#bad health day

[mandana-the-service-pup]

One of my biggest tips for people with chronic illness…get yourself a nurse practitioner.

I told my nurse practitioner what happened at the ER and she immediately got ahold of her hospitals Cardiology department and bumped my appointment up three weeks so I could get in tomorrow.

I hear all the time from both doctors and patients that some how nurse practitioners are able to hang on to their compassion & empathy and believe me when I say that’s exactly the type of person you need fighting for you in the medical community.

[nekomegamisama]

How my health has been recently got me thinking about how our brains handle ongoing pain. And how you can subconsciously block out the pain, you get so used to the pain that you don't feel it anymore.

But it's still there.

It's still there using up your brains CPU, and making your head foggy and making you nauseous and making you tired. And then you stop for a moment and pay attention to your body and you realize that you hurt.

And there's nothing you can do about it.

Oh sure there's small things you can do, you can take pain meds, or use a hot pad, or whatever. But that is only ever a temporary fix. At the end of the day you still hurt.

And there's nothing you can do about it.

And that... Inability to make a lasting difference.....

Almost hurts more, sometimes.

[inkskinned]

love when men cry about body hair bc "it's hygiene" and yet 15% of cis men leave the bathroom without washing their hands at all and an additional 35% only just wet their hands without using soap. that is nearly half of all men. that means statistically you have probably shaken hands with or been in direct contact with one of these people.

love when men say that women "only want money" when it turns out that even in equal-earning homes, women are actually adding caregiver burdens and housework from previous years, whereas men have been expanding leisure time and hobbies. in equal-earning households, men spend an average of 3.5 hours extra in leisure time per week, which is 182 hours per year - a little over a week of paid vacation time that the other partner does not receive. kinda sounds like he wants her money.

love that men have decided women are frail and weak and annoying when we scream in surprise but it turns out it's actually women who are more reliable in an emergency because men need to be convinced to actually take action and respond to the threat. like, actually, for-real: men experience such a strong sense of pride about their pre-supposed abilities that it gets them and their families killed. they are so used to dismissing women that it literally kills them.

love it. told my father this and he said there's lies, damned lies, and statistics. a year ago i tried to get him to evacuate the house during a flash flood. he ignored me and got injured. he has told me, laughing, that he never washes his hands. he has said in the last week that women are just happier when we're cooking or cleaning.

maybe i'm overly nostalgic. but it didn't used to feel so fucking bleak. it used to feel like at least a little shameful to consider women to be sheep. it just feels like the earth is round and we are still having conversations about it being flat - except these conversations are about the most obvious forms of patriarchy. like, we know about this stuff. we've known since well before the 50's.

recently andrew tate tried to justify cheating on his partner as being the "male prerogative." i don't know what the prerogative for the rest of us would be. just sitting at home, watching the slow erosion of our humanity.

[nerdpoe]

I'm not trapped with you, you're trapped here with me.

Danny, in Gotham after bolting from the GIW after a reveal gone bad, is on the roof of a building.

The building is surrounded by GIW agents.

Danny can't fly away, or they'll gun him down.

When the local vigilante lands behind him, all he can think about is how he isn't ready to die all the way. That he admires Gotham Vigilante's, but he isn't going to doubt that they'd side with the letter of the law.

So he overshadows them and bullshits his way out of the situation.

For a Bat, which Danny has heard are notoriously stubborn and tenacious, the chick he's possessing is surprisingly chill. She isn't fighting back at all, completely content to hand over the reigns.

Usually there's like, a little struggle.

Cass, however, is quietly perusing through the memories of the ghost that has possessed her.

He had no ill will when he did the jump, only fear. He only seeks to escape, and Cass understands that with an intimacy she wished she did not have.

What she wants to know is the why.

Hence, subtly going through his mind.

There are many things she was not aware were laws, and she believes that Bruce does not know are laws as well.

She will have to tell him.

He will fix it, one way or another.

She will make sure that he does.

So she watches the most recent memory of her Ghost possessing her; memorizes how it feels for him, how he did it from his point of view, and decides to take over so that she can get him to optimal safety.

If he is a ghost, and a ghost is a soul, and she has a soul; she should be able to take control again. Possess herself. Lock him in.

She is right.

She can feel the brief struggle, the confusion, as her ghost is forced to be the passenger. He tries to leave, but she focuses on how possession felt for him and locks him in place.

Ah!

This would be a good time for a Star Wars quip. It will be funny, even if he does not understand it.

"Congratulations. You are being rescued. Please do not resist."

@simplestoryteller

[thebibliosphere]

Yesterday was my first time in the ER since my hEDS diagnosis was officially added to my file (instead of me having to tell them and hoping they’d believe me), and everyone in my emergency care team was on top of it. Like on the ball, fully engaged and interested in keeping the zebra in the hospital comfortable.

They also all knew what MCAS and POTS were and deferred to me when it came to medication and pain management. Which was also wild, because they were not shy at all about offering pain relief. They straight up offered me narcotics, when usually the most I get offered is Tylenol.

Even the CT tech knew what MCAS was and asked if we should pre-treat with Benadryl because he knew some patients could experience mast cell destabilization from the radiation even without the contrast dye.

He and the nurse even helped brace my neck when I was going into the CT machine because I mentioned having cranial instability, and the position I was in was making my neck click, so they stopped everything to find multiple pillows to brace my neck and shoulders while I was on the table.

Afterward, while being bussed through the corridors in my bed (because they had to dehydrate me to take the CT scan and my POTS was going haywire, and they made sure I had to be upright as little as possible), I commented to my nurse that I was startled that everyone I’d spoken to that day knew about EDS/MCAS/POTS and were so accommodating.

He paused before answering, then told me, “We probably don’t know as much about EDS as we should, but we’ve seen a lot of the other two over the last few years. Covid really messed people up. Did yours start with covid?” No, I told him. We think I was probably born with it and a dental infection turned it lethal. He expressed his sympathy and again reminded me I didn’t need to be a hero and I could press the pain med button whenever I needed to.

Back in my room, they started me on IV fluids to combat the dehydration from the POTS. And I was laying there, I became aware of the nurse bracing my elbow so it wouldn’t hyperextend while he futzed around with the IV and I remember thinking, “this is how it always should have been.”

The kindness and care shown to me were in such stark contrast to past experiences it made me quite tearful. There were no accusations of anxiety, no referrals to psyche, and no implications that I was over-exaggerating my pain. No denying of my experiences.

Just a quiet, vocal acceptance that I “knew my body best” and that they’d do whatever they could to help.

It was nice.

[poorly-drawn-mdzs]

Turtle hunt gone wrong.

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[pixieverse-icedtea]

remember all the nice things people have said about you when you feel like the world is against you

[mandana-the-service-pup]

I had my GI appointment today.

He doesn’t think the throbbing aching chest/upper abdominal pain that flares up with activity is GI related. Neither do I but doctors love to make gastroparesis the scapegoat.

He also doesn’t think my nausea is GI related which really surprised me. He said you would expect GI related nausea to be more episodic and flare up with food related events. Not the constant state of nausea that I’m in that flares up with even the slightest movement or activity. He wasn’t willing to say what could be causing it if not GI but there are plenty of things like severe pain, cardiac problems, dysautonomia, medication side effects etc that could cause nausea. So idk but it’s new info to work with so that’s good.

He thinks my handfuls of ibuprofen three times a day is probably causing my stomach aches. Which…like…duh. I already know that but that’s why we’re going the methotrexate route instead. I’m scheduled for an endoscopy to check for ulcers the day after I’m scheduled for my chest CT + calcium score. If there’s damage he’s going to give me a Rx that’s supposed to help protect against the damage associated with NSAIDs

TMI warning. He thinks my lack of appetite is being exacerbated by my chronic pain and constipation but he agrees that most laxatives would make me more sick. He wants me to try a specific OTC medication called Docusate.

He was kind and understanding. He accepted that I have bad brain fog and gave me as much time as I needed to work through the conversation. He acknowledged that I probably knew a lot of this stuff already and that my medical issues are complicated. He understood how frustrating it was that everyone keeps pushing the GI route when it’s so obviously not the cause. He answered all my questions, sometimes multiple times and never labeled me as an anxious patient for being concerned about my health. I really appreciated having a good experience with a doctor. It’s been a while.

[throwing-roses-into-the-abyss]

I think one of the things I like the most about granada holmes is how they treat watson and his relationship with sherlock. I love that they're equals, that sherlock needs watson and admits it, that watson's a part of the investigations just as much as sherlock is. I love that they go about wandering through london, arms linked together, probably judging the shit out of everything and everyone together. they clearly enjoy each other's company and love spending time together. not just solving cases (which they both love doing), but also going to the opera and theatre together. just hanging out.

and in granada holmes, deduction is not something sherlock does while watson stands there confused and bored and lowkey embarassed about sherlock's behaviour, just there to write about it later, and to maybe shoot at someone. deduction in this show is a fun little game they do together, one that watson is increasingly good at and enjoys doing just as much as sherlock does. and I'd never realized just how much I miss that in a lot of adaptations.

in granada holmes, it's not sherlock-and-his-silly-dumb-sidekick-watson. in this show, they're running about together and having a grand ol' time of it.

[vyeoh]

I'm being 100% serious one of the worst things stan culture has done is making suicide jokes commonplace again

[lazylittledragon]

don't you love when you Just stopped feeling guilty about eating the things you like and then one of your parents drops the "i'm concerned about your diet"

[couch-house]

hes just as upset about dying repeatedly in these levels as I am

[thebibliosphere]

You know the dehydration was bad the moment you get some electrolytes in your system, and it feels like a hit from party drugs.

Like yeaaaah. feeling crazy. Might fuck around and sit up in bed for 20 minutes. Life on the edge (of syncope), baby!

[napping-sapphic]

No but listen if we were dating i could inspire you to do your daily mental health walk when you don’t want to which would also force me to do MY daily mental health walk when i don’t want to it’s a win/win situation absolutely no downsides

[diffenbachiae]

i think this is the first year i’ve really started to realize that there isn’t a magical switch that will flip where i’ll suddenly be happy every single day of my life, it’s just life and finding the joy in it day by day and if it isn’t there making choices to add more of it and while that’s a lot of persistent disciplined work with the meditating and the physical exercise and forcing myself to read instead of letting myself rot on tiktok i think right now i’m happier than i’ve ever been before idk

[stiffyck]

What if people started saying "I need to exercise more" or "I need to eat a bit healthier" instead of "I need to lose weight"

You can be healthy and fat