Some chara design work for our three weeks animation project: "Circus Tristus" (a 15 seconds video featuring Bozo the clown and Madame Yrma the characters I created)
Hopefully I'll manage to post the video as well
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probably time for this story i guess but when i was a kid there was a summer that my brother was really into making smoothies and milkshakes. part of this was that we didn't have AC and couldn't afford to run fans all day so it was kind of important to get good at making Cool Down Concoctions.
we also had a patch of mint, and he had two impressionable little sisters who had the attitude of "fuck it, might as well."
at one point, for fun, this 16 year old boy with a dream in his eye and scientific fervor in heart just wanted to see how far one could push the idea of "vanilla mint smoothie". how much vanilla extract and how much mint can go into a blender before it truly is inedible.
the answer is 3 cups of vanilla extract, 1/2 cup milk alternative, and about 50 sprigs (not leaves, whole spring) of mint. add ice and the courage of a child. idk, it was summer and we were bored.
the word i would use to describe the feeling of drinking it would maybe be "violent" or perhaps, like. "triangular." my nose felt pristine. inhaling following the first sip was like trying to sculpt a new face. i was ensconced in a mesh of horror. it was something beyond taste. for years after, i assumed those commercials that said "this is how it feels to chew five gum" were referencing the exact experience of this singular viscous smoothie.
what's worse is that we knew our mother would hate that we wasted so much vanilla extract. so we had to make it worth it. we had to actually finish the drink. it wasn't "wasting" it if we actually drank it, right? we huddled around outside in the blistering sun, gagging and passing around a single green potion, shivering with disgust. each sip was transcendent, but in a sort of non-euclidean way. i think this is where i lost my binary gender. it eroded certain parts of me in an acidic gut ecology collapse.
here's the thing about love and trust: the next day my brother made a different shake, and i drank it without complaint. it's been like 15 years. he's now a genuinely skilled cook. sometimes one of the three of us will fuck up in the kitchen or find something horrible or make a terrible smoothie mistake and then we pass it to each other, single potion bottle, and we say try it it's delicious. it always smells disgusting. and then, cerimonious, we drink it together. because that's what family does.
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Today my therapist introduced me to a concept surrounding disability that she called "hLep".
Which is when you - in this case, you are a disabled person - ask someone for help ("I can't drink almond milk so can you get me some whole milk?", or "Please call Donna and ask her to pick up the car for me."), and they say yes, and then they do something that is not what you asked for but is what they think you should have asked for ("I know you said you wanted whole, but I got you skim milk because it's better for you!", "I didn't want to ruin Donna's day by asking her that, so I spent your money on an expensive towing service!") And then if you get annoyed at them for ignoring what you actually asked for - and often it has already happened repeatedly - they get angry because they "were just helping you! You should be grateful!!"
And my therapist pointed out that this is not "help", it's "hLep".
Sure, it looks like help; it kind of sounds like help too; and if it was adjusted just a little bit, it could be help. But it's not help. It's hLep.
At its best, it is patronizing and makes a person feel unvalued and un-listened-to. Always, it reinforces the false idea that disabled people can't be trusted with our own care. And at its worst, it results in disabled people losing our freedom and control over our lives, and also being unable to actually access what we need to survive.
So please, when a disabled person asks you for help on something, don't be a hLeper, be a helper! In other words: they know better than you what they need, and the best way you can honor the trust they've put in you is to believe that!
Also, I want to be very clear that the "getting angry at a disabled person's attempts to point out harmful behavior" part of this makes the whole thing WAY worse. Like it'd be one thing if my roommate bought me some passive-aggressive skim milk, but then they heard what I had to say, and they apologized and did better in the future - our relationship could bounce back from that. But it is very much another thing to have a crying shouting match with someone who is furious at you for saying something they did was ableist. Like, Christ, Jessica, remind me to never ask for your support ever again! You make me feel like if I asked you to call 911, you'd order a pizza because you know I'll feel better once I eat something!!
Edit: crediting my therapist by name with her permission - this term was coined by Nahime Aguirre Mtanous!
Edit again: I made an optional follow-up to this post after seeing the responses. Might help somebody. CW for me frankly talking about how dangerous hLep really is.
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in internet posts it is easy to cut them out of your life. they are hurting you! they aren't listening to you!
they held your hair back. they lent you lipstick. they held your hand at the train station and got you home safe. they rounded on your bully, got loud, said get fucked, spitting-mad in your defense.
they also cut the hair off again. told you that you should really think twice before wearing something like that. took you for granted. took your insecurities and threw them in your face again.
you know logically it should be easy. all the internet advice comments always read it will feel better. like an equation - if a person is rotten, you just remove them. you pull the tooth that's hurting.
but it was never a big flare-up moment. you don't live in a sitcom. they never tried to take your boyfriend or steal from your apartment. they showed up to birthdays and they wrote songs about you and bring you water without you asking. once you found out they carry an emergency inhaler for you, even though you haven't had an asthma attack in years - just in case.
where is the line? people fuck up. sometimes they fuck up badly. sometimes people have raw personalities, like a powerline, and being around them is dangerous. addicting. sometimes they can't help themselves, but you know they're trying. sometimes they are just rough-around-the-edges. sometimes they don't even realize how they sounded when they said that. sometimes it's just - you've both loved each other for so long now, the way this thing hurts goes back to the root.
and that's the fucked up part. you have pushed your fingers against the sweetheart of memory. things these days are electric, tense, harrowing. they didn't used to be. there were a lot of good days in there. sometimes you want to just close your eyes and say can this be over yet? do we still need to be fighting?
doing that would give up any chance you get of getting an apology, but you don't always know that you need an apology, you love them. once they flaked on your birthday party. once they told you to get over it, people are always dying. they also let you crash on their couch for a week after the breakup, handfeeding you when you were so sad you couldn't eat. they are also judgmental about everything, occasionally react to banal statements with an attitude that is weird and fiery. they also love you like a lighthouse sometimes, so strong they cut the storm like lightning.
but the problem is that you might be storm. you might be the thing that needs breaking. what if you are two forces who are desperately, horribly drawn to each other, shaped by the other person's passions, and both good for each other and bad in equal measure.
what if you're both just people, and you're no saint neither.
just cut them off! swallowing the saltwater, you catch yourself in the mirror. you've been shaking more than usual. there's an ache in you that is oblique, loud, impossible to soothe. is this what it looks like? when life is "easier"?
your mouth will always have a hole, is the thing, if you remove the tooth.
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