#since. the chronic illness. and what not

[bigfatbreak]

i called out sick today from work and i can just tell my boss is furious with me. can yall make a prayer circle

[atalana]

so i finally cleared prometheus on 32!

(and now i can get round to testing out the other weapons bc i unlocked eos' torches and then never looked back)

[squidbian-ink]

very frustrating issue I keep encountering as an undiagnosed sick/disabled person.

$1 kofi doodles <- help me get a laptop and pay for medical bills. might actually help me get a diagnosis that way lol

downloadable stickers on my Etsy

[edmunderson]

happy @gloomiegalaxie's femboy friday! :)

[spnstillstudies]

do worry i may be experiencing the early (EARLY) stages of artistic burnout and trying to put the fires out in my brain before they spread 🧯🔥

[pyjamacryptid]

me surrounded by all of my medical paperwork that disability services deems “not enough evidence” to claim support, after applying for the 5th time:

[arctic-hands]

I wish I could convince E.R staff that I'm not dying just because my heart rate is one hundred and thirty BPM, it's just par for the course for me and not why I came in. I'm always frantically EKG'd and they focus on that for a bit instead of the reason I'm ACTUALLY there (passing out more than usual from severe dehydration, shitting and/or vomiting blood, shunt needs a setting change, I feel the familiar vice-like squeezing of my intestine, asthma attack, take your pick)

[pots-sibly]

My biggest problem with food is the amount of effort that literally everything takes. On my bad days, even low effort food is a hassle: apples? Well I need to be able to stand long enough to cut it up, and then wash the dishes. Chips and hummus? I'll need to put the hummus back in the fridge, and who knows if I'll be able to be on my feet after I've eaten. Anything past microwave meals or chips/candy/etc. can be impossible when I'm like this- ironically, when I need good, hearty food the most.

[pochapal]

had a follow up phone consultation about my iga nephropathy and what it means. turns out i've probably going around with a severe autoimmune disorder and stage 5 ckd equivalent kidney function since i was like 10 years old and just never knew lmao

[demigodofhoolemere]

I’ve been seeing this float around on Facebook lately and it’s bugging the crud out of me:

What is with everyone’s obsession with insisting it’s bad to need to be rescued? For as long as the human race has been on the planet, people have had problems that they needed other people’s help to resolve. Needing help is not a failing nor should it be the takeaway from these princesses’ stories as if it’s a bad thing that makes them weak. Yes, they do need help. Your point?

Snow White and Aurora were both under a curse that rendered each of them effectively dead. Were they supposed to magically wake themselves up? I’d want to be rescued if I were them. Plus, breaking it down to “she needed a prince” belittles the efforts of the Seven Dwarfs and the Three Good Fairies, who did most of the legwork in the resolution of their respective movie plots out of deep platonic love for the girls under their care. Then there’s Cinderella, who lived in an abusive household. It’s not a weakness that she wasn’t able to get out of that situation on her own, and once again, giving all the credit to the prince (and credit where credit is due, he did search far and wide for her and was able to take her away from that life in the end) detracts from the aid provided by the Fairy Godmother who enabled her to get out in the first place. All of these ladies had more helpers than just their princes, and it is because of the combined love and efforts of all of these people that our heroines were able to have their happy endings. There are plenty of great stories where the heroine is able to fight for herself, but these particular stories aren’t about that because these ladies are each in terrible circumstances where they simply don’t have the ability to do so. They do what they can, but in the end they can’t save themselves alone and there’s nothing wrong with that. These are beautiful stories about having people in your life that value you enough to fight for you when you can’t fight for yourself. Wouldn’t we all want someone to come to our rescue when there’s nothing we can do about our situation? Is it not a good and comforting moral to show that there are people in your corner who will show up for you no matter what the circumstances?

The other thing that’s bugging me about this:

Leia has to be rescued. By a man, and at that, one who could technically be seen as a prince. No one bats an eye at this, because it’s understood that she’s being held prisoner on the Death Star and couldn’t possibly be expected to get out of that on her own. It’s not seen as a weakness that someone had to come for her and take her away from there. Leia is awesome and is rightfully acknowledged as a great heroine, but she also needs help sometimes, because everybody does.

So WHY do people get so hung up on these princesses who also shouldn’t be expected to get out of their own prison cells of eternal sleep or abusive family by themselves? Why the strong negative reaction to girls needing outside help in such serious scenarios? For all that people say these stories teach girls to sit and wait for a man to save them, the stories themselves absolutely never try to say that, and frankly, with the opposite trend in recent years of fictional women who have to do everything on their own and can’t be shown to need help because they have to be the Strong Female Character, I’d be far more concerned about the impact that would have on girls. Far better to say you might need help at some point in your life than to instill the idea that you’re not a strong girl or not good enough if you can’t do everything by yourself.

Anyway. Justice for the classic Disney princesses.

[punkrockisafulltimejob]

Why am I awake at 6 am?

[affixjoy]

I am once again here to complain about my stupid, chronically ill body. I don’t have anything interesting to say about it. Just fuck this shit man. I can FEEL that the endo is growing inside of me, and the pain has changed tone just enough that it makes me worried about what’s going on in there, and if it’s something more than the endo. I know when they went in 5 years ago organs were sticking together. It’s entirely possible things have fused together in ways that cause different pain than I’m used to! Which sucks but is still a known issue and won’t kill me.

But also, what if it’s something else?

Probably time to talk to my doctors again and think about getting the hysterectomy they recommended last year, but I was hoping to put it off a few more years for various reasons. The risks of surgery vs the quality of my daily life is a complicated balance. Plus there’s the trauma of all my years fighting for a diagnosis and then my no good horrible very bad year of 3 surgeries in 11 months. I am reluctant to go under again until I absolutely have to.

I’m exhausted and just so so tired of being in almost constant pain. It’s low enough that I can function but it’s just this constant grind.

Blah

***note: not looking for any medical advice please and thank you!

[lady-harrowhark]

jaw saga update: i had my follow up appointment today, dentist started out saying that usually the follow up visits only need like 15 units. and then he felt my muscles and started laughing, said to ignore everything he just said.

we ended up injecting another 60 units (same amount as the first round)

he told me i'm the first patient he's ever had who needed 120 units for TMD

[camdenhells]

bedazzled and flabbergasted by the amount of people out there who still have to realise asthma is, in fact, a chronic illness

[rachymarie]

Guys how do i keep missing schizophrenia + psychosis awareness day/week!! 🤦‍♀️

But to my credit I do spend literally nearly every other day of the year going on abt schizospec and my lived experience, so in a way i guess schizospec day is kind of a chance for us to sit quiet drinking our tea and hope, usually in vain, to reap the fruits (or rather lack thereof??) of our labour i.e. watch to see who of the non-schizospec/non-psychotic around us has been paying literally any attention to our (important!!) cause (of fighting against stigma and for our rights, dignity, respect, etc) and is posting/donating in our defence/being an ally

Hope it wasn't as bad/neglectful on social media as I, a long-time practitioner of healthy skepticism, am imagining it was (crickets, tumbleweed, silence, etc). Kia kaha (stay strong 🇳🇿*)

[bluebellwrenart]

It’s not Wednesday, but here’s a WIP anyway