#stage4needsmore

[nohalfmeasuresamj]

Merry Christmas Eve from the Johnstons and these goofballs!! #bcsm #metastaticbreastcancer #boymom #mbcgrief #mbc #thisismbc #stage4cancer #stage4needsmore #dontignorestageiv (at Baldwin Park) https://www.instagram.com/p/Cmjusf0OBzP/?igshid=NGJjMDIxMWI=

[michaelajane-gothwitch]

Need to get out in that cool rain so early trip to town. And done up a bit too! . . #breastcancer #cancersucks #fuckcancer #lifewithcancer #stage4needsmore #cancer #chemo #livingwithcancer #hairloss #hairstyles #hairinspiration #wig #wiglovers #goth #gothic #gothwitch #witch #witchesofinstagram #witchcraft #solitarywitch #pagan #pagansofinstagram #blog #blogger #bloggers #writing #bekind #nofilter (at Darlington, Co Durham) https://www.instagram.com/p/CgBfeV6tqLA/?igshid=NGJjMDIxMWI=

[nevertellmetheodds2017]

Too tired to blog everywhere. There's a thing on Instagram

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A post shared by margaret - metastatic breast cancer patient (@itisjustastage)

[yeuxdeux]

Paracentesis#10: metastatic Breast cancer treatment side effects

Paracentesis#10: metastatic Breast cancer treatment side effects

Today marks my 10th Paracentesis aka periocentesis. Now my abdominal organs can get properly seated after six weeks of fluid build up. There’s several narratives in the emergency room. The ER patient’s story and the stories of minimally 12 people whose aim should look through a scope to find the best possible outcome for the patient. Our history gets passed on like a game of telephone from…

[rachfont]

So today is #previvorday, and I saw this posted to one of my feeds. I’m happy with the choices I’ve made in the past year, involving a preventative #doublemastectomy and #reconstruction. I’m eternally grateful for all the people I’ve met through @the_breasties and the people in my life. I’ve opened up about something completely personal, and shared my story hoping it can help others. If I had to go back to last year, I would make the same decision again. I’ve seen what #metastaticbreastcancer has done to my #breasties and to my mom. I’m sad that they didn’t have the option to make the same choice I did. In honor of all my #mbc friends, let’s raise awareness to the fact that #stage4needsmore. https://www.instagram.com/p/B2kSV90Fu8k/?igshid=1oep8aribn1fr

[bargnhtress]

Bake It Happen and Help Fund a Cure for Metastatic Breast Cancer! #bakeithappen @ubakeithappen

Bake It Happen and Help Fund a Cure for Metastatic Breast Cancer! #bakeithappen @ubakeithappen

Help fund a cure for metastatic breast cancer by baking and posting!Bake it Happen 2018

Bake it Happen 2018 is happening for the whole month of October.  Bake for a good cause.  Take a picture and post it on social media with #bakeithappen hashtag and help fund breast cancer research!

Two sisters launched an innovative campaign in their mom’s memory that raises funds for metastatic breast cancer…

[joulesevans]

9 years ago today my sweet Mateo posted this pic of me and how I really felt about #cancer ...just before they rolled me back for my #mastectomy surgery, in which I became the #aerodynamic #running #bionicwoman I am today, 9 years and 2 less boobs later - cuz #fuckcancer #breastcancer #theytriedtokillmesoicutthemoff #breastcancerhumor It is still the perfect #pictureisworth1000words of how I feel about cancer. And why I will never "get over" it. Even though, God-willing, cancer is done with me. I am not done with it. Not when it keeps picking on my friends. Did you know that #everydamnday in the U.S. 800 women (and men) are newly diagnosed with breast cancer and 113 women (and men) die from #metastatic aka #stage4 breast cancer?! #wtf?! #amiright?! We may be aware, but we are most def not "there" yet. Not when my friends keep dying and I keep making new friends, sitting in the same kinda scrubs I was 9 years ago. And #mytruth is that 3 out of 10 women like me will experience recurrence and become metastatic or stage 4 and eventually one of the 113. Just another reason I will never "get over" my breast cancer. #sorrynotsorry but It's something that was/is/always will be #somethingigottagetoffmychest #somethingsgottagive #wecandobetter #moreresearch #stage4needsmore #dontignorestage4 I recommend @metavivor. 100% goes to #metastaticbreastcancer #research. The bottom line is, if we #cure metastatic or stage 4 breast cancer, which is the only kind that kills... we will cure ALL BREAST CANCER, cuz nobody will die from it anymore. And that is when we will be #aware enough for me. #justthefacts #itsnotrocketscience (at The Love Shack)

[gkpotentia]

I do not want to believe this to be true. And quite simply I often don't. I use a patchwork of denial as one of my many coping tools. . I was diagnosed straight out of the gates with #metastaticbreastcancer four years ago this month. I have been in constant treatment since then, chasing hope around the continent like it's an addiction. #metsmonday #stage4needsmore #dontignorestageIV #scantreatrepeat #metathriver

[hollydoesartofficial]

Today is a little weird. It's my one year Cancerversary of when I found my first lump and my entire life changed. This is a big deal for any cancer patient, but it's a little different for me. Stage 4 metastatic triple negative breast cancer is one of the worst diagnoses you can get. It is terminal and so difficult to treat that most patients are given a year to live. I have stage 4 metastatic triple negative breast cancer. And today is my one year. I am still cancer-free. And only 29 years old. The only reason I can say that is because of my amazing doctors at @cedarssinai , particularly @drbreastcancer for getting me immune therapy (Keytruda) in addition to every possible treatment. My insurance wouldn't even cover Keytruda because they assumed I'd just die anyway. (Lovely.) I literally sit there and get stabbed, poisoned, shanked, sliced, mutilated, zapped, with only an elementary understanding of what is happening because I majored in animation. This is why research is so important. 100% of stage 4 breast cancer patients die from it. 30% of earlier stage BC becomes stage 4. And yet, only 2% of BC research is for stage 4. Not everyone has access to this specialized treatment and so I hope you consider donating to breast cancer research because we need it. I am BRCA2+ with no history of breast cancer in my family because it was passed through the men. Get tested for BRCA. Get preventative mastectomies if you’re positive or it runs in your family. Check your boobs. Support research. Today, I am one year out. I am so grateful for my burns from my 22 radiation sessions (9 more to go!) and my scars because they mean it's less likely to come back. Every year you get away from the initial disease, the safer you are from recurrence. I hope to make it to 2 yrs. My odds are much better at 5. I will be almost cured by 10. I won’t feel safe from it until I hit 100, but at least my robot boobs won’t sag. Thank you for your support always. Don't give up on mets patients. Don't give up on me. 💕 #Stage4NeedsMore #tnbc #stage4cancer #triplenegativebreastcancer @tnbc_thrivers @susangkomen https://instagr.am/p/CFnk6Gihzfh/

[bishopcosplay]

Words from a fighter Model and writer of@this passage: @alwyz_te Day 4: The mental and emotional toll. 😩 during early stage breast cancer we are so focused on the fight to survive that we don’t process how our lives will forever be changed. We faced our death and lost parts that we will never get back. As a #metavivor, this is a DAILY fight that we know,baring miracles, will be the death of us. We revisit our past treatment choices and agonize on what is best treatments or supplements to prolong our lives now. It’s HARD as hell. I meditate/pray AND GO TO THERAPY. #kissthis4mbc #savagexthrivers #breastcancerawareness #metastaticbreastcancerawareness #metastaticaf #lbbcyoungadvocate2019 #stage4needsmore https://ift.tt/332HlIF

[thestrapsaver]

Read about our day with all the feelings at the @metavivor 3rd Annual New York Fashion Week Fundraiser fashion show featuring @anaonointimates. thestrapsaver.com/feelings #breastcancerawareness #iamliving #stage4needsmore #thisismbc #dontignorestageiv #effyourbeautystandards https://ift.tt/2T1wJJB

[nohalfmeasuresamj]

Today is Metastatic Breast Cancer (MBC) Awareness Day and I was nominated by my dear friend, Andra Kalnins, to post my #4forstageiv. I’ve been living with Stage IV MBC for a little over four (4) years and the cancer in my body JUST mutated yet again so that I have to change my treatment. I literally found out on Monday and met with my doctor yesterday. This experience I’m in the middle of is called progression. The cancer progresses and mutates around everything we have to keep it at bay. For those of us living with #mbc, it only a matter of when those mutations end our lives. #4forstageiv is a Living Beyond Breast Cancer campaign that raises awareness and gives insight into the lived experience of MBC. 4 words to describe my experience are 1. LEGACY; 2. LOVE; 3. LONELINESS; and 4. GRIT #LivingBeyondBreastCancer #stage4needsmore #FundTheResearch #metastaticbreastcancer Legacy — I am building a legacy for my boys, for my extended family and for those who come after. By my words, my actions and my example, I teach others. Love — it is the highest and best goal, to love others. Loneliness — this living with #mbc is a lonely experience. Mitigated, yes, by connection with others but a solitary endeavor regardless. Grit — to keep going every day takes all I have. I nominate Brooke Jones Alicia M Kresack Melinda Feola-Mahar and Christi Avery to share their #4forStageIV for Metastatic Breast Cancer Awareness Day. @livingbeyondbc @andrakalnins (at Miami, Florida) https://www.instagram.com/p/CU-03PXl_z3/?utm_medium=tumblr

[michaelajane-gothwitch]

Back to the hospital to see my Oncologist Dr Haney. See what's happening with my cancer. The last 3 months have been really hard. And it shows! . . #breastcancer #cancersucks #fuckcancer #lifewithcancer #stage4needsmore #cancer #chemo #livingwithcancer #hairloss #hairstyles #hairinspiration #wig #wiglovers #goth #gothic #gothwitch #witch #witchesofinstagram #witchcraft #solitarywitch #pagan #pagansofinstagram #blog #blogger #bloggers #writing #bekind #nofilter (at Darlington, Co Durham) https://www.instagram.com/p/CglzMzArk1Z/?igshid=NGJjMDIxMWI=

[nevertellmetheodds2017]

third week of May update

On Friday May 20th I went for a CT scan and then saw my oncologist. She had hoped that radiology would give her a rapid reading but they were swamped & said that not only would they not get it done by end of Friday, but also since it’s a long weekend, they weren’t sure they’d have it by Tuesday. 

So, we wait.  

For what it’s worth, I think I have progression. Between some wonky liver function blood values and some occasional abdo pain, my suspicion is that the liver mets are growing. But it’s a guess.

We did spend some time talking about our next options - there are several chemos, there’s no way to know if they will work or not (based on the studies, statistically they all have poor outcomes. Like so poor that it’s mind boggling that this is what we have. Research, people! We need you to make actual working drugs for us!!) & they all have various side effect profiles. At one point, once she had gone through two chemos, I mentioned a third one I was thinking about & she said, yup, that’s a reasonable option too. It’s a random crapshoot. You take it, try it for 12 weeks, scan & see if anything responded (& hope in the meantime that your cancer doesn’t trigger organ failure) 

One of the options is an oral chemo, which some people manage to tolerate well but a fair number suffer extreme damage to the skin on their feet and hands caused by this chemo. And again, it works for a few people, doesn’t work for most. 

The IV chemos are all pretty much what you’d expect - nausea, fatigue, slamming your bone marrow resulting in low blood counts etc etc. And the bigger issue with IV chemos right now at my cancer center is that they’re so swamped they have a WAIT LIST!

So anyway, we wait for the CT scan results because we can’t decide one way or the other until then. 

She did start the paperwork for me to get transfusions if my Hgb stays <80.  Again it’s another thing that won’t be processed & organized until next week or later even?  My fatigue has been improving so that is nice but occasionally I just suddenly feel unwell, so that sucks.  Here’s a random weird thing that happened this morning: I woke up with puffy eyes and 3 random itchy spots: 2 on the face, 1 on the body. WTH??  It damn well better not be frigging monkeypox lol 

Also my mood has been increasingly cranky about all this. There is nothing good about this cancer contest, I know the odds are increasingly against me & it is mentally exhausting. I see some people constantly circling back to hope and good mood but I’m just not really feeling it right now & I think hope is just plain stupid at this point. 

I feel like I’m the little climber on this Price is Right game except it’s Treatment is Wrong, and I’m going to fall off that cliff any moment.  

I do have a fun thing planned but here’s the problem - I have to stay reasonably healthy - ie my liver must not be tripping close to liver failure - or I will have to cancel the fun thing. So that’s adding a huge level of anxiety about everything because the extent of my liver mets on the last scan was pretty concerning already.

I realized I’m so anxious and downright gloomy about everything that I also asked her to refer me to the cancer agency’s psych. 

Ok, so that’s it for now. Not a cheery post but hey, this is the triple negative metastatic cancer reality. 

[abdallahalhakim]

Don’t miss this adverse drug reaction when tapering benzodiazepines

“Alice Woods” is dying of metastatic breast cancer, but she cares little for awareness efforts like pink ribbons and catchy hashtags like #stage4needsmore. You see, Alice has akathisia due to an adverse effect from discontinuing Klonopin — a condition that has caused her far more suffering than her terminal cancer. It has also prevented her

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[Read More ...] https://www.kevinmd.com/blog/2018/11/dont-miss-this-adverse-drug-reaction-when-tapering-benzodiazepines.html

[cynthia0065]

New Post has been published on medical-staffing-agency

New Post has been published on http://medical-staffing-agency.com/dont-miss-this-adverse-drug-reaction-when-tapering-benzodiazepines/?medical-staffing-agency

Don’t miss this adverse drug reaction when tapering benzodiazepines

“Alice Woods” is dying of metastatic breast cancer, but she cares little for awareness efforts like pink ribbons and catchy hashtags like #stage4needsmore. You see, Alice has akathisia due to an adverse effect from discontinuing Klonopin — a condition that has caused her far more suffering than...