#InvisableDisability

[lucindatrose]

The Diagnosis Catch

Last Tuesday, a very kind and caring psychologist confirmed what I have known for the last 4 years.  I am autistic and have been for the last 48 years. Autism as a condition has been recognized as a condition since 1943.  Today,  diagnosis comes with levels instead of labels. The old systems of labeling people as high or low functioning was misleading.  People who were diagnosed with high…

[likeadaydream19]

This is so weird. I have ME (Myalgic Encephalomyelitis). It’s a disease that causes dysfunction to neurological, immune, endocrine and energy metabolisms. Seeing it being plastered all over the internet and on billboards is bizarre for me as i’m usually someone who tries to bring awareness to it, ME Awareness day is May 12th. It would be epic to see swifties bring awareness to such a horrible illness. Anyway, this ME sufferer is so excited for ME! by @taylorswift Love you and hope you have a great launch! 

[twobece]

If this were true where would you use it? @ripndip #ripndipnermtape #camouflage #invisabledisability (at Los Angeles, California) https://www.instagram.com/p/CYhyAanPGxkBcQUiwQLgLRIct5BX1pc05QnKc40/?utm_medium=tumblr

[mammothphotography-blog1]

#entrepreneurship #thedarkside #truth #fouroutofsix 😉😲 #thatsmyrecord #whatsyourrecord #mentalhealth #mentalhealthawareness #invisabledisability #mentalhealthsupport #mentalhealthrecovery #hereforyou #chesterfield (at Chesterfield) https://www.instagram.com/p/B_pDuoxFruj/?igshid=1w9f5ae0uvy3m

[crpssucks]

I can’t be alone in this- Right?

Is anyone afraid some random doctor is gonna take away your diagnosis that you’ve had for years and just call you crazy?

No? Just me?

It’s happened to me once.

He told me I was just emotional and tried to say I have something like phantom limb syndrome even though I have all of mine. Then proceeded to wipe my medical history of the diagnosis and put “emotional” in my notes.

It didn’t help that I cried when I tried to fight him on his new diagnosis.

It doesn’t help to know that doctor was googling what CRPS was in the room with me- It doesn’t help to know he wasn’t trained to deal with nerve conditions

It caused PTSD.

I ended up switching hospitals and teams over it. I changed from a pain clinic to someone who specifically works with CRPS and they put my diagnosis back on my chart.

I’m going in for a nuclear bone scan Monday and I am now having panic attacks that the results (no matter what they may be) will make my doctor change his mind about my CRPS. -When in fact he ordered one to check and see if my CRPS has damaged my bones over the years.

The trauma these doctors have left me with is so severe and I hate it.

I’ve been diagnosed with PTSD over this- I wanted to add this in so you know I’m not using it to be dramatic. I understand the seriousness of the words.

[jemmabrown]

Day 2 of #PoTSUKChallenge is ‘what does PoTS look like to you?’ Naps! Lots of naps! I have to nap every day and make sure I’m getting enough sleep. If I’m tired or have not had enough sleep it makes my #PoTS dramatically worse so sleep is very important. I have to plan my activities and energy required to try and pace myself (I’m not the best at this). I have to try and balance fluid intake, rest, time sitting/standing and activity to ensure I’m looking after myself. Standing still is a major issue for me. So today’s image is me tucked up in bed with the covers up to my chin just before today’s afternoon nap. Night night x #Nap #ChronicIllness #invisableIllness #invisabledisability #Pacing #Fatigue #PoTSUK #InvisibleDisabilities @potsuk @invisibledisabilities #NapTime #Tired #TiredAllTheTime https://www.instagram.com/p/B3HsIjTBbfI/?igshid=1mue6e8a4gdp4

[service-squish-blog]

Double tap to Boop the snoot!

Follow us, we’re new!

Fellow spoonies feel free to reach out 🥄🥄

[mywarriorstory]

Hey guys. How are we?!? Sorry I haven’t been posting. The struggle is real right now. Health wise I’m losing it. Between the pain and constantly feeling sick, I’m trying by best to make it through. Thank u for your support. #raulesparza #raulinspiration #rafaelbarba #adabarba #chroniclife #spoonie #undiagnosed #invisabledisability https://www.instagram.com/p/BtClNPTnMcQ/?utm_source=ig_tumblr_share&igshid=1mxpvb3wopxgf

[jemmabrown]

Day one of the #potsukchallenge is a selfie I can do that! Second image is a list of the challenges for each day. I’m going to attempt to do every day so you have been warned. It’s #PosturalOrthostaticTachycardiaSyndromeAwarenessMonth which is why I’m doing this. #PoTS can be really debilitating and there is no cure. I have PoTS it affects me every day but I’m thankful most of the time it’s controlled with medication and management but it’s a very delicate balancing act. #InvisableIllness #PosturalOrthostaticTachycardiaSyndrome #InvisableDisability https://www.instagram.com/p/B3EdtluhKYL/?igshid=81zadm9xg2cu

[service-squish-blog]

[cymraeswyllt]

Can we all take a minute to appreciate how badass King Alfred The Great was. He ruled whilst fighting what would one day be known as Crohn’s Disease. Power to the fellow Crohnies! Fighting such an illness is a battle in itself.

David Dawson as King Alfred The Great in The Last Kingdom 

“Long Live The King!”

[rrgirldomenica]

😩😩😶😫😩😤😷🤕 #MIGRAINESSUCK #INVISABLEDISABILITY #WHENUTAKEEVERYTHING #MIGRAINELIFE #WHENYOURHEADISKILLINGYOU

[service-squish-blog]

[calamity-queer]

As someone who suffers from POTS, I can’t describe the shock and delight I experienced as this appeared on my dash. I almost never see any fact sheets or efforts to raise awareness for POTS, so please, please spread these amazing infographics around.

Aren’t these infographics about postural orthostatic tachycardia syndrome from naughtylittlemastcells.com just the coolest?  Please share them, especially with rare diseases day coming up soon (February 28)!

[raseforcrps]

#invisiblediseases #invisabledisabilities #chronicpain #opioidepidemic

[transwolfnz]

A bit of hospital glam from my colonoscopy they requested to do a full one so yay. -------------------------------- #hospital #hospitalglam #fibromyalgia #colonoscopy #chronicpain #invisabledisability #invisableillness (at Whangarei Hospital)