#supportnee

[herewegobebe]

TAEMIN : METAMORPH Behind #3 | Concert Day 1 & 2 - With Minkey💕

[kittiesjournal]

Autism: Support needs, Spiky Profiles and my Experience

I wanted to take the chance to write about the levels of support and spiky profiles that are seen with being Autistic. It is a topic of importance to me as the growth of the Autistic community online increases, and it’s likely there is a percentage who are unaware of these terminologies. It also gives me a chance to share my experience as a medium support needs / Level 2 Autistic individual and to connect with other Autistic people and their experiences. 

First, let's discuss support needs. 

Autistic support needs refer to how much support, assistance and accommodations the individual requires in their day to day life. Currently many places will provide an indicated level of support to an Autistic person when they are diagnosed based on the information discussed in their assessment and Functional Capacity Report. This information will likely include, ability to perform self-care and home care tasks, ability in accessing the community, impacts from the need of routines, repetitive behaviours, sensory profile and special interests, and whether they require the assistance from other people (family, carers ect.)

There are Three Levels of Support, increasing in support needs:

Level 1 Needs Support, Level 2 Needs Substantial Support, Level 3 Needs Very Substantial Support. These are also often referred to Low, Medium, High Support Needs. 

But in continuing this discussion further it is important to specify some myths and facts surrounding these levels.

Every level indicates a need for support. If someone is diagnosed with Level 1, this does not mean they require no support, assistance, accommodations throughout their day. 

Every Autistic person is going to have their own set of support needs and accommodations that work for them and help them thrive as best they can. The aim of these support levels is not in line with the outdated language of functioning levels. There is no need to keep using “High-functioning” and “Low functioning” as they only get placed upon Autistic people based on the neurotypical standard of functioning, they are not indicative of the Autistic person's abilities and needs and no longer represent what we have learnt of the Autistic spectrum. Furthermore, an Autistic support needs are not set in stone, they are likely to change and shift throughout their life, even in a year, month, week depending on what is going on in their life, environment and other variables. Lastly, it's important to highlight the lives of all autistic people at different support levels and with different support needs. With the growing platform for autistic voices, higher support needs individuals may be overshadowed by lower support needs autistics. “Nothing about us, without us.” must include Medium/High support needs autistic people alongside Lower support needs autistic people. 

This can lead into the understanding of ‘Spiky profiles’.

This term refers to the skills and abilities autistic individuals have that may not correlate cohesively or expand into all areas. This is not something that is used officially in diagnosis, in support resources ect. But it has been developed by autistic people to explain that they may have high and well developed skills in a handful of areas while lacking in skills in other areas. For example an Autistic person may be really good with language, writing and literacy but struggle with self-care and require a support worker to help them get ready for the day. This allows us to honour our skills; sharing what we love to do, understanding where we need support, and help feel more positively about our skill set. No matter the level of support an autistic person has, each person has a skills profile that is a representation of themself, and is not something to compare yourself to others with.

Now that I have discussed the topics of Support needs and Spiky Profiles, I'd like to share my honest and real experience and my profile of where I am in my life currently. As I mentioned in the introduction, I have level 2 / medium support needs which was indicated by my diagnosing psychologist. In my understanding, having level 2 support needs feels like being in a middle void between having independence and being dependent, leaving my skills profile very spiky. My support needs expand to a range of areas:

I need prompting to complete self-care and house care tasks, meaning that i shower only a couple times a week, i rarely brush my teeth, i can forget to brush my hair, it takes a lot of energy to perform these tasks especially if i were to try to do them everyday. Furthermore, I need to be prompted to complete house chores fully and there are some chores I cannot do. This is often because of sensory sensitivities and executive dysfunction as well as pathological demand avoidance. 

I struggle with leaving the house by myself. There are instances where I have been physically able to, but it is dependent on different variables; is it somewhere I have been before with someone else? Do I know the route? Do I have sensory accommodations and comfort/safe items? 

It also takes a huge amount of energy to do so and leads me to be exhausted, needing to rest or I can even become overwhelmed and meltdown / shutdown. Therefore it is in my best interest to have a support person when I leave the house. 

This also expands into being unable to work in a standard job like my neurotypical peers. I have never been able to get a job as even an interview is too much for me. My psychologist indicated that even with support, I would only be able to work at most 10 hours a week. Because of this it is my goal to have a job that is not the standard 9-5 work; An Artist! 

My support needs also include needing support and guidance in social interaction. I have deficits in my social abilities as Autistic people do, leaving me “failing” social situations. My partner will guide and direct conversations in my place when we are together and socialising with other people. Additionally, I have periods of verbal shutdowns where I am unable to speak. I make use of an e-writer to communicate, i also plan to make communication cards and have text to audio AAC app as options. 

The last point i would like to share about my support needs is that i struggle with transitions and autistic inertia, i can often be driven to stay focused on one thing, stuck when it comes to changing or starting tasks, as well as having rigid thinking, being hyper focused on my special interests and overall finding it easier when i have a routine to follow. There are two things that help me when i'm stuck; a support person to guide me into the next task or if i'm alone; music, so there is something that is the same as i change tasks.

My support needs indicate the lower points of my Spiky profile; where my skills aren’t the strongest but I accept that, I accommodate that and then praise my high points.

I am a great learner! I can pick up skills pretty easily especially when they're on the creative side but overall I love learning. I was given the highest award at my high school graduation for Literary Studies, Psychology and Physic! I can draw traditionally, digitally, I can paint and craft, I'm learning to sew and I love to sing and write. I care about people, I'm good at listening and always want to show my love for people. I can cook a pretty good meal or bake yummy sweets most of the time.

Each person has a set of skills that makes them who they are, driven by their passions, interests and what's important to them. Autistic people will struggle in some skill areas, but they are able to balance out when they have the support, assistance and accommodations they need! Autistic people can thrive no matter the support they need. We are disabled but we have strengths too.

Thank you for reading!!

-Kittie

[monriatitans]

How to Explain the Fluidity of Needs Based on Energy Levels

Friday, March 15, 2024

If you would prefer to see this as a document, click here.

How to Explain the Fluidity of Needs Based on Energy Levels

Neurodivergent community, I have figured out a way to explain the fluidity of our needs based on our energy levels. Although, if one thinks about it, it applies to everyone. Imagine everyone has a Stamina/Energy Bar above their heads; we’ll use the color Yellow to represent the stamina available, and Grey to represent the stamina used. And every task, every action, has a set amount, a number, assigned to it. Now imagine every time someone picks up their bag, turns their head, moves in any way, speaks, does ANYTHING, the yellow area either steadily shrinks, or drops all at once to a specific point, while the rest of the bar it is greyed out. Now imagine when someone eats, drinks, sleeps, relaxes, RESTS, the yellow area of the bar steadily increases over time, shrinking the grey area. But what happens if we use all our energy during the day? Or go into the negative? If we don’t recoup stamina/energy throughout the day and while sleeping, then our Stamina Bar, going into the next day, is mostly greyed out. If there’s any yellow at all. We could have pushed the grey area past 0, into the negative. Now, because we’re either running on empty, or borrowing from tomorrow, tasks we could easily do yesterday cannot be done today, or they’re done “half-assed”, because we don’t have the Stamina to do them “properly”. We’d need more REST to replenish our stamina. We’d either need to INCREASE the size of the yellow area of the Stamina Bar and/or DECREASE the size of the grey area to bring us above 0. If we borrow too much of tomorrow, if we extend the grey area of the Stamina Bar too far past 0, it WILL cause burn out. AND irreparable damage if done too often and/or if we’re burnt out, in the negative, past 0, for too long.

View the rest on O&T

[teamlifebalance]

What Happens If You Want to Change Your NDIS Plan Midway?

The National Disability Insurance Scheme (NDIS) is designed to be flexible, but what happens if your needs change before your plan ends? If you find that your current NDIS plan no longer meets your needs, you may be able to request a plan change. Understanding the process and how plan management can help is essential for a smooth transition.

When Can You Request a Change to Your NDIS Plan?

You may want to change your NDIS plan midway for several reasons:

Changes in Your Support Needs: If your condition improves or worsens, you might need different types of support.

New Goals or Priorities: You may want to adjust your plan to better align with your personal and developmental goals.

Problems with Current Supports: If your current providers are not meeting your needs, you may wish to explore other options.

Unspent or Insufficient Funds: If you are not using your funding effectively or running out of funds too soon, adjustments may be needed.

Steps to Changing Your NDIS Plan

Contact the NDIS: You can request a plan review by calling the NDIS or speaking to your Local Area Coordinator (LAC) or Support Coordinator.

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[antonsautismlife]

Can you explain the differences between low-functioning and high-functioning autism? I'd really like to know the differences and how to tell which one I have.

I don't use the functioning labels, and I also don't know the definition of them, but I think you probably mean the support needs label.

At first, the support needs label don't have official definitions. They have a few unofficial definitions that are similar but not exactly the same. I use the most common definition.

Which support needs labels do exist, and what do they mean?

LSN (low supportneeds)

A person with low support needs needs "only" help with a few to all IADLs

LSN to MSN (low to moderate / medium supportneeds)

A person with low to moderate support needs needs help with some to all IADLs and minimal help with ADLs like reminders

MSN (moderate / medium supportneeds)

A person with moderate support needs needs help with some to all IADLs and some ADLs.

MSN to HSN (moderate / medium to high supportneeds)

A person with moderate to high support needs needs help with most to all IADLs and most ADLs

HSN (high supportneeds)

A person with high support needs needs help with all IADLs and all ADLs

What are IADLs and ADLs ?

ADLs List

- personal hygiene (a person's ability to take a shower or a bath, to brush their teeth and groom their nails)

- dressing (a person's ability to put their clothes on and choose the right clothes)

- transfer (a person's ability to come in and out of their bed or a chair)

- mobility (a person's a ability to walk or use a wheelchair)

- toileting (a person's ability to get to the toilet , use it, clean themselves after and control their bladder and bowel function)

- eating and drinking (a person's ability to eat and drink by themselves not prepairing food)

IADLs List

- food preparation (a person's ability to cook, make breakfast or dinner, cut fruits , clean up after making meals , and using the microwave)

- managing medications

(A person's ability to get their medicine and take the correct dose at the correct time)

- Shopping (a person's ability to shop for necessities like groceries)

- Communication with others (A person's ability to use a telephone , make appointments, use the internet and write emails or mails)

- managing finances (A person's ability to handle their money including monitoring their income and expenses and paying bills)

- housekeeping (A person's ability to clean their home and wash their dishes)

- Transportation ( a person's ability to either drive a car arrange for transportation or using public transportation)

- Laundry (a person's ability to wash and dry their clothes)

Additional information

What does needing help mean in context of supportneeds mean?

A person needs help with an ADL or IADL if they can't do it at all or can't do it often enough to stay physically healthy and safe.

Can the support needs label vary from day to day ?

The support needs of an autistic person can very from day to day but the support needs label can't vary from day to day because it's long-term. The support needs label can change but only over months or years. If the support needs vary from day to day the person has the label which fits ob most days.

I have other conditions too and they affect my support needs. Should I separate the support needs I have because of my conditions from the support needs I have because autism?

No you shouldn't. The support needs labels should represent all support needs of an autistic person not only the support needs the person has because of autism.

Can autism really affect a person's ability to walk?

Yes it can some autistics have extreme motor issue and can't walk unassisted. Additional many higher support needs autistics have other conditions too but not all some have "only" autism.

Are there also other definitions of the support needs label?

As I said, there are multiple similar but not exactly the same unofficial definitions. For example, some definitions see needing help with all IADLs as MSN. I personally find that definition better, too, but in general, I don't really know something about other definitions than the most common definition so I can not really talk about other definitions.

What does higher support needs mean ?

With higher support needs, autistics are mostly autistic people with MSN , MSN to HSN, and HSN meant. With lower support needs autistics are mostly autistic people with LSN and LSN to MSN meant.

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[herewegobebe]

2024 KEYLAND ON : AND ON Concert Behind | Taeminkey 💕

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[teamlifebalance]

Adapting to Changes in Plan Management Rules Under the NDIS

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[antonsautismlife]

Me tooooo 🧩

I can't live on my own 1️⃣❌️

I live in a carehome, and here are caretakers 🏠👩‍⚕️

I can't care for myself 🚿❌️

I'm a "weird" autistic person 🤪🧩 /joke

shout out to autistic people who can’t live alone due to their autism. shout out to autistic people who need to live with caregivers. shout out to autistic people who need aac devices. shout out to autistic people who can’t take care of themselves. shout out to “weird” autistic people.

[autism-actually]

Our latest meme explores a personal experience of Autistic burnout, and why mental health and wellbeing is important. [Text reads: Autism Actually. Autistic burnout is my body's way of restarting my system. It reminds me to unmask, and put my wellbieng and support needs at the forefront. Shadia Hancock. Copyright Autism Actually, 2020.] [Image description: Humanoid mesh figure sitting on a mountain with their head in their hands]. #Autism #Neurodiversity #ActuallyAutistic #Wellbeing #MentalHealth #Burnout #AutisticBurnout #Masking #SupportNeeds #AutismActually https://www.instagram.com/p/B_3bZbmB6N1/?igshid=11qotozzdeibd

[ikjun]

minho saying he has no distinct future activities and kibum and jinki saying they want to hear about anything he so much as signed a contract with even if it’s just an ad 🥹

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[antonsautismlife]

Until I was 15, I didn't realize how severely disabled I was. With 15, I realized it slowly. With 15 and 16, I often was sad that I can’t live a normal life. People tried to help me with saying that I will be able to live a normal life later in life but it wasn't helpful and lead me to forcing me to be more independent which caused bad mental health and violent meltdowns. At the special workplace / day center I especially cried when I already had the thoughts and I saw a specific caretaker. He is only 6 years older than me. He was born in 2001 and I in 2007. He is a cool young man. I see me without my disability in him.

A few months before my 17th birthday, I started focusing on my disability. My disability became a really big part of my personality and identity. Often, my identity only consists of my gender identity (transboy) and my disability. It had many positive aspects like that. I'm nearly never sad that I can’t live a normal life. I hate the suffering in moments I suffer, and I'm scared of suffering, but my disability also gives me joy. (I already made a post about it today) Autism is definitely a severe disability for me but it also has positive sides for me. Some people would say that makimh my disability nearly my whole personality isn't good but for me it has many positive aspects but it's true that it also has bad aspects like fear of symptom improvement.

The last time was hard due to fear of symptom improvement. I tried to focus on other things to reduce that fear. It caused me to cry because I wanted to be normal in one situation at the special workplace / day center. I saw the young cool caretaker while crying it caused me to cry more and louder, and I felt worse.

That isn't an advice especially not for the person whose post I'm reposting. It's just my story with the topic of wanting to be normal. I didn't forced me to focus on my disability it was somehow an automatic change of my special interest and things I like. I never would advise someone to force themselves to do it.

not single day go by without wish am like peer same age. not single day go by without beg for be at same milestone as same age peers as high school classmates as college classmates see all of them move on with life have job travel date move in marry grad school live independent (share rent w roommate not mean not independent). in high school in college both before become so severely disabled n also after, not realize just how different we are. assume everyone same like me bc not understand otherwise assume what they have am will have what am have they have n then be forcibly hit by truck that we so different we on such fundamentally different paths n it not fair its not its not fair

[antonsautismlife]

I just read your about me post. I'm an adult, but I have all the same conditions as you except the eye condition, and I have some health conditions in addition that lead to full-time wheelchair use and being bedbound about 49% of the time and frequently hospitalized. I also have moderate support needs.

Hi 👋I followed you back

Moderate supportneeds are have a range (The definition is that a person needs help with IADLs and someone with them to do one to some ADLs but in that definition is also a range.) and there are different reasons why a person needs help one reason is that a person can't stand up because of fatigue but there are also a lot reasons where people can stand up but can't do things for other reasons.

I know it's not meant like "You can't have MSN because..." because if you would have meant it that way, you wouldn't have followed me. But I just wanted to explain it for some reason.

All my conditions except of eye nystagmus (autism, adhd , ocd , anxiety disorder and ptsd) are common comorbidities.

A fact because you said you have chronic illnesses. Autistic are more likely to get bodily chronic illnesses in adulthood. Scientists think it's because the daily life of autistics is really stressful, and a lot of stress makes it more likely that a person gets chronically ill. I hope I won't get a chronic illness in my adult like buts it's unfortunately relativly likely that I will get one. ☹️