#scleroderma

[wild-e-eep]

Aaah… a nice cup of (somewhat poisonous) earthball spores ^_^

[chronicillnesshumor]

[doomedfromthewombfr]

My body’s favorite hobby? Gaslighting me into thinking I’m fine until I move. Then it’s like, ‘Haha, just kidding- suffer’

[burythecarnival]

well met, majestic tumblrites 🖤 i have been so fucking sick; i am not ignoring anyone! the pain from the arthritis flare, edema flare, inflamed spine & feeling like my tissue & muscles are corroding is making me so tired. my kidneys feel like they were stabbed & i am so fucking nauseous even after max zofran doses.

i need to try to eat, get some groceries & order new arthritis gloves because i have no clue where one of my kitties stashed them 🐈‍⬛

help is not expected but it is immensely appreciated. do not apologize if you cannot help! life is a wretched cock for plenty of people right now 💋

luv, cuddles & cauldron bubbles, the ghost queen 👻

×××××××××××××××××××××××××××××××××××××××××

cashapp: $dryboneslive / venmo: dryboneslive

[southie187]

New Tumblr

I had a tumblr of the same name about 6/7 years ago. I'm back on here now to kill time and try to keep busy.

I met the love of my life on Tumblr 6 years ago @bymydoelyyy ... we spent the past 5 years together while she battled scleroderma and interstitial lung disease. She recently passed away, I am going through a lot and trying to make sense of life and what the future has in store for me and im not sure i'm strong enough to even make it.

Not sure if i'll post a lot on here but if we use to follow each other feel free to hit me or follow back and if you are new, nice to meet you.

Using this as an outlet and open journal as I navigate the most difficult time of my life

[obsidianwhipsers]

Every time I try to take care of myself, it feels like I’m stealing kindness meant for someone else. Water tastes like guilt. Rest feels like a betrayal. I don’t know when I decided I didn’t deserve care, but it’s a belief that’s wrapped itself so tightly around me, I don’t know how to live without it.

They say self-care is healing, but for me, it’s just a mirror showing all the ways I’ve failed. Maybe that’s why I avoid it. Maybe I don’t think I’m worth saving.

[gaybladetheslewfoot]

Really trying not to self pity but surprise surprise I did 10 minutes of outside activity and now I'm having a completely new symptom where it feels like sand is being poured around in my thighs while bugs crawl around in it SUPER FUN. send David/Art pics please

[destineecrystal]

"𝑻𝒉𝒆 𝒃𝒍𝒐𝒐𝒅 𝒊𝒔 𝒕𝒉𝒆 𝒍𝒊𝒇𝒆." // 𝑩𝒓𝒂𝒎 𝑺𝒕𝒐𝒌𝒆𝒓 🩸🖤✨️

Just a vampire getting her daily dose of blood.. 🧛‍♀️

It's been one struggle after another with my illnesses & symptoms lately. I gotta make some light of all the chaos. Daily need for blood, extreme sensitivity to the sunlight, difficulty sleeping at night, body has me walking around like Count Orlok, etc etc etc. Embracing the natural vampirism of my illnesses is gonna be the first step.

*cue 'Blood' by My Chemical Romance* 🎶

[playthe-piper]

WHY WOULD YOU GIVE MOBIC TO A DEPRESSED PERSON

[farine5roses2010]

Scleroderma Awareness Month

DISCLAIMER: I am not a medical professional. I have not studied scleroderma. This is simply a cause that is important to me.

Scleroderma is an autoimmune disease that affects the skin, connective tissue, and internal organs. It causes the hardening and tightening of the skin which can cause joints to stop working. The hands and face of people with scleroderma are almost always affected. Some people may lose blood loss in their toes and fingers due to Raynaud's Phenomenon, which can be present in people with scleroderma. Scleroderma can cause high blood pressure, kidney failure, scarring of the heart, dental issues, and loss of function in the joints. There is no cure for scleroderma.

In June, we observe Scleroderma Awareness Month, and World Scleroderma Day on June 29th. Throughout the month of June, we have opportunities to spread awareness and donate to scleroderma research organizations. Teal lights can be displayed in support of Scleroderma Awareness Month. I encourage you to learn about scleroderma or teach others about it during the month.

If you would like to donate to scleroderma research, here are some options:

National Scleroderma Foundation

Scleroderma Canada

Canadian Scleroderma Research Group

Scleroderma Research Foundation

Learn more about scleroderma here

Thank you for supporting Scleroderma Awareness Month

[knittingbykaty]

Introduction to my page (and link to my Etsy shop)🌸

Link to my shop https://knittingbykaty.etsy.com

A bit about me…

• My name is Katy

• I am English 🏴󠁧󠁢󠁥󠁮󠁧󠁿and based in England

• Finding my feet in a new venture, so am currently only selling within the Uk

• I love to finger knit!

• I’m self taught

• I have systemic sclerosis and started finger knitting to help keep the dexterity in my fingers and hands

My shop

[chronicillnesshumor]

[doomedfromthewombfr]

Lately, it feels like my body is waging a war I never enlisted in, every nerve and muscle fighting to out-scream the other. The fatigue is a weight I can’t put down, dragging me through days that feel like endless uphill climbs. Pain has settled into my bones like an unwelcome tenant, refusing to leave no matter how much I beg. Even the smallest tasks- brushing my hair, standing too long, existing- feel like monumental battles. I’m exhausted in ways I can’t explain, and some days, the fight to keep going feels like it might be too much.

[burythecarnival]

i woke up so fucking sad. you know the sadness that feels like it is consuming your whole being? after feeding the kitties breaky, i then sat down to read news & saw a notification that my bank account is in the fucking negative. i am so sick of just surviving day-to-day. i have prescriptions to get for me & more importantly, for boba fett my calico angel. then more meds later this week because i have to be sedated for two procedures. i am so exhausted. i keep starting to cry & feel pain deep in my chest. i am going to take my morning meds & hide under my sheets until i feel like i can human a bit better.

if you are a sweet biscuit who enjoys my sexy posts & are comfortable helping, i would be incredibly grateful. i am going to need help this week & am already beating myself up about it. absolutely no pressure, money is tight for many of us. i appreciate your genuine care either way, seriously 🖤🤍

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cashapp: $dryboneslive / venmo: dryboneslive

[obsidianwhipsers]

Eat better, drink water, move your body, take your meds, get enough sleep, don’t overdo it.

Oh, and don’t forget to smile and pretend like you’ve got it all together while you’re barely surviving.

I’m trying, okay? But the checklist keeps getting longer, and I’m just one person.

Some days, I want to burn the whole list and call it self-care through rebellion.

But that’s probably not what they mean, huh?

[aelianated-star]

Hypokalemia, hypokalemia when I catch you hypokalemia.. Having to get potassium chloride replacement should be considered cruel and unusual istg