#Hashimoto's thyroiditis

[1863-project]

Have been in a proper thyroid crash since yesterday. Ugh.

The fatigue has been miserable and I've had some trouble moving. Despite that I've kept up with the dishes and did the laundry and some small chores but otherwise it's been a lot of rest. I know my body needs it but it's miserable to have to live like this. At least it's a long weekend thanks to a federal holiday.

[rhiandoesfandom]

It feels weird having two illnesses. One that is actually responding to medicine and that feels good! I feel like I'm finally coming out of a flare and able to do things day to day.

Then the second being something that is progressive...and that we are basically just waiting for it to get worse before we're able to treat it.

It's a weird bittersweet feeling.

[taravali-the-service-pup]

Today was HARD but I did it. I have been wrecked since taking my injections on Sunday. Idk why. Tuesday puppy class is all the way across a major city and it’s a rough drive on a good day. To make matters worse my hip started to dislocate shortly after leaving the house. I’m very lucky it was before I got on the highway so I was able to swerve into a parking lot to fix it.

I’ve played this game before. The muscles start to cramp and it’s enough force to sublux the joint. If you try to push through the subluxation the muscles spasms and finishes the job. Didn’t used to be a frequent problem for me but the injections that help my joint pain & reduce inflammation ironically make the joint less stiff/stable and cause more joint dislocations. It’s a pick your poison kind of deal.

Taravali handled the 45 minute drive well. She’s been getting a little nauseous on longer car rides. I got some meds from the vet to use for trips like this but I forgot to give it to her. Luckily there was just a little drooling that went away quickly after we arrived. Even though we should have been 20 minutes early we ended up 10 minutes late because they opened a new location recently and my GPS took me to the wrong place. Just that kind of day I guess.

We opted out of most of the class at that point. I told the trainer we were just going to sit there and work on her settle around the other puppies while I recovered. I’m glad I’m able to advocate for myself because it was plenty of work for us without having to learn new training scenarios every 5 minutes. Towards the end of class each puppy got to run around off leash individually so they could practice recall which was really helpful.

The puppy playgroup after class was empty so we opted out and went for a nice decompression walk instead. Taravali experienced a lot of new things like watching dogs play in a dog park, climbing on big rocks and seeing a fountain in a pond. She was really interested in the water so looks like it’s time to book some swimming lessons!

I’ve been on mostly liquids for the past four days so we stopped for a blueberry smoothie and then headed home. I feel bad not taking Mandana out today. I usually swap the dogs out when I get home so they both get adventures but it’s just way too much for me. My blood pressure has been sooo low that even my high dose of Midodrine isn’t helping. Ugh.

[froggydrawz]

having a slow metabolism is cool, like tf you mean i survived the last week off of one meal and i still don’t feel hungry?

The ultimate money saving strategy

[danny-ric]

"Hashimoto's/hypothyroidism isn't a real disability. You're just being dramatic."

[survivingfmandcfs]

Hey sorry I can't come out tonight after all. Yeah I accidentally ate some sweetened yogurt and now I have to spend at least the next twelve hours lying in bed because I'm shaking too hard to stand up.

[gwyndisabilityblog]

autoimmune diseases community dropped!

Come join if you have autoimmune disease! Hopefully this will become a nice cozy community. Made by someone with autoimmune disease (spondyloarthritis)!

[x22817]

Hek and I have done more in the last week than we have in the last year. We had way too much fun! Hek was showered with well-deserved compliments everywhere we went.

This is her watching me eat under the table at a very busy restaurant. Some may see it as a Bean begging to be shared with, but it's really her doing her job. I encourage her to watch me, especially when I'm eating, because a lot of her alerts/interruptions are visual. This meal was a fast food restaurant that I particularly struggled with. Hek ended up just laying her head on the bench so she could watch my hands continuously, and I could easily switch from harming myself to petting her.

Drug and health update below

Now that my parents are gone, I'm changing all the drug stuff. It's time to once again drop on my prednisone dose. The Fludrocortisone probably needs to be increased, but I can't do anything about that rn. I'm also changing the times I'm taking everything in hopes it will ease the tapering experience.

Current schedule:

12:00 - 5mg Pred

4:00 - 100mcg Levothyroxine

7:00 - 10mg Pred + 0.1mg Fludro

17:00 - 2.5mg Pred

22:00 - 2.5mg Pred

New schedule:

11:00 - 5mg Pred

5:00 - 100mcg Levo + 7.5mg Pred + 0.1mg Fludro

17:00 - 2.5mg Pred

Straight up, I'm not excited to transition from the immuno suppressive level to the adrenal support level. Pain and energy levels are meh at best. My joints are already becoming problematic again, especially my fingers and toes. I'm struggling with sleeping in every way, which baffles my endo, but idk what to tell her. Mostly, it's the salt cravings that have skyrocketed in the last two months that are driving me crazy. The weight problem is just something I'm learning to live with at this point. It's all water retention and gaining the weight I couldn't keep on before the cortisol.

[rhiandoesfandom]

I think the main reason I haven't been able to write is I'm really anxious about two things of news this week.

One: whether long term disability finally fucking approves me.

Two: whether my work will accommodate part time work.

I am more optimistic about the first one because my illnesses *shouldn't* be pre-existing conditions but who the fuck knows what they'll deny you for these days.

The second one I'm very unoptimistic about. I have asked multiple other workplaces this same question when I inevitably burn out or am disabled mentally or physically in some way. For those other jobs it was always, "that would put an undue hardship on the business" and so they can't accomodate.

(not like I've been on fucking leave for multiple months and they definitely didn't put a "hardship" on the business but I digress)

I am hoping, that since this is a state job, they are more lenient but, I am not optimistic.

If I am not able to go back to work part time, then I will have to be "let go" by the state due to disability and forced to claim unemployment until I can find something 20 hours a week that pays enough and is remote or a desk job.

I will not let them guilt me into working more and hurting myself for capitalism. I have never had the goal to "climb the ladder" or get rich. I just want to survive.

My partner has suggested reaching out to a pro bono lawyer if they deny my accomodation request. But I am so tired. All the time. Especially about this.

[sisterofthebluemoon]

New stickers are up guys! Check my last post for my shop link!

[diagata]

she has thyroiditis

[jmej]

so apparently euthyrox changed their formula, which is a bit worrying, considering that the last time a medication for the exact same thing did it, it caused problems for a lot of people.

at least they wrote it on the box this time??

[froggydrawz]

why is it so hard for people to understand: i’m not diabled because i’m fat, i’m fat BECAUSE i am disabled

i rarely eat more than one small meal a day, and even if i do, i end up vomiting (yippie…)

i spend 2/3 of my day pacing around my room, walking up and down the stairs in school (because some genius decided to make the building four floors, and some other genius decided to make my class have one lesson on the top, then another on the bottom and so on back and forth for 8 hours) and i’ve been doing rock climbing since i was ten.

Sometimes you cannot blame the person for something.

[bpdshan]

if anyone has heard of/ tried the AIP diet… what do you even eat because it basically cuts out everything…

[survivingfmandcfs]

Younger sibling is the best. Sliced peaches for me without even being asked just because I mentioned that I'd been having trouble preparing fresh fruit for myself due to fatigue.

[rosesandthorns44]

I have a bone to pick with my ancestors when it comes to my dogshit genetics:

I am, for lack of a better phrase, EXCESSIVELY Irish.

Like, hot damn, maybe if any of y'all had left your island and procreated with anyone a few shade darker than vanilla ice cream, I wouldn't be in this predicament.

No, knocking boots with German, Polish, Norwegian, and Czech folks isn't what I fucking meant! 😤

Then everyone immigrated to Wisconsin and stayed there for a couple hundred years.

Now I've got a fuckton of health problems.

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