#amplified musculoskeletal pain syndrome

[midnight-soulless-system]

I think it's both sad and hilarious to see the difference between how small children react to disabled people and how teenagers/adults react to discabled people.

Small children are just curious and want to understand why and how things work, so of course when I'm walking with my cane and limping and taking walking breaks, they're going to be confused. Sometimes their questions are blunt but it's obvious they're just curious and mean well.

And then there's everyone else. They don't even want to know about why you're disabled or anything, they just want proof that you are allowed to be disabled (like that's a fucking thing). And every time they say shit like "well prove it. Prove that you're disabled" I just look at them with a confused face. Who the fuck do you think you are, demanding to see my personal medical records, move the fuck out of the disabled parking space you abled piece of shit.

[atariaaren]

i was planning on drawing more panels, but i began to lose steam by the time i finished the 11th one ^^;;

[epic-sorcerer]

Extremely unfriendly reminder

It is ableist to doubt someone’s allosexuality /alloromantism simply because they are disabled.

It is infantilizing to not take us seriously with we clearly state who we are and just deside you somehow know better. We are not stupid.

It is a stereotype that we are all aroace. That we are incapable of understanding or feeling romantic or sexual feelings. Or acting apon them. I even heard a horror story where someone was forcably wheeled out of health class when sex Ed started.

And this goes for everyone. The two people who have done this were both disabled and asexual /aromantic . I was not questioning my sexuality or romantic orientation, I simply mentioned I was allo, disbaled, and couldn’t date or have sex because of it. “Are you suuure you’re not aromantic?” It’s just awful.

[daffodil--lament]

I don't have arthritis but sometimes "I have a complex neurological disorder that causes malfunctions in my sensory processing, predominantly in the form of chronic pain, and this can cause me mobility issues, fatigue, temperature sensitivity, and skin discoloration, plus the easiest thing to do would be to call it fibromyalgia but the misconceptions from the 90s that this isn't a real diagnosis are still so prevalent that if I say that term I risk you not taking me seriously" is a lot more drawn out than "oghc my rheumatism"

[galaxy-starshine]

has a minor cold: this will be alright right? nothing major?

my physical disabilities: 👀 👀 👀 do i hear… a challenge?

[amplified-pain-culture-is]

AMPS culture is having to explain to someone that the lightest touch hurts because I have Allodynia. AMPS culture is chronic fatigue making you unable to hang out with friends. AMPS culture is telling yourself you are faking it, or not sick enough.

.

[chronically-not-okay]

I’ve been sick for about ten years and there hasn’t been a day my chronic illness hasn’t gone out of it’s way to humble me

Like no I don’t have a ego I faint when I stand to fast and my worst enemy is water consumption

[writing2sirvive]

Remembering my senior year, during tech week for Guys and Dolls, I was not only exhausted but also having a really bad flare. I was talking with my friend (who was one of the leads of the musical) and I was talking about how being so tired was causing a flare and making my life even harder. Like I kept dropping things, could barely walk, and most notably my speech was terrible. And I was known for speaking so fast that my words and sounds got jumbled (read: I have ADHD). He admitted he noticed and was very concerned and confused as to how my having a flare, which had to do with my feet since I was dancing and such, was causing my to speak as if I was drunk.

I tried to explain that as someone who suffered from chronic pain (was first diagnosed with AMPS at 11 and a few month after this would get diagnosed with fibromyalgia) the more pain I’m in the harder things, even basic things like motor skills and speech, went out the window.

However due to my speech having stopped for dulce de leche at El Cafe Cubana in Havana (HaVaNa?!?!??) what came out was:

“Words get hard the more ow.”

My friend clearly amused repeated “words get hard the more ow?” To which I tiredly lowered my head and let out a sigh in defeat.

Keep in mind: I’m the funny friend with ADHD. I will bare the most embarrassing parts of myself for the bit, to the point I have trouble getting people to take me seriously. I’m not above self mockery if it means people find me funny. And yet, this time I did not lay myself out like A Fool™️ on purpose. This was solely my barely functioning last brain cells trying to make a point, but not having enough brain power to do so properly.

Never in my life could I have accurately described the essence of being in so much pain that you can barely speak properly yet continue to go about your day, so perfectly, despite being in so much pain that you can barely speak properly. And by accident.

[staryulovesu]

when it starts getting cold and ur joints are like:

[midnight-soulless-system]

We were thinking of making a shoutout post for people with less talked about physical disorders on tumblr (like AMPS, scoliosis, vEDS, etc.) and we just do not have the mental energy to do a search for these things because (sparkle) Pain brain (sparkle) so, reblog this post with rarer physical disabilities that you feel need to be talked more about on tumblr and we'll make the post!

[ch1ckpeapancake]

I feel so guilty for how I feel about able people’s problems. Every time my friends complain about something a little voice in my head just goes “you have no right to complain, you aren’t in constant pain” I know it is wrong, and that my pain doesn’t invalidate theirs, but I just feel so vindictive and angry all the time.

[epic-sorcerer]

Shout out to the trans boys who get hot flashes

Shout to to me

[atariaaren]

currently working on a comic about amps, which got me thinking...

(p.s. i have AMPS and fibromyalgia!)

[ottitty]

Was googling my condition to get some resources for someone, and it finally has a wiki page 😭

[after-nine-at-the-oasis]

If anybody needs some good news this disability pride month, recently I was at a doctor's appointment where one of my doctors said my allodynia wasn't as bad anymore! I joked "It's on its last legs" AND SHE SAID "Yeah, pretty much"!! :DD. Obviously there's still a hard road ahead but it hasn't left my mind since :). Happy disability pride month y'all <3

[mellen2]

I love how 99% of the time any and all “accommodations” I ask for are just “treat me with understanding and kindness and allow me to be slower if I need to” and people still can’t do that shit