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#steroid withdrawal
ceraunos · 5 months
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UK people! Please consider signing this petition to ask for better funding and support around Topical Steroid Withdrawal 🙌
Petition: Fund Topical Steroid Withdrawal (TSW) Research and Provide Support for Suffers
Topical Steroid Withdrawal (TSW) is an extreme and often debilitating skin condition caused by use of topical steroids prescribed for eczema and psoriasis.
A lack of diagnostic criteria for TSW means there is a currently a limited understanding of when and how TSW occurs. As such, steroids continue to be prescribed as a default solution despite the potential risks.
This petition asks for more funding to ensure safe use of steroids and provide support to TSW suffers.
How can I help?
If you are in the uk please sign the petition above.
If you are not in the uk, please share so others can see.
Find out more about TSW on the National Eczema Society website.
I’d also recommend browsing the TSW tags on here and Instagram to see the real life effect it has.
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gender-euphowrya · 4 months
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you know how people warn not to mix cleaning products because the chemicals combined might create stuff like mustard gas
i feel like there should be the same common sense when it comes to skincare products
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currently oscillating between "how fucking DARE you score me 8/10 on grammar (meaning there were minor GRAMMAR AND SPELLING ERRORS, which there patently were NOT)" and "oh thank god you did, actually, because that gives me very definitive proof that you're full of shit and therefore i shouldn't value the rest of your feedback too highly"
anyway. did not make it to the finalist round of that first page contest, but At Least I Tried
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mars-ipan · 1 month
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i want my legs to stop hurting so bad
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tj-crochets · 10 months
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Hey y'all, weird question time again! This one is glucocorticoid related, specifically about the side effects of short courses of steroids
Do y'all have steroid withdrawal symptoms even after short courses of glucocorticoids? I've had multiple doctors say it shouldn't be possible, but I've had pretty bad withdrawal symptoms every single time I've been on non-taper short course (like, a week or less) corticosteroids, and even with tapering I still get symptoms. Without tapering, even after only a five day course, I had a resting heart rate in the high 160s and could barely move I was so exhausted. Nowadays, I just tell all my doctors that I know it's weird but I have to taper, yes, even off of that low a dose for that short a time, I have to. So far they've all believed me and changed the prescription for a taper dose. Is that an issue you've had? Did they end up figuring out why? Initially my doctors thought it might be indicative of adrenal issues, but now my latest doc thinks it's not adrenals, and I don't know what other reason I could be this ridiculously sensitive to steroids.
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ryanxross · 8 months
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my grandmother had a horrible fall and I’ll probably need to spend the rest of the week at her place and i spent like 40 minutes yesterday thinking she was dead or dying and calling the hospital trying to figure out what was going on because my fucking uncle left me an incompressible voicemail message of himself sobbing saying something about my grandmother and the hospital and my roommate KNOWS all of this and still today kept nagging me about “sorting out the dishwasher” ie scheduling a time for a repairman to come. For reference the dishwasher isn’t flooding the apartment or flooding at all period and we have a perfectly good ginormous double sink we can hand wash dishes in. And yet somehow this fucking dishwasher should be my most pressing matter
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lexxluu · 11 months
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I have 4 doctors appointments in the next 2 weeks and I will have to heavily advocate for myself about my chronic illness in all of them. I always end up canceling appointments (that are really important for me to go to!!) because I’m so anxious about how I’ll be treated/invalidated. Any tips on how to get myself to these appointments?? These 4 are so so important and I need to go but I’m stressed I won’t :/
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fragglez · 1 year
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eczema sucks my hands are useless when I have cream on I'm only able to use my right thumb and pointer finger
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kraviolis · 1 year
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my mom got their adderall prescription so i could share with them for a bit but also their adderall is like twice as strong bcus its name brand and not generic like mine and as much as i like. doing things. i do not think taking the supercharged adderall is for the best
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evergreen-oflife · 26 days
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❀.
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roboticutie · 2 months
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It's the hottest it's been this year and I'm shivering. I feel like I need to boil myself to be comfortable but I know I need to stay cool to actually live. Thankfully the house is cool today (blackout curtains be upon ye thank you) but also I can't stop shaking suddenly and it's been hard to get out of bed bc of the weird temperature stuff my body is doing. Topical Steroid Withdrawal fucking sucks
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bitchy-peachy · 4 months
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Damn I'm high af again. Had to take percocet for my achy right leg uggghhh. Tomorrow is my appointment and I was hoping to walk there but I guess I'll just limp everywhere.🤣
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earthpit · 2 years
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oh man
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joseywritesng · 2 years
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My Life with Moderate to Severe Atopic Dermatitis
My Life with Moderate to Severe Atopic Dermatitis
By Ashley Ann Lora, told to Stephanie Watson I was diagnosed with atopic dermatitis when I was 2 years old. I don’t remember much about it at that age, but my parents do. The redness and bumps on my face are clearly visible in almost every photo of me from back then. It’s very clear in those photos how much the condition really affected me. I remember sleeping with my parents to avoid scratching…
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So, this list is overall pretty good, if a lot less specific than the last one from Strategist.
Not everything is relevant, and some of the items are Not Great in general—Cortibalm, in particular, is fine if you use it for a few weeks while you recover and throw it away afterwards, but you can't use it long term. (If you click through to Amazon, you can read a bunch of reviews about people who went through Topical Steroid Withdrawal from it, and that is a bad time.) And if you follow me normally, I think you have a good guess how I feel about essential oils (bad).
Adhesive remover was the real lightbulb for me on this list, as hardly anyone else has mentioned it in all of my research (I don't have an actual opinion on Unisolv vs. the other options as of right this moment, but it IS the cheapest and most ubiquitous option I have come across).
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whumpetywhumpwhump · 3 months
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Posting one of my actual (fandom-related) full fics on here... be nice!!
This is some good ol' intubation whump because it's my favourite.
(for slight context of character, see this old post)
When the call comes in, everybody in the ER is hoping it isn't Coop. Especially Neela.
Severe asthma attack. 26 year old male.
Somehow, because it's his day off and he really ought to be relaxing, it seems almost impossible for him to find himself back in the hospital as a patient. It just… isn't fair.
That doesn't stop the wheels of the gurney from rolling through the doors, though. Doesn't change the fact that Coop is laying half-conscious on top of it, his quick, shallow breaths fogging a nebulizer mask, his skin so pale it looks ashen.
“26 year old male,” the paramedic conducting the transfer restates. “Severe asthma attack with symptoms pointing to onset of status asthmaticus. Albuterol administered, as well as 0.5mg subcutaneous epinephrine, both to minimal effect.”
Dr Lewis, the attending on the case, moves to Coop’s side, slipping the chest piece of her stethoscope underneath his t-shirt as they continue to move into one of the trauma rooms. Her expression, when she withdraws it, is severe.
“His airways are pretty much closed up. He needs more epi now.”
Abby hurries to drag a crash cart in, and Neela follows the gurney all the way until it's positioned in the trauma room, at which point she starts readying an IV kit with shaking hands.
Coop does not look good. Even when compared to the time she almost killed him with epi. At least then he'd been alert, sitting up, and his skin hadn't lost all of its colour like it has now.
Dr Lewis returns from fetching some more equipment, and as she waits for Abby to arrive with the crash cart, she strokes Coop’s hair reassuringly.
“Hang on, sweetheart, we’re going to help you feel better. Just keep breathing for me, okay?”
Through weak wheezes that emerge from blue-tinged lips, Coop nods. His eyelids are heavy with exhaustion.
Neela hasn't seen an asthma attack this severe in person before, but she knows from med school how dangerous they can be- especially when the patient is as tired as Coop is. It isn't clear how long he's been struggling this much to breathe. The colour of his skin (or lack of, for that matter) tells her it's been too long.
If they don't work quickly, his body will run out of energy. He'll stop breathing, too exhausted to even inhale anymore. He'll lose oxygen.
He'll die.
“Neela, I need an IV of 100mg hydrocortisone.”
She turns to find Dr Lewis’ keen gaze on her. There's a thinly veiled panic in the attending’s eyes that quickly disappears as she turns back to Coop, gently trying to reassure him as he fights for air.
“I’m going to page Pratt as well, alright, Coop? He can get you some more albuterol so your nebulizer doesn't dry out.”
Neela can't see whether Coop replies, but if he does, it isn't audible. All she can hear is his terrifying wheeze and the hum of the nebulizer, shortly joined by a rapid beeping as a nurse finally helps him take off his shirt and hooks him up to a monitor. She doesn't dare turn around to look at his oxygen saturation. It's likely going to keep plummeting.
Instead, she focuses on setting up the cannula in Coop’s trembling arm, her left hand holding it steady while her right slides the needle in.
“There we are, Coop.” she murmurs. “You're doing so well, sweetheart.”
The pet name feels stranger coming from her lips than Dr Lewis', but at this point her slight blush is the least of their worries. While Coop’s this sick, it doesn't matter what she calls him. He just needs to start breathing properly again.
Once the IV site has been secured with a clear sticker, Neela measures out the dose of hydrocortisone. 100mg. When they're giving it as a steroid over a longer period of time, they prescribe 20-30mg a day, in two doses. The fact that they're pumping him full of this much at once is testament to just how emergent his case is.
“100mg hydrocortisone going in.” she announces. Connects the needle to the cannula. Pushes down on the plunger of the syringe.
Despite her accumulated knowledge surrounding medication, Neela still half expects the effects to be immediate. For Coop to suddenly relax, his airway opening up again, the colour gradually suffusing his cheeks. For the wheezing to fade as he breathes in properly for the first time in hours.
It doesn't. None of this happens.
Minute by minute, Coop continues to deteriorate. Abby brings in the crash cart. Dr Lewis injects the epinephrine beneath the skin of his forearm and, unlike before, he doesn't even react to the needle. His eyes flicker like his awareness is slipping away from him.
By the time Pratt arrives to switch out Coop’s nebulizer, such a small intervention becomes pointless. Even if Coop were able to breathe properly, time has proven that albuterol, on this occasion, just isn't working. Pratt sets down the new nebulizer and instantly crosses to Coop’s bedside, brow furrowed.
“Coop, man, can I listen to your chest?”
A barely perceptible nod.
When Pratt presses the cold stethoscope against Coop’s heaving chest, it seems more of a confirmatory action than one that's actually necessary. He sighs, shaking his head. Coop, as evidenced by the blue tinge to his lips, his rolling eyes, the pallor of his skin, is officially status asthmaticus.
He's in respiratory failure.
Things suddenly grow a lot more urgent. Pratt gives Lewis a gesture that she reciprocates, and a nurse pulls the crash cart closer to the bed. Neela’s heart sinks just as Abby sinks into position right at Coop’s bedside, crouching next to him as she strokes his hair and updates him.
“Sweetheart, your breathing isn't where we need it to be, okay? You're not getting enough oxygen. We need to put you to sleep for a while… intubate you. Do you understand?”
Coop closes his eyes, humming in assent even as a frightened tear slips down his cheek.
“Ju-just… d-d-do… iiiiit.”
His voice is shot. Weak. Resigned to his fate.
It's the same phrase he used when Abby shocked his heart back into a regular rhythm a few months ago. Back then, though, it had simply been a plea to get things over with.
Now, it seems not only a desperate entreaty, but also a solemn reminder:
I’ve been here before.
Neela knows, just as the other staff do, that Coop’s been super sick a couple of times. He knows what it's like to wake up in the ICU feeling like you're breathing through a straw. He knows what it's like for weeks to pass in the span of a minute.
He knows that when he's tubed, he can breathe, and that’s all that matters.
“We’re going to look after you, sweetheart, I promise.” Abby says, her own eyes a little misty. She brushes the sweat-damp hair from his forehead and squeezes his hand. One of the other nurses adjusts the bed so it's laying flat. The tears, terrified, continue to stream silently down his cheeks.
Abby lifts his hand, pressing an almost motherly kiss to the back of it, while Pratt slots a syringe full of medication into the cannula of his other hand.
“Propofol and some muscle relaxants are going to go in now, man. Just relax and let yourself drift off- we’ve got you.”
As the syringe is pushed, Neela can see Coop’s grip on Abby’s hand loosen. The thick tears decorating his cheeks seem, in themselves, to slow down, the scared expression in his eyes melting away beneath the anaesthetic. He blinks once. Twice.
Gone.
There's something so unnerving about Coop being still. How, as Pratt brushes his index finger underneath Coop’s eyelashes, the latter doesn't stir at all to crack a smile. When Dr Lewis gets into position behind his head and adjusts her patient accordingly, he's limp and movable. Floppy.
“Pratt, can you get that nebulizer off?”
“Sure.”
There are red marks across Coop's face from where the straps of the mask dug into his skin for hours. Now, he doesn't breathe at all. He looks dead. According to the dropping numbers on the monitor, he may as well be dead.
“Laryngoscope.”
“Here. Laryngoscope.”
A nurse places the metal instrument into Dr Lewis' awaiting hand. Her other hand gently tilts Coop’s head back.
“Alright… sliding laryngoscope in… got slight cord visualisation. Tube?”
“Tube.”
Neela watches her angle the endotracheal tube in with bated breath- and for good reason.
“C’mon, Coop.” Lewis murmurs, desperately trying to gain access. “I need to help you breathe, sweetheart. Let me help you breathe.”
Pratt steps up next to her, arms crossed. “Difficult airway?”
“Nearly impossible. Haven't seen this level of inflammation in a long time. Poor guy must have been so incredibly uncomfortable.”
The monitor continues to blare. Coop’s oxygen levels continue to drop.
Abby, still positioned right next to him, stroking his hair even as he lays there unconscious, glances worriedly at the screen.
“His sats aren't looking good.”
Dr Lewis sighs. “Yeah, I know, I'm just trying to- there.”
Her relief is palpable, and Neela knows at once that she’s finally in. She watches the tube slot into place before Lewis inflates the cuff, and Pratt connects everything up to the vent.
“Tube’s misting.” Abby says gently, as everyone begins to relax. “Looks like good placement.”
Pratt pulls his stethoscope out from around his neck.
“I’ll check.”
He moves to Coop's side and checks his breathing, first auscultating the left side of his chest, then the right. It's odd, Neela thinks, to observe how natural his breathing looks now, when only moments ago it was erratic and desperate- but of course, it isn't technically him breathing now at all. They've taken over for him.
After a few more checks with the stethoscope across Coop’s chest and neck, Pratt stands up, slinging the device back around his own neck.
“Bilateral breath sounds. You're in.”
Everyone in the room seems to relax at once, especially when the numbers on the monitor start to creep up to normal.
“Alright,” Dr Lewis breathes, turning to Abby. “Secure it, then we'll get him down to ICU. Keep him on max settings until we know it's safe to start weaning him off."
She moves back, as does Pratt, and Abby stands, giving Coop’s hair one last gentle run through with her fingers before she moves away to fetch the tube holder. Neela's eyes remain fixed on him, though. It's impossible not to when he's so completely still.
“You alright, Neela?” Abby asks gently as she returns a few moments later.
Neela nods. “Yeah, I just… it's so different when you know them. I didn't realise how sick it would make me feel.”
Abby gives her a small reassuring smile, then focuses her attention back on the packaging she's just picked up, tearing it open and pulling out the holder before she starts to peel off the tape on the pads.
“I know what you mean. It's not easy seeing somebody you care about like this, and it's somehow even harder with a person like Coop. He's always smiling, always moving, always there, and now…” She presses the first pad against his cheek gently, thumb brushing against it to secure it. “He's not. He's always there to take care of everybody else, and now…” She applies the other pad, movements just as careful and attentive. “He needs us to take care of him.”
Neela hums affirmatively, watching her secure the tube.
“There's just so much at stake. So much that could go wrong, and nearly did. Maybe it even has.”
Abby finishes, standing up fully again and adjusting things ever so slightly. Coop looks like the other patients in the ICU now, and it makes Neela’s stomach roll with anxiety.
“It isn't easy.” Abby responds. “But that's what the ER’s like, even if it happens with one of our own. It's fast-paced, it's risky, and sometimes the worst happens. Sometimes, we can't easily cure a patient, and we have to hope that they'll fight enough on their own to get through things.”
“Do you think he will? Coop?”
“There are no guarantees, but if anyone's going to, it's him.” She looks down at him with a mixture of affection and admiration. Her thumb strokes along the curve of his jaw. “He just needs to hang on long enough for the inflammation to go down. He just needs to do something which is pretty alien to him, and rest. Let us do some of the heavy lifting for a while until he's strong enough to do it on his own again.”
Neela nods. “He'll get through it.”
Abby smiles. “Exactly. He'll get through it… You’re a tough one, aren't you, sweetheart?” She brushes back some more sweat-damp and unruly hair from his forehead. “Let's get you somewhere you can rest, hm?”
Coop remains still, the only sign he's still there at all being the beeping of the monitor and the fogging of the tube. But somehow, as Neela helps Abby raise the railings of the bed ready for transport, she knows he's going to come out of this.
He always does.
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