#amps

[stardust-maple]

I made my own pain and fatigue scale charts. Because I'm so adept at overcoming my symptoms the normal pain scale doesn't really work for me. I adjusted my numbers so that I could change the number into something I could tell a doctor when they inevitably ask me to rate my pain.

[Image Description: Pain Scale Chart with rainbow gradient background for each row, starting at red and ending at blue. Row 1: Mine Drs Pain Scale Description Row 2: 10 X I am not leaving my bedroom or bathroom, someone needs to bring me food and I need something to dull the pain or the pain will cause tears. Row 3: 9 X I am not leaving my bedroom and bathroom for anything other than food. Row 4: 8 10 Speaking is difficult. It is no longer practical to do activities outside of the bathroom or bedroom, but they can be done with assistance. Row 5: 7 9 Necessary care activities are sacrificed. Academic activities and social activities can no longer be tolerated. Row 6: 6 8 My pain is tiring. Paying attention is difficult. All activities require pacing and extra effort. Row 7: 5 7 My pain is so distracting it is making me tired. It is hard to think. Necessary care activities are no longer all doable. Row 8: 4 6 My pain is so distracting it is making me tired. It is harder to think. Necessary care activities are starting to be limited. Row 9: 3 5 I can continue to do most activities Row 10: 2 4 My pain bothers me but I can ignore it most of the time Row 11: 1 3 My pain bothers me, but I can ignore it most of the time. Row 12: 0 2 I am aware of my pain only when I pay attention to it Row 13: X 1 My pain is hardly noticeable Row 14: X 0 I have no pain. END Image Description]

[Image Description:

Fatigue Scale Chart with rainbow gradient background for each row, starting at red and ending at blue. Row 1: Mine Drs Fatigue Scale Description Row 2: 10 X Can barely sit up, needs assistance to get out of bed. Holding conversations is impossible. Laying down for most of the day is necessary. It is difficult to eat. Focusing is strenuous. Row 3: 9 X Able to walk and stand for short distances. Holding conversations is difficult. Laying down for most of the day is necessary. It is difficult to eat. Focusing is strenuous. Row 4: 8 10 Able to walk and stand for short distances. Holding conversations is difficult. Sitting for long Periods of time is difficult. It is difficult to eat. Focusing is strenuous. Preparing a meal isn’t possible. Row 5: 7 9 Holding conversations is difficult. Sitting or standing for long Periods of time is difficult. It is difficult to eat. Focusing is strenuous. Row 6: 6 8 Sitting or standing for long Periods of time is difficult. It is difficult to eat. Focusing is difficult. Preparing a meal is difficult. Row 7: 5 7 Standing or walking for long periods is difficult. It is difficult to eat. Focusing is difficult. Row 8: 4 6 Standing or walking for long periods is difficult. Focusing is difficult. Row 9: 3 5 Cooking for longer than 15 minutes is extremely challenging. Row 10: 2 4 Not everything can be done in the day. Activities are slowed down. Difficult mental challenges are sacrificed. Row 11: 1 3 Tiredness makes it difficult to enjoy fun activities. Row 12: 0 2 Things take more effort than usual, but everything is still doable. Row 13: X 1 Slightly tired but still able to carry on as normal Row 14: X 0 Not tired at all END Image Description.]

Feel free to use them yourself if you like them!

[after-nine-at-the-oasis]

Happy disability pride month to people with pain disorders :)

Be that CRPS, AMPS, fibromyalgia, or anything else :). Your pain is real, and you are not alone <3

[midnight-soulless-system]

I think it's both sad and hilarious to see the difference between how small children react to disabled people and how teenagers/adults react to discabled people.

Small children are just curious and want to understand why and how things work, so of course when I'm walking with my cane and limping and taking walking breaks, they're going to be confused. Sometimes their questions are blunt but it's obvious they're just curious and mean well.

And then there's everyone else. They don't even want to know about why you're disabled or anything, they just want proof that you are allowed to be disabled (like that's a fucking thing). And every time they say shit like "well prove it. Prove that you're disabled" I just look at them with a confused face. Who the fuck do you think you are, demanding to see my personal medical records, move the fuck out of the disabled parking space you abled piece of shit.

[atariaaren]

i was planning on drawing more panels, but i began to lose steam by the time i finished the 11th one ^^;;

[deebeeus]

Christmas Concert.

1961 Fender Concert & 1965 Gibson SG Special.

PS: That's my 1968 Traynor TR1 Reverb Unit on top, but it's not in the signal chain at the moment. Rather I am using my Boss FBM1 (for some overdrive at low volumes), into my @coffeeshoppedals Cortado reverb, which produces a much cleaner, less harsh and noisy, and therefore much more pleasing, version of spring reverb than an actual tube-driven spring reverb unit does! 😂

[eightiesfan]

[chronicillnessfromateensmind]

Being a teenager who is chronically ill

Being a teenager who is chronically ill is so frustrating sometimes. Let alone how awful you feel every day, it doesn't help when you see old friends of yours Instagram stories and see how easily they can just live their lives. I know it's an irrational frustration, it's not their fault I'm sick, it's just so sad sometimes when you come to the realization that you will never have a normal teenage experience.

[stardust-maple]

It's weird that people just like... Forget you're disabled.

You'll be like "yeah I've got chronic fatigue and chronic pain" and then you tell them how it impacts your life and then they just... Keep expecting you to do able bodied things.

Like I can't always clean up my hair from the shower without taking a break first because showering is a very physically demanding task. But if I ever say I don't have the energy to do that. They call me ridiculous. They say that's unreasonable.

It's just kind of bizarre.

It's only when you remind them that you're disabled that they back down. Because they forgot. They forgot you couldn't do everything they do.

[perhapsitsatlas]

Shout out to all those neurodivergent folks with chronic pain ❤️

Fr nothing is more exhausting than a flare-up, causing a meltdown, and then the stress from the meltdown prolonging the flare

[i-got-da-rubes]

I am physically unable to finish this comic and if that ain’t ironic

[midnight-soulless-system]

We were thinking of making a shoutout post for people with less talked about physical disorders on tumblr (like AMPS, scoliosis, vEDS, etc.) and we just do not have the mental energy to do a search for these things because (sparkle) Pain brain (sparkle) so, reblog this post with rarer physical disabilities that you feel need to be talked more about on tumblr and we'll make the post!

[chronic-lee-lizard]

Medical update - April 7th

Yeouch

[deebeeus]

I have been really bad at posting on tumblr lately so here is every guitar pic I have posted to insta since the beginning of 2024

1962 Jag & 1966 Mustang from Fender historian and author Terry Foster's collection

2020 Gibson USA Les Paul Special with 1969 Sunn and 1968 Fender amps. I sold this guitar in the closing days of December...but not to worry I used the money to buy something new and fun! See below...

Chris Bear with 1983 Electro ES-16

Chris Bear with 1968 ES-335

Made a trip to Gear Music in Oakville Canada and saw this lovely Limited Edition Fender Custom Shop Twisted Tele Custom Journeyman Relic in Aged Ocean Turquoise

See #5

See #6

1983 ES-16 Macro

More from Gear Music, Oakville: brand new Fender Custom Shop '69 Strat Heavy Relic

See #9

I'm seein' double here! Four Krustys! Here's what I bought with the money form selling the Cherry Les Paul Special (see #2): 1993 Gibson Nighthawk CS-2 (with the 1998 Nighthawk ST-2, right, that I already owned)

1993 Gibson Nighthawk CS-2, top, with the 1998 Nighthawk ST-2

1993 Gibson Nighthawk CS-2, top, with the 1998 Nighthawk ST-2...note the ebony board and bound headstock on the Custom.

1965 Traynor YBA2 Bass Mate & 1957 Fender Duo Sonic

1969 Fender Telecaster Thinline, macro.

[galaxy-starshine]

has a minor cold: this will be alright right? nothing major?

my physical disabilities: 👀 👀 👀 do i hear… a challenge?

[pleasereduceyourexpectations]

Chronic Pain Sophie:

I’d imagine that after the whole circlet incident Sophie would have chronic pain. Maybe the circle messed with the neurons controlling how pain is felt and now she suffers from a form of AMPS.

• Because of this pain, she feels even more resentment towards to councilors.

• The pain is only extrapolated on because of psychological stress. (Cough cough neverseen cough)

• Sophie gets especially nervous around circlets and is hesitant to join team Valiant because of that.

• Eventually she does, but it takes a lot more convincing. She also still harbor a deep resentment of the council for essentially torturing her with a machine and publicly humiliating her, so she is less likely to do as they say.

• She really gets to feel for elves with chronic conditions that can’t be fixed, and how society is prejudiced against those deemed imperfect. This really turns her attention towards other social issues as well, and she becomes more devoted to trying to solve these issues with her connections to the council.

• This results in several disputes between the council and herself.

• She has an entire folder of social injustices she thinks need to be addressed that she keeps tryin to get the council to look at.

• She becomes less focused on drawing out a fight or talking with the neverseen because too much physical activity results in massive fatigue. So her fighting becomes much more direct and to the point.

• She isn’t allowed to go on as physically demanding missions because of her condition, she still does, much to her friends’ dismay.

• Sophie hangs out more with Dex again, becoming partially the guy in the chair for the guy in the chair.

• She starts realizing how fucked up the elven world is again and works with Dex to help undermine the council, to an extent.

•She often feels fatigued, but because of her insomnia she can’t fall asleep.

• Decreased mobility and stamina, so she focuses more on quick fighting.

• Often gets really annoyed with how other elves treat her, because many of them don’t understand what it is and can’t really fathom it.

• She does bond over it with Fitz though, but her wanting change and Fitz not seeing a problem with many of the things as it is forms a bit of a divide.