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#ms flare up
kindajd · 1 year
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adamslilith · 1 year
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As part of my art project A Thousand Faces I painted another invisible Multiple Sclerosis symptom, and it actually was the first symptom of my 2nd flare up; pins and needles. This is Beatrice, my personification of this abnormal sensation of the skin:
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Created to raise awareness and spread knowledge of the chronic and invisible illness Multiple Sclerosis.
Watch the video to learn more about this :)
And please click some buttons to support me on my mission to show the world what MS really feels like!! 🧡 🥰 
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tangerineseed · 5 months
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ef-1 · 4 months
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girlhood
#i have to fly out to capetown to see mother and im literally debating if i could land in the morning and leave at night on the same day#like. anything longer than that is going to ruin my year.#when she called and did her “katherine. you have to be here on the 10th” i literally sobbed in my bed for the rest of the day 😍😍😍#not dyeing my hair black for a year and its getting lighter and lighter everyday and i look like her again#and my therapist telling me “you need to do things for yourself.” but like can i? sorry that woman traumatised me and i actually cant :)#like everything i do is informed by her#I'm going to go and just like everytime the only way to keep my sanity is to mirror her. talk and sit and speak and read and eat like her#and its such a terrifying experience bc i remember that im capable of emulating her viciousness and maybe i am my mother's daugher 🤢🤢🤢#and im going to come back and its going to take fucking months for me to feel like myself again#“oh you look so beautiful just like your mother” i hope you DIE lol !!! the fact that my conception of beauty was shaped by her#growing up with this cruel beautiful detached woman and realising that at the intersection of beauty and wickness is a lifetime of pain#and still being so desperate for her approval- for any metaphysical proximity to her that i felt elated when#people would tell me i look like her. that it meant i was also beautiful like her and maybe she'll love me a little for it#but now i know for a fact that i do look like her and it makes saliva swell under my tongue - that moment right before you throw up-#when people mention it 😍#last time i was in capetown my optic neuritis flared up (and i know for a fact it was that it was ms-stress related from having to see her)#and i thought i hid it so well even though i had near constant headaches & lethargy until she said “katherine give me the red notebook”#and i knew that she knew all along. it was so acutely humiliating standing there and knowing she knows i cant see which one is the red one#and she tilted her head and said “whats the matter? do you not know what red looks like?”#im never going to have kids. my mother and i read eachother so well it can only mean im never too far removed from becoming her#lol!!!!!!!!!
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vergess · 2 months
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I think it's extremely funny that Taylor Swift just beat the gay allegations so completely, and her new song is playing out an intox kink with Florence Welch
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kiwibirb1 · 2 months
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When I was in middle school, we had a fire drill. I was joking with a friend about how lucky I was that during that period I had a class on the first floor, so I wouldn't have to hobble down the stairs, since my knee was particularly bad that day. My teacher overheard and said to us, "Chronic pain is a real thing and I'm sorry you have to deal with that." Me and my friend both nodded, and continued our conversation. That was the first time I heard the phrase "chronic pain". Before that day, I always thought that I just didn't exercise enough, that the pain I felt was my own fault. I never brought it up to any doctors because I thought it was normal, that everyone had days where they couldn't move their body at all without being in extreme pain. I think those words might stick with me for a long time, that reassurance that I had never known I needed.
Chronic pain is a real thing.
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a boye whom'st loves to attack paper balls
#cats#nhgnhmmm.. yommy... paper favorite food#(I do not actually let him eat paper)#ALSO I'm still working on doing the poll adventure thing I've just had a lot going on. as usual. It's actually harder than#I initially thought to regularly find time to do a quick ms paint sketch and a small writing blurb#it's like even though it doesn't take extremely long it's still one of those things that is hard to carve out a little portion of the day#to do if your day is set up in a way not conducive to portion carving#BUT .. at least I have posted many drafts#as usual.. my style of like.. post nothing for 3 weeks then randomly post 25 things at once#NO idea why my brain works that way. it just does. it's easier#even though I know it's worse in terms of like. social media#the algorithms in most places prefer consistent steady uploads over time. not jarringly wavering between absence and hyper presence#then absence again. but .. alas...#Good to clear out a few drafts once in a while anyway. And I do really want to get back to scullptures and costumes. I stopped as much for#a while due to the pandemic (can't go to the bins anymore to get new supplies for costumes and stuff) as well as my worsened#health things/lack of energy and also my chest injury (so repetitive movements with my arms such as sitting in the same#position sculpting for 4 hours or changing clothes multiple times in quick succession etc. could flare it up) but obviously#none of those things are going to get better any time soon. so I should probably just try to do it here and there anyway. It's still not#safe to go to the bins. still having muscle problems. still low energy. But I could make it work maybe. I just feel bad having gotten out#of the habit when it is really fun stuff that I enjoy. Some things just get more difficult for me over time#But even like 3 sculptures and 10 costumes a year is better than 0 of any of those things. So. eh#I'm also just trying to clear out pictures still. My spring cleaning (which I do at the start of every new year instead of actual spring)#was kind of delayed this year due to me feeling sick and everything so even late into april I'm still working on the side at like orgnazing#all of the files on my computer. deleting things and backing up whatever I want to keep. clearing out photos.#editing and drafting (and maybe one day posting) old stuff form a while ago. etc. etc.#So any progress is good progress. I suppose.#ANYWAY.... a son... he gets very excited everytime he hears anyone anywhere crinkle up a piece of paper
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lametree · 4 months
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I wish Steven Universe had been better.. one of the shows I'd have redone if I could
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adamslilith-msart · 1 year
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🧡😍 😍🧡
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kindajd · 2 years
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pbandfluff · 1 year
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being scheduled for an individual training you get no other notification about only to show up and 6 different members of leadership including the department manager are in the teams call is moderately terrifying, but the flipside is i think being trained as the sole duplicates processor as a temp means i'm pretty much guaranteed the job after 90 days, lol
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adamslilith · 1 year
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Happy MS Awareness Month! 🧡
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Is Lady Boss aka Sam actually watching ‘Secret Crush on You’ — in which Becky and Freen were girlfriends in?
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Hi guys I hate to do this but don't have any other options, I would really appreciate any donations.
This is my service dog, Æris.
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I was informed that I had come up on the wait list to receive him with 3 weeks to pick him up (I applied over a year ago and had lost hope I would ever get one). During this time I was barely able to pull together the $ to bring him home (800 out of the 2,500 I have to pay before he is 1yr). Currently I have been suffering an extended flare up due to my health and am unable to work. I am struggling to make rent. I have borrowed $$ to get him the necessities but it is causing me a great deal of stress, which in turn, is making my health worse. Please donate if you can, every cent counts, he will help me immensely and ultimately allow me to have a lot more independence.
My goal is $650, my P** pal is: jadeamxranthine
if you can't donate please reblog.
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I will try to reply to things tomorrow. I was wiped out all last week after work. Partially because I've got a severe iron deficiency and because I was on a third round of antibiotics fighting off the return of upper respiratory infection (yes I have been on antibiotics pretty much constantly for two months). I also fell while walking the dog yesterday so have been just using this weekend to do basically nothing except rehearsal. I'll probably feel better tomorrow though cus I have my chiropractic adjustment.
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