#endemetriosis

[sirladysketch]

This popped up on my twitter feed and I know a couple of you on here *also* have to deal with endemetriosis aka barbed wire insides (diagnosed or otherwise) so I wanted to share it here. I'm hoping this initial research leads to something they can actually use to better treat the symptoms, if not outright cure it.

The article is originally from the Washington Post but I've uploaded the archived version so you guys should be able to read it without a paywall.

[messmersflame]

it's really no wonder i always end up leaving health issues so late or when they've got really bad when it's like. you can't even call the dr bc you wont get through and when you it's like. um go on our website and talk to this robot. i get the need for streamlining the process esp when the NHS is understaffed but wow. ok it feels great to talk to an AI that's impersonal with pre programmed questions. esp when the AI asks me 'what do you think caused your symptoms' DUDE I DONT KNOW WHY DO YOU THINK I NEED TO SEE A DR. 'why do you think you need to see a dr' CAUSE I AM IN CONSTANT PAIN AHHHH

[cumberbitchhhh]

give me ONE reason not to get a hysterectomy when i’m feeling the pain i am at the minute

[blushdrunksaa]

she was sat up in the hospital bed after her procedure and she was still waking up from the anesthesia, but she knew her surroundings. the only person that visited her was her sister, but when she saw max walk into the room, she gave her a tired smile, "hi," she rasped. she had endemetriosis and this was a routine surgery she had to keep getting to check up on herself, but she was in enormous amounts of pain. "i'm on some awesome painkillers right now and i'll be sad to go home tomorrow," she laughed and reached out her hand for max's. "thank you for coming, the only other person that showed up was marissa..." she murmured and shrugged. she had a horrible relationship with her family aside from her sister. / @dcgtown

[sweetestcaptainhughes]

With your let me love you series would you be willing to do something like endemetriosis (sorry is that’s spelled incorrectly) with any character. If not that’s all good. Love your writting ❤️❤️

It’s okay I am the worst at spelling, I knew what you meant. But I’m a little confused how you worded your ask. Because you said if I would be willing to write about something like “endometriosis” which would be PCOS. Which I already have listed, since they are both conditions that affect someone’s cycle, fertility and overall health as far as affects on someone.

[ghostsoapgirl]

Sitting in scaulding hot bath water because I’m pretty sure my uterus is trying to kill me?

On top of that I have a killer stomach ache and I’m over it.

[2014federalbudget]

in surgery recovery right now, but the good news is that the pain WAS endemetriosis and the doctor was able to remove it.

[kojoty]

Weird question but does everyone has roughly the same amount of blood they shed a month or does it vary... Like are there some crazies with thick af linings (endemetriosis bitches don't respond) anyways. My period is funny af this month wtf. I'm miserable and exhausted and manic and hyper focused and losing lining more than blood and bitchy

[prophecy-is-inevitable]

Hi there! Is there any way you could do a Michael Langdon x reader smut/fluff where the reader has endemetriosis? Like when they go to have sex it hurts the reader really bad so she starts crying and Michael comforts and cuddles her? Thank you so much:)

Hello anon! I would love to write this for you. It might take a little bit, since I want to do a bit more research for you. A lot of the women in my family have had endometriosis, so I know that it can be different for everyone. If there are specific details you would like (the type of pain reader experiences, if there are ways to lessen the pain that work for reader (i.e. lubricant, attentive foreplay, etc.), and if there are sex positions that reader is more comfortable in), please let me know! Feel free to send an ask. I will answer that privately, please include anything you think is important for me to bring your idea to life! Thank you for sending this!

[lunatails01]

Not everything mentioning females and xx anatomy is transphobic, cis women are allowed to have stuff, for and about them. There are certain natural differences in the chromosones, it's not a bad thing, it doesn't make you less of a women. But there's still things that are unique to cis women, and it's important that they get acknowleged too. Such as in sex ed, not sure where trans females go, but if you go into the female side, don't complain that it's not fair when you don't get info unique to your own selves, or that you didn't get pads and tampon samples (this doesn't apply to trans men, they should have access to these samples) Also, when people discuss serious health issues pertaining to the vaginal area, such as endemetriosis, ovarian cancer, or other related health issues, that's not an attack either, these are important things that need to be discussed. There's plenty of things that need to be discussed for women, that are important for people with certain chromosomes. It's not an attack on trans women, simply how things are, these things shouldn't be locked away for the sake of trans women to feel included. Be glad you don't have to experience endemitriosis, or ovarian cancer, or even the most painful cramps during your monthly period. Because those things are very bad, and painful, it's not exclusion that you don't have those experiences, because they are very real, and need to and should be discussed. Also, you should consider yourself lucky you will never experience these things.

[lulew1988]

Endometriosis - My Story

Hello! I’m Jessica from the Mrs. Pennington for Your Thoughts blog! I was so excited when Lucy messaged me and asked if I’d share my story about life with endometriosis! I started blogging specifically to share my story and get the word out there about this underrecognized terrible disease that affects 1 in 10 women.

Chances are you have met someone with endometriosis, have heard of it, of even have it yourself. Endometriosis isn’t a clear and concise disease that hits everyone the same. There are 4 stages of endo, but the stages really have no correlation to a number of symptoms a woman may feel. I have Stage IV endometriosis and have (unfortunately) had a pretty unique experience with it, which is why I’m here today! I don’t want any woman, young or old, to think that excruciating pain and a host of other symptoms are “normal” or that they’re crazy. Both of these comments were said to me in the beginning of my journey.

 Speaking of the beginning, let’s take a trip down memory lane. I started my period when I was about 10 years old. It was most irregular, like most young girls. Once I started having monthly periods, they were horrendous: cramps, bloating, heavy bleeding, passing large clots. I was told that this all was normal for girls my age.

 As I got older and reached my late teens to twenties, the problems only escalated. I still had all the same symptoms, but also had the joy of vomiting, fevers, rectal pain, and extreme fatigue. I had been to multiple doctors and was brushed off. It was normal to feel this way they said. I even had a doctor tell my mother that I was “hysterically dramatic” and needed to “adapt to the ways of being a woman”. In my early twenties, I was diagnosed with appendicitis during a bout of incredible pain. My doctor was “old school” and wanted no scans—just immediate surgery.

 I’m forever grateful for that man. While in surgery for an appendectomy, an ovarian cyst was found. This in itself was nothing new as I’d had cysts often. A wonderful OBGYN was in on my surgery and finally could tell me what was causing all of my issues: stage IV endometriosis. She explained to my mother that what I had been feeling every.single.month was comparable to childbirth.

 Over the past 15 years, I’ve had multiple surgeries, including an emergency hysterectomy immediately following the birth of my second son. Endometriosis had ruined my uterus and caused it to rupture during my intense contractions. Waking up to hear that I’d had a hysterectomy was music to my ears! I’d always heard this was the answer to ending endometriosis!

 Hysterectomy, however, was not the answer. I only continued to decline health-wise. The pain increased. Each month brought rectal bleeding, fevers, diarrhea, and a period. That’s right—a period after a hysterectomy. The 25th of each month or so all hell would break loose and I’d be reminded of the disease that had taken over my life. As time went on it wasn’t just a once a month ordeal. Symptoms were increasing with seemingly no rhyme or reason.

After an ER visit last December, I began to research. I Googled for hours. I came across the Center for Endometriosis Care in Atlanta. Dr. Sinervo, the lead surgeon there, was highly acclaimed. I couldn’t find a single bad review of this man on the internet. (How many people can say that?!) He was known for performing endometriosis excision surgery. I began the process of becoming a patient at the CEC and never looked back.

 April 11th, 2017 I underwent excision surgery with Dr. Sinervo and Dr. Kongoasa of the CEC. I woke from anesthesia to the news that they’d found stage IV endometriosis in various spots in my body. I had many adhesions as well. My left ovary adhered to my hip, my omentum, umbilical tissue, and my bowels. I had endometriosis on my vaginal wall, as well as my rectum. Most devastating, though, was that endometriosis had deeply infiltrated the wall of my sigmoid colon. There was beyond a 50% blockage of the colon. A 6-inch section of the colon needed to be resected.

It has been nearly 3 months since I underwent my excision surgery. Excision is known as the gold standard of endometriosis treatment. If you compare it to weeding your garden—excision is like pulling the weeds by the roots versus just mowing off the top. Recovery has had its ups and downs. Some days are fantastic, while others are spent in bed. Pelvic floor physical therapy has become a big part of my routine. With a bowel resection in the sigmoid colon, the central nervous system is impacted so recovery involves a lot of “reprogramming” of that system!

While I’m not 100% yet, I’m told that I can expect my new normal in the next few weeks to months.

 The journey with this disease has been no walk in the park. If there is one thing I’ve learned, though, it is that we have to advocate for ourselves. Never stop until you feel that you’re receiving attention and treatment that you deserve! Feeling the unexplained pain and experiencing other

symptoms I’ve mentioned is NOT normal. You are NOT crazy or dramatic. Seeking out the very best care you can find, and not stopping until you’re satisfied will help you find your healthy, happy ending!

If you or someone you love happens to be struggling with endometriosis, please don’t hesitate to visit my blog and hit that contact button! I love to help others on their journey with this disease.

XoXo

Jessica

If you loved Jessica's story and want to know more, you can follow her on her social media and her blog below. 

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Mrs. Pennington For Your Thoughts

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[subtleshenanigans]

So I’m gonna vent for a sec because I’d rather scream out needlessly into the void than choke on my words building up. I’ll put a cut so you don’t have to read it - I’m gonna complain about chronic illness for a sec.

I’m getting upset; I can’t do anything anymore. The weather, any extreme makes it hard to accomplish anything, my chronic fatigue is up - I can’t do the smallest thing without feeling utterly spent. Catbox? Gotta take a breather after. Dishes? I’m down for the next few hours. A shower? I feel like I need a nap. I hate working eight hour shifts at work because I am literally down for the rest of the day, all my strength sapped out of me.

They never specified what form of Dysautonomia I have - only that the tests they did conclude it’s not POTS. They never told me it would get worse. I’ve been on medication for months to keep my blood pressure up so I’m not fainting but it makes me wonder how much worse off I’d be without it. I have spiritual things I want to care for, responsibilities, things I want to do- it’s just so incredibly frustrating.

I know it’s not something that requires surgery like a tumor or endemetriosis. I know I have all my limbs, my senses. I know I’m not as bad off as I could be. I’m just. . .I’ve been tired for so long and I’m getting more tired and it’s so, so frustrating.

Sorry I just needed a bit of time to vent. I promise to anyone reading this: I’ll be find. I’ll find a way and be fine. It’s- i have to at least acknowledge my difficulty or I’ll ignore it and drive myself into the ground. Dysautonomia is considered a chronic illness of sorts. My age has nothing to do with it and I need to acknowledge when to push, and when to back off.

[kaayj92]

Hello,

So this is the first time I have come out and spoke publicly about my everyday battle with endometriosis.

I decided to come out and tell my story, as well as try to raise awareness for the women suffering from this debilitating disease.

I was just 13 when my mum and I started to realise there was something wrong with me. I would cop intense pain the week before, the week of and the week after my period, and most times my period would last longer than 7 days. It would feel like there was a knife in my stomach getting swang around, my temperature would go from to cold to hot and the pain would get so intense sometimes that it would paralize me.

Doctors couldn’t give me an answer to why I went through so much pain when I got my period and why the pain lasted so long. They ended up putting it down to ‘it was just my cycle’ and that there was nothing wrong with me.

At the age of 17 I was told to go on the pill to help with the pain and the irregular heavy periods. The pill did help take some of the intensity of the pain away, my periods did become a little bit more regulated and lighter but it was only a bandaid and just like a bandaid, it can only last for so long.

The pill only lasted roughly about 2 years before all my symptoms started showing up again, and I thought maybe my body was getting immune to it. I spoke to my doctor about the issue of the pill starting to wear off and was told to take 3 months off the pill and then start back up on a different brand. That lasted about a whole year before that went all down hill, so back to the doctors I went and was told that I wasn’t on a strong enough pill, even though it was a medium dosage, and got prescribed a high dosage pill....that did absolutely nothing but turn me into a raging bitch that was angry all the time.

I decided to try a different doctor (mind you this is about the 5th or 6th time I changed doctors to try to work out why I was constantly in so much pain for 3 weeks out of a month) and FINALLY I was told that what I was going through was not normal and we needed to get down to the bottom of why I was dealing with so much pain for an extent amount of time. My doctor explained to me that I may have a condition called endemetriosis, knowing that my tests from the past came back negative for polaristic ovaries and cysts on my ovaries, he thought that endometriosis could be a high possibility, as all the symptoms I had coinsided with the symptoms of endometriosis.

[dinagothsdress]

my entire waistline rn is Pain

[nindabob]

In the span of two weeks I've found out that I have bipolar disorder and endemetriosis I am well afforded an alcoholic beverage despite being pretty allergic to it but w/e I have work tomorrow

[cathscottauthor-blog]

Request for info

this is a serious request from an ex-care worker, writer and disability activist who is sick of women and their bodies being literally or metaphorically carved up by men's violence. This is for D, who was raped as a child and still has urological, gynaecolgical and cervical problems at the age of 35. This is for T, who was raped 30 years ago and whose relationship with her female partner was destroyed when the rapist started stalking T again. As far as I know, T's rapist was never brought to justice. Nor was D's. Nor was the man who kept groping my backside and laughing about it, but he's 70 now and he knows what he did. This is for V, the student I met after I graduated from Warwick and she had to drop out and work in a cafe because her drama teacher raped her and her own mother hadn't even cared enough to ask and her mental problems had destroyed her. TELL ME HOW TO HELP THESE WOMEN. All of them. And more of them. The women whose lives and bodies were destroyed by child sexual abuse, female genital mutilation, vaginisimus, endemetriosis, all of it, any of it. I'm REALLY ASKING. How can D repair her body, her mind and her finances when the fucking british government has just cut her ESA/DSA yet again? Answers to cath@cathscott.co.uk. Doctors, nurses, professors, I really need your expertise. TELL ME HOW. I need info. I need data. I need names, places, email addresses. I am SICK of seeing women destroyed by men deciding that their sexual needs are worth more than women's FUCKING LIVES and WOMEN'S WHOLE BODIES. #IBelieveHer #yesALLWOMEN