#sclerodermaawareness

[thetragicdoll]

View this post on Instagram

A post shared by The Tragic Doll (@thetragicdoll)

My video on Barcoft TV has exceeded 5 million views! I’m thankful for your kind messages and sharing YOUR personal stories with me. You can find the full video on Barcoft’s Youtube Page for their SHAKE MY BEAUTY SERIES: My hardening Skin is Turning Me Into A Doll.🖤#scleroderma #thetragicdoll #tragicdoll #nyc #barcoft #film #youtube #nyc #newyork #love #gothic #fashion #art #music #warrior #goth #sclerodermaawareness https://www.instagram.com/p/BqiRDseA-D9/?utm_source=ig_tumblr_share&igshid=t7x5bpk6vsrg

[hbbrennan]

#sclerodermaawareness #sclerodermaawarenessmonth #scleroderma #formysister #findacure #research #donate

[frankplankton]

Hey people- Imagine going through everyday wearing a pair of gloves that are too tight for your hands. Imagine feeling your skin actually tightening. Imagine the day-to day-worry about whether it's getting worse; whether its effecting your heart or your lungs. My super brave wife doesn't have to imagine it. She fights this jerk of a disease everyday. Please take a second (and your credit card) and help her reach her goal! It'd mean a lot to me, and you might just feel pretty good about it too. Please feel welcome to join us on the walk, as well, to raise awareness. Only 5 days left to donate to raise awareness and research funds for Scleroderma. The walk is THIS Saturday. Rare diseases don't really get much attention so please help us out. Link in bio. #sclerodermasucks #sclerodermaawareness #scleroderma #raredisease (at Atholton High School)

[katefitwithkatebridgeman]

The Dash Diet

#phaware #worldphday #pah #scleroderma #systemicsclerosis #raredisease #baby #goodphnews

#cutebabiesofinstagram #yearold #monthsold

#chronicpain #instagrambaby #gjtube #covid #gtube

#phighter #chronicillnessawareness #yearsold #spoonielife #rarediseases #ph #sclerodermaawareness

#chronicfatigue #hypertensionawareness #chronicpainlife #dancer #danceteacher #youdontlooksick

#dance

[ketaminehealing]

Ketamine has worked wonders for many people with chronic pain. One type of pain alleviated by Ketamine is the joint pain of Sjögren’s syndrome. Sjogren’s is an autoimmune disorder where the bodies own immune system attacks cells and tissues. Symptoms include joint pain, swelling and stiffness, fatigue, skin rashes/dry skin, and swollen salivary glands. #sjogrenssyndrome #sjogrens #sjogrenswarrior #sjögrens #sjogren #sjogrensawareness #vaginaldryness #fatigue #chronicfatigue #drycough #skinrash #skinrashes #dryskin #skincare #swollensalivarygland #jointpain #jointpainrelief #jointpains #jointpainfree #crestsyndrome #crestsyndromesucks #crestsyndromejourney #scleroderma #sclerodermaawareness #raynauds (at Ketamine Healing Clinic of Los Angeles) https://www.instagram.com/p/CJJpXXVFyUj/?igshid=1bts52gk9i3km

[aggelos610-blog]

"A Journey I Can't Forget" It's been a crazy, week/month/year but I'm still truckin. Wish I could sit down to write but there's a lot left I gotta do. So for now please enjoy me getting inspired by my Heavenly Father, the One who carries me... #blessed #onedayatatime #scleroderma #sclerodermaawareness #sclerodermasucks #arthritissucks #pulmonaryfibrosisawareness #GERDSsucks #fightthefatigue #sclerodermawarrior #beatingscleroderma #believinginmyhealing #Godistrulygood #ironsharpensiron #videoproject #instaedit #instaartist #water #bubbles #bubbleart #instaphotographer #instablogger #inspired #JESUSismymuse #spotify #musicinspirations #hangoutgems https://open.spotify.com/track/0AISJtBDtZXgB2fuvcjQEN?si=7a90DvwATWOrzlgxWraQMA https://youtu.be/A7CfX10jgnw #lasthashtag https://www.instagram.com/p/BmSBX9xlA71/?utm_source=ig_tumblr_share&igshid=1vybowtfzfmn1

[thetragicdoll]

View this post on Instagram

A post shared by The Tragic Doll (@thetragicdoll)

Part 2: I am trapped in my own skin, literally but that doesn't stop me from dancing. "Nature of Inviting"- IAMX! You are my world @iamx ✨ #scleroderma #dance #warrior #nyc #newyork #siren #worldofdance #goth #gothic #style #fashion #victorian #dark #siren #jewlery #tragicdoll #burgundy #tragicdollcreations #sclerodermafighter #sclerodermaawareness #sclerodermawarriors #sclerodermafoundation #music #chriscorner #iamx

[ogomaduewesi]

World Scleroderma Day 2019💚. Celebrating all you warriors living with Scleroserma with Sara Jato @meandsclero ... on My Looks with Ogo Podcast Want to learn more about Scleroderma, want to draw strength from her, want to learn how she has managed and continue to manage the disfigurement and her looks, find the podcast 'My Looks with Ogo' on all platforms including Soundcloud, Apple Podcasts, Google podcasts, Spotify and many others... Listen through the Link in bio... #podcast #listen #worldsclerodermaday #scleroderma #sclerodermaday #sclerodermainnigeria #sclerodermainafrica #sclerodermaawareness #meandsclero #meandsclerofoundation #meandsclerofoundationafrica (at Lagos, Nigeria) https://www.instagram.com/p/BzSUGvRAXsu/?igshid=2u8cj1pnd3k

[thetragicdoll]

View this post on Instagram

A post shared by The Tragic Doll (@thetragicdoll)

I am trapped in my own skin, literally but that doesn't stop me from dancing. "Nature of Inviting"- IAMX! You are my world @iamx ✨ #scleroderma #dance #warrior #nyc #newyork #siren #worldofdance #goth #gothic #style #fashion #victorian #dark #siren #jewlery #tragicdoll #burgundy #tragicdollcreations #sclerodermafighter #sclerodermaawareness #sclerodermawarriors #sclerodermafoundation #music #chriscorner #iamx

[ogomaduewesi]

World Scleroderma Day , June 29 Turn up, join us at LASUTH tomorrow, details on the pics. #scleroderma #worldsclerodermaday #sclerodermaawareness #meandsclero #meandsclerofoundtaion #sclerodermainnigeria #sclerodermainafrica (at Lagos, Nigeria) https://www.instagram.com/p/BzQTT7pHG1v/?igshid=1hir0ukji0cll

[hbbrennan]

#findacure #sclerodermaawareness #sclerodermaawarenessmonth #scleroderma #research #june2017

[whitneytaylorr]

Coney Island

[hbbrennan]

#sclerodermaawarenessmonth #scleroderma #sclerodermaawareness #findacure #research #donate

[thetragicdoll]

View this post on Instagram

A post shared by The Tragic Doll (@thetragicdoll)

I am trapped in my own skin, literally but that doesn't stop me from dancing. "Nature of Inviting"- IAMX! You are my world @iamx ✨ #scleroderma #dance #warrior #nyc #newyork #siren #worldofdance #goth #gothic #style #fashion #victorian #dark #siren #jewlery #tragicdoll #burgundy #tragicdollcreations #sclerodermafighter #sclerodermaawareness #sclerodermawarriors #sclerodermafoundation #music #chriscorner #iamx

[thetragicdoll]

View this post on Instagram

A post shared by The Tragic Doll (@thetragicdoll)

I am trapped in my own skin, literally but that doesn't stop me from dancing. "Nature of Inviting"- IAMX! You are my world @iamx ✨ #scleroderma #dance #warrior #nyc #newyork #siren #worldofdance #goth #gothic #style #fashion #victorian #dark #siren #jewlery #tragicdoll #burgundy #tragicdollcreations #sclerodermafighter #sclerodermaawareness #sclerodermawarriors #sclerodermafoundation #music #chriscorner #iamx