playing a new game where i talk about fandom using words that belong on corporate powerpoint slides like:
✨ we have to align our headcanons to authentically reflect our strategic mission and meet quarterly margin objectives ✨
sorry to everyone who understood that
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Today my therapist introduced me to a concept surrounding disability that she called "hLep".
Which is when you - in this case, you are a disabled person - ask someone for help ("I can't drink almond milk so can you get me some whole milk?", or "Please call Donna and ask her to pick up the car for me."), and they say yes, and then they do something that is not what you asked for but is what they think you should have asked for ("I know you said you wanted whole, but I got you skim milk because it's better for you!", "I didn't want to ruin Donna's day by asking her that, so I spent your money on an expensive towing service!") And then if you get annoyed at them for ignoring what you actually asked for - and often it has already happened repeatedly - they get angry because they "were just helping you! You should be grateful!!"
And my therapist pointed out that this is not "help", it's "hLep".
Sure, it looks like help; it kind of sounds like help too; and if it was adjusted just a little bit, it could be help. But it's not help. It's hLep.
At its best, it is patronizing and makes a person feel unvalued and un-listened-to. Always, it reinforces the false idea that disabled people can't be trusted with our own care. And at its worst, it results in disabled people losing our freedom and control over our lives, and also being unable to actually access what we need to survive.
So please, when a disabled person asks you for help on something, don't be a hLeper, be a helper! In other words: they know better than you what they need, and the best way you can honor the trust they've put in you is to believe that!
Also, I want to be very clear that the "getting angry at a disabled person's attempts to point out harmful behavior" part of this makes the whole thing WAY worse. Like it'd be one thing if my roommate bought me some passive-aggressive skim milk, but then they heard what I had to say, and they apologized and did better in the future - our relationship could bounce back from that. But it is very much another thing to have a crying shouting match with someone who is furious at you for saying something they did was ableist. Like, Christ, Jessica, remind me to never ask for your support ever again! You make me feel like if I asked you to call 911, you'd order a pizza because you know I'll feel better once I eat something!!
Edit: crediting my therapist by name with her permission - this term was coined by Nahime Aguirre Mtanous!
Edit again: I made an optional follow-up to this post after seeing the responses. Might help somebody. CW for me frankly talking about how dangerous hLep really is.
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the thing about art is that it was always supposed to be about us, about the human-ness of us, the impossible and beautiful reality that we (for centuries) have stood still, transfixed by music. that we can close our eyes and cry about the same book passage; the events of which aren't real and never happened. theatre in shakespeare's time was as real as it is now; we all laugh at the same cue (pursued by bear), separated hundreds of years apart.
three years ago my housemates were jamming outdoors, just messing around with their instruments, mostly just making noise. our neighbors - shy, cautious, a little sheepish - sat down and started playing. i don't really know how it happened; i was somehow in charge of dancing, barefoot and laughing - but i looked up, and our yard was full of people. kids stacked on the shoulders of parents. old couples holding hands. someone had brought sidewalk chalk; our front walk became a riot of color. someone ran in with a flute and played the most astounding solo i've ever heard in my life, upright and wiggling, skipping as she did so. she only paused because the violin player was kicking his heels up and she was laughing too hard to continue.
two weeks ago my friend and i met in the basement of her apartment complex so she could work out a piece of choreography. we have a language barrier - i'm not as good at ASL as i'd like to be (i'm still learning!) so we communicate mostly through the notes app and this strange secret language of dancers - we have the same movement vocabulary. the two of us cracking jokes at each other, giggling. there were kids in the basement too, who had been playing soccer until we took up the far corner of the room. one by one they made their slow way over like feral cats - they laid down, belly-flat against the floor, just watching. my friend and i were not in tutus - we were in slouchy shirts and leggings and socks. nothing fancy. but when i asked the kids would you like to dance too? they were immediately on their feet and spinning. i love when people dance with abandon, the wild and leggy fervor of childhood. i think it is gorgeous.
their adults showed up eventually, and a few of them said hey, let's not bother the nice ladies. but they weren't bothering us, they were just having fun - so. a few of the adults started dancing awkwardly along, and then most of the adults. someone brought down a better sound system. someone opened a watermelon and started handing out slices. it was 8 PM on a tuesday and nothing about that day was particularly special; we might as well party.
one time i hosted a free "paint along party" and about 20 adults worked quietly while i taught them how to paint nessie. one time i taught community dance classes and so many people showed up we had to move the whole thing outside. we used chairs and coatracks to balance. one time i showed up to a random band playing in a random location, and the whole thing got packed so quickly we had to open every door and window in the place.
i don't think i can tell you how much people want to be making art and engaging with art. they want to, desperately. so many people would be stunning artists, but they are lied to and told from a very young age that art only matters if it is planned, purposeful, beautiful. that if you have an idea, you need to be able to express it perfectly. this is not true. you don't get only 1 chance to communicate. you can spend a lifetime trying to display exactly 1 thing you can never quite language. you can just express the "!!??!!!"-ing-ness of being alive; that is something none of us really have a full grasp on creating. and even when we can't make what we want - god, it feels fucking good to try. and even just enjoying other artists - art inherently rewards the act of participating.
i wasn't raised wealthy. whenever i make a post about art, someone inevitably says something along the lines of well some of us aren't that lucky. i am not lucky; i am dedicated. i have a chronic condition, my hands are constantly in pain. i am not neurotypical, nor was i raised safe. i worked 5-7 jobs while some of these memories happened. i chose art because it mattered to me more than anything on this fucking planet - i would work 80 hours a week just so i could afford to write in 3 of them.
and i am still telling you - if you are called to make art, you are called to the part of you that is human. you do not have to be good at it. you do not have to have enormous amounts of privilege. you can just... give yourself permission. you can just say i'm going to make something now and then - go out and make it. raquel it won't be good though that is okay, i don't make good things every time either. besides. who decides what good even is?
you weren't called to make something because you wanted it to be good, you were called to make something because it is a basic instinct. you were taught to judge its worth and over-value perfection. you are doing something impossible. a god's ability: from nothing springs creation.
a few months ago i found a piece of sidewalk chalk and started drawing. within an hour i had somehow collected a small classroom of young children. their adults often brought their own chalk. i looked up and about fifteen families had joined me from around the block. we drew scrangly unicorns and messed up flowers and one girl asked me to draw charizard. i am not good at drawing. i basically drew an orb with wings. you would have thought i drew her the mona lisa. she dragged her mother over and pointed and said look! look what she drew for me and, in the moment, i admit i flinched (sorry, i don't -). but the mother just grinned at me. he's beautiful. and then she sat down and started drawing.
someone took a picture of it. it was in the local newspaper. the summary underneath said joyful and spontaneous artwork from local artists springs up in public gallery. in the picture, a little girl covered in chalk dust has her head thrown back, delighted. laughing.
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going through my old journals as part of therapy homework and i'm reading a section written in the emotional wreckage of a full-on breakdown when i get hit with this line:
There is never a satisfying answer to ‘Why didn’t they love me?’
like wow babe. good fucking point
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off your feet
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soon it'll be dawn again
transcript under the cut ⏬
page 01
Fig: no way? - you're still up?
Riz: Wh– yes?
Riz: Why'd I not be.
page 02
Fig: I me~~ean - that took.
Fig: whole day.
Riz: Yeah?
Fig: 'm beat.
Riz: you should sleep.
page 03
Fig: nah. my guy's still up
Fig: I wanna hang out.
page 04
Riz: That's really nice.
Fig: Hah! - Nobody ever expects an Archdevil rockstar to be nice.
Riz: … yeah. - 's just budget work tho. (the stuff I'm working on) - I've heard it's boring.
page 05
Fig: yeah, but you do it…
Riz: It keeps things going, right? - Nothing happens if nobody sits down and - does the thing.
Fig: That's right… - though. Yeah.
page 06
Fig: sometimes it's someone else who - doesn't want the same thing to happen.
Riz: … - mm.
page 07
Riz (off screen): …It took me a long time to get that not everyone likes doing what I do. - 's probably because you guys are so nice– - or. - kind.
Riz (off screen): to anyone too, not just. - the people you /love/.
page 08
Riz: that's not how it is elsewhere. - The world's– not. hostile. - but 's not like it's kind.
Riz: So I'm doing as much as I can now…
page 09
Fig: Hey.
Riz: ?
Fig: Go dig some dirt with me.
page 10
Riz: [blank speech bubble] - oh you meant like - actual dirt. (not incriminating information)
Fig: o yea.
Fig: there's clay in the backyard soil. - sometimes when I'm sun deficient or something I go touch dirt for a bit.
page 11
Fig: here u go
page 12
Riz: uh
Fig: now we make a thing! - 'm pretty good at freehanding a bowl.
Fig: I'll show u
page 13
Fig: just– yep, flatten that out as evenly as u can, then–! - actually ur nails'd be so good at cutting out the strip. [larger than usual space] wait. - wait. wait u can carve patterns with them! we HAVE to try
Riz: uh - What. do I carve?
Fig: anything!!!
page 14
Fig: and– yep just seal the inside uh. seam?
Fig: yep that works - okay time's up! all contestant hands up
Riz: [blank speech bubble] - okay - wh. what's next?
Fig: haha - watch this.
(sound effect text): FWOO—MP
page 15
Riz: WH– DON'T JUST DO THAT???
Fig: Now it's fired!
Riz: THAT WAS NOT SAFE
Fig: (actually it's just dry. if u add water rn it'll dissolve)
Fig: ok catch!
Riz: [blank speech bubble] - careful!!
Fig: dw no need haha
page 16
Riz (thought bubble): oh - it's warm…
Fig: now I want you to throw this.
page 17
Fig: u gotta do it - c'mon
page 18
Riz: wh– - It's like 3AM right now
Fig: oh it's not /fired/ fired it's not gonna make a loud noise
Riz: And then just? leave a pile out here?
Fig: pour water over it & it'll be gone I told u
Riz: but
page 19
Fig (off screen): RIz.
page 20
Fig: I've done all this before.
Fig: Can you trust that at least?
page 21
Riz: no, I– - I do. - I trust you.
page 23
Riz: okay what happens now
(sound effect text): glob
page 24
Fig: we do it again!
page 25
Riz: wh. [larger than usual space] What do you mean. (this clay's too wet also)
Fig: see! you're already learning
Fig: [blank speech bubble] - there are flows that are futile to fight. - The world changes.
Fig: Things change.
page 26
Fig: I've learned my lessons with "forevers". - But - as an artist
Fig: I can give you one thing: - You can always do it again.
page 27
Fig: most of everything depends on the rest of the world, - but this. - making new. - that's yours as long as you want it.
page 28
Fig: So?
page 29
Riz: Yeah. - Yeah! - let's make another one.
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these fuckass robots that I hate /aff (Ultrakill x PHIGHTING!)
the girls are PHIGHTING! again
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I'm a doctor, not a miracle worker.
[First] Prev <–-> Next
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wrestling to be the first to greet you (they broke into your house)
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Being a creative with adhd is so weird because you want to make things so badly but your brain is just refusing to, so you’re just stuck there replaying the exact scene or piece of dialogue or drawing or cinematic shot in your mind while not actually being able to do anything. But at the same time the adhd is actively giving you unique creative experiences and ideas and it feels like a fundamental part of you as an artist. It’s such an interesting dichotomy of feeling the thing that you want to make so strongly and wanting nothing more than to just pour it all out but also being completely unable to do it, and that coming from the same source. But then also you have to live through said dichotomy and it just becomes completely and overwhelmingly exhausting.
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traveller tips! you can drink from any standing body of water. it's fine.
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even 2 years ago people still said autism with a whisper. it was also how people sometimes whisper lesbian, like they're afraid of uttering a slur. autistic was either an insult or it was something terrible, a horrible burden only select people endure. "select people" were usually 9 year old boys and skinny white men.
they are not hispanic young adults with a dog and a life and friends. i can make (sustained, calculated, painful) eye contact. with certain people, i don't even have to count how many seconds i am holding their vision - i can just look at them. i can wear clothes that bother me, i will just have a worse day than usual. i might cry about any changes to my schedule - but change is scary! this is normal!
when i was 16 it was OCD. i mean that was the thing everyone said. i totally have ocd. they would arrange 6 colors of gel pen in rainbow order (no worry for indigo feeling left out) and they'd be "so ocd" about it.
if you struggle with intrusive thoughts, be careful at this next paragraph, but. at 16 i developed a compulsion that involved self-harm. my ocd was convinced i was simply forgetting that i'd hurt someone terribly - a thought that persisted for no clear or delineated reason.
at some point i will probably write about how the idea of "morally pure thoughts" was hell for me and others with ocd, but this was the odd dichotomy for many of us: they liked our "aesthetic", but were genuinely repulsed by our lived experience. "intrusive thoughts" now means "cutting your hair in the sink" instead of talking yourself down from believing horrible things. "so ocd" is a label without any true understanding.
it's something i've talked about before - in multiplicity - but i firmly believe in the veracity and necessity of self-diagnosis. i think it saves lives and it saves tragedies from occurring. as someone raised in a house that wasn't safe, self-diagnosis was, for many years, the only viable option. 15 and honestly googling: am i depressed or there demons affecting my behavior.
but it is not genuine self-diagnosis anymore, most of the time. it is a strange, blanched version of that whispered word autism. now certain traits are constantly seen as "autistic" - any passing intense interest. any flubbed social interaction. people say it while laughing - a touch of the 'tism.
and i like the acceptance! i do. i like that people are talking about it. i like that if i self-identify, more people speak up and say me too, bitch. but there is something-else quietly happening, the way it happened to OCD. the quirky, "fun" parts have been washed and sanitized and removed of all suffering. now it is just something that makes you "a little bit silly."
it took me 27 years on this planet before i learned to make friends. something about me just seems incredibly odd, i guess, some kind of radiation monitoring. someone once (in a way that was almost friendly) told me i am doing the right things, but in a way that's off-putting. i have scoured myself raw attempting to be charming.
someone on tiktok does a deep dive into their particular passion. the top comment says "what kind of autism is this lol". like we are a breed of animal. like it has no influence on our experience. like our life is a fresh breeze, an open meadow.
more often for me, life was a drowning.
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kacchan telling izuku that his body moved on his own is fucking crazy. like not only did kacchan remember izuku saying that all the way back from the sludge-villain incident but he’s also confirming that izuku’s crazy, boarder-line suicidal intensity is a two way street. it’s not just izuku who is insane about kacchan it’s mutual insanity. kacchan’s body moved on its own. he was helpless but to throw himself into the line of fire when he saw izuku was in danger. he didn’t think about it. he didn’t choose to do it. he didn’t have a choice. it was as if izuku was a piece of his own soul. katsuki instinctually needed to protect him above all else, even at the cost of his own life
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Transitional phase
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