#chronicillnessproblems

[megpie]

But seriously if any of my many drs told me they were alarmed by my imaging due to finding a *skeleton* inside my body -- I wouldn't be shocked. I'd do one of those The Office style looks at the imaginary camera of life, lol. Because it wouldn't be the dumbest thing they've said to me. 🦴💀👨‍⚕️🚑💉 #skeletons #spoonieproblems #spoonies #chronicallyill #chronicillness #chronicillness #chronicillnessproblems #medicalgaslighting #doctors #autoimmunedisease #hashimotos #adrenalfatigue #rheumatoidarthritis #liverdisease #fatigue #gastritis #ibs #chronicallyawesome #chronicpain #skeletalsystem #jointpain https://www.instagram.com/p/CpejzTZOuzV/?igshid=NGJjMDIxMWI=

[cozy-comfy-cuteness]

Guess who tried to go for a walk in sunny weather? This dumbass. This is before, during, and after. With sunscreen and a hat. I am not sure what to do. I want to go walking without my skin feeling like it's going to melt off. Happy the weather and time is changing. #chronicillnesslife #chronicillness #chronicillnessproblems #lupus #lupuswarrior #spoonielife #spooniesupport #spoonie https://www.instagram.com/p/CkmiobFry3R/?igshid=NGJjMDIxMWI=

[cutebubblycraziness]

I was hospitalized twice mid December into early January with a week between hospitalizations because I had a gastroparesis and cyclic vomiting syndrome flare. When this happens I can't stop vomiting and can't eat or drink anything. Nothing helps other than being hospitalized and sedated for about a week so im not throwing up. I hadn't had an attack since 2019, but had run out of crucial medication so wound up having another attack. #gastroparesis #gastroparesissucks #gastroparesisawareness #gastroparesiswarrior #cylicvomiting #cylicvomitingsyndrome #vomiting #chronicnausea #chronicillnesswarrior #chronicillnessawareness #chronicillnesslife #chronicillnesscommunity #chronicillnessandme #chronicillnessproblems #chronicillnesswarriors #chronicillnessfighter #chronicallyill #chronicallysick #hospitalized #hospitalization #chronicallyillartist #chronicallyillwarrior #illness #invisibleillnesses #illnesssucks #livingwithchronicillness #livingwithgastroparesis #livingwithillness (at Waukesha, Wisconsin) https://www.instagram.com/amberanndesigns/p/CYzPAk-rQHT/?utm_medium=tumblr

[arvoguard]

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A post shared by Arrin Vanguard (@arvoguard)

Yay!! Custom Compression Garments!! I have been working with Sarah at Flowgarments for a while now, and she made a pair for me a few years back to go over the big calf. Now the Schtumphy is here, I had been wanting to get a new set since lymphedema is still residual there, and since funding is now available thru the NDIS, I had the fitting done last week, and they came in the mail today! Feels great! The pins and needles are gone from the phantom foot, but I can still feel it, and move it. The right leg feels great! This should hold off the edema creeping into my right leg. ... But y'all KNOW I had to get em in PURPLE!! I saw that she had the purple fabric and got excited!! Now I just gotta find me a purple suit to go with my purple compression garments! 💜💜💜 ... #lymphedema #secondarylymphedema #stump #amputee #amputate #compression #compressiongarments #lymph #lymphielife #chronicillness #chronicillnessproblems #fibromyalgia #spinalstenosis #purple (at Cheltenham, Victoria) https://www.instagram.com/p/B3WKf3RDMS_/?igshid=aih313kv577g

[spoonie-adventures]

When you can’t sleep because I pain but once the pain gets better you’ve been awake so long you can’t go back to sleep. #chronicillnessproblems

[poshnotions]

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A post shared by Bonnie Rose The 'A' Coach (@poshnotions)

July 2020 Turning 'I can't into I 'Can' - Cellular memory, quantum memory and how our bodies are reminded of what they're capable of. I talk to David about how after setting the expectations of my body low, I quickly surpassed what I believed was possible concerning my own strength and ability to accomplish heavy lifting tasks and more. I ask David to explain how this is possible and he breaks down celluar memory, quantum memory subconcious negative beliefs and how to change them. "𝘞𝘦 𝘩𝘢𝘷𝘦 𝘵𝘰 𝘤𝘰𝘯𝘵𝘳𝘰𝘭 𝘰𝘶𝘳 𝘥𝘢𝘵𝘢 𝘪𝘯𝘱𝘶𝘵. 𝘞𝘦 𝘩𝘢𝘷𝘦 𝘵𝘰 𝘤𝘰𝘯𝘵𝘳𝘰𝘭 𝘵𝘩𝘦 𝘱𝘦𝘰𝘱𝘭𝘦 𝘢𝘯𝘥 𝘵𝘩𝘦 𝘪𝘥𝘦𝘢𝘴 𝘢𝘯𝘥 𝘸𝘩𝘢𝘵 𝘸𝘦'𝘳𝘦 𝘪𝘯𝘱𝘶𝘵𝘵𝘪𝘯𝘨. 𝘈𝘯𝘥 𝘣𝘦𝘺𝘰𝘯𝘥 𝘤𝘰𝘯𝘵𝘳𝘰𝘭𝘭𝘪𝘯𝘨 𝘪��, 𝘴𝘦𝘦𝘬 𝘸𝘩𝘢𝘵 𝘺𝘰𝘶 𝘸𝘢𝘯𝘵. 𝘛𝘩𝘦 𝘧𝘪𝘳𝘴𝘵 𝘵𝘩𝘪𝘯𝘨 𝘵𝘩𝘢𝘵 𝘸𝘦 𝘥𝘰 𝘪𝘴 𝘵𝘰 𝘴𝘵𝘰𝘱 𝘵𝘩𝘪𝘯𝘬𝘪𝘯𝘨 𝘢𝘣𝘰𝘶𝘵 𝘪𝘵, 𝘧𝘪𝘳𝘦 𝘧𝘳𝘪𝘦𝘯𝘥𝘴 𝘢𝘯𝘥 𝘴𝘵𝘢𝘳𝘵 𝘳𝘦𝘢𝘥𝘪𝘯𝘨 𝘵𝘩𝘦 𝘳𝘪𝘨𝘩𝘵 𝘴𝘵𝘶𝘧𝘧. 𝘖𝘯𝘤𝘦 𝘸𝘦 𝘴𝘵𝘢𝘳𝘵𝘦𝘥 𝘴𝘦𝘦𝘬𝘪𝘯𝘨 𝘵𝘩𝘦 𝘳𝘪𝘨𝘩𝘵 𝘴𝘵𝘶𝘧𝘧, 𝘺𝘰𝘶'𝘳𝘦 𝘢𝘤𝘵𝘶𝘢𝘭𝘭𝘺 𝘢𝘯𝘵𝘪𝘤𝘪𝘱𝘢𝘵𝘪𝘯𝘨 𝘢𝘯𝘥 𝘴𝘦𝘦𝘬𝘪𝘯𝘨 𝘸𝘩𝘢𝘵 𝘺𝘰𝘶 𝘸𝘢𝘯𝘵 𝘯𝘰𝘸. 𝘛𝘩𝘦𝘳𝘦'𝘴 𝘯𝘰, '𝘐'𝘮 𝘫𝘶𝘴𝘵 𝘨𝘰𝘯𝘯𝘢 𝘤𝘰𝘯𝘵𝘳𝘰𝘭 𝘵𝘩𝘦 𝘯𝘦𝘨𝘢𝘵𝘪𝘷𝘦 𝘵𝘩𝘰𝘶𝘨𝘩𝘵𝘴 𝘯𝘰𝘸.' 𝘐𝘵'𝘴 𝘭𝘪𝘬𝘦, '𝘐 𝘴𝘦𝘦 𝘪𝘵 𝘢𝘯𝘥 𝘪𝘵'𝘴 𝘨𝘰𝘯𝘯𝘢 𝘤𝘰𝘮𝘦 𝘵𝘰 𝘮𝘦 𝘢𝘯𝘥 𝘐 𝘬𝘦𝘦𝘱 𝘮𝘢𝘬𝘪𝘯𝘨 𝘮𝘰𝘳𝘦 𝘮𝘰𝘯𝘦𝘺.' 𝘐'𝘮 𝘨𝘰𝘯𝘯𝘢 𝘩𝘢𝘷𝘦 𝘢 𝘣𝘪𝘨 𝘣𝘶𝘴𝘪𝘯𝘦𝘴𝘴 𝘴𝘰𝘮𝘦𝘥𝘢𝘺 𝘢𝘯𝘥 𝘐'𝘮 𝘨𝘰𝘯𝘯𝘢 𝘩𝘪𝘳𝘦 𝘺𝘰𝘶 𝘵𝘰 𝘴𝘱𝘦𝘢𝘬 𝘵𝘰 𝘮𝘺 𝘤𝘰𝘮���𝘢𝘯𝘺.'" - David Meltzer #beunbreakable #beunbreakablebefearless #storyofmylife😂 #storytimes #overcomers #ecommercelife #ecommerceentrepreneur #documentingmyjourney #documentingmyjourney #amazingjourney #covidcreative #makerscollective #markersmarketfromhome #makersgonnamake #overcomingadversity #chronicillnesslife #chronicillnesses #chronicillnessfighter #chronicillnessfightersurvivor #chronicillnesssucks #chronicillnessproblems #poshnotions #crafterlife #crafterslife #crafterslifebelike #clevercrafters #roadtorevenue #roadtohappiness #livebusinesscoaching #poshnotions https://www.instagram.com/p/CUBmmwRDv1S/?utm_medium=tumblr

[butttcrackula]

Serious truth right here. 😠😩🛌 Repost from @fibro_spoonie_ using @RepostRegramApp - Thank God for Amitriptyline. #fibro #fibrowarrior #fibroawareness #fibromyalgia #ankylosingspondylitisawareness #ankylosingspondylitis #arthritis #autoimmune #amitriptyline #axialspondyloarthritis #costochondritis #chronicillness #chronicillnessproblems #invisibleillness #invisibleillnessawareness #spoonie #fatigue #brainfog (at Round Rock, Texas)

[chronicillnessmemes]

Hiya! I'm very thankful for you still answering my ramble^^ I do have depression so I have psych appointments weekly, and my psychologist also is a bit worried about me. Also, I'm autistic so I'm just very scared that i'd shut down at the GP's so I'm taking my mom. Also, I'm moving, so I'get a new GP nonetheless but I still just want to hear my GP say that he believes I'm really in pain? Idk, like, that he believes me? (Probs sending another one sorry >,<)

Also, Thanks @chronicillnessproblems​ for your input! I’m suspecting (H)eds or something similair. Also I’ve done a LOT of research on POTS and I read a lot of thing I find myself in. I’m gonna make a list with things I can’t do anymore and gonna take that when I go see him. Like, I’m almost 21 and I have to sit while showering, can’t ride a normal bike(only electric or else I’ll almost pass out) I sometimes have to stay home from work cause of the pain and ugh. Anyway, Thank you so much!<3 

Oh right! Also, please feel free to post anything I send without response, I get how draining that can be^^ Byee!

Ok so I read these asks earlier this morning and I do want to say a couple of things, because I’m a little bit nervous about what you said.

First of all, I SUPPORT YOU AND WHATEVER YOU DECIDE TO DO.  I really do.  So what I have to say can be dismissed or ignored altogether and it will not hurt my feelings or make me any less supportive of you.

I DO NOT think you should return to this GP if you can help it.  There is no doubt in my mind that you will be unable to convince them that you are experiencing pain.  And I understand where this is coming from, I really do.  We WANT to be affirmed by our medical care providers.  It is super hard to battle our own demons and doubts in our heads as it is.  But to have that nagging doubt that our doctor doesn’t believe us either just makes things 100% worse.

But they have made up their minds.  And I don’t know your gender, but if you are a woman, this is something that is going to be happening to you repeatedly.  Unfortunately there is a lot of evidence of medical bias against women that doctors refuse pain treatment to them using depression as an excuse.  And this has a long history.  I won’t go into detail but you can study up on the roots of “hysterical” diagnosis from last century and see where I am going with this.

Also medical practitioners can be assholes.  And not only do they get to be assholes, but they get to document your visits anyway they choose and that information is now basically fact.  Everyone used to joke about “permanent records” because that’s not exactly a thing.  Except in this case it is.

This doctor can choose to label you as drug seeking, or “hysterical” or any number of things that will bias any future practitioners against you.  Now being from the US I have zero idea how a fully functioning healthcare system is so I don’t know if your psychiatrist’s notes are also included in your medical records because here they are not.  Which means this jackass’ notes will follow you for eternity while your Psychiatrists notes can get lost in the shuffle. 

However, if you do choose to return to this GP, I would earnestly encourage you not to get your hopes up about them validating your pain.  Since I’ve been sick I’ve had 3 medical practitioners that believed me out of 11.  And this was after I had seen multiple specialists.

I ABSOLUTELY encourage you to take your mom.  I am 43 but did not start getting the respect and treatment I needed from my doctors until I started taking my mom into the exam rooms with me.  (She didn’t actually believe how dismissive they all were, which was the reason I took her in the first place, but suffice it to say the minute she saw what was going on, she lost her temper.)

I also would encourage you to get a letter from your Psychiatrist explaining that his PROFESSIONAL OPINION ON YOUR DEPRESSION is that it is not causing your physical pain.  Your doctor will A. Be forced to argue with another medical professional.  And B. be forced to add this letter to your medical file.  Where it WILL become permanently attached to your current issues.

And this could be a phenomenal help later on as you do find new doctors.

Again, it’s your body and it is your life.  There is no way I could ever have enough knowledge to tell you what you should be doing.  I can only give you some things to consider from my experience, after going through this for almost 10 years now.

Please do not seek validation from someone who has already denied it to you.  It will only hurt worse in the long run and cause more doubts.  I have spent many afternoons crying over crappy doctor’s visits and I’d hate to see the same for you. 

Ok since you said I didn’t have to comment, I’m just going to go ahead and not edit this…  I hope it all makes sense.  Keep us posted, if you feel like it.  You’ll be in my thoughts.

Admin J

PS Followers if you have anything to add, please feel free.

[megpie]

When I'm making soup, it's hard for me to chop up the veggies. Partly because my hands are made from old bones that are brittle like fine china + filled with asbestos, riddled with neuropathy and rheumatoid arthritis. So: they are weak af and I'm clumsy. Big danger energy. But the *REAL* issue is that I see little faces on all of them. I made you this visual, so that you can hop on into my imagination for a minute. This is what *I* see. Makes them hard to chop up. I'm sure you can understand. *in case you didn't know, I am a weird, weird girl. 😂🖤😘 #weirdgirls #spoonies #chronicillnessproblems #spoonieproblems #jointpain #rheumatoidarthritis #neuropathy #veggies #foodmemes #funnyaf #weirdfood #weirdosunite #funnyfood #playwithyourfood #chronicallyill #chronicillnesslife #makelifefun #foodfaces (at Terrace Heights, Washington) https://www.instagram.com/p/CiolsULuYvm/?igshid=NGJjMDIxMWI=

[msroundtable]

My serene little side of the patio. 😌 . I can’t sit in the patio chairs for long period of time. My back ends up on fire, legs sore,neck stiff and creating a headache. So I ordered this chair online and it is great! I can sit and look at my flowers in my little back yard and relax. A nice change of pace from laying inside! 🧘‍♂️🥱 . . . #multiplesclerosis #ms #serenity #chair #patiocomfort #spoonie #spoonielife #outofspoons #summer #summer21 #summernights #summervibes #healingvibes #chronicillnessproblems #disease #mswarrior🧡 #roundtable https://www.instagram.com/p/CQSR-Isj60b/?utm_medium=tumblr

[myalgicencephalomyelitiscfstom]

[mindtherapykent]

STOP OVERWHELM IN ITS TRACKS If you're feeling overwhelmed or unsure of what to do next... Can I please remind you that you have the option to do LESS? 🙂 WHAT??? I here you scream lol!😂 Yes it’s so true stop the overwhelm right now!!! In fact, when you do less...you will likely start to get MORE results. It is no joke when it comes to potential distractions and things you COULD be doing. It is designed to overwhelm you, So ...... step back slow down...because “Those who work SMARTER will always prevail”. If you're not sure what to do next, here is what I recommend: * Write a list of ALL the things you think you .... *should* be doing. * Prioritize those items as "must dos", "good idea to dos" and "maybes". * Put the "maybes" away for now. * Look at the "must dos" and figure out what you can outsource...delegate as much of it as you can. * Pick a "good idea to do" and do it 100%. Learn from the process and see what worked and what didn't. Throw out what didn't and keep doing more of what did. Overwhelmed again? Repeat the process. #overwhelm #overwhelmed❤️ #doyoufeeloverwhelmed #procastinator #procastinationproblems #feelingoverwhelmed #getupandgoplan #transformationlifecoach #mindsetiskey🔑 #retrainyourbrainforchange #organiseyourthoughts #organiseyourtime #organiseyourmind #mentalhealth #mentalhealthmatters #wellbeingtips #betterwellbeing #controlanxiety #anxietycontrol #chronicillnessproblems #takingcontrolofmyhealth #fibromyalgiastrong #edswarrior #paceyourself #manageyourtime #manageyourpainbetter #manageoverwhelm #manageyourmindset #whatsimortanttoyou #timemanagementtips https://www.instagram.com/p/CCLfqdgFGu7/?igshid=14x3t2rj2o042

[piranha--plant]

Mr Magoo the therapy dog came to visit today and was a very good boy. #chronicillnessproblems #hungarianpuli #puppyparty

[arvoguard]

I see the posts of the young people in their activities, and wish I had done things differently when I was fit. While my life would have been completely different from now, that's just the problem. Would I have met the people I know now? Would I know the true friends who have stuck with me thru the pain? Would I still have the same talents developed? Would I have been able to live in Australia? Just like pulling loose thread on a Tapestry, I could wind up unraveling my entire life as I know it... Including the very good parts. Contentment. Yes. Its always needed. ➖➖➖ . Credit to from @fibro.and.a.s_awareness (@get_regrann) - Definitely trapped in a broken body. #fibro #fibrowarrior #fibromyalgia #fibroawareness #fibrofog #fibromyalgiaawareness #autoimmune #arthritis #chronicillness #chronicillnessproblems #chronicillnesswarrior #chronicillnessawareness #chronicpain #chronicfatigue #invisibleillness #invisibleillnessawareness #spreadawareness #spoonie #brainfog #fatigue - #regrann (at Dandenong, Victoria) https://www.instagram.com/p/B12yA8WA6IC/?igshid=106lo9b9xm9vy

[poshnotions]

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A post shared by Bonnie Rose The 'A' Coach (@poshnotions)

I have coaches and mentors too! Four years ago, I dropped a lot of people who were supporting me in the wrong things. I wasn't getting anywhere. Now, I have support people online but not in person but I'm still getting issues with asking for help because I'm getting restricted at home. When I ask external people, I get responses but there's no follow-through. If you're experiencing the same, watch this 5-minute coaching session with @Davidmeltzer to know how to attract a real support system. #beunbreakable #beunbreakablebefearless #storyofmylife😂 #storytimes #overcomers #ecommercelife #ecommerceentrepreneur #documentingmyjourney #documentingmyjourney #amazingjourney #covidcreative #makerscollective #markersmarketfromhome #makersgonnamake #overcomingadversity #chronicillnesslife #chronicillnesses #chronicillnessfighter #chronicillnessfightersurvivor #chronicillnesssucks #chronicillnessproblems #poshnotions #crafterlife #crafterslife #crafterslifebelike #clevercrafters #sewersofinstagram #sewersofinstagram #sewsewsew #PoshNotions https://www.instagram.com/p/CTbJ1U8D2ZO/?utm_medium=tumblr

[1eightpromoteam-blog]

#superwoman I HAVE NO CAPE BUT I GET IT DONE 💪🏽🙌🏾‼️ Repost from @fibro_spoonie_ using @RepostRegramApp - And Superman also. #fibro #fibrowarrior #fibromyalgia #fibroawareness #fibrofog #fibromyalgiaawareness #ankylosingspondylitisawareness #autoimmune #arthritis #axialspondyloarthritis #ankylosingspondylitis #costochondritis #chronicillness #chronicillnessproblems #chronicillnesswarrior #chronicillnessawareness #chronicpain #chronicfatigue #invisibleillness #invisibleillnessawareness #spreadawareness #spoonie #brainfog #fatigue https://www.instagram.com/p/BvKyvmIlxK0/?utm_source=ig_tumblr_share&igshid=h35yfpijyj3l