Today my therapist introduced me to a concept surrounding disability that she called "hLep".
Which is when you - in this case, you are a disabled person - ask someone for help ("I can't drink almond milk so can you get me some whole milk?", or "Please call Donna and ask her to pick up the car for me."), and they say yes, and then they do something that is not what you asked for but is what they think you should have asked for ("I know you said you wanted whole, but I got you skim milk because it's better for you!", "I didn't want to ruin Donna's day by asking her that, so I spent your money on an expensive towing service!") And then if you get annoyed at them for ignoring what you actually asked for - and often it has already happened repeatedly - they get angry because they "were just helping you! You should be grateful!!"
And my therapist pointed out that this is not "help", it's "hLep".
Sure, it looks like help; it kind of sounds like help too; and if it was adjusted just a little bit, it could be help. But it's not help. It's hLep.
At its best, it is patronizing and makes a person feel unvalued and un-listened-to. Always, it reinforces the false idea that disabled people can't be trusted with our own care. And at its worst, it results in disabled people losing our freedom and control over our lives, and also being unable to actually access what we need to survive.
So please, when a disabled person asks you for help on something, don't be a hLeper, be a helper! In other words: they know better than you what they need, and the best way you can honor the trust they've put in you is to believe that!
Also, I want to be very clear that the "getting angry at a disabled person's attempts to point out harmful behavior" part of this makes the whole thing WAY worse. Like it'd be one thing if my roommate bought me some passive-aggressive skim milk, but then they heard what I had to say, and they apologized and did better in the future - our relationship could bounce back from that. But it is very much another thing to have a crying shouting match with someone who is furious at you for saying something they did was ableist. Like, Christ, Jessica, remind me to never ask for your support ever again! You make me feel like if I asked you to call 911, you'd order a pizza because you know I'll feel better once I eat something!!
Edit: crediting my therapist by name with her permission - this term was coined by Nahime Aguirre Mtanous!
Edit again: I made an optional follow-up to this post after seeing the responses. Might help somebody. CW for me frankly talking about how dangerous hLep really is.
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hey btw if you're in the USA at 2:20 p.m. ET on Wednesday, Oct. 4, they're testing the emergency broadcast system. your phone is probably going to make a really loud noise, even if it's on silent. there's a backup date on the 11th if they need to postpone it.
if you're not in a safe situation and have an extra phone, you should turn that phone completely off beforehand.
additionally, if you're like me, and are easily startled; i recommend treating it like a party. have a countdown or something. be surrounded by your loved ones. take the actions you personally need to take to make yourself safe.
i have already seen mockery towards any person who feels nervous about this. for the record, it completely, completely valid to have "emergency broadcast sounds" be an anxiety trigger. do not let other people make fun of you for that. emergency sounds are legitimately engineered to make us take action; those of us with high levels of anxiety and/or neurodivergence are already pre-disposed to have a Bad Time. sometimes it is best to acknowledge that the situation will be triggering for some, and to prepare for that; rather than just saying "well that's stupid, it's just a test."
"loud scary sound time" isn't like, my favorite thing, but we can at least try to prevent some additional anxiety by preparing for it. maybe get yourself a cake? noise cancelling headphones? the new hozier album? whatever helps. love u, hope you're okay. we are gonna ride it out together.
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What progress at home has biden enacted? What policies of his show that he is making progress that prove he is actually different than trump?
I like to pretend I have faith in humanity, so I'll answer as if you're asking this in good faith.
Biden's DEA has lifted restrictions on telehealth prescriptions to make appointments and assistance more accessible.
He put a funding package into place to help unhoused people get access to mental and physical healthcare, as well as short-term and long-term housing.
He has attempted and is still attempting to get student debt relief through - this was blocked by Republican judges appointed by Trump, but he's still working on it.
Infrastructure repair - his administration has budgeted funds to actually fix some severely-damaged and frequently-traveled bridges.
Trying to expand access to healthcare to include undocumented immigrants who came to the USA as children (Dreamers) under the Affordable Care Act. Support for Navigator programs and outreach has also been increased.
He has vetoed Republican-led bills that were attempting to overturn environmental protections - one that would have forbidden investment fund managers to consider climate change in their portfolios (I have two degrees in accounting and this is actually huge), and another that would have overturned restrictions on agricultural runoff into our waterways.
He and his administration worked for ages to get rail workers paid sick days.
This is just some of what he's been doing. Meanwhile, Trump and other Republicans want to criminalize the lives of LGBT people like you and me. They want to eliminate no-fault divorce and force births that will kill parents or devastate them financially. They have stated flat out that they want to install a military dictatorship in the USA. They attempted to put that in motion on January 6th, 2021. They failed once. They will do better next time.
One party wants to house the homeless and expand social safety nets, while the other one wants to criminalize homelessness. One of them wants a future in which I might be able to vote to change how much of a war machine my country is, while the other one wants to eliminate my ability to vote entirely. Those are not the same. Those literally are opposites.
At the end of the day, all you and I can do is choose to do the least amount of harm possible. You and I cannot choose to do no harm. This is the USA, we sell war, you and I cannot choose to do no harm. I wish we could, my god do I wish we could, but that is not an option. So we grieve for the harm we couldn't eliminate and work to minimize the harm that is done. Despite all the crap they support, Democrats are the minimum amount of harm right now. Acting like they aren't is exactly what brought us to an election where our options are a future where we are either wading in blood or drowning in it.
Not voting for Biden will not help Palestine. Not voting for Biden will guarantee a Republican president who will make the situation in Palestine WORSE. AND it'll hurt a lot of other places as well, both at home and abroad, because Republicans are about business and the USA is in the business of war! And I would very much like that to change someday! I would very much like to someday be able to choose to do no harm! And I know what I have to do to try for that future, so what are YOU going to do? There is no standing off to the side in this. If you aren't helping pull, you're the dead weight we're pulling. Are you going to dig your feet into the mud and blood and drown us there? Or are you going to get the fuck off your ass, grit your teeth, and help us pull free?
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there are a lot of posts out there that are positive and healthy coping mechanisms for handling the holidays. this is not one of them :)
i think there's like. going to be times in your life you will be stuck in a social situation that you cannot escape from gracefully. i do not know why the internet doesn't believe these times exist. it's not always just that your physical safety is at risk - sometimes it's legit like "i just don't currently have the energy or time to put in the effort of responding to this." sometimes it's a coworker you hate so much. sometimes it's just like, fine, you know? like you know you can handle your aunt when she's cheerily horrible, but if you actually set a boundary around her, it's going to be weeks of fallout with your father.
i don't know why people think the answer is always just "cut them out!" or "don't let them get away with that!" because ... the real world is tricky and complicated. i think kind of a lot of us have an internal "radiation poisoning" meter for certain people. like - i'm talking about the ones who are absolutely giving you gradual ick damage. like, you can handle them, but you'll be exhausted.
and yes. you absolutely should listen to your therapist and the good posts about handling others and set good boundaries and take care of yourself. prioritize peace.
HOWEVER :) ...... since im often in a situation with a Gradual Sense of Ick person i cannot just "cut out" of my life (without losing someone else precious to me) - i have sort of developed the most. maladaptive form of mischief possible. because like, if i'm going to have to listen to this shit again, i like to have a little bit of private fun with it.
now! again, i am physically safe, just mentally drained by this man. you should only do this with people you are not in danger with. which leads me to my suggestions for when your Unfortunate Acquaintance shows up and says oh everyone pay attention to me.
my favorite word is "maybe!" said as brightly and happily as possible. whenever the Horrible Person starts in on a topic you do not want to go further with, particularly if they make a claim that you know to be inaccurate, do not respond to it. you and i have both tried to actually argue with this person, and it hasn't gone well, because this person just wants the drama of an argument. however, "maybe!" gives them literally nothing to go on. it is incredibly disarming. they are used to people having some response. they know they can't prove what they're saying, and maybe! treats them like the child they are. it dismisses them in the politest way possible.
i like to say maybe! and then, in their stunned silence, immediately change the subject. this is because i have adhd and i will have something unrelated to talk about, but if you can't think of topics fast enough, i recommend just pointing to something and saying, "isn't that lovely?" because fuck you let's bring in some positivity.
by the way. that second trick - of pointing to something and stating an opinion about it? - that just works on its own, like, 70% of the time. i picked it up from teaching preschoolers. it's an intentional "redirect". it stops children crying and it also stops grown adults from finishing their explanation on why women belong in kitchens. dual wielding!
keep it silly for yourself. i absolutely do not care if people think i'm fucking stupid (it's more fun if they do) and as a result i will purposefully misunderstand things just to see how long it takes them to realize i've completely removed them from the subject at hand. when they say "women aren't funny" i get to be like. "which women." "all women." "all women in america?" "no in the world." "like the mole people? the people in the world?" "what? no. like, alive." "oh are we not counting the mole people?" "what the fuck are you talking about." "you don't believe in the mole people?"
similarly, i play a personal game called "one up me." my Evil Acquaintance literally knows this game exists (my family & friends caught onto it and now also play it) and it always fucking gets him. i don't know why. you have to be willing to be a little free-spirited on this one, though. the trick is that when they make one of those horrible little bigoted or annoying comments they are always making, you need to go one unit weirder. not more intense, mind you - just more weird. "you don't look good in that dress." "yeah, actually, my other dress was covered in squid ink due to a mishap at the soup store." "you shouldn't wear such revealing clothes." "wait, what? oh shit. sorry, your son tears off strips when no one is looking and eats them. i swear it was longer before we left the building."
the point of "one up me" is to completely upend this person's narrative. we both know this person likes setting up situations where you cannot "win" and then they really like telling other people how badly you handled it. in a usual situation, if you respond "please don't say something that rude", you're a bitch. but if you let it happen, you're letting yourself be debased. they are not usually expecting door number three: unflappably odd. because what are they going to say when they're telling everyone how badly you behaved? "she said my son eats her dresses" ".... okay?"
if you can, form an allyship with someone whomst you can tagteam with. where they can pick up on your weird "soup store" story and run with it.
the following phrase is amazing and can be deployed for any situation: "oh, be nice :) it's the holidays!" i do not know why this works as often as it does. i'll say it for the most random shit. i think this is bc most of the time these people know they're being impolite, they just like to fight.
godbless. when in doubt, remember that you could always start stealing their pens.
the whole point of this is - if you can't escape. maybe see how long you can just be. like. a horrible little menace.
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