think my mom has as well

-i’m still doing theatre and i want to go into it professionally. i’ll be a junior this coming year and i want to get a BFA in musical theatre

-i did a show in a major city for the first time this past summer. i was in a month-long intensive in DC and we put on a full show and performed in a real venue

-i’m a textbook case of small fiber neuropathy, they did the skin biopsy just to tell me that it was inconclusive because there wasn’t enough to compare it to in my age group

-i’m 16 now, i have my permit (ive had it since november)… and i have less than 4 hours total logged… i have driving anxiety

-i had a callback saturday and am waiting on an update from that

-i’ve found a good therapist (she brings her dog sometimes too)

and that’s about all i can think of at the moment, but i’m hoping to start this back up.

[house-of-slayterr]

Why the hell do my adrenal glands need to be attach my fucking kidneys, I know they live on top of them but can I fucking live. It feels like my god damn organs are being ripped out 😭

[exhaustedevan]

Septo-Optic Dysplasia Awareness

Septo-Optic Dysplasia (SOD) is a rare genetic disorder where parts of the brain do not develop correctly. This can include the septum pellucidum, the wall that separates the two halves of your brain, the thyroid gland and the optic nerves. For that reason people with SOD are often visually impaired. Blindness is a spectrum and that's especially true for blindness caused by SOD, it varies from mild vision impairments to complete blindness. This condition appears in about 1 of 10'000 births and is usually diagnosed in early childhood.

If you have a child with SOD, there are support groups available. For example, the MAGIC foundation offers a closed facebook support group for parents and so does ONH Awareness. However it is super rare to find adults and people who were diagnosed as adults, in fact I have never met someone like me. This is why I'm making this post, I would LOVE to connect with adult people who have SOD or ONH because most support is geared towards parents of children. I would especially like to connect with you if, just like me, you were diagnosed as an adult.

If anyone has questions related to SOD feel free to contact me!

[outskirts-of-life]

we finally harvested my two girls , frani and miranda 🪴🪴

lately i've been working on selectively breeding Zkittlez to make an ultimate anti-seizure / anti-autoimmune-disease-pain medicine .

[aspenonpawzzz]

:(

my dog was just diagnosed with addisons.

"What is Addison's disease? Addison's disease causes the adrenal glands in a dog's body to stop functioning the way they're supposed to. When this happens, the glands don't produce the hormones they should, which in turn affects the whole body, including the dog's stress response and electrolyte balance."

he's ok, he just has to get shots every month.

we're letting the breeder know cause it can be heratatary.

[satisfiedskye]

I COULD USE SOME HELP

i hate to do this so much, but im asking for some help. i have to get my meds for the month soon (i actively take roughly 18 diff pills, per DAY, for reference) and i also have to pay some debt every month, but i only have 15 dollars in my bank acc atm :,) if any of u could like, share this post around and/or d0n4te that would be very helpful- im really sorry about this

[marsbotz]

spambi. biton. sbimton

[sporesgalaxy]

i keep accidentally deleting my addie sketches!!!!!!!!!!!!!!!!!! so have the fastest frantic nonsense i could draw. he got called cringe

[wishuponastarion]

a happy greyhuahua :)

[house-of-slayterr]

Why don’t they make medical ID bands that are just QR codes to a patient portal with all the important information on the top? That would be so much easier than trying to explain yourself when your sick, then having them not believe you anyways-

[prettyholic7]

I have an obssesion with Project Sekai again so have some headcannons!!

✿Since Mizuki canonically watches magical girl anime, I imagine she'd try to get the other N25 members into it too, but only Ena would watch it so now they sometimes binge shows together.

✿Emu heard from Honami that Shiho loves collecting Phenny merch so she would get her new merch before it publically releases.

✿Since Shiho doesn't really go shopping with Shizuku, I feel like Saki once offered to go with her and they had a lot of fun so they go shopping for clothes together every now and then, and sometimes Airi and Ena join them!

✿It was once mentioned that Saki has a naturally higher body temperature, so I imagine that when the weather gets colder the LN girls hug Saki more than usual to keep warm, and that has maybe become an inside joke to them.

✿This is probably more self-indulgent than anything, but I headcanon Saki to have been born premature and have Addison's disease. Her symptoms are mostly in line to what I experienced, and I feel like one of the reasons besides overworking herself for when she fainted in the Stella event might have been that she was so caught up in trying to do everything on time that she forgot to take her meds.

[x22817]

My endocrinologist is proud of me!

I went into an adrenal crisis on Wednesday but managed to keep myself out of the hospital (thanks to Bean).

It hit fast, and it hit hard. I started to get really light-headed when Hek first started telling me something was wrong. I thought she was just telling me that my blood pressure dropped. So I needed to lay down and put my feet up. Nope, I was wrong. She kept whining and pawing at my belly, but I was too out of it to understand. The nausea and extreme fatigue hit before I knew it. Bean kept me conscious long enough to get a stress dose of prednisone in before I let myself pass out. I woke up to her still laying between my legs with her head on my belly, staring at me.

Our cortisol drop alerts need to be refined, apparently.

10/10 on her part

2/10 on my part