#intracranialhypertension

[vshospitals]

Hypertension / உயர் இரத்த அழுத்தம்

Hypertension, or high blood pressure, is a condition in which the force of blood against the walls of your arteries is consistently too high. It's important to manage hypertension, as it can lead to serious health problems if left untreated.

0:00 - 1:38 Hypertension and symptoms. 1:38 - 2:44 Different stages of hypertension. 2:44 - 3:26 Visit doctor regulary.

https://vshospitals.com/doctor/dr-k-v-sathyanarayanan-s-a/ https://youtu.be/B8mQkh93_3k

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For appointments call: +91-9962242000 / +91 9021123000, visit www.vshospitals.com

#VSHospitals #hypertension #pulmonaryhypertension #intracranialhypertension #idiopathicintracranialhypertension #hypertensionawareness #worldhypertensionday #pulmonaryhypertensionawareness #pulmonaryarterialhypertension #intercranialhypertension #hypertensionsupport #gestationalhypertension

[severepiratejellyfish]

My name is Anél Martins. I’m 45 years old. I have a brain aneurysm, VP brain shunt, thyroid cancer, heart arrhythmia, bronchiectasis (had part of my lung removed), Fibromyalgia, Asthma, chronic headache syndrome. In and out of hospital since October 2019 till now.

l was admitted in hospital October 2019, my neurosurgeon did an LP and my pressure was over a 100, so I got a VP shunt on the 29th, had post-op complications in ICU was eventually transferred to a normal ward.  I had difficulty in breathing and my physician did a CT of my chest to rule out a PE, they picked up a nodule on my thyroid of which I then had an FNA and it was cancer.

The left side of my thyroid was removed in November 2019 and it was follicular cancer.  The right side was removed in December 2019 of which both stays ended in ICU, then I had radiation in February 2020 and did a full-body scan and they discovered that there were still cancer cells so I had to do radiation again.

Since January 2020 I have been in and out of the hospital about 10 times for chest infections and now I’m in a psychiatric hospital for depression due to brain issues.  I had to see a neuropsychologist for a brain assessment and of course depression due to everything.  My work dismissed after having a hearing without me.

On the 4th of November I had a thoracotomy to remove part of my lung due to bronchiectasis, was in ICU for 5 days, went to the ward and developed post op infection ended up being in hospital for a month, was at home for +- 7 days and readmitted with a PE and because of pain on my left side that I couldn't cough or breath properly. I was once again in hospital for 3 weeks and is now on high dosis of meds that stops the pain signals from your brain but still have pain and the meds are so expensive.

Had an LP done in January 2021 and need a revision of my VP shunt and my medical aid only pay R1700 toward internal appliances. 

I need funds raised since I have so many co-payments and treatment still continuing and I don't have an income to deal with all these accounts. If I can raise the funds it will make my stress levels less so I can get better and not worry so much about all the final demand letters I receive. Funds will go towards all the doctors and medical bills.

[noblehospitalspune]

Spread the information about the risks of hypertensions and help people to live healthy on this world hypertension day

www.noblehospitalspune.com

To consult with our experts, call: +91 800 700 6611

[swimmiey]

A little over a week ago my NJ started to leak bile and stomach acid. Also everytime I ate or drank something it leaked out and I started to threw up formula, so I knew it had migrated from my jejunum to my stomach and needed to be replaced. It happened on Saturday night so we decided to hold my feeds for a day and called my nephrologist on Monday. They had an opening on Tuesday, so I wasn’t to long without my feeds. It needed to be replaced on the endoscopy ward with a gastroscopy. I was given versed, but was still wide awake and noticed everything that happened during the endoscopy. They tried placing it through my nose instead of my mouth like last time, but the scoop was to big so it did hurt like hell.. but I’m glad they were able to place it through my nose. Hopefully this tube stays in place for a while, because I’m really disliking the placements. My blood pressure was really low during the procedure and after (70/35) the alarm went off constantly, so they almost made me stay the night.. But luckily it came up just enough to be allowed to go home. -------------------------------------- #njtube #ifeellikegivingup #feedingtube #feedingtubeproblems #sickandtiredofbeingsickandtired #spoonie #spoonieproblems #totiredtofunction #chronichope #chronicheadache #chronicillness #chronicpain #chronicfatigue #electrolyteimbalance #invisibleillness #intracranialhypertension #sondevoeding #fanconisyndrome #butyoudontlooksick #headachefromhell #versed #hospitallife #hypotension #endoscopy #gastroscopy #endoscopie #gastroscopie #ineedacure #chronischziek #kidneydisease (bij Isala)

[nv-rivera]

#inktoberday19 - DIZZY. I probably would have drawn something cute and cartoony had last week rolled out in any kind of normal way. But it didn’t. Last week I had my first full-blown relapse into the clutches of PTC/IIH in over eight years. So when I read “dizzy” as today’s prompt i couldn’t think of anything else because, while the symptoms are not as severe as last week, they still are not gone. At the height of this disease’s attack on my body, the Intracranial Hypertension Research Foundation was there for me to answer my questions in ways no one else could. Being sick is scary, being sick with a rare disease compounds every bit of that fear when answers and empathy are hard to come by. IHRF always had both. I am forever grateful for their service and commitment to researching better treatments for this condition. Thank you #ihrfoundation. And, to all my #brainpain buddies, I am wishing you as many pain free days as possible, paired with a shield of armor surrounding your precious eyesight. Never lose the faith that remission can be in your future! #intracranialhypertension #pseudotumorcerebri #iihptc #ptciih #raredisease #inktober @inktober @jakeparker https://www.instagram.com/p/CGjX7X4hxhW/?igshid=c0cuy0tpywfv

[nerdymedzebra]

Saw an #ENT yesterday about jugular compression (vascular #EaglesSyndrome), but turns out I might have a problem further up the vein-chain. He did confirm the #IntracranialHypertension I have been suspecting, and now Ive gotta get a bubble test Echo done down my THROAT! instead of through my chest, and then I need a venogram done with a neuro-interventional radiologist. He wants to check these things out before we seriously look at my jugulars/styloids at all.

#EhlersDanlosSyndrome #EhlersDanlos #EDS #MastCellActivationSyndrome #HSD #HypermobilitySpectrumDisorder #Dysautonomia

https://www.instagram.com/p/B4xPo2YgMEg/?igshid=kja7ug35zv5x

[faithnself]

#dreamcatcher #custommade #intracranialhypertension #blueandgreen #chiari #purple #thinblueline #blue https://www.instagram.com/p/CDMydNyp5iF/?igshid=8xi3jpleb6z2

[lifewithafeedingtube]

Saw this and loved it! Hope everyone is keeping strong, and remember that you are your own pace - no one else’s.

[kenziecamillexo]

I didn't know back then that life would change forever. I didn't know that I would have to give up the things that brought me the most joy because I just couldn't do them any more. I didn't know how my limits would change from one day to the next. I didn't know I'd have to fight so hard for what I need. I didn't know I could be okay with wearing socks that don't match. I didn't know how good fuzzy socks feel. I didn't know doctors could be wrong. I didn't know that there were others going through this. I didn't know there was support from people like me. I'd say I wish someone had told me all of these things back then, but I know I would't have believed them. 💙

[unseeliej]

I used to put an (ironic) amount of effort into being low-maintenance, as if the best I could offer someone was as little of me as possible. Then I ended up with a disability, and now low-maintenance is no longer a choice. ¯\_(ツ)_/¯ Caw caw, my dudes. #raven #crows #pin #enamelpins #disabled #disability #intracranialhypertension #iih https://www.instagram.com/p/B0oAOY8leHl/?igshid=qmz2p2gvph57

[giazillashow]

#chiariawareness @chiaridocmovie #csf #spinalcsfleak #csfleak #arnoldchiari #acm #epilepsywarrior #ehlersdanlos #patientsafetyfirst #patientsafetyawarenessweek #writingforryan #documentaryphotography #documentaryfilm #indiefilm #filmmentor #intracranialhypertension #chronicpainawareness #brainsurgery #brainfog #dizzy #headache #brainslump https://www.instagram.com/p/B0d94ANALXh/?igshid=ebbjrymwahs2

[amandasavas83]

I am usually not like this too bad when I have a procedure or surgery coming up, but I am so nervous for tomorrow!! I hope this isn't a hint of what tomorrow & recovery time is going to be like!!! 💙💚💜 Thank you for all the prayers & well wishes! I am truly blessed! 💙💚💜 💙💚💜 The blue & green hearts are for Intracranial Hypertension and the "purple" heart is for Chiari awareness. Both brain diseases I suffer from and both have the month of September for their awareness months! How fitting that I have my surgery this month too?! #IHope4Cure #IntracranialHypertension #ChiariMalformation

[swimmiey]

I’ve had an amazing swim clinic tonight from Olympic swimmers @idekker and @saskia_de_jonge. And even though I’m pretty tired now, I’ve had a blast. It was so nice to be able to swim again. I was so happy I was able to do this even though I was pretty tired all day, I really needed some positive energy. Doing thing like this is really helping me to get through the bad days. Big thanks to Inge and Saskia for making my day. 🏊‍♀️ #swimmerforlife #swimclinic #iloveswimming #missswimmingsomuch #chronicillness #invisibleillness #njtube #chronichope #headachefromhell #ineedanap #itneverstops #intracranialhypertension #fanconisyndrome #electrolyteimbalance #kidneydisease #kidneyproblems #kidneyfailure #childhoodcancersurvivor #nursingstudent #butyoudontlooksick #myheadhurts #positiveenergy #totiredtofunction #spoonielife #spoonie #spooniestrong #spoonielife (bij Optisport Dronten zwembad Overboord)

[iih-brains-trust]

The pain scale. Most of us at some stage have been asked what our pain is on a scale of 1 to 10. But what does that actually mean? Here is a good indication of what the 1 to 10 pain scale could mean to you and your treating medical professional. Do you think there is a need for a standardised pain scale? #pain #painscale #chronicallyill #chronicillness #chronicpain #iihbrainstrust #professionalpatient #spooniestrong #spooniewarrior #iih #bih #ptc #intracranialhypertension #mentalhealth #mentalhealthawareness

[aogle19]

Happy national rare disease day!

I have intracranial hypertension aka pseudotumor cerebri. What that basically means is I have too much cerebral spinal fluid surrounding my brain. The fluid presses on my brain giving me similar symptoms to a brain tumor, hence the name "pseudotumor". I've had one headache everyday for over ten years, I have detached my retina and my vision gets worse very quick, I black out and lose feeling in my arms and legs,and I also have ringing in my ears. These are just some of my symptoms. Any one else have intracranial hypertension or another rare disease?

[lifewithafeedingtube]

Social norms

I know I haven’t posted in a while - been busy organising my life, getting a job and getting things in order! However, there was something today that resonated with me and I really wanted to share.

This morning, on the way to work, I was having a conversation with a colleague. In the conversation, something about sickness came up, and I casually used the word ‘vomiting’. My colleague looked genuinely shocked - he said something along the lines of “you are the first person I’ve ever heard use the word vomit so casually”.

I spent a lot of the day thinking about this conversation. I’ve used this word hundreds, probably thousands of times over the last few years - more than any person should use in their lifetime. I guess that has changed my vocabulary in a way that has transpired into my normal conversation. It’s difficult to differentiate my now very medical way of viewing these things from the conversational way I used to, as the vast majority of the talks I have about these topics occur in a clinic rather than amongst peers.

I don’t have any issues with that identification either - I know that my experiences over the past few years of my life have drastically shaped the person that I am. I guess that even now though that sometimes I am surprised by even the little ways that it can change who you are.